PET Results

hwt
hwt Member Posts: 2,328 Member

PET results show no sign of cancer!!!!! Inflammation in cheek from infected titanium still seen. Next PET in 2-3 months. Wonder what BCBS will say to that...... 

Ended up in hospital at Mayo Tuesday night. They thought possibly cellulitus had seeded to blood stream. ER doc said it would be a shame to survive cancer 3 times and then lose my life to an infection. They loaded me up with IV antibiotics. I was able to keep appt. with ENT yesterday. Team decided the titanium link in jaw had to come out. Once metal gets an infection, it will never heal. There was a clinical trial, they have had great success with, which is a regime of meds that I could have tried but it was not permanent solution, they use it when no other options. Had the option of using other fibula and doing entire surgery (19 hours) again but there is a risk flap could fail and I am not as strong as I was 2 1/2 years ago. Bottom line, metal link is coming out, prayers that enough viable bone that they don't need to replace a section with tissue. Looking at a 2 hour surgery and a couple of days stay. ENT said "by all rights, you should be dead". While I didn't like that comment, I do have great faith in the team there. I could have this done here in STL but just feel in better hands there. I so appreciate my brother flying me back and forth and family being with me, I am so blessed in that respect. At the same time, I feel very guilty that they should be out enjoying their lives.  I think we have chosen the right course of action and as my favorite radiologist said, I am lucky the PET was clear and we were able to have a discussion regarding options. Trying to look at the bright side. They do feel speech and eating issues due in part from radiation but in part to swelling from cellulitus that can take months to recover from, so I still hold out hope in those areas.  Sorry for rambling...please keep safe travels for my family and my surgery in your prayers. 

While waiting to see the radiologist, someone rang the bell...made me cry. I think that will always be emotional for me.

 

Comments

  • polystone2014
    polystone2014 Member Posts: 59
    congradulation

    So great to hear negative. Hope everything well with you in future.

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    I think you are NED

    Candi,

    Your ER doctor and ENT have quite a sense of humor, I hope everything plays out in your favor.

    The bright spot is your family, what a bunch of jewels.

    All taken together you sound pretty strong willed  and body sound.  Now knock off these problems one at a time.

    On your mojo team!

    Matt

    bells make feeling people think

  • Laralyn
    Laralyn Member Posts: 532
    Great news! So glad I logged

    Great news! So glad I logged in today and saw it. Congrats!!! :-)

  • Guzzle
    Guzzle Member Posts: 710
    Laralyn said:

    Great news! So glad I logged

    Great news! So glad I logged in today and saw it. Congrats!!! :-)

    Delighted

    For you!

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    WooHoo ~

    Congrats...

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    yep

    yep i agree! 

    Your alive NED!

    congrats!

    prayers continue for all. 

    john 

  • josh r.
    josh r. Member Posts: 264 Member
    NED!

    Hi HWT,

    Two thumbs up! Keep going forward. All the best, josh r.

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    candi, NO signs of

    candi, NO signs of cancer...it don't get any better than that!!  as for your family, don't feel guilty, they are where they WANT to be and doing what they WANT to do with the one they WANT to be with so enjoy your wonderful support system.  i'm doing a VERY VERY HAPPY dance for you and i hope you did one too.  so happy for you and praying for you to have enough good bone when they do the surgery to not need anything more.  you are one STRONG lady!

    God bless you,

    dj

  • donfoo
    donfoo Member Posts: 1,771 Member
    sweet and sour

    Congrats on the clear PET. Sounds like you are still on some rough road so keep marching along as it is serving you well. Good luck with the upcoming appts. don

  • wmc
    wmc Member Posts: 1,804
    That is great news on the PET...

    Great news on the clean PET scan...NED..

    I hope the surgery is smooth and there are no complacations with a swift recovery. Still in our prayers.

    Bill

  • Hondo
    Hondo Member Posts: 6,636 Member
    3X Club

    Great news and happy for you and Mr. NED. Talk about being in the same boat, If you remember about 3 years ago I got a very bad mastoid infection that almost killed me. All my doctors were looking for cancer and somehow overlooked the mastoid infection and by Gods grace while at a chiropractor office he seen it on a report. I wish that I could speak again and swallow like normal people do but that may never happen for me, so I accept my new normal as it is because I know a lot of others who are a lot worse than I am.

    Happy happy for you

    Tim Hondo

  • phrannie51
    phrannie51 Member Posts: 4,716
    First things first....

    Whoo Hoo on no cancer!! 

    I'm glad that you feel so much confidence in your team....praying that they can get this infection taken care of, and you'll start eating again.....

    Your family loves you so much.....cozy into that.....you're still at the top of the "one tough chick" list in my book!

    p

  • hwt
    hwt Member Posts: 2,328 Member

    First things first....

    Whoo Hoo on no cancer!! 

    I'm glad that you feel so much confidence in your team....praying that they can get this infection taken care of, and you'll start eating again.....

    Your family loves you so much.....cozy into that.....you're still at the top of the "one tough chick" list in my book!

    p

    Thank you

    Thank you everyone. I am sad to say that my beloved Mother passed away yesterday. She was one special lady, seven children and she always made each of us feel special, whether a birthday, a dance, a first date it was all about us as individuals.  She was the same with her grandchildren, one said it best "she never judged me, she just loved me." I will miss her terribly. She was so excited to hear my recent NED. Until we meet again, Mom, I love you!

  • hwt
    hwt Member Posts: 2,328 Member

    First things first....

    Whoo Hoo on no cancer!! 

    I'm glad that you feel so much confidence in your team....praying that they can get this infection taken care of, and you'll start eating again.....

    Your family loves you so much.....cozy into that.....you're still at the top of the "one tough chick" list in my book!

    p

    Thank you

    Thank you everyone. I am sad to say that my beloved Mother passed away yesterday. She was one special lady, seven children and she always made each of us feel special, whether a birthday, a dance, a first date it was all about us as individuals.  She was the same with her grandchildren, one said it best "she never judged me, she just loved me." I will miss her terribly. She was so excited to hear my recent NED. Until we meet again, Mom, I love you!

  • Hondo
    Hondo Member Posts: 6,636 Member
    hwt said:

    Thank you

    Thank you everyone. I am sad to say that my beloved Mother passed away yesterday. She was one special lady, seven children and she always made each of us feel special, whether a birthday, a dance, a first date it was all about us as individuals.  She was the same with her grandchildren, one said it best "she never judged me, she just loved me." I will miss her terribly. She was so excited to hear my recent NED. Until we meet again, Mom, I love you!

    Dear Mom

     

     

    Sorry to hear you lost your Mother I know the heart brake when I lost my mother but she is always there in my memories

     

     

    Tim Hondo

  • Kritter
    Kritter Member Posts: 147
    Travels

    Safe travels to you and your family and keep on fighting. So sorry for the loss of your Mom.. sounds like she was a great lady from what you wote. 

  • donfoo
    donfoo Member Posts: 1,771 Member
    hwt said:

    Thank you

    Thank you everyone. I am sad to say that my beloved Mother passed away yesterday. She was one special lady, seven children and she always made each of us feel special, whether a birthday, a dance, a first date it was all about us as individuals.  She was the same with her grandchildren, one said it best "she never judged me, she just loved me." I will miss her terribly. She was so excited to hear my recent NED. Until we meet again, Mom, I love you!

    sorry..

    I am very sorry to hear about your Mom passing on. She gave you a lot to be thankful for and to know how much she loved you unconditionally.

  • Guzzle
    Guzzle Member Posts: 710
    Kritter said:

    Travels

    Safe travels to you and your family and keep on fighting. So sorry for the loss of your Mom.. sounds like she was a great lady from what you wote. 

    Condolences

    from the heart.

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    NO cancer!

    WOOHOO!!  I am beyond happy for you with that news!!  Prayers that the infection gets cleared up and your procedure goes perfectly! 

     

    I am so sorry to hear about your mom.  She had to have been an amazing lady to have raised you to be so awesome!  ((HUGS)) my friend.

  • jim and i
    jim and i Member Posts: 1,788 Member
    Great to hear you had a god

    Great to hear you had a god report but sorry to hear of the major infection. Praying for successful surgery and safe travels.

    Debbie