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port problems

elizabethgd
elizabethgd CSN Member Posts: 145
in Colorectal Cancer #1
since the day my port was put in (left arm) until it was removed (last june 2010) I have had problems with pain in arm and the veins in the left side of my neck protrude.
Has anyone else had anything like this? Am having ultrasound next week.
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Comments

  • HollyID
    HollyID CSN Member Posts: 946 Member
    #2
    I've not heard anything like
    I've not heard anything like that, but I'm curious to read what they find. :)

    Good luck with your ultrasound. Please let us know what they find.
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  • colon no more
    colon no more CSN Member Posts: 12
    #3
    port
    they put my port right under my collar bone on the left side. I had no problem, but now that it's out, there is a sunk in place. Hope everything is ok with you. good luck
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  • elizabethgd
    elizabethgd CSN Member Posts: 145
    #4
    colon no more said:

    port
    they put my port right under my collar bone on the left side. I had no problem, but now that it's out, there is a sunk in place. Hope everything is ok with you. good luck

    thanks for comments..
    thanks for comments.. ultrasound tech. said she did not see blot clot ..but that I had extremely small veins.. but radiologist will read film and tell doc then doc will tell me..
    thanks again for comments..
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  • NWGirl
    NWGirl CSN Member Posts: 122 Member
    #5
    More port problems
    When my first port went in (November 2007) it worked fine until about round #7 of FOLFOX. I started having pain under/below my collar bone. I had a dye test, ultra sound - everything said "no problems"; but the pain continued to worsen until I couldn't stand it any longer. That port was pulled after round #10 and I finished up on Xeloda. The day the port came out I felt better. It took a couple of weeks to fully recover, maybe a bit longer, but I was okay after that.

    Fast forward to today - port back in - same side but this time they used the vein in my neck instead of the one under my collar bone. From the moment I woke up from surgery my right numb felt numb. Pain and minor swelling now runs up and down my arm. Ultra sound last week - no blood clot. Dye test tomorrow (which I'm sure will show no problems). I suspect we'll have to pull the port from the right side and put it in the left - hope it works there.

    I tried acupuncture - it didn't help. I sympathize with what you are going through and hope you find some relief soon. Port problems can be really hard to properly diagnose.

    P.S. - I have very small veins too - maybe that has something to do with it(?)
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