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tracyjo
tracyjo Member Posts: 5
in Lung Cancer #1
I just found out I have NSCLC stage 3b/4 .. How do you decide which course to take? I called and cancalled appt to have porta-cath put in... I dont know if I want that or not..Horror stories on both sides...

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  • z
    z CSN Member Posts: 1,414 Member
    #2
    tracyjo
    I am so sorry for your diagnosis. Please also register with Inspire cancer support group. There are many long term nsclc stage 3/4 survivors there. Also on the Inspire site the stages are broken down into 1,2,3,4 and small cell lung cancer. You will be able to do a search on treatment options and see that there are many treatment options for stage 3 and 4. I wish you well and keep us posted. Lori
  • tracyjo
    tracyjo Member Posts: 5
    #3
    z said:

    tracyjo
    I am so sorry for your diagnosis. Please also register with Inspire cancer support group. There are many long term nsclc stage 3/4 survivors there. Also on the Inspire site the stages are broken down into 1,2,3,4 and small cell lung cancer. You will be able to do a search on treatment options and see that there are many treatment options for stage 3 and 4. I wish you well and keep us posted. Lori

    New
    How do I get to this site...? I feel stupid and very uninformed, and Thanks so much
  • z
    z CSN Member Posts: 1,414 Member
    #4
    tracyjo said:

    New
    How do I get to this site...? I feel stupid and very uninformed, and Thanks so much

    tracyjo
    https://www.inspire.com/ Type this in your address line and hit enter. It should tell you how to register from there. There are no stupid questions. We all know how scary this is, because we have all been there. Can't wait to see you there. Remember to breath, I wish you well. Lori
  • joep531857
    joep531857 CSN Member Posts: 32 Member
    #5
    help
    I didnt have a port put in. I had 16 weeks of chemotherapy after surgery to remove my left upper lobe. In hindsight I wish I had had one put in. It became quite difficult for the nurses to find my veins. I became a pin cushion, so I wish I had one put in. But I do know how you feel, I just didnt want to have to endure anything I didnt need. So I just wanted to let you know my experience.

    Joe

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