Every day is gloves on and keep swinging.

jr58
jr58 Member Posts: 9
in Head and Neck Cancer #1
I was diagnosed with scc of the nasal/septum area in dec 2009,since then i've had my nose removed with a sub total rhynectomy,reconstruction using skin and bone,vein from my left arm,have had nodes removed from my neck,survived radiation treatment in may/june 2010,several operations to keep shaping my nose with more to come,I've still got a metal frame screwed to my face to maintain the shape whilst the bone grows,pain patches ro keep me from climbing the wall because it is like a tightness that just keeps on going and going and this constant fear that if i bump my nose the metal frame will go through my skull but besides all of that I'm glad to be still hear.

Comments

  • Dav1965
    Dav1965 Member Posts: 132
    #2
    I understand
    I had my 95% of my tongue removed and replaced with parts from my thigh. Also 2 neck disections with nodes removed. Along with chemo and radiation. I have had 1 operation to shape my tongue so i can now swallow. I have 1 more operation scheduled for July or August to finish shaping my tongue and then i should be done. Welcome to the forums you will find alot of good people with good information on the discuss forums. Good luck on your fight and stay strong. David
  • ratface
    ratface Member Posts: 1,337 Member
    #3
    Dav1965 said:

    I understand
    I had my 95% of my tongue removed and replaced with parts from my thigh. Also 2 neck disections with nodes removed. Along with chemo and radiation. I have had 1 operation to shape my tongue so i can now swallow. I have 1 more operation scheduled for July or August to finish shaping my tongue and then i should be done. Welcome to the forums you will find alot of good people with good information on the discuss forums. Good luck on your fight and stay strong. David

    A not so gentle reminder
    of how devastating this cancer can be and an appreciation of how strong the human spirit can grow. My humble hat off to both of you!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #4
    Welcome
    Welcome to our forum warrior...

    We are glad you are still here and fighting as well...."Never Give Up"...

    Best,
    John
  • jr58
    jr58 Member Posts: 9
    #5
    Dav1965 said:

    I understand
    I had my 95% of my tongue removed and replaced with parts from my thigh. Also 2 neck disections with nodes removed. Along with chemo and radiation. I have had 1 operation to shape my tongue so i can now swallow. I have 1 more operation scheduled for July or August to finish shaping my tongue and then i should be done. Welcome to the forums you will find alot of good people with good information on the discuss forums. Good luck on your fight and stay strong. David

    Thanks and G'day!
    I'm amazed how many people are stronge and accept there lot,the stories that I read,the people that i meet,the ones that I've lost,thanks for your reply David.
  • jr58
    jr58 Member Posts: 9
    #6
    Skiffin16 said:

    Welcome
    Welcome to our forum warrior...

    We are glad you are still here and fighting as well...."Never Give Up"...

    Best,
    John

    Thanks.
    Hi john,I've always been a fighter have never given up on anything,i came into this world with no chance of survival,survived three serious road accidents an industrial explosion in which my mate was killed and i made it out,blood clots in my body and a host of potential situations that luck played a part in it because of the work I use to do,so this cancer is another chapter and i draw strength from past predicaments.
  • buzz99
    buzz99 Member Posts: 404
    #7
    Survivor
    What a story of survival. You are truly amazing. Keep it up! Karen
  • Hondo
    Hondo Member Posts: 6,636 Member
    #8
    Hi Jr

    Sounds like you really had it hard and boy I know about the pain, glad you joined us and hope you become part of the family here on CSN.

    Take care my friend, I too am glad you are still here
    Hondo

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