New Tumour . Oh ***bother!

Phredswife
Phredswife Member Posts: 162

Hi all. Just got back from Mr Phreds Radiation oncology appt . Sadly more bad news. New tumour 4.3 by 4.3 by 4.3cm only 2 months after radical nephrectomy.Growing next to staples. Have to wait another week to see if more surgery is possible or maybe sutent. So sad.  

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Comments

  • aamdsi
    aamdsi Member Posts: 284
    Oh 8-(

    Am so so sorry.  Not sure what else to say.  Sending all good thoughts and prayers.

  • Phredswife
    Phredswife Member Posts: 162
    aamdsi said:

    Oh 8-(

    Am so so sorry.  Not sure what else to say.  Sending all good thoughts and prayers.

    Thankyou we really appreciate

    Thankyou we really appreciate it xox

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    I am sorry for ALL you both

    I am sorry for ALL you both are going through. While it may seem scary right now, hopefully this will prove to become more hopeful with a better outcome~

    Know that you do not walk this journey alone, but we are here along side you.

     

    Hugs, Jan

  • Phredswife
    Phredswife Member Posts: 162
    Jan4you said:

    I am sorry for ALL you both

    I am sorry for ALL you both are going through. While it may seem scary right now, hopefully this will prove to become more hopeful with a better outcome~

    Know that you do not walk this journey alone, but we are here along side you.

     

    Hugs, Jan

    Very grateful for your

    Very grateful for your support. This is very scary and we have felt very alone. Not looking forward to telling our 16yr old daughter the latest news when she comes home from school today but no point trying to hide it she reads us too well now. Hugs xox

  • Djinnie
    Djinnie Member Posts: 945

    Very grateful for your

    Very grateful for your support. This is very scary and we have felt very alone. Not looking forward to telling our 16yr old daughter the latest news when she comes home from school today but no point trying to hide it she reads us too well now. Hugs xox

    Sorry to hear your news!

    Hi,

    I am so sorry to hear this news, I know what an almighty jolt this has given you. Having had my surgery last year; I received similar news a few months later. It certainly leaves you feeling crushed, scared, and in a sort of limbo. The main thing is to have a plan of action that you are comfortable with to focus on. Are you seeing an Oncologist? Try and stay positive and think only of beating this not it beating you! 

    I will be keeping you in my thoughts and prayers!

     

    Djinnie xx

  • Phredswife
    Phredswife Member Posts: 162
    Djinnie said:

    Sorry to hear your news!

    Hi,

    I am so sorry to hear this news, I know what an almighty jolt this has given you. Having had my surgery last year; I received similar news a few months later. It certainly leaves you feeling crushed, scared, and in a sort of limbo. The main thing is to have a plan of action that you are comfortable with to focus on. Are you seeing an Oncologist? Try and stay positive and think only of beating this not it beating you! 

    I will be keeping you in my thoughts and prayers!

     

    Djinnie xx

    Thanks Djinnie. We will be ok

    Thanks Djinnie. We will be ok once we get over the shock. Was just a bit bigger than we expected really. Will be a meeting late next week where they work out whats next .I think we will finally be referred to oncologist for sutent or maybe more surgery if possible. Phred will be having a bone scan too. Hopefully this will jolt hospital into action. Its been 3 weeks since scan so who knows how big the dratted thing is now. Thanks for your prayers. xoxo

  • foxhd
    foxhd Member Posts: 3,181 Member

    Thanks Djinnie. We will be ok

    Thanks Djinnie. We will be ok once we get over the shock. Was just a bit bigger than we expected really. Will be a meeting late next week where they work out whats next .I think we will finally be referred to oncologist for sutent or maybe more surgery if possible. Phred will be having a bone scan too. Hopefully this will jolt hospital into action. Its been 3 weeks since scan so who knows how big the dratted thing is now. Thanks for your prayers. xoxo

    Sounds big

    and fast growing. Unless of course it might be a hematoma they are looking at. Wouldn't that be better?

  • Phredswife
    Phredswife Member Posts: 162
    foxhd said:

    Sounds big

    and fast growing. Unless of course it might be a hematoma they are looking at. Wouldn't that be better?

    Hope its not really a tumour!

    Maybe, I was kinda hoping it was a cotton ball or something they left in after the op and thats why we cant see the scan. Or he could be pregnant?

  • twinthings
    twinthings Member Posts: 409
    Sorry to hear this news. 

    Sorry to hear this news.  Must be scary for both of you.  I hope he gets answers...and soon!  For me, the not knowing is the hardest part. 

    Praying for you both!

    Sindy

  • Phredswife
    Phredswife Member Posts: 162

    Sorry to hear this news. 

    Sorry to hear this news.  Must be scary for both of you.  I hope he gets answers...and soon!  For me, the not knowing is the hardest part. 

    Praying for you both!

    Sindy

    Hi Sindy. We think waiting

    Hi Sindy. We think waiting for them to do anything...or not is the hardest part. Phred is getting a bit discouraged. Will try to take him out for a nice coffee today. Weather is very dismal and grey here. Enjoy your summer!

    Thanks for your prayers xox

    Melissa

  • rae_rae
    rae_rae Member Posts: 300 Member

    Hi Sindy. We think waiting

    Hi Sindy. We think waiting for them to do anything...or not is the hardest part. Phred is getting a bit discouraged. Will try to take him out for a nice coffee today. Weather is very dismal and grey here. Enjoy your summer!

    Thanks for your prayers xox

    Melissa

    Praying it's not a tumor

    My first CT scan six months after my nephrectomy showed a new tumor in the location of my removed kidney, almost 5 cm. They were planning on putting me on Sutent to shrink the tumor and talked about the possibility of a trial. But I had a biopsy first. It was a large hematoma. That was back in 2011. I still have it, thought it's now about 2cm and it won't shrink anymore, I am told, as it's all scar tissue now. I truly hope this is Phred's case as well. God Bless.

  • Phredswife
    Phredswife Member Posts: 162
    rae_rae said:

    Praying it's not a tumor

    My first CT scan six months after my nephrectomy showed a new tumor in the location of my removed kidney, almost 5 cm. They were planning on putting me on Sutent to shrink the tumor and talked about the possibility of a trial. But I had a biopsy first. It was a large hematoma. That was back in 2011. I still have it, thought it's now about 2cm and it won't shrink anymore, I am told, as it's all scar tissue now. I truly hope this is Phred's case as well. God Bless.

    Thanks Rae rae. I so wish

    Thanks Rae rae. I so wish that that is the case with Phred. Hes having a bone scan on Friday because hes having a bit of back pain. I know that it is quite likely to return as a met because of his sarcomatoid and rhabdoid morphology. They say it is a 4.4x4.4cm soft tissue mass consistent with local recurrence. Finally got copy of the scan report after lots of hassle.  Thanks for all your prayers. Phred feels a bit better now he has the information. Take care.

    Hugs Melissa 

     

  • angec
    angec Member Posts: 924 Member
    If it is growing next to the

    If it is growing next to the staples then maybe it is a hematoma. Which they say, they really can't always tell the difference.  How is your blood count? Sometimes the count is a little low if it is a clot, but not always.  When my mom had her kidney removed, they told her she had two new mets also, turned out they were clots and went away about a year later, took a long time.. but the body resolved it.  All the best to you

  • Phredswife
    Phredswife Member Posts: 162
    angec said:

    If it is growing next to the

    If it is growing next to the staples then maybe it is a hematoma. Which they say, they really can't always tell the difference.  How is your blood count? Sometimes the count is a little low if it is a clot, but not always.  When my mom had her kidney removed, they told her she had two new mets also, turned out they were clots and went away about a year later, took a long time.. but the body resolved it.  All the best to you

    We should know soon.

    Thankyou  angec.  Hope it is a hematoma. We went to hospital today and Phred had a bone scan. Apparently they are booking us a ct scan very early next week with a view to deciding if more surgery is an option. He also has a few nodes of questionable significance in his abdomen. Otherwise sutent may be an option. They seem to be taking it all a lot quicker now. Thank goodness!

  • Djinnie
    Djinnie Member Posts: 945

    We should know soon.

    Thankyou  angec.  Hope it is a hematoma. We went to hospital today and Phred had a bone scan. Apparently they are booking us a ct scan very early next week with a view to deciding if more surgery is an option. He also has a few nodes of questionable significance in his abdomen. Otherwise sutent may be an option. They seem to be taking it all a lot quicker now. Thank goodness!

    Here's to a Good Result!

    We are all praying for the best outcome for Phred, all the best with the CT next week. I am glad to hear that someone has added some rocket fuel to the proceedings!

    Thinking of you:)

     

    Djinnie x

  • Phredswife
    Phredswife Member Posts: 162
    Djinnie said:

    Here's to a Good Result!

    We are all praying for the best outcome for Phred, all the best with the CT next week. I am glad to hear that someone has added some rocket fuel to the proceedings!

    Thinking of you:)

     

    Djinnie x

      Thanks djinnie xox

    Smile  Thanks djinnie xox

  • APny
    APny Member Posts: 1,995 Member

      Thanks djinnie xox

    Smile  Thanks djinnie xox

    Wishing you both the very

    Wishing you both the very best!

  • Phredswife
    Phredswife Member Posts: 162
    APny said:

    Wishing you both the very

    Wishing you both the very best!

    Thankyou apny xox

    Thankyou apny xox

  • b1
    b1 Member Posts: 17

    Thankyou apny xox

    Thankyou apny xox

    Best wishes

    Hope your scans went ok

  • Phredswife
    Phredswife Member Posts: 162
    b1 said:

    Best wishes

    Hope your scans went ok

    Thanks b1. Bone scan came

    Thanks b1. Bone scan came back fine apart from arthritis in his shoulders. Awaiting ct scan no.2 results. He had it on Saturday. His pain levels are increasing so pretty sure this tumour has grown more since the last scan 2 months ago. Hopefully they will try to operate soon. Got appt card in mail on Friday for a month from today to see urologist handling his case which seems ridiculous so hope it was a mistake. Radiation isn't possible now.

    Take care, Melissa