Ok, now that I know it's chemo and Rads, what products do I need to gather?

Options
Reading here you guys know what works. What do I need for my skin, mouth sores and all the other products to make this as livable as possible.

Thanks folks,


Joe
«1

Comments

  • VivianLee5689
    VivianLee5689 Member Posts: 546
    Options
    Glad you asked
    I am glad you asked this question because we need to start gathering things as well for when he starts the chemo and radiation.
  • Barbara B
    Barbara B Member Posts: 40
    Options

    Glad you asked
    I am glad you asked this question because we need to start gathering things as well for when he starts the chemo and radiation.

    What worked for us
    Hello!

    I imagine you will get many different thoughts and ideas about what to use. Everyone here is so very helpful which has been wonderful. My husband had 33 radiation treatments and six chemo treatments. He did not have one blister or one burn and I have to give credit to Aquaphor cream. It was recommended to us from a friend who went through breast cancer radtiation treatments. She never had a burn either.

    We found Aquaphor in Rite Aid. It is very thick and sticky but works. He applied the cream right after each treatment and before bed.

    He also used Biotene mouthwash and toothpaste because it does not have alcohol and won't burn your mouth. As treatment went on the doctor prescribed "magic mouthwash" it contains lidocaine, maalox and a few other things to help numb your mouth.

    He used diluted baby shampoo and did not use gels, sprays or a hair dryer. The oncologist said he didn't know if the chemo would cause haor loss so we took the precaution. My husband was happy not to lose any of his hair =)

    We went to the dentist and had trays made so that he could put fluoride on his teeth at night. This was to help keep the enamel strong.

    This process can be overwhelming so if possible try to take things a day at a time and know that everyone here is pulling for you!

    I hope this helps! Barbara
  • yensid683
    yensid683 Member Posts: 349
    Options
    what I used
    I had 33 rads, and 8 doses of Erbitux, now 10 weeks post rads and recovering.

    For your skin, I started with Aloe Vera, get the plain, not scents, no dyes. Walmart is where I found it in stock. I used it every day until the skin started to 'burn' on either side of my neck, then switched to the aquafor. I only used the aquafor on the burn and kept the aloe vera for the rest of my skin. The aquafor is very sticky (prepare to lose pillow cases) but the healed skin is perfect with no evidence of scaring.

    I had lost my hair with the earlier treatments, they did high dose induction chemo and the cisplatin did the job. I used plain old Dove soap during treatments, again, the PLAIN soap. The idea is to keep the skin moist without adding stuff.

    For oral care, I was not able to tolerate the Biotene. My sense of taste was corrupted by the high dose chemo, so I used a salt water and baking soda rinse. Use a regular bottle of bottled water, add a 1/2 teaspoon of salt and a 1/2 teaspoon of baking soda and then use it as a rinse. It worked well and was inexpensive. A bonus was that about 5 weeks post rads I finally found that I could taste salt because I was using the rinse.

    At first I tried to find ways to stimulate my salivary glands. The body responds to sour by trying to flood the mouth with saliva to dilute the sour. I use sugar free (tooth decay risk) lemon drops and they worked for about 3 weeks, and then my saliva stopped and I was no longer able to tolerate the sour, still can't unfortunately.

    When it comes to prescription stuff, the 'magic mouth wash' is pretty good. I would swish and swallow and it helped with the sore throat. I also asked for pain med in liquid form, and had liquid Lortab. It is so much easier on the throat to do the liquid. You may need stronger as treatments advance, your doctor and the nursing staff will monitor you pretty closely and will make changes as needed.

    I also have a prescription fluoride toothpaste, and I would recommend that as well, SF5000.

    I would also explore a PEG tube. My doctor recommended one immediately as the ability to swallow enough calories would be compromised by treatments. I got mine before treatments started and while I was able to eat regular food for again, about two weeks, I made use of the tube and it kept me from losing much weight.

    I hope things go easily for you, it is no real fun to be sick and even less fun to get 'treat'ments
  • yensid683
    yensid683 Member Posts: 349
    Options
    what I used
    I had 33 rads, and 8 doses of Erbitux, now 10 weeks post rads and recovering.

    For your skin, I started with Aloe Vera, get the plain, not scents, no dyes. Walmart is where I found it in stock. I used it every day until the skin started to 'burn' on either side of my neck, then switched to the aquafor. I only used the aquafor on the burn and kept the aloe vera for the rest of my skin. The aquafor is very sticky (prepare to lose pillow cases) but the healed skin is perfect with no evidence of scaring.

    I had lost my hair with the earlier treatments, they did high dose induction chemo and the cisplatin did the job. I used plain old Dove soap during treatments, again, the PLAIN soap. The idea is to keep the skin moist without adding stuff.

    For oral care, I was not able to tolerate the Biotene. My sense of taste was corrupted by the high dose chemo, so I used a salt water and baking soda rinse. Use a regular bottle of bottled water, add a 1/2 teaspoon of salt and a 1/2 teaspoon of baking soda and then use it as a rinse. It worked well and was inexpensive. A bonus was that about 5 weeks post rads I finally found that I could taste salt because I was using the rinse.

    At first I tried to find ways to stimulate my salivary glands. The body responds to sour by trying to flood the mouth with saliva to dilute the sour. I use sugar free (tooth decay risk) lemon drops and they worked for about 3 weeks, and then my saliva stopped and I was no longer able to tolerate the sour, still can't unfortunately.

    When it comes to prescription stuff, the 'magic mouth wash' is pretty good. I would swish and swallow and it helped with the sore throat. I also asked for pain med in liquid form, and had liquid Lortab. It is so much easier on the throat to do the liquid. You may need stronger as treatments advance, your doctor and the nursing staff will monitor you pretty closely and will make changes as needed.

    I also have a prescription fluoride toothpaste, and I would recommend that as well, SF5000.

    I would also explore a PEG tube. My doctor recommended one immediately as the ability to swallow enough calories would be compromised by treatments. I got mine before treatments started and while I was able to eat regular food for again, about two weeks, I made use of the tube and it kept me from losing much weight.

    I hope things go easily for you, it is no real fun to be sick and even less fun to get 'treat'ments
  • yensid683
    yensid683 Member Posts: 349
    Options
    what I used
    I had 33 rads, and 8 doses of Erbitux, now 10 weeks post rads and recovering.

    For your skin, I started with Aloe Vera, get the plain, not scents, no dyes. Walmart is where I found it in stock. I used it every day until the skin started to 'burn' on either side of my neck, then switched to the aquafor. I only used the aquafor on the burn and kept the aloe vera for the rest of my skin. The aquafor is very sticky (prepare to lose pillow cases) but the healed skin is perfect with no evidence of scaring.

    I had lost my hair with the earlier treatments, they did high dose induction chemo and the cisplatin did the job. I used plain old Dove soap during treatments, again, the PLAIN soap. The idea is to keep the skin moist without adding stuff.

    For oral care, I was not able to tolerate the Biotene. My sense of taste was corrupted by the high dose chemo, so I used a salt water and baking soda rinse. Use a regular bottle of bottled water, add a 1/2 teaspoon of salt and a 1/2 teaspoon of baking soda and then use it as a rinse. It worked well and was inexpensive. A bonus was that about 5 weeks post rads I finally found that I could taste salt because I was using the rinse.

    At first I tried to find ways to stimulate my salivary glands. The body responds to sour by trying to flood the mouth with saliva to dilute the sour. I use sugar free (tooth decay risk) lemon drops and they worked for about 3 weeks, and then my saliva stopped and I was no longer able to tolerate the sour, still can't unfortunately.

    When it comes to prescription stuff, the 'magic mouth wash' is pretty good. I would swish and swallow and it helped with the sore throat. I also asked for pain med in liquid form, and had liquid Lortab. It is so much easier on the throat to do the liquid. You may need stronger as treatments advance, your doctor and the nursing staff will monitor you pretty closely and will make changes as needed.

    I also have a prescription fluoride toothpaste, and I would recommend that as well, SF5000.

    I would also explore a PEG tube. My doctor recommended one immediately as the ability to swallow enough calories would be compromised by treatments. I got mine before treatments started and while I was able to eat regular food for again, about two weeks, I made use of the tube and it kept me from losing much weight.

    I hope things go easily for you, it is no real fun to be sick and even less fun to get 'treat'ments
  • phrannie51
    phrannie51 Member Posts: 4,716
    Options
    Barbara B said:

    What worked for us
    Hello!

    I imagine you will get many different thoughts and ideas about what to use. Everyone here is so very helpful which has been wonderful. My husband had 33 radiation treatments and six chemo treatments. He did not have one blister or one burn and I have to give credit to Aquaphor cream. It was recommended to us from a friend who went through breast cancer radtiation treatments. She never had a burn either.

    We found Aquaphor in Rite Aid. It is very thick and sticky but works. He applied the cream right after each treatment and before bed.

    He also used Biotene mouthwash and toothpaste because it does not have alcohol and won't burn your mouth. As treatment went on the doctor prescribed "magic mouthwash" it contains lidocaine, maalox and a few other things to help numb your mouth.

    He used diluted baby shampoo and did not use gels, sprays or a hair dryer. The oncologist said he didn't know if the chemo would cause haor loss so we took the precaution. My husband was happy not to lose any of his hair =)

    We went to the dentist and had trays made so that he could put fluoride on his teeth at night. This was to help keep the enamel strong.

    This process can be overwhelming so if possible try to take things a day at a time and know that everyone here is pulling for you!

    I hope this helps! Barbara

    I did the same thing as you....
    got a supply of stuff I might need before treatment started....The first thing on the list was the Aquafor....tho, I didn't use it until the last three months. During radiation I used Calendula cream for my neck...I bought the type for babies at the health food store...it isn't thick and messy, and was suggested at Radiology because of it's healing qualities. In the last three months I have used the Aquafor on my lips (the chemo I had for the last three treatments really kicked my butt.)

    For mouth sores the Oncologist prescribed Mugard. Radiation brought a few mouth sores in the beginning, and Mugard seemed to stop those in their tracks, and then keep them away for the duration of radiation. It did not work in the case of chemo based mouth sores, however....and those I suffered thru for the last 3 months of chemo....I think when the chemo causes them, they just come on too fast and too furious....the Mugard can't keep up.

    I had a bottle of salt and soda always mixed for use in my mouth, too. I have dentures, so didn't need to do the dentist when I started...but I still kept my mouth oober clean. I could not use the Biotene because it was SO minty to me, but was able to use Stoppers 4 (which I got at Amazon.com)...less intensity in the mint department. I used it everyday before rads, as my mouth would get so dry from breathing thru it with the mask on.

    Also for mouth sores, I had L-Glutamine on hand...this is what I used in the last 3 months of treatment...it was the only thing that didn't sting like battery acid in my mouth including plain water.

    Maybe you can tell from what I've said....Mouth sores were my number one problem during treatment, and they didn't come until radiation was long over....the last 3 months of chemo is what forced me to use my g-tube, and focus on my mouth.

    I had my last of 6 chemos August 28, and my last of 35 radiations on June 15th.

    For rads tho...get the Aquafor....but DO pick up a tube of Calendula cream...I didn't suffer near as bad as some of the folks on my treatment bus on neck issues...can't say for sure it was calendula, but you never know.

    p
  • blackswampboy
    blackswampboy Member Posts: 341
    Options
    your mileage will vary
    since everybody's problems and preferences vary, not sure you need to plan ahead too far.
    prescriptions will take care of a lot of it.
    for the rest, take it problem-by-problem and check these boards for solutions. every issue that has ever come up in the history of cancer has been dealt with here. ;-)

    but plenty of baking soda and salt are essential. :-)

    edit: just thought of a small item that was quite useful. the outstanding staff at St. Anne's in Toledo gave me a tiny pillow to put under the shoulder belt in the car...otherwise the belt would've pressed right on the chemo port... doesn't matter so much now, but very helpful in the first few days after having the port put in.
  • alligatorpointer
    alligatorpointer Member Posts: 131
    Options
    MuGard
    MuGard works best if started on the first day of radiation and continued all the way through to the end of treatment. It will very likely prevent the mouth sores caused by radiation if used in a consistent regimen. It is necessary to wait an hour after using MuGard before eating anything so best to eat first and then do mouth care ... brush, floss, rinse & gargle with baking soda/salt, then coat mouth with MuGard by swishing it around oral surfaces for several minutes. It should be used again between meals ... every 3 to 4 hours if possible. The reason to arrange for MuGard as soon as possible is that it may take some time to get a supply because it is not available except through the manufacturer. Many oncologists have never heard of it because MuGard is a new product and is not yet on the formulary list of many hospital pharmacies. Insurance companies are also slow to recognize and cover new products so the manufacturer is working hard to try to get MuGard covered. I was able to speak with a customer service representative (Bonnie) at this number: 214-905-5100. She took care of making sure that a supply of MuGard was delivered in time to be used at the beginning of radiation. Since insurance would not cover cost and the radiation oncologist had never heard of it but was willing to give it a try, the MuGard company provided it as a way of promoting awareness. It is very expensive so hopefully other patients will receive financial coverage for this beneficial product. I feel that it was responsible for keeping the horrors of mouth sores from happening during my son's radiation (35 rads / 7 lower-dose cisplatin). MuGard has a website with more info: http://www.mugard.com/
  • blackswampboy
    blackswampboy Member Posts: 341
    Options

    MuGard
    MuGard works best if started on the first day of radiation and continued all the way through to the end of treatment. It will very likely prevent the mouth sores caused by radiation if used in a consistent regimen. It is necessary to wait an hour after using MuGard before eating anything so best to eat first and then do mouth care ... brush, floss, rinse & gargle with baking soda/salt, then coat mouth with MuGard by swishing it around oral surfaces for several minutes. It should be used again between meals ... every 3 to 4 hours if possible. The reason to arrange for MuGard as soon as possible is that it may take some time to get a supply because it is not available except through the manufacturer. Many oncologists have never heard of it because MuGard is a new product and is not yet on the formulary list of many hospital pharmacies. Insurance companies are also slow to recognize and cover new products so the manufacturer is working hard to try to get MuGard covered. I was able to speak with a customer service representative (Bonnie) at this number: 214-905-5100. She took care of making sure that a supply of MuGard was delivered in time to be used at the beginning of radiation. Since insurance would not cover cost and the radiation oncologist had never heard of it but was willing to give it a try, the MuGard company provided it as a way of promoting awareness. It is very expensive so hopefully other patients will receive financial coverage for this beneficial product. I feel that it was responsible for keeping the horrors of mouth sores from happening during my son's radiation (35 rads / 7 lower-dose cisplatin). MuGard has a website with more info: http://www.mugard.com/

    mouth sores
    sounds like a fine product!
    although...not all of us get mouth sores during treatment. I didn't. did get thrush though, as a side-effect of antibiotics.
    before treatments started, my onc got me a free supply of caphosol for oral mucositis...but I never used it much. cheers.
  • Sam999
    Sam999 Member Posts: 319 Member
    Options

    mouth sores
    sounds like a fine product!
    although...not all of us get mouth sores during treatment. I didn't. did get thrush though, as a side-effect of antibiotics.
    before treatments started, my onc got me a free supply of caphosol for oral mucositis...but I never used it much. cheers.

    I used following: ( i had 6
    I used following: ( i had 6 weeks of rads, no chemo)

    Aquqphor lip balm for lips
    Fresh Aloe vera to put on right after rads and than later used calendula cream. At night i woulp put aquqphor cream. After week 3, started putting aquqphor cream during day time as well. I had no rad burns, skin did turn black....kinda like a sun burn.

    Used mugard from day one, call the manufacturer as the other post suggested, they will cover the cost if your insurance does not. Towards the end of treatment around week 5, i also started using caphasol. I strongly recommed using mugard and caphasol both from day 1.

    Used stoppers 4 and bioten oral care gel for dry mouth thru treatment and even now.

    One important note, in case you have any fillings in teeth, make sure you get the mouthguard made for that.

    Baking soda and salt solution is needed thruout treatment in addition to all these products.

    Also used cool mist humdifier at night, helped with dry coughing.

    Folks on this site are awsome, they guided me thruout for any problems i had and were always there to listen for any frustrations.

    Sam
  • phrannie51
    phrannie51 Member Posts: 4,716
    Options

    MuGard
    MuGard works best if started on the first day of radiation and continued all the way through to the end of treatment. It will very likely prevent the mouth sores caused by radiation if used in a consistent regimen. It is necessary to wait an hour after using MuGard before eating anything so best to eat first and then do mouth care ... brush, floss, rinse & gargle with baking soda/salt, then coat mouth with MuGard by swishing it around oral surfaces for several minutes. It should be used again between meals ... every 3 to 4 hours if possible. The reason to arrange for MuGard as soon as possible is that it may take some time to get a supply because it is not available except through the manufacturer. Many oncologists have never heard of it because MuGard is a new product and is not yet on the formulary list of many hospital pharmacies. Insurance companies are also slow to recognize and cover new products so the manufacturer is working hard to try to get MuGard covered. I was able to speak with a customer service representative (Bonnie) at this number: 214-905-5100. She took care of making sure that a supply of MuGard was delivered in time to be used at the beginning of radiation. Since insurance would not cover cost and the radiation oncologist had never heard of it but was willing to give it a try, the MuGard company provided it as a way of promoting awareness. It is very expensive so hopefully other patients will receive financial coverage for this beneficial product. I feel that it was responsible for keeping the horrors of mouth sores from happening during my son's radiation (35 rads / 7 lower-dose cisplatin). MuGard has a website with more info: http://www.mugard.com/

    Another thing with Mugard.....
    They dicker and deal with the price...When I first talked to them they asked if $325 a month was too much....I gasped, and they dropped it to $100 a month (which was 6 bottles, and I still have 2 left)....When I got on here to tell everybody the price I got it for, another person told me I should have gasped twice, as he got it for $50 :)....

    p
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Options
    SuperThread...
    Pretty sure that everything that you are looking for is more than likely covered on the SuperThread...

    SuperThread


    Best,
    John
  • ToBeGolden
    ToBeGolden Member Posts: 695
    Options
    Clothes...
    I second the recommendations made by others. But you need to consider clothes. Loose around the neck, but possibly warm depending upon your location. Also the various creams will probably make a mess of your shirts. So something old, unless your significant other insists you look presentable. Rick.
  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
    Options
    best 3 things
    Hi Joe,

    So you are all go for launch? Good luck, smooth ride and safe journey.

    Besides a plethora of pain meds (just in case) and salt and soda rinse I had three favorites.

    1. Lorazapam for anxiety, 1 pill 0.5 hour before donning the mask and occasionally for sleep if my mind was racing.

    2. Magic Mouth Wash, went through a 6-pack, loved the stuff, sore mouth sore throat, 5 to 10 mils swish around and swallow, great stuff!! Note: now that I can taste again (somewhat) I can’t believe I drank so much of the stuff.

    3. Neck burn week 6, 7 & 8, Silver Sulfadiazine Cream. Worst pain of my treatment, this took it all away. Messes up you tee shirt and pillow case, but how cares it is great.

    Tell doctors and nurses how you feel, they generally have something for what ever is happening. Don’t be a tough guy and try to wait out the pain. Take your prescribed pain medications and get some sleep.

    Today, 25 weeks post, feel pretty good, sleep great and take no meds (other than BP, low dose vitamins, and prilosec)

    Best,

    Matt

    P.S. wearing the mask is a chapter by itself
  • dlygoblue
    dlygoblue Member Posts: 28
    Options
    Items needed for HNC
    Here's a list of things used by others, and stuff I added.
    These are all items we compiled as things we found we really needed to help us get through treatment. Obviously, no one needs everything, but I know I used a lot of stuff off this list. So perhaps if you are just starting treatment, or know someone who is, maybe you may want to get some of these things or give the person a gift basket filled with some of these items.
    1. Lotion for skin
    2. Green tea Or herbal tea
    3. Biotene dental products
    4. Aquaphor
    5. Baking soda / salt and peroxide. Recipe / instructions or rinse
    6. Journal / log book
    7. Thermometer
    8. Immodium
    9. Ensure or Boost
    10. Bottled water and or a good water bottle
    11. Cotton hankie, or LOTS of facial tissue
    12. Fleece hat
    13. Hard candy
    14. Blanket
    15. L-Glutamine Powder
    16. Home blood pressure monitor kit
    17. Slippers / house shoes
    18. Caloric intake book or website like my pyramid tracker to make sure you're getting in enough calories
    19. Coupons for frosty's or shakes
    20. Q-tips (radiations and chemo can cause wax build-up)
    21. Ace bandage, chip clip or netting for holding peg tube
    22. Solo 16 oz cups and napkins for mucus spitting
    23. Call SPOHNC or see superthread for link for the free book. We Have Walked In Your Shoes. A Guide to Oral Head And Neck Cancer.
    24. American Cancer Society. They will send you a packet of info and free stuff as well.
    25. Lip balm.
    26. Calendula cream for neck burns.
    27. Books like, Creating A Cancer Fighting Kitchen
    28. Magic Mineral Broth or recipe for broth. Or give them a good home made rich stock with no salt.
    29. Soft bristle tooth brush
    30. Sponge/foam brushes for tooth brushing when mouth is too sore for soft bristles
    31. Paper tape and/or Water proof tape (Instead of athletic tape. Hurts less when removing)
    32. Drain sponges or 2x2 gauze bandages for peg tube
    33. Baby wipes
    34. Pill organizers
    35. Package of note cards or thank you notes
    36. Non-metallic utensils. Chemo and radiation affect your taste, and that’s amplified with metal utensils.
    37. Toothette mouth moisturizer. (sometimes this comes in a kit with a rinse and sponges on a stick)
    38. Protein powder
    39. Neck Pillow
    40. Electric razor.
  • cureitall66
    cureitall66 Member Posts: 913
    Options
    dlygoblue said:

    Items needed for HNC
    Here's a list of things used by others, and stuff I added.
    These are all items we compiled as things we found we really needed to help us get through treatment. Obviously, no one needs everything, but I know I used a lot of stuff off this list. So perhaps if you are just starting treatment, or know someone who is, maybe you may want to get some of these things or give the person a gift basket filled with some of these items.
    1. Lotion for skin
    2. Green tea Or herbal tea
    3. Biotene dental products
    4. Aquaphor
    5. Baking soda / salt and peroxide. Recipe / instructions or rinse
    6. Journal / log book
    7. Thermometer
    8. Immodium
    9. Ensure or Boost
    10. Bottled water and or a good water bottle
    11. Cotton hankie, or LOTS of facial tissue
    12. Fleece hat
    13. Hard candy
    14. Blanket
    15. L-Glutamine Powder
    16. Home blood pressure monitor kit
    17. Slippers / house shoes
    18. Caloric intake book or website like my pyramid tracker to make sure you're getting in enough calories
    19. Coupons for frosty's or shakes
    20. Q-tips (radiations and chemo can cause wax build-up)
    21. Ace bandage, chip clip or netting for holding peg tube
    22. Solo 16 oz cups and napkins for mucus spitting
    23. Call SPOHNC or see superthread for link for the free book. We Have Walked In Your Shoes. A Guide to Oral Head And Neck Cancer.
    24. American Cancer Society. They will send you a packet of info and free stuff as well.
    25. Lip balm.
    26. Calendula cream for neck burns.
    27. Books like, Creating A Cancer Fighting Kitchen
    28. Magic Mineral Broth or recipe for broth. Or give them a good home made rich stock with no salt.
    29. Soft bristle tooth brush
    30. Sponge/foam brushes for tooth brushing when mouth is too sore for soft bristles
    31. Paper tape and/or Water proof tape (Instead of athletic tape. Hurts less when removing)
    32. Drain sponges or 2x2 gauze bandages for peg tube
    33. Baby wipes
    34. Pill organizers
    35. Package of note cards or thank you notes
    36. Non-metallic utensils. Chemo and radiation affect your taste, and that’s amplified with metal utensils.
    37. Toothette mouth moisturizer. (sometimes this comes in a kit with a rinse and sponges on a stick)
    38. Protein powder
    39. Neck Pillow
    40. Electric razor.

    Contacting ACS...
    Hi Dlygoblue,


    Thanks for providing a list here. I've printed it off. It looks really helpful
    How do you contact ACS regarding #24? Also, is the Protein powder similiar to the protein shakes but powder?
  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    Options
    I agree with the Aquaphor, I
    I agree with the Aquaphor, I made it thru 6 weeks of treatment before my skin blistered and peeled and then I used Silvadene cream. I slept with a cool mist humidifier at night which helped keep my mouth and throat from being so dry. I also purchased a wedge pillow to sleep on when the mucous was so bad, made sleeping so much better. The Biotene Mouthwash helped with the dry mouth.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Options
    H&N Kit
    Here is another version of the list above..., some things are the same, some are not;

    1. Lotion for skin
    2. Green tea Or herbal tea
    3. Biotene dental products
    4. Aquaphor
    5. Baking soda / salt and peroxide. Recipe / instructions or rinse
    6. Journal / log book
    7. Thermometer
    8. Immodium
    9. Ensure or Boost
    10. Bottled water and or a good water bottle
    11. Cotton hankie
    12. Fleece hat
    13. Hard candy
    14. Blanket
    15. L-Glutamine Powder
    16. Home blood pressure monitor kit
    17. Slippers / house shoes
    18. Caloric intake book or website like my pyramid tracker to make sure you're getting in enough calories
    19. Coupons for frosty's or shakes
    20. Tissues
    21. Ace bandage chip clip or netting for holding peg tube
    22. Solo 16 oz cups and napkins for mucus spitting
    23. Call SPOHNC or see superthread for link for the free book. We Have Walked In Your Shoes. A Guide to Oral Head And Neck Cancer.
    24. American Cancer Society. They will send you a packet of info and free stuff as well. Will also reimburse you for mileage to hospital during treatment.
    25. Lip balm. (I love CO BIGELOW from bath and body
    26. Stoppers 4
    27. Calendula cream for neck burns
    28. Books like, Creating A Cancer Fighting Kitchen
    29. Magic Mineral Broth
    30. Soft bristle tooth brush
    31. Sponge/foam brushes for tooth brushing when mouth is too sore for soft bristles
    32. Paper tape
    33. Water proof tape
    34. Drain sponges or 2x2 gauze bandages for peg tube
    35. Baby wipes
    36. Pill crusher splitter
    37. Pill organizers
    38. Straws
    39. Package of note cards or thank you notes
    40. Ear plugs.

    From the thread started back in early 2011; H&N Kit


    Yep...you guessed it..., it came from the SuperThread .

    I was never big on Aquaphor....wat to thick and greasy for me. But I really didn't need anything other than warm showers to loosen the dry (sun burnt) skin from radiation.

    Also, while Biotene is more easily obtained than Stoppers4, I've heard that Stoppers works better for most.

    Best,
    John
  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
    Options
    we are just beginning
    Hi Joe,

    Wow, did you get all of that? You might need a truck and some strong friends to carry it all. Least we forget, a nice recliner, chair or couch where you can rest up between treatments.

    Good luck, just ask and see what you get.

    Best,

    Matt
  • Barbara B
    Barbara B Member Posts: 40
    Options
    CivilMatt said:

    we are just beginning
    Hi Joe,

    Wow, did you get all of that? You might need a truck and some strong friends to carry it all. Least we forget, a nice recliner, chair or couch where you can rest up between treatments.

    Good luck, just ask and see what you get.

    Best,

    Matt

    Ditto on the recliner
    Ditto on the recliner! That chair was my husband's place to simply relax, sleep, eat, watch tv, he did it all with a remote and a bell. The bell? That was to call for me of course lol. I figured how else would he be able to get help if he needed it.

    The list above is a great resource, but I would start slowly. Everything is so overwhelming at first that you should try to take things as they come.

    Besides, EVERYONE here is so very, very helpful. Just ask and they will answer! Barbara