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Mutated Gene

AnneBehymer
AnneBehymer CSN Member Posts: 738 Member
in Ovarian Cancer #1
Last week I had a blood test completed to see if I had one of two genes that if they mutated my chances for a reacurrance would go through the roof. Also if they were mutated I also would have a much hight chance to get other types of cancer. One was going from a 8% chance of getting breast cancer to an 64% chance of getting it. Just got the call both genes are fine NO MUTATION. It is nice to get good news when your world right now looks sooooo dark.

Anne
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Comments

  • Tethys41
    Tethys41 CSN Member Posts: 1,383 Member
    #2
    Good News
    That's great news Anne. Do you know what genetic mutations you were being tested for?
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  • AnneBehymer
    AnneBehymer CSN Member Posts: 738 Member
    #3
    Tethys41 said:

    Good News
    That's great news Anne. Do you know what genetic mutations you were being tested for?

    no but they are going to
    no but they are going to mail me the results as soon as I get it I will post the test for all of you so you can ask to have the test completed
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  • Tethys41
    Tethys41 CSN Member Posts: 1,383 Member
    #4
    AnneBehymer said:

    no but they are going to
    no but they are going to mail me the results as soon as I get it I will post the test for all of you so you can ask to have the test completed

    thanks
    Thanks Anne,
    I've had a lot of genetic testing done. I'd be really interested to find out what gene(s) were being tested.
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  • AnneBehymer
    AnneBehymer CSN Member Posts: 738 Member
    #5
    Tethys41 said:

    thanks
    Thanks Anne,
    I've had a lot of genetic testing done. I'd be really interested to find out what gene(s) were being tested.

    got the paper work today
    got the paper work today BRCA1 and BRCA2 gene that they tested for the mutation
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  • Tina Brown
    Tina Brown CSN Member Posts: 1,036 Member
    #6
    AnneBehymer said:

    got the paper work today
    got the paper work today BRCA1 and BRCA2 gene that they tested for the mutation

    BRAC 2+
    Hiya
    I've been tested for these and I am BRCA 2+
    Tina
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  • dreamer007
    dreamer007 CSN Member Posts: 61
    #7
    gene testing
    I have not even thought about doing any gene testing... wondering if that is
    something to consider, or just something i would worry about

    am currently in remission from stage 2c ovarian cancer
    also, have had one malignant melanoma
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  • AnneBehymer
    AnneBehymer CSN Member Posts: 738 Member
    #8
    Tina Brown said:

    BRAC 2+
    Hiya
    I've been tested for these and I am BRCA 2+
    Tina

    tina
    sorry to hear that you
    tina
    sorry to hear that you are brac2+ I will keep you in my prays

    anne
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  • AnneBehymer
    AnneBehymer CSN Member Posts: 738 Member
    #9
    dreamer007 said:

    gene testing
    I have not even thought about doing any gene testing... wondering if that is
    something to consider, or just something i would worry about

    am currently in remission from stage 2c ovarian cancer
    also, have had one malignant melanoma

    dreamer
    you should have the
    dreamer

    you should have the test my doctor is the one who set me up with the gentic test it helps them understand what you may be facing ask you doctor about it

    Anne
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  • Tethys41
    Tethys41 CSN Member Posts: 1,383 Member
    #10
    dreamer007 said:

    gene testing
    I have not even thought about doing any gene testing... wondering if that is
    something to consider, or just something i would worry about

    am currently in remission from stage 2c ovarian cancer
    also, have had one malignant melanoma

    Genetic testing
    Dreamer - I think it is a good idea to have the testing at some point. In the event (hoping it doesn't happen) that you have a recurrance, there are treatments that are more effective for BRCA positive women.

    Anne - congratulations on being BRCA negative.
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  • childofthestars
    childofthestars CSN Member Posts: 251 Member
    #11
    BRCA
    I had the genetic test done and i've got BRCA1 which kinda sucks BUT at least now I know why i've had breast and ovca before I hit 50!!!!
    Both my children (girl & boy) now have to have the test.....
    Michelle x
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  • AnneBehymer
    AnneBehymer CSN Member Posts: 738 Member
    #12
    Tethys41 said:

    Genetic testing
    Dreamer - I think it is a good idea to have the testing at some point. In the event (hoping it doesn't happen) that you have a recurrance, there are treatments that are more effective for BRCA positive women.

    Anne - congratulations on being BRCA negative.

    thanks I was glad to see I
    thanks I was glad to see I was it gave me one less thing to worry about right now
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  • skeeter1002
    skeeter1002 CSN Member Posts: 43
    #13
    BRCA1 & BRCA2 genes
    I also had the test. I go back next week to find out the results. To me it was important because I have a daughter who I hope NEVER has to go through what we are going through. She's almost 12 and the genetic counselor said she didn't recommend testing girls that young but that if I'm positive we can share that information with her doctors and they can begin screening her at an earlier age and keep a close eye on her. I also have a son and men can develop breast cancer. Also if he is positive and has daughters there is a 50% chance of him passing it to a daughter and of course I wouldn't want a granddaughter to face this. Plus I have 8 female cousins on my mom's side and 1 on my dad's side. It would be important information for them if I'm positive and we determine which side of the family it came from.

    If I'm not positive for those mutations, she suggested screening for Lynch syndrome which runs in families and includes uterine, colorectal, ovarian and a few other cancers. She recommened this test if the BRCA was negative because I had 2 grandparents on the same side of the family (mom's side) with colon cancer. And when my mother had her hysterectomy at age 38 she had pre-cancerous cells in her uterus.
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  • LPack
    LPack CSN Member Posts: 645
    #14
    Tina Brown said:

    BRAC 2+
    Hiya
    I've been tested for these and I am BRCA 2+
    Tina

    Me too
    Me too, Tina, I am also BRCA2..................

    And I believe that is why some of the chemos don't work too long! So are my sister and daughter!

    Libby
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