UPDATE a small miracle ! so aggressive hyperthermia in germany or watchful waiting at home with alte

pete43lost_at_sea

toyfox said:

Pete
Whatever you decide - wish you the best.
Linda

thanks linda
i appreciate your wish.
hugs,
Pete

ps i wish the same for us all. i do think i offer the forum something of interest to some. in a sense as we say no one solution suits everyone. maybe the tailor making of our treatments offers better outcomes. i hope so.

Lovekitties

pete43lost_at_sea said:

when is a recurrance a recurrance` ???
dear marie,

that is a great question, i cannot say, i am acting assuming it is.
the 3 three onc's and 2 surgeons and 2 integrative gp's say given my clinical history and their experience yes. I have the words metastatic colorectal recurrance on doctors referal letter.

assuming it is, and if i am wrong well , just how fantastic would that be. they have elimenated most of the other causes of rising cea's not related to mcrc. so its kind of what they call a differential diagnosis at this point.

noone wants to issue full chemo based on a maybe, the tumour if it exists may develop resistance earlier than necessary. so on one hand i run the risk of these early interventions actually reducing my length of survival, or do they give me the best chance of a cure, the only chance of a cure.

i appreciate your point about us being happy as a family as long as possible, and i have not had any fights over this point about assets, but i have expressed what i would like to do that would give me my best shot a cure.

so the question becomes, how much money is enough for the kids and wife. one, two or three million.

i am blessed to have these choices, but they are difficult choices to make.

we all go through them to different extents.

i know of kids left millions, without parents that now are in lots of trouble.

does giving that kid of money inheritance to kids help them or hinder them. that's a whole other post.

is not my greatest responsibility to my kids and wife, to love them. i thought staying alive as well and as long as possible my best way of achieving that.

hugs,
Pete

Dear Pete
Your financial circumstances are highly unusual for those of us here. Most of us must measure our pennies, thus our concern for your family's financial status in your absence.

Of course having assets worth a great deal only means something if you don't have liabilities of significance against them.

I don't think any of us were suggesting that you give up all your efforts to remain healthy not only for your family but for yourself. I for one only felt your sense of desperation in trying to find the cure. I guess my Scots heritage keeps my purse strings tight unless I am able to see that I can get my money's worth.

From what I have read, they use hyperthermia treatments in conjunction with radiation or chemo. Is that the treatment you are seeking or is there something else? How will you know if it worked since there is no visible tumor, remembering that CEA can be unreliable no matter how good an indicator it was before?

I wish you luck with whatever you determine is your best course.

Marie who loves kitties

For those wanting more information about this treatment go to

http://www.cancer.org/Treatment/TreatmentsandSideEffects/TreatmentTypes/hyperthermia

plh4gail

Not the kids
I was going to stay away from this as I have some concerns and questions that I don't think will matter what my opinion is. When it comes down to it you will do what you want to do.

The thing that I can't understand is how could you put your kids in the middle of an adult conversation between you and your wife. They have no business chosing a side. That could leave life long effects on them that they should never ever have to have....responsibility for their fathers health.... JMO.

You need to fix that pronto before you go any further with a decision.

plh4gail

Cathleen Mary

plh4gail said:

Not the kids
I was going to stay away from this as I have some concerns and questions that I don't think will matter what my opinion is. When it comes down to it you will do what you want to do.

The thing that I can't understand is how could you put your kids in the middle of an adult conversation between you and your wife. They have no business chosing a side. That could leave life long effects on them that they should never ever have to have....responsibility for their fathers health.... JMO.

You need to fix that pronto before you go any further with a decision.

plh4gail

Take a deep breath

This is not meant as a judgment...just an invitation to look thru a different lens. If we're obsessed by cancer, has it already won?
Is it possible that what is most healing is our capacity to love and be loved? Perhaps nothing, not even the cure of cancer, is more important than nurturing those relationships.
Maybe what we are all searching for can be found deep within ourselves.
With hope for all of us,
Cathleen Mary

pete43lost_at_sea

plh4gail said:

Not the kids
I was going to stay away from this as I have some concerns and questions that I don't think will matter what my opinion is. When it comes down to it you will do what you want to do.

The thing that I can't understand is how could you put your kids in the middle of an adult conversation between you and your wife. They have no business chosing a side. That could leave life long effects on them that they should never ever have to have....responsibility for their fathers health.... JMO.

You need to fix that pronto before you go any further with a decision.

plh4gail

i wanted the kids to know how much aunty val loved them
Dear Gail,

thanks for your opinion, i kind of agree with you, but we were discussing this in the kitchen and mel walked past, and i asked her. her immediate answer answer was yes of course. she knows about the cashflow problems last week as well.

she dishes out the supplements like an angel, we are in this together. whats the worst, she helped her dad do what he thought was best. we are really close.

we have a little code, if she sees i am down, not smiling, she smiles at me. as soon as i see her smile i have to smile back. it works everytime. i am not going to loose a day to depression, given i cannot get a moneyback guarantee on the number of days.

the disputes in the family, the good times, for me its apart of life. she knows mum and dad have many differences of opinion on many things. thats the strong point of our family life, i am happy to let her decide where her decisions lie.

its the one skill, above all others i teach both the kids, thats how to make wise decisions, or at least the best decision they can based on the information at hand.

my fears for the future for them without me are real, exposing them to my challenges, the families challenges i feel works for us. she still has a great life, despite these troublesome cells, in fact so do i.

i did asked how she felt about it, the money being used versus going into trust for her. she was fine, if she had said no, well i would have respected that. she is 10 going on 16.

I will do what i think is best, but i already have agreement from wife to go to germany. she wants to come with me, but who will look after the kids, the business the dogs.

i might just check it out and see whats what.

this windfall just given me this option as an immediate alternative, that i am carefully considering and researching.

our aunty val loved us, especially the kids and they loved her. she was not related by blood, but was my mum's best friend. and in some ways i was a son to her. she had no children.

so now at this point i told the kids the money for them was coming through, but that mum and i agreed to use it on my cancer therapies. they are were ok, as long as i promised to pay it back when i get well. which i promised to do. i have been blessed with more than enough money, just ironically i cannot access it just at the moment, when in my mind i have great need.

we have been time rich, asset rich and to some extent cashflow poor. we live an alternative lifestyle in many ways.

the life long effects of not having a loving dad, is actually one of my motivating factors. the kids are one of the most joyous parts of my life, we are talking about all going to live in germany for six months, if its needed or justified. i am still doing my research.

my girl mel, gives me my injections every second or third night as my wife hates needles and i have problems doing intramuscular injections in the butt.

they don't have responsibility for my health, thats mine alone, but we are a family and their support i appreciate.

hugs,
pete

pete43lost_at_sea

Cathleen Mary said:

Take a deep breath

This is not meant as a judgment...just an invitation to look thru a different lens. If we're obsessed by cancer, has it already won?
Is it possible that what is most healing is our capacity to love and be loved? Perhaps nothing, not even the cure of cancer, is more important than nurturing those relationships.
Maybe what we are all searching for can be found deep within ourselves.
With hope for all of us,
Cathleen Mary

thanks cathleen mary
i loved what you had to say. thanks.

i try to take a deep breathe everyday, especially when i meditate and pray.

has it won already ? thats such a good question. i hope not.

i am way i am blessed i have the capacity, opportunity and will to change my life to approach my cancer journey in my way. even while at mass, i am scratching my sons back so he relaxes and does not fidget. not a night goes past without a hug, a kiss and a story or two.

this has to be one of the greatest questions i ask of myself.
to love and be loved is whats most healing, its the strength of love from and in my family that is driving me, i have such a great life.

this stranger at church this morning, is the mother of my sons friend at school, we got to talking, she asked me if i had heard of bitter melons. they are an alternative cancer therapy i had read about, that are not easily sourced. well she has an asian fruit and veg buisness and said she will give me some tuesday morning when they get back from the commercial markets.

god works in mysterious ways. another alternative cancer thing i know of, but have not even researched. i said thankyou and of course i appreciated her kind offer of help.

i think my obsession with alternative cancer treatments now is really well balanced in the context of my life. you see for the first 43 years, i was not aware or focused on health at all.

herdizziness

Tumor
You do realize of course, in order for the hypothermia to work they have to have an actual TUMOR to concentrate it on?
And it's simply supposed to do exactly what normal chemo (keeping in mind of course you have to do a low dose of chemo with the hypothermia) or radiation does?
Just could have sworn your pt's and ct's weren't showing one.
They do this in the US as well, but of course, here they require an actual tumor to concentrate on.
Winter Marie

pete43lost_at_sea

Lovekitties said:

Dear Pete
Your financial circumstances are highly unusual for those of us here. Most of us must measure our pennies, thus our concern for your family's financial status in your absence.

Of course having assets worth a great deal only means something if you don't have liabilities of significance against them.

I don't think any of us were suggesting that you give up all your efforts to remain healthy not only for your family but for yourself. I for one only felt your sense of desperation in trying to find the cure. I guess my Scots heritage keeps my purse strings tight unless I am able to see that I can get my money's worth.

From what I have read, they use hyperthermia treatments in conjunction with radiation or chemo. Is that the treatment you are seeking or is there something else? How will you know if it worked since there is no visible tumor, remembering that CEA can be unreliable no matter how good an indicator it was before?

I wish you luck with whatever you determine is your best course.

Marie who loves kitties

For those wanting more information about this treatment go to

http://www.cancer.org/Treatment/TreatmentsandSideEffects/TreatmentTypes/hyperthermia

thanks again marie
i have had discussions with different clinics looking at treatment described in the link below.

I have also found a few more wholist treatment centers that would replace chemo drugs, with chemo supplements supplements and herbs like tcm. replying to you has just helped me cook up another idea, excuse the punn. i could go to the sauna after i get my iv vitamin C, its like chemo, but gentler. thanks for replying, as its helped me realise another potential way i can improve my do it myself therapy at home. i will hop in the sauna at the gym in a sweatsuit after i finish my infusions. this is such a simple therapy, i should have thought of this before. i tried do it yourself hyperthermia earlier, its a bit scary. your heart pounds fast at 38.6 degrees. nothing ventured nothing gained i say.

not easy choices to make, but make them i will.

thanks for the wish of luck. i will take it, i have the capacity.

I say what if i do this and it works! I live, 1000s of germans do this every year.
should patients drive these treatment trends, or should we patiently wait for our doctors.

so i could imagine flying over every six months, to get cooked, kill off some crc's and see how it goes. maybe my cea will stay down forever. maybe this gentler chemo is the way for me, i can then keep on diving, have fun with the family.

I share my story, becuase i hoped to have one pm or reply from someone who tried these treatments. not one answer yet, alas! maybe i am the first from csn to consider travel to germany to try these clinics.

I have been encouraged by german oncologists whose reading of my reports and history i could not fault.

The internet gives me, us all the power to at least research and ask our doctors questions.
its that epatient dave stuff phil talked about. yes i expect i am the patient from hell, i got given that book, i just have not read it yet!

I will send my onc a postcard from germany.

my cea is up and steady at 17 for a 2 1/2 months now. its not going down. if was back to zero like it used to be, well this post and my alternative wanderings would not have happened. given how obsessed i was with health to prevent recurrence, i guess i have no choice in my mind to go all out trying to get the marker back to zero and to live each day as well as i can.

hugs,
Pete

Nana b

herdizziness said:

Tumor
You do realize of course, in order for the hypothermia to work they have to have an actual TUMOR to concentrate it on?
And it's simply supposed to do exactly what normal chemo (keeping in mind of course you have to do a low dose of chemo with the hypothermia) or radiation does?
Just could have sworn your pt's and ct's weren't showing one.
They do this in the US as well, but of course, here they require an actual tumor to concentrate on.
Winter Marie

Pete, my husband would sell
Pete, my husband would sell it all to find a cure for me. But there isn't a cure. NED last month and not this month. Major bummer. But like you I am waihing 90 days to see if the booger shows up on my PET. I dont think About CANCER EVERY DAY! HECK IF I DIDN'T hAVE THIS HERNIA. I WOULD FERL PRETTY GOOD.

No one can tell you what to do, and I don't think asking for a million is much to ask. I don't think your wife will be poor not with millions in assets, she should live a bit too. Life is too short. As for the kids. They won't starve.

go easy. Don't over do the thinking. Relax.

plh4gail

pete43lost_at_sea said:

i wanted the kids to know how much aunty val loved them
Dear Gail,

thanks for your opinion, i kind of agree with you, but we were discussing this in the kitchen and mel walked past, and i asked her. her immediate answer answer was yes of course. she knows about the cashflow problems last week as well.

she dishes out the supplements like an angel, we are in this together. whats the worst, she helped her dad do what he thought was best. we are really close.

we have a little code, if she sees i am down, not smiling, she smiles at me. as soon as i see her smile i have to smile back. it works everytime. i am not going to loose a day to depression, given i cannot get a moneyback guarantee on the number of days.

the disputes in the family, the good times, for me its apart of life. she knows mum and dad have many differences of opinion on many things. thats the strong point of our family life, i am happy to let her decide where her decisions lie.

its the one skill, above all others i teach both the kids, thats how to make wise decisions, or at least the best decision they can based on the information at hand.

my fears for the future for them without me are real, exposing them to my challenges, the families challenges i feel works for us. she still has a great life, despite these troublesome cells, in fact so do i.

i did asked how she felt about it, the money being used versus going into trust for her. she was fine, if she had said no, well i would have respected that. she is 10 going on 16.

I will do what i think is best, but i already have agreement from wife to go to germany. she wants to come with me, but who will look after the kids, the business the dogs.

i might just check it out and see whats what.

this windfall just given me this option as an immediate alternative, that i am carefully considering and researching.

our aunty val loved us, especially the kids and they loved her. she was not related by blood, but was my mum's best friend. and in some ways i was a son to her. she had no children.

so now at this point i told the kids the money for them was coming through, but that mum and i agreed to use it on my cancer therapies. they are were ok, as long as i promised to pay it back when i get well. which i promised to do. i have been blessed with more than enough money, just ironically i cannot access it just at the moment, when in my mind i have great need.

we have been time rich, asset rich and to some extent cashflow poor. we live an alternative lifestyle in many ways.

the life long effects of not having a loving dad, is actually one of my motivating factors. the kids are one of the most joyous parts of my life, we are talking about all going to live in germany for six months, if its needed or justified. i am still doing my research.

my girl mel, gives me my injections every second or third night as my wife hates needles and i have problems doing intramuscular injections in the butt.

they don't have responsibility for my health, thats mine alone, but we are a family and their support i appreciate.

hugs,
pete

Sonia32

Pete
I wasn't going to get involved but I am very concerned for you my friend. It seems like your on a one man war against cancer, and your hoping to keep it at bay, but hoping at the same time you'll find the cure for it?
i don't think Germany is the answer, if it was, we'd all sell our assests and head out there. Remember Farrah Fawcett, she may have not gone out to Germany for the same treatment, but she went out there and she still died.
Steve Jobs? for all his billions cancer still claimed him in the end.
It's great your doing all you can to keep it at bay, but I'm worried your getting obsessed, seriously.
Your cea is up, but you still have no real idea what's going on in your body. Is the cancer back or not? you don't know that. You going out to Germany, to be honest, they are thinking about the money and not you.
Just thinking how, some here in the UK would do anything to get treatment in the States, and it seems now everyone wants to come to Europe. Please think about this very carefully, you could be doing your body more damage then good. And cancer may not end up killing you, but the treatments might. And don't tell me alternatives haven't hurt people because they have, especially something so dangerous. Honestly, I think you need to see a consoler who is a specialist in cancer, because I really think you need to talk about it all. If you get offended by what I have written, I apologise but I am really concerned about you.

pete43lost_at_sea

Sonia32 said:

Pete
I wasn't going to get involved but I am very concerned for you my friend. It seems like your on a one man war against cancer, and your hoping to keep it at bay, but hoping at the same time you'll find the cure for it?
i don't think Germany is the answer, if it was, we'd all sell our assests and head out there. Remember Farrah Fawcett, she may have not gone out to Germany for the same treatment, but she went out there and she still died.
Steve Jobs? for all his billions cancer still claimed him in the end.
It's great your doing all you can to keep it at bay, but I'm worried your getting obsessed, seriously.
Your cea is up, but you still have no real idea what's going on in your body. Is the cancer back or not? you don't know that. You going out to Germany, to be honest, they are thinking about the money and not you.
Just thinking how, some here in the UK would do anything to get treatment in the States, and it seems now everyone wants to come to Europe. Please think about this very carefully, you could be doing your body more damage then good. And cancer may not end up killing you, but the treatments might. And don't tell me alternatives haven't hurt people because they have, especially something so dangerous. Honestly, I think you need to see a consoler who is a specialist in cancer, because I really think you need to talk about it all. If you get offended by what I have written, I apologise but I am really concerned about you.

thanks sonia
dear sonia

you could never offend me, and i sincerely appreciate your comments actually everyones comments. when I post out into the forum is fair to accept all the replies, i appreciate the time and care people put into their replies. the ones at odds with my prejuidices offer me the chance to fully consider if what i am doing is the best. thats why i am replying in detail to each persons input. i will have some of the collective wisdom of this board reflected in my decisions.

i also am worried that i am getting obsessed. the daily aspects of family life keep me centered on one hand but encourage me to explore all the options available to me.

its my fault for going to this large posh alternative cancer treatment conference in melbourne, which was last november i listened to the best speakers in our country on alternative therapies that get results. the day after the conference i found out i had a recurrence. also amazing timing.

i actually recorded the entire conference, now every speaker made an impression. they said australia was 30 years behind germany in our cancer treatments, they gave examples with regard to vitamin c therapy and hyperthermia and others.

based on that conference i went to melbourne to investigate the only hyperthermia setup in australia, it was not an imppressive operation as it was just setting up.

given my understanding of mcrc, the treatment options, and i think its fair to say anyone who has been active on our board, would be aware of the challenges most treatment poses.

for me the glass is half full, so in the absence of clinical studies saying hyperthermia with low dose chemo at the earliest stages recurrence is useless, i presume to hope that it in fact may help. yes wishful thinking, but whats left to wait and see.

I am not aware of lasting side effects of hyperthermia. Now its not been discussed here much, no else here has gone to germany to try it. I am a bit adventureous, ok even a tad reckless given the likely challenge before me, my onc is adamant its a recurrence, and so is the second and third opinion from onc and also the colorectal surgeons i have consulted with.

the idea of hypermeria with lower doses of chemo is just so compelling for me, or even replacing low dose chemo with cancer killing gentle natural therapies like iscador. now i have emailed these centers as well.

the centers i have found have exceptional reputations and have been highly recommended.

I am not aware of the alternatives being that dangerous, so far i feel great and have heaps of energy. but i will be careful and i am trying to do my homework. even this post is all about doing research on the centers. so far no one has had any good or bad stories about german clinics.

its just the idea of hoping on a plain with my passport and getting three weeks of therapy in germany seems so easy to me. i feel silly for delaying for so long, especially when the option is to sit back and grow a tumour so my onc can have a target.

i remember vividly this chart about the exponential growth of cancer over time and how its better to get rid of tumours before they arrive or take root.

the anti angiogenic focus of these centers is something i will pursue as well.
I will ask to get my counsellor back, to keep an eye on me. My last counsellor said she was impressed with my health focus, despite most of my alternatives being not recommended by the hospital she was a part of. she said my commitment to diet and exercise was exemplary.

Its strange that what i think of as my greatest strength , others percieve as a weakness.

I guess all our journeys are different, mine maybe just a little bit more. at least i am a one stop shop for most alternative therapies from tcm to supplements, from iscador to avemar, from urkrain to apatone and so many more..... it will be fun to see if any of them help.

I only need one of them to work well against my crc and i will avoid chemo i hope.

hugs,
Pete

pete43lost_at_sea

herdizziness said:

Tumor
You do realize of course, in order for the hypothermia to work they have to have an actual TUMOR to concentrate it on?
And it's simply supposed to do exactly what normal chemo (keeping in mind of course you have to do a low dose of chemo with the hypothermia) or radiation does?
Just could have sworn your pt's and ct's weren't showing one.
They do this in the US as well, but of course, here they require an actual tumor to concentrate on.
Winter Marie

thanks winter
dear winter,

to some extent what you say is correct, but whole body hyperthermia without chemo but with supplements, vitamins and minerals has been recommended for me as an effective treatment as well.

who in the states does it?

i'll get a quote. mind you i would prefer at this point to go to the centers where the technique has been practiced and developed, rather than somewhere where the experience is not so great. i am corresponding with oncologists who do hyperthermia everyday, with lots of crc patients.

its easy for me to accept that australia is not the worlds best in colorectal treatment. some countries have medical/legal/political frameworks that enable more innovation and fast tracking. No offense but maybe America is not the world leader either in colorectal treatment. what i am seeking, is what country has the worlds best practice, or the best treatment options. i am just looking for what treatment is best for me, the current clinical standard just sux as far as i am concerned.

they also require a tumour in germany clinics as well to focus local hyperthermia on.

so far the pet's and ct's are clear, this is all about keeping them that way.

I say if the hyperthermia keeps the tumour dormant, small whatever. i would fly over once, twice or three times a year for the next decade and get hyperthermia treatment. i'll skip 6 months of folfiri if i can.

If i do the trip enough time, think of all the air miles i will clockup. I might even learn german.

hugs,
pete

Lovekitties

pete43lost_at_sea said:

thanks winter
dear winter,

to some extent what you say is correct, but whole body hyperthermia without chemo but with supplements, vitamins and minerals has been recommended for me as an effective treatment as well.

who in the states does it?

i'll get a quote. mind you i would prefer at this point to go to the centers where the technique has been practiced and developed, rather than somewhere where the experience is not so great. i am corresponding with oncologists who do hyperthermia everyday, with lots of crc patients.

its easy for me to accept that australia is not the worlds best in colorectal treatment. some countries have medical/legal/political frameworks that enable more innovation and fast tracking. No offense but maybe America is not the world leader either in colorectal treatment. what i am seeking, is what country has the worlds best practice, or the best treatment options. i am just looking for what treatment is best for me, the current clinical standard just sux as far as i am concerned.

they also require a tumour in germany clinics as well to focus local hyperthermia on.

so far the pet's and ct's are clear, this is all about keeping them that way.

I say if the hyperthermia keeps the tumour dormant, small whatever. i would fly over once, twice or three times a year for the next decade and get hyperthermia treatment. i'll skip 6 months of folfiri if i can.

If i do the trip enough time, think of all the air miles i will clockup. I might even learn german.

hugs,
pete

Dear Pete
If you put "hypothermia cancer treatment USA" into your favorite search engine you will find quite a few places in the states which offer this treatment. Among them are Cancer Treatment Centers of America and lots of clinic type places. There may also be some hospitals on the lists.

I still have to wonder that the doctors in Germany are going to apply this treatment without a visible tumor. Are you considering full body treatment?

While you may want to keep this on your list, I really would suggest that you research just how effective it is 'without a visible tumor'. How can it possibly be evaluated in a trial or otherwise without a target.

Marie who loves kitties

tommycat

Hi Pete
I have followed this thread with great interest!
I suspect in your heart of hearts, you have already made up your mind to go.
Please report back with what we all hope is fantastic news.

sdp

pete43lost_at_sea said:

thanks winter
dear winter,

i appreciate your comments and perspective.

how we go through this challenge as a family, remains.

I asked my daughter mel,do you want the $15,000 when your 21, or can i use it now for germany. she said use it for treatment.

My 6 year old said he just wants lego now, i said now lego now either way.

most of the therapies i am trying have science behind them, long before they become clinically accepted here or even mainstream in the us. hopefully my reply to craig, gives a little more context.


below is one of the replies.

are these guys selling snake oil or is it the best, will what they offer help me more than staying home and doing nothing, which is all the conventional doctors say here.

i have life insurance, and heaps of assets, so the kids and wife will be well cared for in the worst case. seriously trying to avoid that.

EMAIL reply from a clinic in today.
hugs,
pete

Thank you very much for sending your medical reports. You are suffering from colorectal recurrence and are looking for treatment.

Thank you very much for sending your medical reports. You are suffering from colorectal recurrence and are looking for treatment.

We have developed a special integrative cancer therapy concept as part of our holistic approach which gives the best guarantee for life quality.
In treating colorectal cancer we have very good experience by performing low dose, insulin potentiated chemotherapy in combination with local hyperthermia to the tumor manifestation, whole body hyperthermia, extensive detoxification and an immune biological support program.

For this treatment program you need to stay 3 weeks as inpatient.

In case that you decide to come to our hospital let us know so that we can make reservation

klinik
Hi,

Which German klinik did u get the treatment from

Was at St George klinik at bad aibling?

Have u tried the univ of Frankfurt and Dr vogl?

Pl let me know

I am based in India and dx with colon cancer with extensive Mets to liver =

Dics here put me on chemo - folfox and erbitux

Have done a month then emergency hospitalisation for severe neutropenia
have been in hospital since last 4 days on antibiotic and neupogen shots

Let me know

sdp

pete43lost_at_sea said:

thanks winter
dear winter,

i appreciate your comments and perspective.

how we go through this challenge as a family, remains.

I asked my daughter mel,do you want the $15,000 when your 21, or can i use it now for germany. she said use it for treatment.

My 6 year old said he just wants lego now, i said now lego now either way.

most of the therapies i am trying have science behind them, long before they become clinically accepted here or even mainstream in the us. hopefully my reply to craig, gives a little more context.


below is one of the replies.

are these guys selling snake oil or is it the best, will what they offer help me more than staying home and doing nothing, which is all the conventional doctors say here.

i have life insurance, and heaps of assets, so the kids and wife will be well cared for in the worst case. seriously trying to avoid that.

EMAIL reply from a clinic in today.
hugs,
pete

Thank you very much for sending your medical reports. You are suffering from colorectal recurrence and are looking for treatment.

Thank you very much for sending your medical reports. You are suffering from colorectal recurrence and are looking for treatment.

We have developed a special integrative cancer therapy concept as part of our holistic approach which gives the best guarantee for life quality.
In treating colorectal cancer we have very good experience by performing low dose, insulin potentiated chemotherapy in combination with local hyperthermia to the tumor manifestation, whole body hyperthermia, extensive detoxification and an immune biological support program.

For this treatment program you need to stay 3 weeks as inpatient.

In case that you decide to come to our hospital let us know so that we can make reservation

klinik
Hi,

Which German klinik did u get the treatment from

Was at St George klinik at bad aibling?

Have u tried the univ of Frankfurt and Dr vogl?

Pl let me know

I am based in India and dx with colon cancer with extensive Mets to liver =

Dics here put me on chemo - folfox and erbitux

Have done a month then emergency hospitalisation for severe neutropenia
have been in hospital since last 4 days on antibiotic and neupogen shots

Let me know

herdizziness

pete43lost_at_sea said:

thanks winter
dear winter,

to some extent what you say is correct, but whole body hyperthermia without chemo but with supplements, vitamins and minerals has been recommended for me as an effective treatment as well.

who in the states does it?

i'll get a quote. mind you i would prefer at this point to go to the centers where the technique has been practiced and developed, rather than somewhere where the experience is not so great. i am corresponding with oncologists who do hyperthermia everyday, with lots of crc patients.

its easy for me to accept that australia is not the worlds best in colorectal treatment. some countries have medical/legal/political frameworks that enable more innovation and fast tracking. No offense but maybe America is not the world leader either in colorectal treatment. what i am seeking, is what country has the worlds best practice, or the best treatment options. i am just looking for what treatment is best for me, the current clinical standard just sux as far as i am concerned.

they also require a tumour in germany clinics as well to focus local hyperthermia on.

so far the pet's and ct's are clear, this is all about keeping them that way.

I say if the hyperthermia keeps the tumour dormant, small whatever. i would fly over once, twice or three times a year for the next decade and get hyperthermia treatment. i'll skip 6 months of folfiri if i can.

If i do the trip enough time, think of all the air miles i will clockup. I might even learn german.

hugs,
pete

Who in the states do it?
Many, which is why I worry that the ones you have chosen in Germany aren't exactly up to snuff, 30,000.00 for 3 weeks or 6 weeks or whatever it is, is unbelievably CHEAP for a therapy that is more expensive then radiation and chemo combined. It takes more medical personnel, more machinery then the common alternatives of radiation and chemo in combination.
As for who does it in the US? Quite a few actually, one that is doing it comes to mind is Helen Diller Family Comprehensive Cancer Center UCSF (In San Francisco) and LA County USC Medical Center
And Pete, it isn't a "cure-all" it's just INSTEAD of RADIATION, it's touted as being kinder then radiation, but NOT more effective.
Chasing a rabbit down a hole, the man comes away with nothing gained in hand, just the loss of the rabbit.
Winter Marie

tanstaafl

choosing sites
Pete,
Which kind of hyperthermia (HT) equipment are you considering? (how many major brands are there?) I notice that this European HT manufacturer that claims to be the "gold standard" lists equipment sited in Asia, closer, presumably less expensive. Since it didn't list Australia, I assume its likely they have another "brand" of HT equipment. Many seem to be combining radiation or chemo with their HT.

If we were pursing hyperthermia right now, I guess we would consider the likelihood of this being a periodic treatment, say 6 weeks HT every 5-15 months in combo with other treatments. For us, this would favor closer sources with a lot of comparision of experience base and "brand" equipment if time allowed.

Ted Jones

herdizziness said:

At what point
At what point would I take the money from the roof over my children's heads (I have two grandchildren living with me now)and food from their bellies? At what point would I ask my husband to be reduced to pennies? At what point would I put my life ahead of theirs, decide I am more important? Not to the point to where I'm using unscientific alternatives and "therapies" unproven. At what point does someone understand what is a scam or what is reality?
I say "Hurrah!!!" to your wife for thinking of the future of her and her children. If one was to pass away, at least another is there to watch the children grow without struggling, begging to be put on the dole to have a roof over their heads.
I like you Pete, but... I've got to go with your wife on this one, our children are our future, women and children into the lifeboat first, etc.
Winter Marie

At what point
Although my assets are not like Pete's my feelings are exactly like herdizziness. Accepting this disease and our mortality is a horrible thing to face. I know death is inevitable. However, to me having my wife and the kids have something to start their life with is very important to me. We all fight to win the nearly unbeatable fight. Some people win. Most of us may win a few battles but not the war. Giving all my assets to fight for a small period of time is simply not my cup of tea. The future for me is my wife and children and their ability to have a good life.