Prayer ******* SCAN result update ******* need positive stories

luvmum

Dear all,

I have been worrying about my mum's rising trend of the CEA count after post op chemo. Her oncologist arranged to give her another PET CT and CEA tests tomorrow. I need your prayers and support. I am really scared and worried. My heart is aching and pounding fast.

I really hate this beast... I will have a heart attack every time she has blood test and PET scan. Never have this kind of feeling before in my life! My very good friend lost her batter end of June and that really hurt me a lot!!! I don't know how am I going to go through this with my mum.

Thanks a lot for all of your support all the time!
Love Dora

=================================================
Dear all,

Went to pick up my mum's report this morning and was crying in front of the nurses for a while...I'm devastated, heart broken and cannot breath.

The result showed new liver met near the liver resection margin which is about 2.5cm*0.8cm, lung mets in both lobes of of lung, the visible one is 1.5*1.0cm.

Will see the oncologist tomorrow by myself because I don't want my mum knows about it. She thought she was recover after the liver resection end of March, I don't want to disappoint her. After some discussion with my sister, her Chinese medicine practitioner, we decide not to let her know. Her oncologist also agree to see me first and then we will decide what to do next and how to present this to my mum.

I have already talked to another oncologist who is my friend, she told me that since my mum is K-RAS mutated, there left only one chemo drug for my mum and if it didn't work, there is nothing they can do... My mum's prognosis is not very positive as it has only been 4 months after her liver resection, there are new lesions already.

I don't know what to do now, I don't want to lose my mum. I'm planning to have IVF next month as she always want me to have babies. I'm so scared that she doesn't have a chance to see me pregnant.

Please please please, I want to hear some encouraging stories.
Love to you all,
Dora

KathiM

I'm putting my arms around you, dearheart!
It's a tough thing to be a caregiver! Especially with your mom! But, you are a strong person, and she needs you...I KNOW you will and can do it!!!!

Not to diminish what the tests are showing, but there are many reasons for CEA fluctuation. Interestingly, my onc, after 5 years, no longer even tests CEA (or CA19 for the breast cancer).

Hugs to you and mum!!!!

Hugs, Kathi

herdizziness

Dora
See, already you have two sets of arms around you (and many more as well), holding you close, holding you and your mum dear. Our shoulders are strong, you can cry on them and we can handle it, we're there for you.
Calm down my dear and think of sweet happy things for a moment or two and get that heart rate back down. My prayers such as they be are always with you and your mum.
Winter Marie

dorookie

Sending Prayers
for your mom and for you, its a rough road, but you can do it, keep your faith and stay strong....Waiting for results I think are the worst thing to have to go through, its just horrible, but our minds tend to make it worse during the wait, so try not to think of all the bad things that could happen, there could be good things too..

GOD BLESS
Beth

Marianne313

virtual hugs
sure wish others could feel the hugs I'm sending their way.

You're in my prayers, just as all here are.

Marianne

idlehunters

Marianne313 said:

virtual hugs
sure wish others could feel the hugs I'm sending their way.

You're in my prayers, just as all here are.

Marianne

Sending Prayers
Prayers going out to you and Mum. Please let us know when you find out. Hugs!

Jennie

pepebcn

idlehunters said:

Sending Prayers
Prayers going out to you and Mum. Please let us know when you find out. Hugs!

Jennie

Sending prayers to you and mom!
Hugs!

PhillieG

Hi Dora
I wish your Mum the best. I hope she is under the care of an excellent medical team.
-phil

sharpy102

the best...
@Dora: I cannot pray for your mom, or you as...well...I don't have any god to pray to. Okay, maybe I do- I bet that is what people who are practicing religion would say...but...I guess I'm bad, but I don't think I want to deal with this. But don't take me wrong, I hugely respect people including people who are religious. That's their choice..this is my choice. But I will cross my fingers for you and your Mom. Just be strong! I know, it is very very hard and painful and at the same time nerve breaking to hear/see/experience results, or declining of your Mom...and the feeling that comes with it that you cannot do a damn thing to change things is one of very oppressive...I know. Done it all, heard it, seen it all...I really do wish you loads of strength and encourage your Mom and be by her side. That is far more important to her than what the results will show. If she feels you love her, you care for her, you care about her...her life was fulfilled...it's a proof that she is an awesome Mom! Hugs to both you and your Mom! Please keep us posted!
- Sophie

tootsie1

Praying
Hey, Dora.

Praying your mom gets great reports from all tests and scans. She is very fortunate to have such a caring daughter.

*hugs*
Gail

luvmum

KathiM said:

I'm putting my arms around you, dearheart!
It's a tough thing to be a caregiver! Especially with your mom! But, you are a strong person, and she needs you...I KNOW you will and can do it!!!!

Not to diminish what the tests are showing, but there are many reasons for CEA fluctuation. Interestingly, my onc, after 5 years, no longer even tests CEA (or CA19 for the breast cancer).

Hugs to you and mum!!!!

Hugs, Kathi

Dear Kathi
Thank you very much for your kind words, I am waiting outside the PET room right now... I can tell she was very nervous about it too.

Thanks again for your support!
Love Dora

luvmum

herdizziness said:

Dora
See, already you have two sets of arms around you (and many more as well), holding you close, holding you and your mum dear. Our shoulders are strong, you can cry on them and we can handle it, we're there for you.
Calm down my dear and think of sweet happy things for a moment or two and get that heart rate back down. My prayers such as they be are always with you and your mum.
Winter Marie

Dear Winter Marie
Your hugs, your support means a lot to me and my mum. I always see you as my inspirations and thank you very much for your care, it help me to go through this difficult time. I know you also have been through a lot! I am so fortune to have found this board!

Take good care,
Love Dora

luvmum

dorookie said:

Sending Prayers
for your mom and for you, its a rough road, but you can do it, keep your faith and stay strong....Waiting for results I think are the worst thing to have to go through, its just horrible, but our minds tend to make it worse during the wait, so try not to think of all the bad things that could happen, there could be good things too..

GOD BLESS
Beth

Dear Beth
Thank you very much for your prayers and support! I don't know why I have been thinking of the bad things more than good things lately. Thank you so much for reminding me that there could be good things too!

Thank you so much!
Love Dora

luvmum

dorookie said:

Sending Prayers
for your mom and for you, its a rough road, but you can do it, keep your faith and stay strong....Waiting for results I think are the worst thing to have to go through, its just horrible, but our minds tend to make it worse during the wait, so try not to think of all the bad things that could happen, there could be good things too..

GOD BLESS
Beth

Dear Beth
Thank you very much for your prayers and support! I don't know why I have been thinking of the bad things more than good things lately. Thank you so much for reminding me that there could be good things too!

Thank you so much!
Love Dora

luvmum

Marianne313 said:

virtual hugs
sure wish others could feel the hugs I'm sending their way.

You're in my prayers, just as all here are.

Marianne

Dear Marianne
Thank you very much for your prayers, hugs and support, they mean a lot to me....

Thanks a lot!
Love Dora

luvmum

PhillieG said:

Hi Dora
I wish your Mum the best. I hope she is under the care of an excellent medical team.
-phil

Hi Phil
Thank you very much for your support and care! I hope her oncologist will have a good plan for her ...

I hope you are also doing well!
Love Dora

luvmum

sharpy102 said:

the best...
@Dora: I cannot pray for your mom, or you as...well...I don't have any god to pray to. Okay, maybe I do- I bet that is what people who are practicing religion would say...but...I guess I'm bad, but I don't think I want to deal with this. But don't take me wrong, I hugely respect people including people who are religious. That's their choice..this is my choice. But I will cross my fingers for you and your Mom. Just be strong! I know, it is very very hard and painful and at the same time nerve breaking to hear/see/experience results, or declining of your Mom...and the feeling that comes with it that you cannot do a damn thing to change things is one of very oppressive...I know. Done it all, heard it, seen it all...I really do wish you loads of strength and encourage your Mom and be by her side. That is far more important to her than what the results will show. If she feels you love her, you care for her, you care about her...her life was fulfilled...it's a proof that she is an awesome Mom! Hugs to both you and your Mom! Please keep us posted!
- Sophie

Dear Sophie
I totally understand your point of view and i would like to Thank you for your support, your hugs and message. I have been a bit grumpy to my mum lately, maybe it's because I am nervous, I am tired ... Your message did remind me to show my mum my love, my care to her continuously.

I am now waiting at the PET common room and my mum is still inside...

Thanks again for your support which really helps me to stay focus.
Love Dora

luvmum

tootsie1 said:

Praying
Hey, Dora.

Praying your mom gets great reports from all tests and scans. She is very fortunate to have such a caring daughter.

*hugs*
Gail

Dear Gail
Thank you very much for your prayers and kind words. Your support and hugs help me a lot....

Please take good care of yourself too,
Love Dora

lisa42

praying
Hi Dora,

I know the scan has already taken place by now, but I am still praying that the written report will be very clear and precise so you and the dr can know exactly what is what (I've gotten back some very poorly written and unclear scan reports in the back, so I now always specifically write on my form to please compare size and update of all nodules to the prior scan and to comment on anything and everything, etc). I also now always pray, of course, for my scan to show tumors shrinking or even that they're gone, but I do also pray that the radiologist interpreting the scan will do an accurate and precise job in this and in writing the written report on the scan.

Please keep us informed & I am also praying that you will feel much calmer and can be that strong support to your mum.

Hugs to you,
Lisa

luvmum

lisa42 said:

praying
Hi Dora,

I know the scan has already taken place by now, but I am still praying that the written report will be very clear and precise so you and the dr can know exactly what is what (I've gotten back some very poorly written and unclear scan reports in the back, so I now always specifically write on my form to please compare size and update of all nodules to the prior scan and to comment on anything and everything, etc). I also now always pray, of course, for my scan to show tumors shrinking or even that they're gone, but I do also pray that the radiologist interpreting the scan will do an accurate and precise job in this and in writing the written report on the scan.

Please keep us informed & I am also praying that you will feel much calmer and can be that strong support to your mum.

Hugs to you,
Lisa

Hi Lisa
I got the result today, I'm extremely sad and scared now. I don't know what to do...

Please pray for her, pray for miracle ...
Love Dora

Sonia32

Hugs
Sent you a pm