Bad PT Scan :(

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pinkkari09
pinkkari09 Member Posts: 877
edited March 2014 in Breast Cancer #1
Well, two spots on my spine lit up during the PT Scan. Onc says a small percentage can be false reads so she is doing an MRI on Tuesday morning. I'm SO scared. I'm Stage 3c Triple Negative all nodes including my inner mammery node and my supraclavicular node. Could it be they were able to clear that up for it to come back later (9months) on my spine? I'm so scared and confused, please, if anyone on here has had mets to the spine will you share your story. I need to hear something.
Thank you,
~Kari
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Comments

  • sbmly53
    sbmly53 Member Posts: 1,522
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    Kari,
    I'm so sorry that you have this scare. I'm sending positive vibes and will pray for good things.

    Big hugs, sweetie,

    Sue
  • Aortus
    Aortus Member Posts: 967
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    Please hang in there, Kari!
    I don't know what's possible or impossible, but I do know PT scans are notorious for turning up false negatives. It's a good thing your oncologist is going with the MRI. And while there's no such thing as "good" mets, bone mets can be treated into submission. I am placing a special prayer request with my special angel right now. You still deserve NED!

    God Bless,
    Joe
  • missrenee
    missrenee Member Posts: 2,136 Member
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    sbmly53 said:

    Kari,
    I'm so sorry that you have this scare. I'm sending positive vibes and will pray for good things.

    Big hugs, sweetie,

    Sue

    Kari, I'm sure Tuesday seems like so far away
    The waiting is horrible. I'm Stage 3C with 10 positive nodes, but ER + HER2-. I just had an MRI, Mammo and Ultrasound (it had been 6 months since end of treatment). The mammo and u/s were neg. and the MRI showed an area which is "probably" negative and due to post-op changes, but they are re-doing it in 6 months. I'm taking it as a negative, but you can bet in 6 months, I'll be a crazy person waiting for results.

    Sending all the positive energy and good thoughts I can to you today for a perfect result on Tuesday.

    Hugs, Renee
  • taleena
    taleena Member Posts: 1,612 Member
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    Kari, Can't chime in on the
    Kari, Can't chime in on the spine, I just wanted you to know that I am sending up special prayers for you! Hang in there, and as hard as it might be try to stay positive! We're all here for you!

    Hugs,

    ~T
  • pinkkari09
    pinkkari09 Member Posts: 877
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    So is the spine considered a
    So is the spine considered a bone met? Sounds like a dumb question but I have no clue.
  • meena1
    meena1 Member Posts: 1,003
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    Aortus said:

    Please hang in there, Kari!
    I don't know what's possible or impossible, but I do know PT scans are notorious for turning up false negatives. It's a good thing your oncologist is going with the MRI. And while there's no such thing as "good" mets, bone mets can be treated into submission. I am placing a special prayer request with my special angel right now. You still deserve NED!

    God Bless,
    Joe

    I have mets to my spine, it
    I have mets to my spine, it was there when i was originally diagnosed 2 1/2 years ago. Right now they are stable and they do not seem to cause any problems, but I do have back pain. I get infusion therapy of a drug called Zometa every 3 weeks, this is to strengthn the bones. You may want to ask your doctor about taking Vitamin D. I think my mets are on t-10 or 11 but i really have not had any major problems with the bone mets besides some back pain. One of my doctors is not sure that the pain is from the bone mets. I hope that your MRI is clean, you have been through so much.
  • meena1
    meena1 Member Posts: 1,003
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    So is the spine considered a
    So is the spine considered a bone met? Sounds like a dumb question but I have no clue.

    Yes, it would be considered
    Yes, it would be considered a bone met. Anytime cancer spreads to a different area, it is called a "met", which is shortened from metatised, which mean that the cancer spread to a different area.
  • CR1954
    CR1954 Member Posts: 1,390 Member
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    Kari...
    In my prayers. So hard waiting, but hoping for the best results.

    Hugs,
    CR
  • Jean 0609
    Jean 0609 Member Posts: 2,462
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    Hang in there Kari,
    Try not to worry (I know easier said than done). Sending positive thoughts & prayers your way.

    xoxo,
    Jean
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
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    Oh, no...
    Was so, so hoping for better results, Kari. Am sorry for this additional scare, sorry you must now wait for a more definitive answer.

    In the meantime, I'll continue to be hopeful - hoping the MRI on Tuesday puts you smack dab into the right percentage category: false reads.

    Kind regards, Susan
  • sea60
    sea60 Member Posts: 2,613
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    Oh, no...
    Was so, so hoping for better results, Kari. Am sorry for this additional scare, sorry you must now wait for a more definitive answer.

    In the meantime, I'll continue to be hopeful - hoping the MRI on Tuesday puts you smack dab into the right percentage category: false reads.

    Kind regards, Susan

    I'm praying for you Kari
    and hope it turns out to be clear.

    Hugs,

    Sylvia
  • PinkPearl
    PinkPearl Member Posts: 280
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    Doesn't seem fair
    Doesn't seem fair that you are in the waiting game and a scary one too. I just wish I could bottle up the fear for you and I will be praying for a good outcome!
  • fauxma
    fauxma Member Posts: 3,577 Member
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    Kari,
    I can't help with the

    Kari,
    I can't help with the specifics but will keep you in my prayers. Try to stay busy and to not worry (I know much easier to say than do). But worrying won't change the outcome one way or the other, so just breath. Good thoughts and a big cyber hug to you.
    Stef
  • ladyg
    ladyg Member Posts: 1,577
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    I will be keeping
    positive thought for you. I hope the MRI prove that the PT scan was not correct.

    Hugs,
    Georgia
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
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    ladyg said:

    I will be keeping
    positive thought for you. I hope the MRI prove that the PT scan was not correct.

    Hugs,
    Georgia

    UGGG I hate the waiting game
    UGGG I hate the waiting game too!!!!

    I have bone mets to my spine also and get the zometa started getting it every month, now I get it once every 90 days. The bone mets, also to my spine, cause me mostly stiffness and soreness, unable to bend as easy as I used to and when I get up in the mornings or after I have sat for a while I am very stiff. Thats how my cancer was found, I has having horrible back pain, muscles siezing up was awful! Had a MRI of my spine and they found tumors on my spine, I was admitted to the hospital, had my first mammogram found a tumor in my left breast, had a liver biopsy was DX'd with stage IV breast cancer with mets to the spine and liver. That was March 18, 2009. Mine was pretty advanced by the time I was Dxd if yours is just now showing up I bet you will do better with much less pain!!!!

    Good luck I will add you to my prayers!

  • New Flower
    New Flower Member Posts: 4,294
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    UGGG I hate the waiting game
    UGGG I hate the waiting game too!!!!

    I have bone mets to my spine also and get the zometa started getting it every month, now I get it once every 90 days. The bone mets, also to my spine, cause me mostly stiffness and soreness, unable to bend as easy as I used to and when I get up in the mornings or after I have sat for a while I am very stiff. Thats how my cancer was found, I has having horrible back pain, muscles siezing up was awful! Had a MRI of my spine and they found tumors on my spine, I was admitted to the hospital, had my first mammogram found a tumor in my left breast, had a liver biopsy was DX'd with stage IV breast cancer with mets to the spine and liver. That was March 18, 2009. Mine was pretty advanced by the time I was Dxd if yours is just now showing up I bet you will do better with much less pain!!!!

    Good luck I will add you to my prayers!

    Kari
    Please do not be scary, however I understand that waiting is very difficult. Please know that we are here for you
    I was diagnosed with stage IIIC with 11 positive nodes, Er+ in 2008.
    Sending positive thoughts to your way and praying for clean MRI.
    Hugs,
    New Flower
  • aysemari
    aysemari Member Posts: 1,596 Member
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    Well Kari
    hear this; we will all be thinking of you and sending loads and loads
    of positive waves your way. And hopefully they will reach you and calm
    your mind and give you some peace during this infamous waiting game.

    Try not to stress yourself, come here and vent and unload as much as
    you want. But be very gentle to our friend Kari.

    Hugs and love,
    Ayse
  • RE
    RE Member Posts: 4,591 Member
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    BIg Hugs
    Kari I am so sorry that you are having to deal with this scare, remember it could still be okay hang in there. I have had mets twice now and I am still surviving and living life. Keep the faith that you will be okay. I will be lifting you in prayer.

    RE
  • newlife2011
    newlife2011 Member Posts: 40
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    Hi Kari,
    My BFF also has

    Hi Kari,
    My BFF also has metz to her spine and also 8 other areas. She is doing well. Stage IV, 16 nodes. Your not alone. Hang in there! Keep fighting.

    You are in my thoughts and prayers,
    Wendy
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
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    Kari, I, too, will be
    Kari, I, too, will be thinking of you and hoping for a more positive MRI. Hang in there and unload ALL your stress right here. We can handle it!! Sending very positive vibes for those to be false reads!!