"Double-Boarder" Triple ?

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Comments

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,818 Member

    tea link

    Thanks for the tea link, GKH. I couldn't  tap it open but will type the link in manually this afternoon.

    The fact that it is from Scotland reminded me of my trips there to Sub Base Dunoon, referred to by all of the Americans as "Holy Loch."  I bought some  fine coffee cups there once, and so loved them that I ordered more online. The company is Dunoon Ceramics, still in business.  All of the cups have British themes. 

     

    http://aboutsubs.com/holy-loch.htm

    http://www.dunoonmugs.co.uk/

    max

    Latest (and Greatest)

     

    I went and did my two-month follow-up with the urological surgeon this morning, in reference to my prostate removal in late January.  I had my PSA blood draw a week ago, and he gave me the results:  "0.0", or "perfect."

    In lymphoma language, this is equivalent to "NED" or "complete remission."  The doctor said that based upon the particulars of my case the odds of me never seeing prostate cancer again now are 90%.

    As I have stated, prostate cancer is totally unlike lymphoma in virtually every way.  For one, CTs and PETs are mostly worthless, and very seldom used.  Neither can usually spot disease, unless it is highly advanced.  The only clinical proof of disease (after removal of the gland) is PSA in the bloodstream.

    Surgical removal for Stage 2 disease is somewhat aggressive/radical, but I was just not in any mood to play with this. There are significant side-effects to surgery that can take years to recover from, but as I have had as a motto for years, I'd rather have side-effects than cancer.

    I am thankful, as you can imagine. "Round 2" is now over.

    max

  • Jeff148
    Jeff148 Member Posts: 184

    Latest (and Greatest)

     

    I went and did my two-month follow-up with the urological surgeon this morning, in reference to my prostate removal in late January.  I had my PSA blood draw a week ago, and he gave me the results:  "0.0", or "perfect."

    In lymphoma language, this is equivalent to "NED" or "complete remission."  The doctor said that based upon the particulars of my case the odds of me never seeing prostate cancer again now are 90%.

    As I have stated, prostate cancer is totally unlike lymphoma in virtually every way.  For one, CTs and PETs are mostly worthless, and very seldom used.  Neither can usually spot disease, unless it is highly advanced.  The only clinical proof of disease (after removal of the gland) is PSA in the bloodstream.

    Surgical removal for Stage 2 disease is somewhat aggressive/radical, but I was just not in any mood to play with this. There are significant side-effects to surgery that can take years to recover from, but as I have had as a motto for years, I'd rather have side-effects than cancer.

    I am thankful, as you can imagine. "Round 2" is now over.

    max

    Made My Day

    Awesome news and an answer to prayer!!! Adding someone to the prayer list is sobering; taking someone off the list is awesome!!!!!

  • Jeff148
    Jeff148 Member Posts: 184

    Latest (and Greatest)

     

    I went and did my two-month follow-up with the urological surgeon this morning, in reference to my prostate removal in late January.  I had my PSA blood draw a week ago, and he gave me the results:  "0.0", or "perfect."

    In lymphoma language, this is equivalent to "NED" or "complete remission."  The doctor said that based upon the particulars of my case the odds of me never seeing prostate cancer again now are 90%.

    As I have stated, prostate cancer is totally unlike lymphoma in virtually every way.  For one, CTs and PETs are mostly worthless, and very seldom used.  Neither can usually spot disease, unless it is highly advanced.  The only clinical proof of disease (after removal of the gland) is PSA in the bloodstream.

    Surgical removal for Stage 2 disease is somewhat aggressive/radical, but I was just not in any mood to play with this. There are significant side-effects to surgery that can take years to recover from, but as I have had as a motto for years, I'd rather have side-effects than cancer.

    I am thankful, as you can imagine. "Round 2" is now over.

    max

    :)

    :)

  • NANCYL1
    NANCYL1 Member Posts: 289

    Latest (and Greatest)

     

    I went and did my two-month follow-up with the urological surgeon this morning, in reference to my prostate removal in late January.  I had my PSA blood draw a week ago, and he gave me the results:  "0.0", or "perfect."

    In lymphoma language, this is equivalent to "NED" or "complete remission."  The doctor said that based upon the particulars of my case the odds of me never seeing prostate cancer again now are 90%.

    As I have stated, prostate cancer is totally unlike lymphoma in virtually every way.  For one, CTs and PETs are mostly worthless, and very seldom used.  Neither can usually spot disease, unless it is highly advanced.  The only clinical proof of disease (after removal of the gland) is PSA in the bloodstream.

    Surgical removal for Stage 2 disease is somewhat aggressive/radical, but I was just not in any mood to play with this. There are significant side-effects to surgery that can take years to recover from, but as I have had as a motto for years, I'd rather have side-effects than cancer.

    I am thankful, as you can imagine. "Round 2" is now over.

    max

    LATEST AND GREATEST

    Max:

    I have not been on lately.  Have been dealing with other medical issues which make me a triple boarder, I guess.  I wrote a note to GG on the board.   Wonder how she is.  Sounded very worried about a spot on her cheek.  She has not posted back.

    Good to hear that you are ok.

    Nancy

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,818 Member
    NANCYL1 said:

    LATEST AND GREATEST

    Max:

    I have not been on lately.  Have been dealing with other medical issues which make me a triple boarder, I guess.  I wrote a note to GG on the board.   Wonder how she is.  Sounded very worried about a spot on her cheek.  She has not posted back.

    Good to hear that you are ok.

    Nancy

    Thanks

    Thanks for mentioning GG, Nancy. I will look at what she wrote; I can't do much internet time on weekends either, working Friday through Monday nights every week.

    Jeff -- Can ya leave me on the list, at least for an occasional prayer ?  It's obviously working well !

     

    max

     

  • Jeff148
    Jeff148 Member Posts: 184

    Thanks

    Thanks for mentioning GG, Nancy. I will look at what she wrote; I can't do much internet time on weekends either, working Friday through Monday nights every week.

    Jeff -- Can ya leave me on the list, at least for an occasional prayer ?  It's obviously working well !

     

    max

     

    Of Course!!

    You are back on :)

  • illead
    illead Member Posts: 884 Member
    Very happy

    We are so happy, that is the greatest news.

    Becky & Bill

  • anliperez915
    anliperez915 Member Posts: 770

    Latest (and Greatest)

     

    I went and did my two-month follow-up with the urological surgeon this morning, in reference to my prostate removal in late January.  I had my PSA blood draw a week ago, and he gave me the results:  "0.0", or "perfect."

    In lymphoma language, this is equivalent to "NED" or "complete remission."  The doctor said that based upon the particulars of my case the odds of me never seeing prostate cancer again now are 90%.

    As I have stated, prostate cancer is totally unlike lymphoma in virtually every way.  For one, CTs and PETs are mostly worthless, and very seldom used.  Neither can usually spot disease, unless it is highly advanced.  The only clinical proof of disease (after removal of the gland) is PSA in the bloodstream.

    Surgical removal for Stage 2 disease is somewhat aggressive/radical, but I was just not in any mood to play with this. There are significant side-effects to surgery that can take years to recover from, but as I have had as a motto for years, I'd rather have side-effects than cancer.

    I am thankful, as you can imagine. "Round 2" is now over.

    max

    Max that's awesome news!
    I'm

    Max that's awesome news!
    I'm really happy that you're ok and you're moving on from this. Take care

    Sincerely,
    Liz
  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,818 Member
    illead said:

    Very happy

    We are so happy, that is the greatest news.

    Becky & Bill

    Krazy !

     

    An article for everyone's "Weird Chemo News" files.  An RN told me once that she knew a patient that chemo cause one eye to change color, but the other remained its original color.  This fingerprint issue may be worse...

     

    http://abcnews.go.com/Health/woman-denied-bank-transaction-chemo-erased-fingerprints/story?id=30498992

     

    .

  • Mary N.
    Mary N. Member Posts: 100

    Krazy !

     

    An article for everyone's "Weird Chemo News" files.  An RN told me once that she knew a patient that chemo cause one eye to change color, but the other remained its original color.  This fingerprint issue may be worse...

     

    http://abcnews.go.com/Health/woman-denied-bank-transaction-chemo-erased-fingerprints/story?id=30498992

     

    .

    So glad you are doing well!

    So glad you are doing well!  You are correct that there certainly side effects from the surgery but much better than the cancer.  Prayers for continued progress!

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,818 Member
    Mary N. said:

    So glad you are doing well!

    So glad you are doing well!  You are correct that there certainly side effects from the surgery but much better than the cancer.  Prayers for continued progress!

    "No tri-peat"

     

    I had what I believe is my last CT for the somewhat suspicious spot inside my lung yesterday. When the pulmonologist spotted it about two years ago during a CT to determne if I had fibrosis, he said that protocol required that it be followed for two years with scans. He said it was not very suspicious, but did warrant following.

    No increase in size at all during thses two years.  He even had his nurse call and tell me about it. How about that 24-hour turnaround ?

    No cancer tri-peats for now; the lymphoma and prostate have been enough.

    Wishing good scan results to all,

    max

  • illead
    illead Member Posts: 884 Member

    "No tri-peat"

     

    I had what I believe is my last CT for the somewhat suspicious spot inside my lung yesterday. When the pulmonologist spotted it about two years ago during a CT to determne if I had fibrosis, he said that protocol required that it be followed for two years with scans. He said it was not very suspicious, but did warrant following.

    No increase in size at all during thses two years.  He even had his nurse call and tell me about it. How about that 24-hour turnaround ?

    No cancer tri-peats for now; the lymphoma and prostate have been enough.

    Wishing good scan results to all,

    max

    What we like to hear

    Congrats Max, a big relief for you and your family.

    Becky

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,818 Member
    illead said:

    What we like to hear

    Congrats Max, a big relief for you and your family.

    Becky

    Thanks

    Thanks, Bill and Becky.

    I had a severe cough for about 15 years (that's right -- years).  Don't know why, but just coughed all the time for over a decade.  Then, on Bleomycin (a chemo drug that is known to often damage the lungs), my lungs got so weak I couldn't talk on the telephone, or at infusion. Many times people tried to speak to me at the infusion center, but I had too little lung power to speak. My wife had to help me to the car....

    Well, now I have not coughed for two months.  No one knows why, but I just lost the cough.

    Most nights, when I head home from work at 3:00 AM, this song is usually on.  The radio play lists are all on DVD; there are no DJs any more.  But this artist is so beautiful, and the song is just about, well, breathing.     "No one can find the rewind button."   What was ever truer than that ? 

    Think about it next time you breathe, folks.   While I breathe, I hope. I love this song !

    max

    https://www.youtube.com/watch?v=M491t7LaRiA

     

    max

  • Rocquie
    Rocquie Member Posts: 869 Member

    Thanks

    Thanks, Bill and Becky.

    I had a severe cough for about 15 years (that's right -- years).  Don't know why, but just coughed all the time for over a decade.  Then, on Bleomycin (a chemo drug that is known to often damage the lungs), my lungs got so weak I couldn't talk on the telephone, or at infusion. Many times people tried to speak to me at the infusion center, but I had too little lung power to speak. My wife had to help me to the car....

    Well, now I have not coughed for two months.  No one knows why, but I just lost the cough.

    Most nights, when I head home from work at 3:00 AM, this song is usually on.  The radio play lists are all on DVD; there are no DJs any more.  But this artist is so beautiful, and the song is just about, well, breathing.     "No one can find the rewind button."   What was ever truer than that ? 

    Think about it next time you breathe, folks.   While I breathe, I hope. I love this song !

    max

    https://www.youtube.com/watch?v=M491t7LaRiA

     

    max

    Breathe

    Max, you are right, this artist is so beautiful and so is the song. I love it too and thank you for posting it.

    Congratulations on the results of your lung scan.

    Rocquie

     

  • illead
    illead Member Posts: 884 Member
    Rocquie said:

    Breathe

    Max, you are right, this artist is so beautiful and so is the song. I love it too and thank you for posting it.

    Congratulations on the results of your lung scan.

    Rocquie

     

    Agree

    That was a nice video.  Wonder if you finally put your cough on paper (like the song).  Man 15 years and now gone.....you must feel like you are a different person.

    Becky

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,818 Member
    illead said:

    Agree

    That was a nice video.  Wonder if you finally put your cough on paper (like the song).  Man 15 years and now gone.....you must feel like you are a different person.

    Becky

    Annual Results

    I'm using this old prostate thread of mine to report on my annual lymphoma labs, the results of which I got yesterday (Tuesday).

    I have been in long-term follow-up at my cancer center for two years or so now. I now get full labs done annually, and then see a wonderful RN and NP who run a center to keep up with folks like myself.

    Everything virtual dead-center normal on the panels (CBC, Sedimentation, LDH).  So, based upon touch exam and these results, "NED."  

    We have had two or three new writers here in the last year asking about NLPHL.  Of the five or so of us with NLPHL who have been "regulars" here over the last several years, I have not heard of any who have relapsed, although three of us have had worrisome results once or twice that had to be investigated, all negative (my scarry result a few years ago involved significant anemia).   I am now 6 years, two months out from diagnosis.  When I got my first biopsy results then, I had not the slightest idea what lymphoma was.

    I give thanks. Blessings and negative test results to all, ragardless of your disease,

    max

    .

  • lindary
    lindary Member Posts: 711 Member

    Annual Results

    I'm using this old prostate thread of mine to report on my annual lymphoma labs, the results of which I got yesterday (Tuesday).

    I have been in long-term follow-up at my cancer center for two years or so now. I now get full labs done annually, and then see a wonderful RN and NP who run a center to keep up with folks like myself.

    Everything virtual dead-center normal on the panels (CBC, Sedimentation, LDH).  So, based upon touch exam and these results, "NED."  

    We have had two or three new writers here in the last year asking about NLPHL.  Of the five or so of us with NLPHL who have been "regulars" here over the last several years, I have not heard of any who have relapsed, although three of us have had worrisome results once or twice that had to be investigated, all negative (my scarry result a few years ago involved significant anemia).   I am now 6 years, two months out from diagnosis.  When I got my first biopsy results then, I had not the slightest idea what lymphoma was.

    I give thanks. Blessings and negative test results to all, ragardless of your disease,

    max

    .

    Good News

    Congratulations on the good results. It is always good to get great news like that. 

    Linda

  • illead
    illead Member Posts: 884 Member
    lindary said:

    Good News

    Congratulations on the good results. It is always good to get great news like that. 

    Linda

    Agreed

    Yes, that is wonderful news Max.  Thank you for sharing.  We put our worries on the back burner, go on with our lives, but it is always there isn't it?  I know what a happy day it is when you get that kind of news.  We are happy too.  Hope we can be happier as we get Bill's 3 month catscan report this afternoon.

    Thinking of our special friend,

    Becky & Bill

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,818 Member
    illead said:

    Agreed

    Yes, that is wonderful news Max.  Thank you for sharing.  We put our worries on the back burner, go on with our lives, but it is always there isn't it?  I know what a happy day it is when you get that kind of news.  We are happy too.  Hope we can be happier as we get Bill's 3 month catscan report this afternoon.

    Thinking of our special friend,

    Becky & Bill

    Surgery

    I find out tomorrow from my general surgeon when I will have an abdominal repair.  My main incision for DaVinci (robotic) removal of the prostate gland back in January started herniating (coming apart) about two months ago.   With robotic, this incision is (oddly enough) located above the naval.  It is now quite unpleasant to deal with, and makes me look like I have increased in waist size by about 4 inches.  My family doc had me push on it last visit, and said, "Feel this? This is pusing the intestines back inside."   AAhh !  The surgery is not dangerous, and may or may not involve mess fabric being inserted.  I should know this tomorrow also.   Curiously, my urological surgeon said that when this rupture occures, he does not work on it; the patient must go to a general surgeon.  

     

    Sadly: You may have read that former Tennessee US Senator Fred Thompson died yesterday of "relapsed lymphoma."  (Nodular marginal zone NHL; a very rare strain.)  He was also a star in the show Law and Order.  

     

    max

  • Simon24
    Simon24 Member Posts: 45
    Your Positive Attitude is Amazing

    We are new to the Lymphoma board and I already know you as someone who is very helpful.  I am sorry to hear you need treatment that sounds pretty uncomfortable and will definitely keep you in my prayers. 

    Simone