PET/CT

Billie67
Billie67 Member Posts: 898
in Head and Neck Cancer #1
Well the time has come and I won't lie, I'm a little nervous. I was 13 weeks finished on Friday and it's time for my scans. I go tomorrow at 7:00am.
I don't see my surgeon until next Friday and my rad onc until the following week so I'll have to wait at least a week to get my results....so nerve wracking!! I know right now that some are in the thick of treatment and others are just getting started on treatment either for the first time and some are having to repeat treatment or treat new areas so my concerns seem a little silly right now but I still can't help but be nervous.
That being said, just know that each night I say a prayer for all of the friends on this site.
My best to all.
Billie
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Comments

  • Hard12Find
    Hard12Find Member Posts: 218 Member
    #2
    Not
    Not silly at all. I think most of us can relate to " scanxiety". Prayers for a clean bill of health.....
    Jim
  • osmotar
    osmotar Member Posts: 1,006
    #3
    All normal
    Billie,

    All your feeling is normal, happens all the time to me, does the place you get your scans give you a CD and a copy of the written report. Mine does, gives me the CD when I leave, not that I can open it or even read it, but I can call a day or 2 after and get the written copy. My onco visit is always a week after the scan,and my nerves get the best of me,but I figure if there was something out of the norm she would call me prior to the scheduled visit. Blessings to you for the positive outcome ...

    Linda
  • nick770
    nick770 Member Posts: 195
    #4
    It's perfectly ok to be
    It's perfectly ok to be nervous. It's a big concern to see if you beat the beast . I got mine done on friday and get my results tomorrow, have a good test relax and try not to think of the results until next Friday
    i wish you the best of everything
  • blackswampboy
    blackswampboy Member Posts: 341
    #5
    my PET is tomorrow too.
    mostly, I'm not thrilled about getting shot full of radioactive glucose. but other than that, I'm ready. let's do this thing! go team! yay us!
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #6
    blackswampboy said:

    my PET is tomorrow too.
    mostly, I'm not thrilled about getting shot full of radioactive glucose. but other than that, I'm ready. let's do this thing! go team! yay us!

    The Mind.
    Blackswampboy and Billie be positive, the mind is a very
    powerfull thing. If you think negative, negative things will
    happen, always think positive so positive things happen.
    We all get some kind of "scanxiety" just try not to stress
    because theres nothing you can do about it anyway.
    Having said that, prayers will be said for NED for you both.

    God bless
    Tonsil dad,

    Dan.
  • phrannie51
    phrannie51 Member Posts: 4,716
    #7
    Watching all you guys go for your scans....
    has me contempating how nerve wracked will I be when I go? Because my chemo lasted another 2 1/2 months past my rads, my scans aren't going to happen unitl the end of November (3 months after the last treatment)...they are far enough away, I don't feel any stress now...but when I know you guys are getting yours, I feel that feeling come up in me that says "make it all gone, make it NED...nobody derserves to go thru this again"....we feel each others fears and pain....

    Your scan will be just fine, Billie...I can feel it....I'm just sorry you have to wait to week to find that out yourself.

    p
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #8
    Confirmation
    good luck with the scan, believe that your scan will be confirmation that your cancer free and you will be

    john
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #9
    fisrpotpe said:

    Confirmation
    good luck with the scan, believe that your scan will be confirmation that your cancer free and you will be

    john

    Billie and Blackswamp...
    Oh so normal..and in all honesty each time you go for that scan for some time it will be nerve-racking ..par for the course...

    ..but when you get that NED ...just think how GREAT that feeling will be...

    Best,

    Tim

    As usual (and all are probably tired of me saying it) but I whispered a prayer for you both to be NED just before I hit the post button! :)
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #10
    scan
    Hi Billie,

    You have been doing so well I expect nothing other than a clean scan.

    Best,

    Matt
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #11
    Comfort in Numbers..
    You have a number of us here pulling for you, and offering comfort.

    More than likely all will go well, at most a little residual which isn't that uncommon for first scans.

    Thoughts and prayers you both will be with the fortunate that have clean scans up front.

    Best,
    John
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #12
    blackswampboy said:

    my PET is tomorrow too.
    mostly, I'm not thrilled about getting shot full of radioactive glucose. but other than that, I'm ready. let's do this thing! go team! yay us!

    Good thoughts!
    Picturing clear scans and NED for the both of you tomorrow!

    Deb
  • osmotar
    osmotar Member Posts: 1,006
    #13
    blackswampboy said:

    my PET is tomorrow too.
    mostly, I'm not thrilled about getting shot full of radioactive glucose. but other than that, I'm ready. let's do this thing! go team! yay us!

    GOOD Luck
    I think the worst thing for me , is the position I have to keep with my arms above my head, after awhile my left shoulder starts to hurt.

    Looking for my pom-poms to cheer all the scans to NED outcome.
  • Billie67
    Billie67 Member Posts: 898
    #14
    CivilMatt said:

    scan
    Hi Billie,

    You have been doing so well I expect nothing other than a clean scan.

    Best,

    Matt

    Thank you
    This is why I love this place so much, you all are so kind. I appreciate all of your encouragement and advice. I know blackswampboy and I will be just fine thanks to you all. I just hope it's not a long week :-)
    Thanks again everyone!
    Billie
  • KareGiver
    KareGiver Member Posts: 301 Member
    #15
    Billie67 said:

    Thank you
    This is why I love this place so much, you all are so kind. I appreciate all of your encouragement and advice. I know blackswampboy and I will be just fine thanks to you all. I just hope it's not a long week :-)
    Thanks again everyone!
    Billie

    Billie
    Best to you!
  • osmotar
    osmotar Member Posts: 1,006
    #16
    Billie67 said:

    Thank you
    This is why I love this place so much, you all are so kind. I appreciate all of your encouragement and advice. I know blackswampboy and I will be just fine thanks to you all. I just hope it's not a long week :-)
    Thanks again everyone!
    Billie

    Thinking of you
    Good luck...at this time of the morning in AZ your probably already at your appointment...just thinking of you , sending good light and blessings your way.

    Linda
  • hwt
    hwt Member Posts: 2,328 Member
    #17
    osmotar said:

    Thinking of you
    Good luck...at this time of the morning in AZ your probably already at your appointment...just thinking of you , sending good light and blessings your way.

    Linda

    Keep us posted
    Good thoughts and prayers for you from St Louis
  • Pam M
    Pam M Member Posts: 2,196
    #18
    Hope the Wait's Not Long
    Scan's over - now for the horrible waiting for the results. Hope you're in the minority, and you already have happy news.
  • Pam M
    Pam M Member Posts: 2,196
    #19
    nick770 said:

    It's perfectly ok to be
    It's perfectly ok to be nervous. It's a big concern to see if you beat the beast . I got mine done on friday and get my results tomorrow, have a good test relax and try not to think of the results until next Friday
    i wish you the best of everything

    And . . .
    Do you have results yet, Nick? I'm quite sure it was a long weekend for you.
  • Pam M
    Pam M Member Posts: 2,196
    #20
    osmotar said:

    GOOD Luck
    I think the worst thing for me , is the position I have to keep with my arms above my head, after awhile my left shoulder starts to hurt.

    Looking for my pom-poms to cheer all the scans to NED outcome.

    NOW I see the tattoo
    Didn't last night. Looks great!

    Neck dissection on your left side, osmotar?
  • ditto1
    ditto1 Member Posts: 660
    #21
    hwt said:

    Keep us posted
    Good thoughts and prayers for you from St Louis

    GOT NED
    Praying for you and Bswampboy NEDs for now and forever. Yes as P51 said its the belief that ok we had cancer and we fought the fight took our licks and now its time to know it was worthwhile and we beat the cancer and we are now NED. I told Diane the other day (note she is a breast cancer survivor so she gets it) that I am more anxious about my scan on Oct 3rd than I was when I was dx with cancer for these very reasons. Getting cancer sucked, but after 6 months of the trips to the Doctors, Chemos, RADS being sick and just the basic changes it does to a family somehow it will all have been worth it if we could just hear those 3 sweetest letters NED. So I pray we all get that news. Keep us updated and you will be fine.

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