The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Men with peritoneal mesothelioma

prayingwife
prayingwife CSN Member Posts: 12
My husband was diagnosed with this awful cancer. It was an accidental finding from a hernia operation biopsy. He got it from 30 years ago serving in the Navy ingesting asbestos. Are there any men that have this cancer? Would like to know how you were treated for it. Thanks.

Comments

  • baseballgirl71
    baseballgirl71 CSN Member Posts: 10
    Peritoneal Meso
    Hey!

    Go to the Curemeso.org website. Mary Hesdorfer is the medical liason for the Mesothelioma Applied Research Foundation (MARF for short). There are monthly teleconferences for patients and caregivers. There is also a PRIVATE facebook group for Mesothelioma patients, where we discuss treatments and clinical trials. To register and join a group, please contact Mary Hesdorffer, Nurse Practitioner, at mhesdorffer@curemeso.org or by phone at (877) 363-6376. There are numerous men in the group who are currently battling this disease with very positive results. Again, if you have any questions, please feel free to contact me. I have peritoneal mesothelioma and I have found the support from the people at MARF to be overwhelmingly fabulous. THey are NOT associated with any law firms. They are just there to support the patients and caregivers, and raise awareness of this disease.

    Elissa Shelton
    baseballgirl71@gmail.com