Tomorrow we ring the bell

2»

Comments

  • luvofmylif
    luvofmylif Member Posts: 344
    #22
    Grandmax4 said:

    awesome
    hope he's doing well

    Thanks everyone for well
    Thanks everyone for well wishes. And Mike, hang in there ...you getting close.

    JOan
  • luvofmylif
    luvofmylif Member Posts: 344
    #23
    Grandmax4 said:

    awesome
    hope he's doing well

    Thanks everyone for well
    Thanks everyone for well wishes. And Mike, hang in there ...you getting close.

    JOan
  • luvofmylif
    luvofmylif Member Posts: 344
    #24
    Grandmax4 said:

    awesome
    hope he's doing well

    Thanks everyone for well
    Thanks everyone for well wishes. And Mike, hang in there ...you getting close.

    JOan
  • Mikemetz
    Mikemetz Member Posts: 465 Member
    #25
    Billie67 said:

    Oh you are so right
    Others just don't understand. One of my favorites is when I'm telling someone that I have no sense of taste and they reply with "oh yes, one time I had this really bad cold and I couldn't taste anything...it was the worst! Don't worry, it'll come back"
    I must admit also that as positive as I try to be, I feel too that this will never truly be over. NED is amazing and such a relief to hear but as time passes between scans the "what ifs" creep back in to my mind.
    You are right too when you say that our CSN family are the ones who really get us and know what we are dealing with.
    By the way, the bell rang beautifully when I rang it in your honor.
    Take care,
    Billie

    What a great new tradition!
    I remember being driven home by my wife from the hospital after my last rads dose and thinking to myself that it would be nice to mark that event in some way. Of course, I couldn't eat real food (toasting with a Boost before it went down my PEG wasn't all that appealing) and could not drink anything but a few sips of water at a time. So, I went home and took a long nap and relished the thought of not having to go for another treatment the next day. Ringing a bell for myself, and all others who had made it that far would have been a nice thing to do. So, I'm going to get a small bell and ring it whenever someone posts that they've finished rads and/or chemo.

    Billie, even if I stay NED the rest of my life, what I am learning is that HNC will always be a part of my life--forever. On the negative side of that are the scars and side effects of the rads and chemo that show no sign of going away for good. On the positive side of that experience is being the recipient of so much love and support, meeting new friends on this site, and knowing that I was strong enough to fight off the beast--for now. HNC never goes out of your life--even after NED. The key is knowing how to deal with the new-normal it has brought to your life.

    Mike
  • hwt
    hwt Member Posts: 2,328 Member
    #26
    luvofmylif said:

    Thanks everyone for well
    Thanks everyone for well wishes. And Mike, hang in there ...you getting close.

    JOan

    Joan
    Recent visits to the site have been brief but I keep each of you in my thoughts and prayers. My Mom had successful surgery in early Oct. but while in the Care Center fell and broke her wrist. Since it was a compound fracture it required surgery. She then developed double pneumonia and has been hospitalized going on 2 weeks. She is 87 and a fighter. Large family all here for support.

    Candi
  • luvofmylif
    luvofmylif Member Posts: 344
    #27
    hwt said:

    Joan
    Recent visits to the site have been brief but I keep each of you in my thoughts and prayers. My Mom had successful surgery in early Oct. but while in the Care Center fell and broke her wrist. Since it was a compound fracture it required surgery. She then developed double pneumonia and has been hospitalized going on 2 weeks. She is 87 and a fighter. Large family all here for support.

    Candi

    Sorry about your mother. I
    Sorry about your mother. I know what it feels like to have an ill mother. It is so painful. I will be thinking and praying for her and you and family. I hope she makes it through all this. My mom was also a fighter and tough...you have to be to make it to 87.

    Joan
  • hwt
    hwt Member Posts: 2,328 Member
    #28
    luvofmylif said:

    Sorry about your mother. I
    Sorry about your mother. I know what it feels like to have an ill mother. It is so painful. I will be thinking and praying for her and you and family. I hope she makes it through all this. My mom was also a fighter and tough...you have to be to make it to 87.

    Joan

    Joan
    Thanks and God Bless you and yours.

Discussion Boards