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Newbie here

Msdebym
Msdebym CSN Member Posts: 8
in Breast Cancer #1
I just wanted to introduce myself my name is Debbie I have been diagnosed with stage IV cancer back in 2009 . I always visited this website but I've never joined until today. I am at an advanced stage with metastases to my bone, spinal cord and brain. I've been through hell and back and I and in constant pain. I am hoping to find ideas to help me alleviate some of this pain. I'm current currently doing Taxol and Hercptin every Friday At Mount Sinai Hospital in Manhattan New York.

I have my good days I have my bad days - it seems more bad as I'm hitting a depressive state.
I got I have my two cats that make me smile and a wonderful supportive boyfriend and family. If it wasn't for them I think I would've given up a long time ago.

Anyhow. Hello all and I look forward to joining in on some wonderful conversation.

Debbie
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Comments

  • roseann4
    roseann4 CSN Member Posts: 992 Member
    #2
    Hi Debbie.
    So sorry to hear that you are suffering. My cancer is not stage IV so I don't have any advise about controlling your pain. I just wanted you to know that I saw your post and send you my love. Never give up hope.

    Roseann
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  • SIROD
    SIROD CSN Member Posts: 2,194 Member
    #3
    Pain Patches.
    Hi Debbie,

    You might ask your doctor about Fentanyl Patches. I use one and it make a big difference with quality of life. It slowly release the amount of medication you need. My patch is changed every 3 days. There is never having to watch the clock or start hurting because you didn't remember your pill.

    There really is no point in suffering, talk with your doctor about it. I like it a lot more convenient than pills and I believe work better. I started with the lowest dosage and worked upwards until I found the right amount. They are a narcotics so you have to purchase them in a pharmacy not mail order if you have a prescription policy.

    Wishing you the best,

    Doris
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  • ladyg
    ladyg CSN Member Posts: 1,577
    #4
    Hi Debbie
    Welcome to the club no one wants to be in. It is good that you found us but I am sorry you had to. We are here for you any time you want to talk or vent. You will also get a lot of support here.

    Hugs,
    Georgia
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  • disneyfan2008
    disneyfan2008 CSN Member Posts: 6,583 Member
    #5
    HI Debbie:
    NICE to meet you
    HI Debbie:

    NICE to meet you via this site...

    Denise
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  • nanniebgood
    nanniebgood CSN Member Posts: 42
    #6
    Hi Debbie, Im soo terribly
    Hi Debbie, Im soo terribly new here too, I cannot relate to your journey but their is a wealth of info and love here, I'm begining to feel like every woman has breast cancer the numers are staggering, but we are here! I hope you can feel my arms hugging you and as a former nurse they Fentyl patches are great, ask your doc about them and I hope you find some relief, praying for you.
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  • Msdebym
    Msdebym CSN Member Posts: 8
    #7
    nanniebgood said:

    Hi Debbie, Im soo terribly
    Hi Debbie, Im soo terribly new here too, I cannot relate to your journey but their is a wealth of info and love here, I'm begining to feel like every woman has breast cancer the numers are staggering, but we are here! I hope you can feel my arms hugging you and as a former nurse they Fentyl patches are great, ask your doc about them and I hope you find some relief, praying for you.

    Warm welcome
    Hello everyone and thank you for the warm welcome. I actually have tried fentanyl 75 mcg, but I broke out in hives. I think the dosage with extreme for me. When I go to the hospital this Friday I Will ask my oncologist for a lower dose.

    My hospital did a little story on me. This was also before I had brain metastases to my frontal lobe which was very Recent.
    http://www.mountsinai.org/patient-care/service-areas/neurosurgery/areas-of-care/spine-disorders/patient-stories/mount-sinai-neurosurgeons-reverse-paraplegia


    Thanks for the prayers

    Big hugs,

    Debbie
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