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Please help

KimRon
KimRon CSN Member Posts: 1
edited May 2011 in Skin Cancer #1
My mother had vaginal melanoma four years ago. She had a surgery and took Interferon for a year. She did a pet ct scan a week ago and it showed a mesenteric nodule measures 1.2 cm in the left side of the abdomen. What are the treatment options for her. Please help. Thank you.
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  • beacon
    beacon CSN Member Posts: 77
    #2
    bump

    bump
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  • LynnLuc
    LynnLuc CSN Member Posts: 22
    #3
    I have stage 4 melanoma
    There are several treatments she can do...I am currently NED ( no evidence of disease) I had radiation, took Temodar and had surgery. I also am enrolled in a anti pd 1 trial with peptides at Moffitt Cancer Center with Dr Weber.

    Perhpas go to melanoma.org and visit where all the posters either have melanoma or provide care for a loved one with melanoma.Our treatment is different from other cancers...thanks, Lynn
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  • Kellie_T
    Kellie_T CSN Member Posts: 19
    #4
    LynnLuc said:

    I have stage 4 melanoma
    There are several treatments she can do...I am currently NED ( no evidence of disease) I had radiation, took Temodar and had surgery. I also am enrolled in a anti pd 1 trial with peptides at Moffitt Cancer Center with Dr Weber.

    Perhpas go to melanoma.org and visit where all the posters either have melanoma or provide care for a loved one with melanoma.Our treatment is different from other cancers...thanks, Lynn

    Dr. Weber
    Lynn,

    I'm in a Phase I trial at Moffitt also (headed up by Dr. Weber). It's an IV infusion and seven leg injections. I wonder if we were in the same trial? I am also currently NED an hope to stay that way.
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  • Robinredbreast
    Robinredbreast CSN Member Posts: 2
    #5
    Try National Institute of Health Website
    National Institute of Health in Bethesda, MD has free clinical trials, after you are accepted they will pay your plane fare. I was on TIL and it works on 70% of people. Not me, they think because I had biochemo. go there if you can. Best.
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  • millard
    millard CSN Member Posts: 9
    #6
    Robinredbreast said:

    Try National Institute of Health Website
    National Institute of Health in Bethesda, MD has free clinical trials, after you are accepted they will pay your plane fare. I was on TIL and it works on 70% of people. Not me, they think because I had biochemo. go there if you can. Best.

    National Cancer place
    I am going to write them and let them I am an unhappy patient of UCLA and I will let them think about helping me.
    I am recovering melanoma pt now but who knows about the future, good to plan.
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