First follow up PET

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ECson
ECson Member Posts: 26
Wow, talk about anxiety. Dad's clinical signs (dysphagia) have gotten much better in this first six weeks of cisplatin, taxotere, and 5 FU. Medical Onco says he is thinking 4 months of that cocktail before we think about adding rads in so still a rough road ahead. But man I wish I could log on to the imaging site and pull up the PET and see if his "hot spots" have diminished. We have medical onco appt wednesday morning the next 36 hours are going to suck waiting... ugh

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  • paul61
    paul61 Member Posts: 1,391 Member
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    Welcome to scanxiety
    I understand how you feel. As I survivor I have learned to hate that wait for the results!!!

    Even though I try to convince myself that no amount of worrying will change the outcome, I still hate the wait for the results. But it sounds like the indicators are all pointing toward a positive outcome, so that is good news. And you will have an indication of how effective this treatment plan is and if it is not as effective as they hoped; better to change course early in the process.

    Your Dad is lucky to have you there to support him as the results come in.

    Here's hoping for good news on Wednesday!!


    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0 Stage IIB
    12/03/2009 Ivor Lewis
    2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    Two year survivor

    Life may not be the party we hoped for, but while we are here we might as well dance!
  • ECson
    ECson Member Posts: 26
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    paul61 said:

    Welcome to scanxiety
    I understand how you feel. As I survivor I have learned to hate that wait for the results!!!

    Even though I try to convince myself that no amount of worrying will change the outcome, I still hate the wait for the results. But it sounds like the indicators are all pointing toward a positive outcome, so that is good news. And you will have an indication of how effective this treatment plan is and if it is not as effective as they hoped; better to change course early in the process.

    Your Dad is lucky to have you there to support him as the results come in.

    Here's hoping for good news on Wednesday!!


    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0 Stage IIB
    12/03/2009 Ivor Lewis
    2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    Two year survivor

    Life may not be the party we hoped for, but while we are here we might as well dance!

    Thx
    For the kind words. Paul, did you have radiation as well? Our medical onco changed Dad's from Epirubicin to Taxotere due to "radiation recall" and said that since he is a Stage IV and not a surgical candidate he didn't want to use the Epirubicin because we are hoping to get to radiation. Just curious, I have yet to do research on the radiation recall effect of chemo drugs. Thanks
  • paul61
    paul61 Member Posts: 1,391 Member
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    ECson said:

    Thx
    For the kind words. Paul, did you have radiation as well? Our medical onco changed Dad's from Epirubicin to Taxotere due to "radiation recall" and said that since he is a Stage IV and not a surgical candidate he didn't want to use the Epirubicin because we are hoping to get to radiation. Just curious, I have yet to do research on the radiation recall effect of chemo drugs. Thanks

    No radiation
    No I did not have radiation. They originally thought I was Stage I so I went straight to surgery. The post surgery pathology showed a positive node so I had my chemotherapy after surgery without radiation.

    Paul Adams
    McCormick, South Carolina
  • ECson
    ECson Member Posts: 26
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    paul61 said:

    No radiation
    No I did not have radiation. They originally thought I was Stage I so I went straight to surgery. The post surgery pathology showed a positive node so I had my chemotherapy after surgery without radiation.

    Paul Adams
    McCormick, South Carolina

    Holy smokes!!!!
    Dad's PET shows complete stinking remission!!!! Stage IV with mets to distant lymphs, literally in shock. Two more rounds of cisplatin, taxotere, and 5FU, then 4 week break before 25-27 rads with cisplatin and 5FU concurrent. Good gosh. Doc says still hoping for long term (3-5) year remission. It's only 8:30 AM and I feel a celebratory beverage is in order!!!!
  • MissusB
    MissusB Member Posts: 111
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    ECson said:

    Holy smokes!!!!
    Dad's PET shows complete stinking remission!!!! Stage IV with mets to distant lymphs, literally in shock. Two more rounds of cisplatin, taxotere, and 5FU, then 4 week break before 25-27 rads with cisplatin and 5FU concurrent. Good gosh. Doc says still hoping for long term (3-5) year remission. It's only 8:30 AM and I feel a celebratory beverage is in order!!!!

    FABULOUS, WONDERFUL, AWESOME NEWS!
    I am so happy for you and your Dad! Tie one on!
  • ECson
    ECson Member Posts: 26
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    MissusB said:

    FABULOUS, WONDERFUL, AWESOME NEWS!
    I am so happy for you and your Dad! Tie one on!

    Completely shocked
    We couldn't believe it! I mean we did not expect to see this after six weeks of chemo. If I hadn't seen the PET with my own eyes, and read the radiology report "no signs of metastatic cancer growth" , I probably wouldn't have believed the onco!!!! I can't stop smiling.
  • JReed
    JReed Member Posts: 428
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    ECson said:

    Completely shocked
    We couldn't believe it! I mean we did not expect to see this after six weeks of chemo. If I hadn't seen the PET with my own eyes, and read the radiology report "no signs of metastatic cancer growth" , I probably wouldn't have believed the onco!!!! I can't stop smiling.

    AWESOME!!!!
    What a beautiful way to start your day huh? Your dad must be very very happy! Wear your smile Loud and Proud - you deserve it!

    Congratulations!
    Judy & Don
  • jgwright
    jgwright Member Posts: 242
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    ECson said:

    Completely shocked
    We couldn't believe it! I mean we did not expect to see this after six weeks of chemo. If I hadn't seen the PET with my own eyes, and read the radiology report "no signs of metastatic cancer growth" , I probably wouldn't have believed the onco!!!! I can't stop smiling.

    Whew!!!
    Fantastic, and we are sooooo happy for y'all.

    --Jerry
  • AngieD
    AngieD Member Posts: 493
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    jgwright said:

    Whew!!!
    Fantastic, and we are sooooo happy for y'all.

    --Jerry

    Absolutely awesome! We so
    Absolutely awesome! We so love hearing good news! Thanks for sharing!
    Angie