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We met NED today.
Kimba1505
CSN Member Posts: 557
Awful day anxiety wise. Actually had to take a little anti-anxiety medication, I was so upset. Fortunately the CNA tipped us off that things looked okay as she was checking Mark in.
For those of you who have not followed the story of Mark and would like to know what he started with, and how he ends up with this good report, in a nutshell:
Mark was diagnosed in April of this year with Squamous Cell Carcinoma, left tonsil, Stage IV, HPV+. He underwent surgery for removal of tonsil, surrounding area, a bit of his tongue and soft pallet, and a radical neck dissection (all lymph nodes on the left side, took the muscle, but spared the nerve) He then had 6 weeks of chemo/rad (Cisplatin to start but then switched to Carboplatin + Taxol due to hearing loss). Mark finsihed treatment on July 20th, had his PEG yanked on August 19th, eats what he wants, does what he wants, lives like he wants. Today, November 24, ENT says NED, statistically he should stay that way, report back in 3 months for the next PET.
I have not posted on the Thanksgiving posts because I wasn't sure what the outcome of this appointment would be. But I am so thankful, regardless of what the news would have been, for this amazing group of people who commune here. To say this was a life line would be an understatement. I am also so grateful for Mark's treatment team, and I am especially thankful for the person who Mark is. He faced this head on. He was amazing before, he was amazing during, and he is amazing now.
Thank you all for never letting me be alone.
Kim
For those of you who have not followed the story of Mark and would like to know what he started with, and how he ends up with this good report, in a nutshell:
Mark was diagnosed in April of this year with Squamous Cell Carcinoma, left tonsil, Stage IV, HPV+. He underwent surgery for removal of tonsil, surrounding area, a bit of his tongue and soft pallet, and a radical neck dissection (all lymph nodes on the left side, took the muscle, but spared the nerve) He then had 6 weeks of chemo/rad (Cisplatin to start but then switched to Carboplatin + Taxol due to hearing loss). Mark finsihed treatment on July 20th, had his PEG yanked on August 19th, eats what he wants, does what he wants, lives like he wants. Today, November 24, ENT says NED, statistically he should stay that way, report back in 3 months for the next PET.
I have not posted on the Thanksgiving posts because I wasn't sure what the outcome of this appointment would be. But I am so thankful, regardless of what the news would have been, for this amazing group of people who commune here. To say this was a life line would be an understatement. I am also so grateful for Mark's treatment team, and I am especially thankful for the person who Mark is. He faced this head on. He was amazing before, he was amazing during, and he is amazing now.
Thank you all for never letting me be alone.
Kim
Comments
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Woo Hoo!!!
Finally!!! Have been waiting anxiously for his results. Mark is now the newest member of the NED club.
Congratulations to both of you.
This wonderful news couldn't have come at a more approrpiate time, now you both have so much to be thankful for while you are celebrating your Thanksgiving day together.
Stay well,
Glenna -
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I WAS WAITING FOR YOUR POST TODAY!
Kim & Mark,
I haven't posted for a while, but I was waiting for your post today. Congratulations!!!! I had to take a little anxiety medication on the day of Pat's PET as well. I hope now you can relax and have a WONDERFUL THANKSGIVING.
Congratulations again.
Myka -
Thanks for sharing.....
Kim,
I know it was a long two weeks waiting for the results and so glad NED was the end result. I hope you are both able to take a deep breath and continue on your journey in this thing called "life". Thank you for your positive posts and encouraging words. My best to you and Mark. Happy Thanksgiving....xoxox Chris and Mike -
Yay!CLRRN said:Thanks for sharing.....
Kim,
I know it was a long two weeks waiting for the results and so glad NED was the end result. I hope you are both able to take a deep breath and continue on your journey in this thing called "life". Thank you for your positive posts and encouraging words. My best to you and Mark. Happy Thanksgiving....xoxox Chris and Mike
Kim:
This Thanksgiving will be one to remember. May you and Mark go on to celebrate many, many more.
--Jim in Delaware -
Great newsdelnative said:Yay!
Kim:
This Thanksgiving will be one to remember. May you and Mark go on to celebrate many, many more.
--Jim in Delaware
So ggod to hear the NED news for Mark and you. Very good indeed. I was getting concerned as it was taking a while but what a relief.
Onwards and upwards !!
Scam -
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I love all of you!!!D Lewis said:Happy Thanksgiving!
Kim,
Thank you for sharing your happy news! More to be thankful for.
Deb
Mark's words today:
"What you lose in youth you gain in wisdom: what you lose in health you gain in appreciation".
He has given some things up in this battle, some permenant, some hopefully temporary. But the gain of living, loving, and embracing every day...HUGE. We are both better people for this.
Tremendous love to you all. Thank you.
Kim -
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congratulations!
congratulations on hanging out with your new friend NED! I hope to be able to hang out with him in a few months myself! I hope that NED decides he wants to be Mark's best friend for a very very very very long time! I wish you both an amazing Thanksgiving...what a blessing to get the news just before a big holiday!
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