C-Diff

pinkkari09
pinkkari09 Member Posts: 877
Well, here comes the gross topic so don't read this post with sandwich in hand. I spent a couple weeks married to the toilet seat and thought maybe it was my anti-biotics so I stopped them, things got worse, to the point that nothing but mucus came from my bottom, I gave in, told doc, did the sample deal (that's a whole other story). Had two days of fluids and two yet to go, but long story short, I have c-diff, anyone else have this? Ive been miserable for weeks. I'm, coming out of it now I think, let's hope anyhow. Sorry for grossing anyone out, and if you wound up spitting your sandwich out, I'll get you a subway or local sandwich shop gift card. Thank you in advance for any input.
~Miles of Love
Kari
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Comments

  • MAJW
    MAJW Member Posts: 2,510 Member
    Kari..
    What is C-diff? Not familiar with this term but understand from your description what it does....I'm in the constipation/ diarrhea phase...Miralax/Immodium....can't win....

    So glad you're on the "tail" end of this.....and I didn't spit my Krispi Cream glazed donuts....lol
    Hugs, Nancy

    ps...I just looked it up on the.Mayo Clinic website...yikes! Had no idea it was so contagious...but it mainly said it's caused by antibiotics....but treated by two others...Flagyl and another...this website really explains it well....I just googled c.diff....
  • eihtak
    eihtak Member Posts: 1,470 Member
    pinkkari09
    Hi, I truely hope you are on the mend now, but know that you made me smile. It takes a great deal to gross me out as I am not only recovering from BC, but also Anal Cancer. If you want to feel comfortable talking discusting side effects, thats a cancer to have!!! Any how, I have heard of C-Diff and believe it is just treated with time and a new antibiotic, just remember fluids so as not to get dehydrated. Feel better!
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    Kari, I hate, hate that you
    Kari, I hate, hate that you are going through this and I'm sending positive healing energy and hugs your way!

    Clostridium difficile is a bacteria that may or may not reside in a healthy colon. The problem comes when the c diff takes over the good bacteria in your intestine. This usually occurs after a course of antibiotics. Why? Antibiotics "sterilize" your colon. They wipe out good and bad bacteria in your colon and can cause a super growth of bad bacteria.

    Once you have the c diff, you must, must follow medical advice carefully as it is a potentially very dangerous diarrhea. This usually means taking flagyl plus another antibiotic such as vancomycin. Follow carefully any other medical advice. Make sure you wash, wash, wash your hands after every bm as you can reinfect yourself.

    The flagyl may make your feel pretty cruddy as, as my gi doc said, "flagyl is not a walk in the park." Eat what you can tolerate: clear liquids until the diarrhea subsides, then soups, potatoes, ginger ale, boiled eggs--whatever you can tolerate. Concentrate on replacing fluids and electrolytes more than solid food until you are better.

    Just as important...when you are at the end of treatment and able to tolerate it, you need to reestablish the good bacteria in your gut. Really begin to eat yogurt with active cultures then. Also, your pharmacist can direct you to probiotic capsules to take with meals.

    Hope this helps! I just did a great deal of reading on c diff, because I just got over a nasty bacterial gut infection. My c diff screen was negative and my physician thinks I may have had salmonella as we have had a community outbreak.

    A heads up to all of you out there. We are immunocompromised--a fact that I personally like to deny ;-) Be careful with what you eat: wash your produce and avoid raw sprouts. Always wash your hands after going to the bathroom and keep hand sanitizer with you. Use it often. If you take antibiotics, ask about a probiotic and notify your health care provider immediately if you are having diarrhea.

    Now enough with my lecturing. I just can't help myself. With a neurology professor father and being an NNP, I just grew up this way ;-)

    Please get better soon Kari. I so sympathize with you right now. And pm me if I can help in any way.

    See: http://www.cdc.gov/HAI/organisms/cdiff/Cdiff_infect.html
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    Hugs
    Miles of Love back at you sweet Kari. I am sorry to hear about the infection. So glad they diagnosed what the problem is and are quick about correcting it. Hang in there, keep going! Don't be a stranger. Drop a line and let us know how you are doing from time to time.

    Hugs.
  • Megan M
    Megan M Member Posts: 3,000
    eihtak said:

    pinkkari09
    Hi, I truely hope you are on the mend now, but know that you made me smile. It takes a great deal to gross me out as I am not only recovering from BC, but also Anal Cancer. If you want to feel comfortable talking discusting side effects, thats a cancer to have!!! Any how, I have heard of C-Diff and believe it is just treated with time and a new antibiotic, just remember fluids so as not to get dehydrated. Feel better!

    I am so sorry Kari. I am
    I am so sorry Kari. I am praying for you every day!


    Hugs, Megan
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member

    Kari, I hate, hate that you
    Kari, I hate, hate that you are going through this and I'm sending positive healing energy and hugs your way!

    Clostridium difficile is a bacteria that may or may not reside in a healthy colon. The problem comes when the c diff takes over the good bacteria in your intestine. This usually occurs after a course of antibiotics. Why? Antibiotics "sterilize" your colon. They wipe out good and bad bacteria in your colon and can cause a super growth of bad bacteria.

    Once you have the c diff, you must, must follow medical advice carefully as it is a potentially very dangerous diarrhea. This usually means taking flagyl plus another antibiotic such as vancomycin. Follow carefully any other medical advice. Make sure you wash, wash, wash your hands after every bm as you can reinfect yourself.

    The flagyl may make your feel pretty cruddy as, as my gi doc said, "flagyl is not a walk in the park." Eat what you can tolerate: clear liquids until the diarrhea subsides, then soups, potatoes, ginger ale, boiled eggs--whatever you can tolerate. Concentrate on replacing fluids and electrolytes more than solid food until you are better.

    Just as important...when you are at the end of treatment and able to tolerate it, you need to reestablish the good bacteria in your gut. Really begin to eat yogurt with active cultures then. Also, your pharmacist can direct you to probiotic capsules to take with meals.

    Hope this helps! I just did a great deal of reading on c diff, because I just got over a nasty bacterial gut infection. My c diff screen was negative and my physician thinks I may have had salmonella as we have had a community outbreak.

    A heads up to all of you out there. We are immunocompromised--a fact that I personally like to deny ;-) Be careful with what you eat: wash your produce and avoid raw sprouts. Always wash your hands after going to the bathroom and keep hand sanitizer with you. Use it often. If you take antibiotics, ask about a probiotic and notify your health care provider immediately if you are having diarrhea.

    Now enough with my lecturing. I just can't help myself. With a neurology professor father and being an NNP, I just grew up this way ;-)

    Please get better soon Kari. I so sympathize with you right now. And pm me if I can help in any way.

    See: http://www.cdc.gov/HAI/organisms/cdiff/Cdiff_infect.html

    Enough Already!
    Oh, Kari, this is the absolute pits! I had a good friend who was on chemo (so immunocompromised as Eilee says) and was antiobiotics for an infection and she got C-diff, too. Hers was not diagnosed as soon as it could have been and she ended up in the hospital - twice.

    Please take good care of yourself so you can recover and continue to thrive. I didn't even know what CDiff was until my friend got it. To hear about you makes me think about how lucky so many of us are to get through chemo as well as we do. And Eileen, how lucky you are, too (altho it doesn't sound like your infection was any less scarey).

    Here come a whole bunch of hugs and prayers.

    Suzanne
  • Angie2U
    Angie2U Member Posts: 2,991

    Hugs
    Miles of Love back at you sweet Kari. I am sorry to hear about the infection. So glad they diagnosed what the problem is and are quick about correcting it. Hang in there, keep going! Don't be a stranger. Drop a line and let us know how you are doing from time to time.

    Hugs.

    I am sending lots of love,
    I am sending lots of love, hugs and prayers to you Kari. I am so sorry to read that you got this horrible infection. I pray that you will feel better soon. Thanks for posting Kari as we all love you.


    Hugs,

    Angie
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    Kari,
    I'm happy to see you

    Kari,

    I'm happy to see you are well enough to post, this c-diff sounds really horrible. (Although I wasn't grossed out till I read the post about fecal transplants.) I hope you continue to get stronger and stronger and that you quickly get the c-diff under control with no relapses.

    Hugs,

    Linda
  • CDiffVictim
    CDiffVictim Member Posts: 2
    C.Diff is a serious health threat
    I contracted C.Diff from hospital. Their lack of sterile technique was the cause. I was bed bound for almost 4 mnths and lost 92 pounds before finally it was stopped by a second course of Vancomycin. That followed 2 courses of Flagyl which did nothing. I had diarrhea 45 times a day. It was horrible. You must really take this disease seriously, as the CDC says 14,000 people died from it in the USA last year. I think many more died and went unreported. It is a worldwide plague, causing deaths in all countries. The United States medical system wants no one to know about it, because the main cause is them and their lack of sterile technique.
    The doctors will lie to you about it, or avoid saying anything, as they gave it to you, and do not want to be sued.

    I finally got it under control after 4 months, but many others never do. The antibiotics kill all the flora that do all the body's work digesting and breaking down things in the intestines. Those flora must be replaced as quickly as possible before the C.Diff, the drug resistant strain picked up in the hospital, takes over. It pushes all the good flora out of the intestines by releasing two kinds of toxins. Then the toxins just continue to cause diarrhea. You must aggressively treat this disease. It can be beaten. Find a doctor who knows about it.

    I used Probiotics in massive dosages. WHOLE FOODS has a cooler just for this live flora, probiotic. Use Critical Care Probiotic or one of the others with 50 Billion organisms per dosage. It will take a while for the flora to be replaced in the intestines. Continue taking Probiotics.

    If you have C.Diff, go to a doctor not connected to your original doctor. That way you are not having a doctor shield himself from litigation, in case you blame him for having a not clean operation. Just in case. Mine took two months before finally telling me it was C.Diff. He never told me about how contagious it was, or warn me not to cook for people as it could be spread this way. Older people and children are the usual victims, but anyone with a suppressed immune system can easily catch it, if the come in contact with it. The CDC monitors it as a Hospital Acquired Infection. They regard it as highly contagious and dangerous.

    The thing you need most is BLEACH, which should be used to kill C.Diff on any surface touched. I use Clorox Wipes for this. Bleach is the only thing that will kill the C.Diff spores, which can live for up to a year on any surface,including soap. Hot soap and water do not kill C.Diff. Only bleach will kill it.

    This page was printed from www.familypracticenews.com

    "When somebody tells you a patient has a positive C. difficile test, or a negative C. difficile test, your
    next question is ‘what test,’ " Dr. Bartlett said.
    About half of U.S. hospitals use polymerase chain reaction (PCR) to diagnose C. diff., the other half,
    enzyme immunoassay (EIA), he said.
    "PCR is exquisitely sensitive. It is very good for ruling it out, but there [are] false positives. EIA goes
    in the opposite direction. It’s not sensitive; it’s pretty good for specificity, [but] remember that if it’s a
    negative EIA, you have not excluded the diagnosis. EIA rules it in, PCR rules it out."
    Increasingly, patients are colonized with C. diff. before they reach the hospital, probably from
    previous health care contact. Avoiding proton-pump inhibitors and antibiotics associated with C. diff.
    infection – cephalosporins, clindamycin, and fluoroquinolones – are wise moves for high-risk patients.
    Opiates should be avoided, too, because they cause intestinal stasis, he said.
    It might take a while for the infection to respond to antibiotics; fecal transplantation is quicker.
    "Fecal transplant is hot," Dr. Bartlett said. "The aesthetics" are lacking, but "it really works. Take a
    patient who has 10 relapses of C. diff., put in somebody else’s stool" – often delivered as a slurry
    through a nasogastric tube – "and the next bowel movement is normal. The biologic response is
    fantastic. It’s mostly done for patients who have multiple relapses, but it’s also been done in very
    refractory patients and those who are seriously ill," Dr. Bartlett said (Anaerobe 2009;15:285-9).
    There’s a new colon-sparing surgical option for critically ill patients, diverting loop ileostomy with
    colonic lavage. Mortality rates are substantially lower, compared with traditional colon resection
    (Ann. Surg. 2011;254:423-7).
    "You look at it and you say, ‘My God, why didn’t they think of this before?" Dr. Bartlett said.
    There’s a new antibiotic choice, as well, after the Food and Drug Administration approved
    fidaxomicin for C. diff. in 2011. It has about the same cure rate as oral vancomycin, but fewer
    relapses, which may be "where this drug plays an important role," Dr. Bartlett said (N. Engl. J. Med.
    2011;364:422-31).
  • CDiffVictim
    CDiffVictim Member Posts: 2

    Kari,
    I'm happy to see you

    Kari,

    I'm happy to see you are well enough to post, this c-diff sounds really horrible. (Although I wasn't grossed out till I read the post about fecal transplants.) I hope you continue to get stronger and stronger and that you quickly get the c-diff under control with no relapses.

    Hugs,

    Linda

    C.Diff recovery
    I have not had a relapse in 18 months. I still take probiotics. Still recovering from the colon cancer surgery that the c.diff really wreaked havoc with, as that was what I was originally in the hospital for. So far, recovering, not relapsing, so all is well.

    You can beat this C.Diif. Get online and google it and set a Google alert to notify you of new advances and news of C.Diff Keep fighting it! You can win. READ MORE ABOUT IT ONLINE.
    Peace!
  • New Flower
    New Flower Member Posts: 4,294

    Hugs
    Miles of Love back at you sweet Kari. I am sorry to hear about the infection. So glad they diagnosed what the problem is and are quick about correcting it. Hang in there, keep going! Don't be a stranger. Drop a line and let us know how you are doing from time to time.

    Hugs.

    Kari I am very sorry that you got this nasty organism
    C. Difficile is closely related to my job. Eileen give a pretty good guidance, however I can add a little bit.
    If antibiotics will not work, there are experimental procedures to help with C Difficile, gross but very effective.
    Disinfection of your bathroom is critical to success as it is possible to recontaminate and re-inoculate your body. C.difficile spores are very resistant and very infectios, which means a very few is enough for making immunocompromised patient sick. Please use household bleach diluted to 1:10 around your house to disinfect your bathroom, counter, and floors.
    It is my understanding that until you are free from C. Difficile, you should NOT receive any Chemo infusions, as chemo affects stomach  and C difficile can be deadly.
    Wishing you good weekend and pray for quick victory over this bug
    Hugs
  • camul
    camul Member Posts: 2,537
    Glad you are at the tail end of this.
    Kari you have been through so much. Thank you for sharing this. Didn't make me sick, just more education. I have been on 4- 10 day antibiotics in less than 5 months and my onc and nurse kept asking about diarrhea. Now I know why they keep monitoring me so closely.

    Have never heard of C-Diff, but it is really scary! Eileen, I am so glad you are back to educate. Any of our fellow pinks who can educate us, please continue to do so. I was advised by onco at the beginning of this journey how important it is to disinfect. Have the Clorox wipes and baby wipes in purse for use in public places, use them constantly at home.

    Kari, I am so glad that you are getting better. Not grossed out, just feel so bad that you had to endure more misery!

    Hugs and prayers,
    Carol
  • rallendorfer
    rallendorfer Member Posts: 244
    camul said:

    Glad you are at the tail end of this.
    Kari you have been through so much. Thank you for sharing this. Didn't make me sick, just more education. I have been on 4- 10 day antibiotics in less than 5 months and my onc and nurse kept asking about diarrhea. Now I know why they keep monitoring me so closely.

    Have never heard of C-Diff, but it is really scary! Eileen, I am so glad you are back to educate. Any of our fellow pinks who can educate us, please continue to do so. I was advised by onco at the beginning of this journey how important it is to disinfect. Have the Clorox wipes and baby wipes in purse for use in public places, use them constantly at home.

    Kari, I am so glad that you are getting better. Not grossed out, just feel so bad that you had to endure more misery!

    Hugs and prayers,
    Carol

    No idea this was out there!
    I am so grateful for the info passed along here. Kari, your willingness to post has helped many now! Hope you are now past it all. I volunteer at 2 hospitals with 3 therapy dogs, and asked my Oncologist if it were safe to continue to do so during chemotherapy. She said as long as I am getting the Neulasta shot it would be ok. Now I am seriously wondering about that! Couldn't I get C-diff that way? Scared. Maybe I should start the probiotics anyway just for safety?
  • grams2jc
    grams2jc Member Posts: 756
    Oh no Kari!
    I had a week long bout of something a few years ago. Since I work in a medical lab (billing) my PCP just assumed it was c-diff and treated it as such. Meds worked. There were times I thought, I really need to go to the hospital, but how will I get there call an ambulance and as them to bring a port-a-pot? Thankfully I called in my symptoms and it is the one and only time since I have been seeing this doc that he didn't make me come in.

    You will feel better once the meds and fluids kick in and you can stay out of the bathroom for more than 15 minutes.

    Hang in there, good to see you posting,

    Jennifer
  • carkris
    carkris Member Posts: 4,553 Member
    grams2jc said:

    Oh no Kari!
    I had a week long bout of something a few years ago. Since I work in a medical lab (billing) my PCP just assumed it was c-diff and treated it as such. Meds worked. There were times I thought, I really need to go to the hospital, but how will I get there call an ambulance and as them to bring a port-a-pot? Thankfully I called in my symptoms and it is the one and only time since I have been seeing this doc that he didn't make me come in.

    You will feel better once the meds and fluids kick in and you can stay out of the bathroom for more than 15 minutes.

    Hang in there, good to see you posting,

    Jennifer

    So sorry kari. We have
    So sorry kari. We have patients who have it . When we have them , the precautions include washing vigorously with soap and water. purell is not effective. need to kill the spores. I have heard it is painful. I hope you feel better soon.
  • DebbyM
    DebbyM Member Posts: 3,289 Member

    C.Diff recovery
    I have not had a relapse in 18 months. I still take probiotics. Still recovering from the colon cancer surgery that the c.diff really wreaked havoc with, as that was what I was originally in the hospital for. So far, recovering, not relapsing, so all is well.

    You can beat this C.Diif. Get online and google it and set a Google alert to notify you of new advances and news of C.Diff Keep fighting it! You can win. READ MORE ABOUT IT ONLINE.
    Peace!

    Kari, so sorry for you. You
    Kari, so sorry for you. You have enough to deal with that you certainly don't need this. I will be praying for you and thanks for the update.



    Hugs, Debby
  • moths
    moths Member Posts: 9
    C diff
    Hi,
    I had C diff last year after lots of antibiotics. Luckily, the Flagil got rid of it pretty quickly.
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    carkris said:

    So sorry kari. We have
    So sorry kari. We have patients who have it . When we have them , the precautions include washing vigorously with soap and water. purell is not effective. need to kill the spores. I have heard it is painful. I hope you feel better soon.

    Praying that the new
    Praying that the new antibiotics will help you Kari.


    Sue :)
  • StaceyPMD1121
    StaceyPMD1121 Member Posts: 65
    Hugs & Prayers

    Hi Kari,

    I am sorry to hear what you are going through. Lots of Hugs & will keep you in my prayers. Thank you for posting about your illness. I hope the medication works quickly for you. Get lots of rest when you can. Please let us know how you are doing when you feel better.

    Miles of Love Right Back At You!!!,
    Stacey
  • missrenee
    missrenee Member Posts: 2,136 Member

    Hugs & Prayers

    Hi Kari,

    I am sorry to hear what you are going through. Lots of Hugs & will keep you in my prayers. Thank you for posting about your illness. I hope the medication works quickly for you. Get lots of rest when you can. Please let us know how you are doing when you feel better.

    Miles of Love Right Back At You!!!,
    Stacey

    Kari--this just stinks!
    I was really mad to see what you've been going through. It's just not fair, and well, it just stinks.

    Please know that I'm sending all the positive energy I can muster and a whole bunch of prayers your way for a swift and uneventful recovery.

    Thinking of you,
    Hugs, Renee