False negative on PET Scan???

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  • aysemari
    aysemari Member Posts: 1,596 Member
    #22
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    where is the delete button (:
    sorry can't take back all my posts

    I was visibly upset, can you tell?
  • camul
    camul Member Posts: 2,537
    #23
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    aysemari said:

    where is the delete button (:
    sorry can't take back all my posts

    I was visibly upset, can you tell?

    That just multiplied your
    That just multiplied your support:))
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #24
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    VickiSam said:

    Carol ..
    My thoughts and prayers are with you. I am happy that you advocated for results regarding your bone pain, unhappy about the results. May your doctors and specialist target those pesky tumors, and rid your body of any cyst/tumors - Forever.


    Strength, Courage and Hope coming your way.

    Gentle hugs,

    Vicki Sam

    Carol,
    So sorry to hear
    Carol,
    So sorry to hear this. My thoughts and prayers are with you. So many scans and then incorrect results. It just boggles my mind sometimes.
    When I complained of lower back and lef pain, I got a bone scan. It was "fine" so now I just go on. I am proud that you went that step further. Pet, Bone, MRI CT........wouldn't you think they could all be accurate?
    God bless and we are all here for you.
    Hugs,
    Wanda
  • susie09
    susie09 Member Posts: 2,930
    #25
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    camul said:

    That just multiplied your
    That just multiplied your support:))

    You've got all of the pink
    You've got all of the pink sisters support and prayers Carol!


    HUGS!
  • carkris
    carkris Member Posts: 4,553 Member
    #26
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    Lighthouse_7 said:

    Carol,
    So sorry to hear
    Carol,
    So sorry to hear this. My thoughts and prayers are with you. So many scans and then incorrect results. It just boggles my mind sometimes.
    When I complained of lower back and lef pain, I got a bone scan. It was "fine" so now I just go on. I am proud that you went that step further. Pet, Bone, MRI CT........wouldn't you think they could all be accurate?
    God bless and we are all here for you.
    Hugs,
    Wanda

    joining the pink circle. so
    joining the pink circle. so sorry you are not getting then news you want and you are in pain. praying the new treatment helps all this and that all the love here helps you get through this!
  • Angie2U
    Angie2U Member Posts: 2,991
    #27
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    Lighthouse_7 said:

    Carol,
    So sorry to hear
    Carol,
    So sorry to hear this. My thoughts and prayers are with you. So many scans and then incorrect results. It just boggles my mind sometimes.
    When I complained of lower back and lef pain, I got a bone scan. It was "fine" so now I just go on. I am proud that you went that step further. Pet, Bone, MRI CT........wouldn't you think they could all be accurate?
    God bless and we are all here for you.
    Hugs,
    Wanda

    I am so sorry Carol. I will
    I am so sorry Carol. I will be praying for you.


    Hugs, Angie
  • Angie2U
    Angie2U Member Posts: 2,991
    #28
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    Lighthouse_7 said:

    Carol,
    So sorry to hear
    Carol,
    So sorry to hear this. My thoughts and prayers are with you. So many scans and then incorrect results. It just boggles my mind sometimes.
    When I complained of lower back and lef pain, I got a bone scan. It was "fine" so now I just go on. I am proud that you went that step further. Pet, Bone, MRI CT........wouldn't you think they could all be accurate?
    God bless and we are all here for you.
    Hugs,
    Wanda

    I am so sorry Carol. I will
    I am so sorry Carol. I will be praying for you.


    Hugs, Angie
  • New Flower
    New Flower Member Posts: 4,294
    #29
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    carkris said:

    joining the pink circle. so
    joining the pink circle. so sorry you are not getting then news you want and you are in pain. praying the new treatment helps all this and that all the love here helps you get through this!

    Carol sending you a big hug
    Carol,
    My heart goes out to you. You were so happy recently, and now are having devastating news. You give yourself a credit for being your own advocate, continuing asking question and fighting for yourself.

    Congratulations on you sons graduation!!! Big day and you are celebrating with them. Great accomplishment for you and your family.

    I cannot give you any suggestions on treatment plans, they all sound very aggressive and have side effects. I think you have to do your own research and develop your own opinion. You know your body the best than any oncologist you might see what others do not know. I am very sorry, It is very tough for you especially because you have been giving this treatment your full dedication and commitment. Since I was diagnosed I have been trying to take emotions out when I have to face medical decision. My approach is to handle medical decisions of this journey a "project". It seems that Tamoxifen is not working and you might want to discuss other anti-estrogen therapy medication with your oncologist.I am sure you will make decision that is right for you.

    Enjoy your good news this weekend!!!!
    Hugs
    New Flower
  • lizzie17
    lizzie17 Member Posts: 548
    #30
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    so sorry, Carol
    I am so sorry that you are now facing another battle, but I am so happy that you are
    there with your boys who are graduating from college!! What a wonderful moment. :)
    My hugs and prayers are with you every day.

    Carol (I guess a fairly common name for our age group!)
  • camul
    camul Member Posts: 2,537
    #31
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    Graduation was wonderful
    Of course I was the teary mother. First at 145 and next at 645. After sitting through Matt's we had enough time to stop at the local pub for a sandwich and brew. Then went back to the U for the next one, thank God that he was in the first group of 100, as there were like 1500 from the school of psychology. We watched him accept the diploma and he walked up the stairs passed his seat and kept going, right out the door! I had to laugh but wanted to kiss him, I was so ready to get home, my legs were on fire! But wouldn't have missed it for the world!

    I actually wore my wig for the whole day, first time since my venture to the bank:)
    I had it cut and styled and this time I really did look like myself and felt really good about it. But, when we got to the car it came off and the baseball cap went back on.

    Got into a parking lot argument with a family that parked in a handicapped spot that we were waiting for, we waited about 5 minutes for the people to get in thier car and leave, then a van pulled in from the other direction. The whole lot was for the disabled, and they did not have plates or the card on the window. A really nice man watched it who was going to his car and stood by it until we pulled around and held it for us! Karma got the first one though, when we came out they were getting ticketed!!!! Loved it!

    Hugs to everyone and thank you for all of the support.
    ~Carol
  • Angie2U
    Angie2U Member Posts: 2,991
    #32
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    MAJW said:

    That's..
    What we do...try to lift one another up
    .Carol, wishing you better days...as I say, we aren't together physically, but we're all in this together.....please keep us posted...
    Hugs,
    Nncy

    Carol, I am praying for you
    Carol, I am praying for you and sending cyber hugs and positive thoughts.

    Hugs, Angie
  • ms.sunshine
    ms.sunshine Member Posts: 707 Member
    #33
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    camul said:

    Graduation was wonderful
    Of course I was the teary mother. First at 145 and next at 645. After sitting through Matt's we had enough time to stop at the local pub for a sandwich and brew. Then went back to the U for the next one, thank God that he was in the first group of 100, as there were like 1500 from the school of psychology. We watched him accept the diploma and he walked up the stairs passed his seat and kept going, right out the door! I had to laugh but wanted to kiss him, I was so ready to get home, my legs were on fire! But wouldn't have missed it for the world!

    I actually wore my wig for the whole day, first time since my venture to the bank:)
    I had it cut and styled and this time I really did look like myself and felt really good about it. But, when we got to the car it came off and the baseball cap went back on.

    Got into a parking lot argument with a family that parked in a handicapped spot that we were waiting for, we waited about 5 minutes for the people to get in thier car and leave, then a van pulled in from the other direction. The whole lot was for the disabled, and they did not have plates or the card on the window. A really nice man watched it who was going to his car and stood by it until we pulled around and held it for us! Karma got the first one though, when we came out they were getting ticketed!!!! Loved it!

    Hugs to everyone and thank you for all of the support.
    ~Carol

    Carol
    So sorry to hear the bad news. I hate cancer hate it hate it!!!! You are in thoughts and prayers. Wishing you all the best. May peace and love surround you dear Carol.

    Jennifer
  • Texasgirl10
    Texasgirl10 Member Posts: 668
    #34
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    ms.sunshine said:

    Carol
    So sorry to hear the bad news. I hate cancer hate it hate it!!!! You are in thoughts and prayers. Wishing you all the best. May peace and love surround you dear Carol.

    Jennifer

    I am praying
    Oh Carol, I am so sorry to hear this news. I am speechless! I understand your fears and worries. Please know that you are not alone. We are all with you praying and hugging you.

    I am so glad you got to see your boys graduate :)

    stay strong and keep fighting. My family and I will be praying for you.

    Hugs and God Bless You,

    Dawne
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #35
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    camul said:

    Graduation was wonderful
    Of course I was the teary mother. First at 145 and next at 645. After sitting through Matt's we had enough time to stop at the local pub for a sandwich and brew. Then went back to the U for the next one, thank God that he was in the first group of 100, as there were like 1500 from the school of psychology. We watched him accept the diploma and he walked up the stairs passed his seat and kept going, right out the door! I had to laugh but wanted to kiss him, I was so ready to get home, my legs were on fire! But wouldn't have missed it for the world!

    I actually wore my wig for the whole day, first time since my venture to the bank:)
    I had it cut and styled and this time I really did look like myself and felt really good about it. But, when we got to the car it came off and the baseball cap went back on.

    Got into a parking lot argument with a family that parked in a handicapped spot that we were waiting for, we waited about 5 minutes for the people to get in thier car and leave, then a van pulled in from the other direction. The whole lot was for the disabled, and they did not have plates or the card on the window. A really nice man watched it who was going to his car and stood by it until we pulled around and held it for us! Karma got the first one though, when we came out they were getting ticketed!!!! Loved it!

    Hugs to everyone and thank you for all of the support.
    ~Carol

    Hugs and prayers for you
    Hugs and prayers for you Carol


    Jan
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #36
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    Bella Luna said:

    Hugs & Prayers
    Carol... I am so sorry to hear you are having to wage battle with cancer again. It is a devastating and cruel disease. I pray your doctors come up with plan of attack that will rid those cancer cells from your body. Your Sister's in Pink are here for you and we will be there holding your hand in spirit and lifting you up in prayer.

    I am happy to hear you will get to see your two boys graduate from college. What a thrill it must be for you to know your sons' have accomplished one of many milestones in their young lives. Congratulations Mama! It could not have happened on a better weekend! Happy Madonna( Mother's) Day to YOU, Carol!!!

    Take care, God bless.
    Ines

    I am so very sorry Carol
    I am so very sorry Carol that you are battling the beast again. I can't imagine how you are feeling. Please know that I, with all of the other pink sisters, are going to be praying as hard as we can for you. And, we will all be here for you to lean on, to draw strength from and to listen.

    Sue :)
  • camul
    camul Member Posts: 2,537
    #37
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    Ritzy said:

    I am so very sorry Carol
    I am so very sorry Carol that you are battling the beast again. I can't imagine how you are feeling. Please know that I, with all of the other pink sisters, are going to be praying as hard as we can for you. And, we will all be here for you to lean on, to draw strength from and to listen.

    Sue :)

    Thank you Sue, I am sure as
    Thank you Sue, I am sure as this progresses I will need all the support and prayers that I can get. This is such a tough road. Hoping that rads will relieve some of the pain and that will make it easier to get around.



    ~Carol
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #38
    Options
    camul said:

    Graduation was wonderful
    Of course I was the teary mother. First at 145 and next at 645. After sitting through Matt's we had enough time to stop at the local pub for a sandwich and brew. Then went back to the U for the next one, thank God that he was in the first group of 100, as there were like 1500 from the school of psychology. We watched him accept the diploma and he walked up the stairs passed his seat and kept going, right out the door! I had to laugh but wanted to kiss him, I was so ready to get home, my legs were on fire! But wouldn't have missed it for the world!

    I actually wore my wig for the whole day, first time since my venture to the bank:)
    I had it cut and styled and this time I really did look like myself and felt really good about it. But, when we got to the car it came off and the baseball cap went back on.

    Got into a parking lot argument with a family that parked in a handicapped spot that we were waiting for, we waited about 5 minutes for the people to get in thier car and leave, then a van pulled in from the other direction. The whole lot was for the disabled, and they did not have plates or the card on the window. A really nice man watched it who was going to his car and stood by it until we pulled around and held it for us! Karma got the first one though, when we came out they were getting ticketed!!!! Loved it!

    Hugs to everyone and thank you for all of the support.
    ~Carol

    We are always going to be
    We are always going to be here to support and encourage you Carol!



    Hugs, Diane
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #39
    Options
    camul said:

    Thank you Sue, I am sure as
    Thank you Sue, I am sure as this progresses I will need all the support and prayers that I can get. This is such a tough road. Hoping that rads will relieve some of the pain and that will make it easier to get around.



    ~Carol

    And, you've got all of the
    And, you've got all of the support and prayers that you need! I can't imagine how tough this is for you. I just wish there were more I could do to help. Just know I am here...always.


    Sue :)
  • Kylez
    Kylez Member Posts: 3,761 Member
    #40
    Options
    VickiSam said:

    Carol ..
    My thoughts and prayers are with you. I am happy that you advocated for results regarding your bone pain, unhappy about the results. May your doctors and specialist target those pesky tumors, and rid your body of any cyst/tumors - Forever.


    Strength, Courage and Hope coming your way.

    Gentle hugs,

    Vicki Sam

    Sending you lots of prayers
    Sending you lots of prayers and lots of hugs!
  • Megan M
    Megan M Member Posts: 3,000
    #41
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    aysemari said:

    Carol I am giving you HUGE hug
    You have inspired me so with your posts and your accomplishments
    in those 8 years. The courage and strength you have displayed are
    beyond belief.

    This post made me tear up too. It is full of your love for life, anguish
    of loosing what is so precious for you and hope that you will overcome.

    There's nothing more I could add but a warm hug!

    Love,
    Ayse

    I will be praying for you
    I will be praying for you Carol.


    Hugs, Megan

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