Radiation induced lumbarsacral plexopathy
csulli
Member Posts: 2
Looking for someone out there that has have pelvic radiation and years later was diagnosed with Lumbarsacral plexopathy. It is from having radiation to the pelvic area. Your legs start to become weak and you slow are unable to function. A doctor from Baylor has diagnosed me only after I went to MD Anderson who indicated they had not seen any patients with this problem. The doctor said there is no treatment, no cure. I can't even wrap my head around this. I am a nurse and understand well the nervous system. I am search from some ideas . My Radiologist from 2005 who gave me the radiation suggested Trental.
Thank you , Colleen
Thank you , Colleen
0
Comments
-
Hi Colleen
I had radiation to both hips and up the tailpipe back in '04....they actually went up the lower part of my back as well.....I don't move or walk as well sometimes.
I've got a degenerative spine condition - could be from age or weight or just wear and tear. And the rads could be a part.
I also had radiation on my lung, but that is different than what you are asking.
I hope there is someone here who can help.....as I can think, I don't too many cases like that on the board....if there is, someone will see this and hopefully can shed more light on it.
Cancer is hard enough - but as I get further out (7.5) years, I'm discovering that the side effects from cancer and trying to live with and manage those, are every bit as tough as the disease itself.
If you get up North Texas way, you can try UTSW hospitals, NCI cancer center, and top rated radiation center.
I'm sorry you are having to deal with this...I often wonder if I continue to live long enough to age, what will the the next challenges that I will have to contend with?
-Craig0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.9K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 398 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 793 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 540 Sarcoma
- 731 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards