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PADANAG
PADANAG Member Posts: 20
Things were going really well..or so i was told. Then on 6/14 I started having some perception and balance problems. By lunchtime I needed to call an ambulance,by mid afternoon I had been flown by chopper to a hospital in Philly specializing in neurosurgery. Long story short...brain met. Just 1. Had it removed and am waiting to hear what the plan is. I am being told since I am young and otherwise healthy, and since there is no evidence of disease anywhere else and there was just 1 met which was removed, I have a pretty good chance of long term survival. Any Thoughts? I was 3A triple negative with a PCR at the time of surgery (10/11). All my scans from 4/11 were clear too.

Dana

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  • MAJW
    MAJW Member Posts: 2,510 Member
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    Triple Neg..
    I, too, have Triple Negative bc with brain mets...had scans in Feb...showed 3 small spots to the brain...was totally blindness by that! I was completely asymptomatic....no headaches, balance problems, vision changes, nothing!! My oncologist immediately sent me to my radiation oncologist....and he put me through a complete neurological exam...passed with flying colors!...I had 10 radiation treatments that took care of the brain mets....then I started IV chemo with Avastin and Carboplatin...as my TNBC came back in my lymph nodes..it's working great!!! My tumor markers went from 98 in Feb...to 34(normal range, according to my oncologist) Oh happy days! And now I only have chemo every 3 weeks instead of every 2 weeks..TNBC is a sneaky type of BC....stay vigilant...

    So glad you are on the mend and your scans were clean....Celebrate!

    Hugs, Nancy
  • DianeBC
    DianeBC Member Posts: 3,881 Member
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    MAJW said:

    Triple Neg..
    I, too, have Triple Negative bc with brain mets...had scans in Feb...showed 3 small spots to the brain...was totally blindness by that! I was completely asymptomatic....no headaches, balance problems, vision changes, nothing!! My oncologist immediately sent me to my radiation oncologist....and he put me through a complete neurological exam...passed with flying colors!...I had 10 radiation treatments that took care of the brain mets....then I started IV chemo with Avastin and Carboplatin...as my TNBC came back in my lymph nodes..it's working great!!! My tumor markers went from 98 in Feb...to 34(normal range, according to my oncologist) Oh happy days! And now I only have chemo every 3 weeks instead of every 2 weeks..TNBC is a sneaky type of BC....stay vigilant...

    So glad you are on the mend and your scans were clean....Celebrate!

    Hugs, Nancy

    Congrats on clear scans! I
    Congrats on clear scans! I am not triple negative, but, many here are.

    Wishing you the best!
  • peanutcat
    peanutcat Member Posts: 104
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    clear scan
    I am so happy for you. I am also cancer free. I had Breast Cancer.
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
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    Praying for you
    Keep us updated on what comes out of this.
  • Kylez
    Kylez Member Posts: 3,761 Member
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    Good news about clear scans,
    Good news about clear scans, but, what a scare to have. Just so glad it turned out well for you. Wishing you continued good health!


    Hugs, Kylez
  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    Kylez said:

    Good news about clear scans,
    Good news about clear scans, but, what a scare to have. Just so glad it turned out well for you. Wishing you continued good health!


    Hugs, Kylez

    gentle hugs and prayers for you !!
    Continued strength, and courage for you.


    Vicki Sam
  • PADANAG
    PADANAG Member Posts: 20
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    tomorrow i will see my onco
    tomorrow i will see my onco doc. even though my CT and chest x-ray were clear I want a PET scan.

    I will be undergoing a gamma knife procedure in a few weeks to treat the area in my brain where the tumor was removed. I praying it will be one and done! hopefully it didn't spread anywhere else and the chemo did it's job on the rest of my body.

    I am recovering slowly but surely from the brain surgery. Ihave to keep reminding myself that there WAS a cancer spot--they took it out and there NED anywhere else in my body. I feel like crap because I had BRAIN SURGERY, not because i have cancer--that's GONE.
  • PADANAG
    PADANAG Member Posts: 20
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    MAJW said:

    Triple Neg..
    I, too, have Triple Negative bc with brain mets...had scans in Feb...showed 3 small spots to the brain...was totally blindness by that! I was completely asymptomatic....no headaches, balance problems, vision changes, nothing!! My oncologist immediately sent me to my radiation oncologist....and he put me through a complete neurological exam...passed with flying colors!...I had 10 radiation treatments that took care of the brain mets....then I started IV chemo with Avastin and Carboplatin...as my TNBC came back in my lymph nodes..it's working great!!! My tumor markers went from 98 in Feb...to 34(normal range, according to my oncologist) Oh happy days! And now I only have chemo every 3 weeks instead of every 2 weeks..TNBC is a sneaky type of BC....stay vigilant...

    So glad you are on the mend and your scans were clean....Celebrate!

    Hugs, Nancy

    glad to hear the treatments
    glad to hear the treatments are working for you. What stage were you when you were DX'd? What treatment did you do?

    The TNBC thing makes us special--lucky us :)
  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    PADANAG said:

    tomorrow i will see my onco
    tomorrow i will see my onco doc. even though my CT and chest x-ray were clear I want a PET scan.

    I will be undergoing a gamma knife procedure in a few weeks to treat the area in my brain where the tumor was removed. I praying it will be one and done! hopefully it didn't spread anywhere else and the chemo did it's job on the rest of my body.

    I am recovering slowly but surely from the brain surgery. Ihave to keep reminding myself that there WAS a cancer spot--they took it out and there NED anywhere else in my body. I feel like crap because I had BRAIN SURGERY, not because i have cancer--that's GONE.

    Continued healing, strength and gentle
    hugs for you.


    Please let us know how you are doing ...okay?


    Vicki Sam
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
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    thinking of you
    Denise

    thinking of you


    Denise
  • Angie2U
    Angie2U Member Posts: 2,991
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    PADANAG said:

    tomorrow i will see my onco
    tomorrow i will see my onco doc. even though my CT and chest x-ray were clear I want a PET scan.

    I will be undergoing a gamma knife procedure in a few weeks to treat the area in my brain where the tumor was removed. I praying it will be one and done! hopefully it didn't spread anywhere else and the chemo did it's job on the rest of my body.

    I am recovering slowly but surely from the brain surgery. Ihave to keep reminding myself that there WAS a cancer spot--they took it out and there NED anywhere else in my body. I feel like crap because I had BRAIN SURGERY, not because i have cancer--that's GONE.

    How did your appointment go?
    How did your appointment go? Any updates?


    Hugs, Angie