No Stanford for me

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herdizziness
herdizziness Member Posts: 3,624 Member
edited March 2014 in Colorectal Cancer #1
I've been turned down to be seen by Stanford tumor board, yep, they only see Stage III's.
Enough said for now.

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  • AnneCan
    AnneCan Member Posts: 3,673 Member
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    I am sorry to hear this; you
    I am sorry to hear this; you must be disappointed. Is there somewhere else nearby for you to go to?
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
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    Oh, dear.
    I'm sure it's a huge disappointment! I do hope and pray you can find another alternative.

    *hugs*
    Gail
  • impactzone
    impactzone Member Posts: 551 Member
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    UCSF? I went there at first
    UCSF? I went there at first and really liked it but ended up at stanford because it was an easier drive.
    Chip
  • Nana b
    Nana b Member Posts: 3,030 Member
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    UCSF? I went there at first
    UCSF? I went there at first and really liked it but ended up at stanford because it was an easier drive.
    Chip

    Dr Osorion
    What about Dr Osorio??? Wasn't this for the liver resection?
  • lizdeli
    lizdeli Member Posts: 569 Member
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    Nana b said:

    Dr Osorion
    What about Dr Osorio??? Wasn't this for the liver resection?

    Have you considered...
    MD Anderson Cancer Center in Houston? Dr. George Chang is a Colorectal Surgeon there, of course there are others. The word from his peers is that "he is brillant".

    Liz
  • ktlcs
    ktlcs Member Posts: 358
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    lizdeli said:

    Have you considered...
    MD Anderson Cancer Center in Houston? Dr. George Chang is a Colorectal Surgeon there, of course there are others. The word from his peers is that "he is brillant".

    Liz

    I am so sorry
    But how dare they? They should care for everyone and anyone who needs it

    You must be so frustrated!

    Again I am sorry
  • coolvdub
    coolvdub Member Posts: 408 Member
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    ktlcs said:

    I am so sorry
    But how dare they? They should care for everyone and anyone who needs it

    You must be so frustrated!

    Again I am sorry

    Keep on looking
    Sorry they turned you down, maybe it was because they didn't feel they could give you the very best care for your situation. Keep on looking, I'm sure there is somebody that can and will be able to help you.

    Don
  • chicoturner
    chicoturner Member Posts: 282
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    Sorry about being turned
    Sorry about being turned down by Stanford, it is difficult to think we have lost an option. I was referred to UCSF by my local onc. When I first went there (it did take several weeks to get in) I was greatly encouraged by my new doc (Robin Katie Kelley). She was very encouraging, but said she didn't have anything for me right then, then within the same week I did hear from their research people and did get started on a trial. I started it in June and have been able to continue on it so far. I am stage cc-stage 4 with mets to the lungs. They are tiny, but scattered, so I am not a candidate for surgery right now, but she said they will keep watching to see it that is possible. I really like their attitude there and they have seem very personable, I don't feel like just another number. I don't know where you live, but I drive from chico (about 3 1/2 hr. each way every=other week. It does make for a long day, but, hey, it's what I can do! Maybe something at UCSF could work for you. They were just named a top 10 cancer research hospital again this year. Best to you. Jean
  • HeartofSoul
    HeartofSoul Member Posts: 729 Member
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    Sorry about being turned
    Sorry about being turned down by Stanford, it is difficult to think we have lost an option. I was referred to UCSF by my local onc. When I first went there (it did take several weeks to get in) I was greatly encouraged by my new doc (Robin Katie Kelley). She was very encouraging, but said she didn't have anything for me right then, then within the same week I did hear from their research people and did get started on a trial. I started it in June and have been able to continue on it so far. I am stage cc-stage 4 with mets to the lungs. They are tiny, but scattered, so I am not a candidate for surgery right now, but she said they will keep watching to see it that is possible. I really like their attitude there and they have seem very personable, I don't feel like just another number. I don't know where you live, but I drive from chico (about 3 1/2 hr. each way every=other week. It does make for a long day, but, hey, it's what I can do! Maybe something at UCSF could work for you. They were just named a top 10 cancer research hospital again this year. Best to you. Jean

    Herdi, UCSF is the place for
    Herdi, UCSF is the place for you. They accept Medicaid and your an hr away drive distance. You need a surgeon and med onclogist who are not afraid to take on difficult cases even if odds may not be high. Herdizzness was dx with colon cancer stage 4 on Feb 6 2010 and went to local center in Santa Cruz area.

    ill get you a few referrals at UCSF Herdiziness. I see the member above Chicoturner mentioned one in above post, Robin Katie Kelley. Were here for you and care.


    sumamry below:

    3 treatments so far of oxaliplantin, xeloda and another one called Avastin they started 2 treatments ago. Added 07/12/2010, I finished my 7th round of chemo recently.
    AS of July 30, no more chemo, due to low platlets
  • HeartofSoul
    HeartofSoul Member Posts: 729 Member
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    Herdizziness, please check
    Herdizziness, please check the following link for contact info and colon cancer specialists at UCSF and The UCSF Helen Diller Family Comprehensive Cancer Center at Mount Zion which is the only center in Northern California to receive the prestigious designation of "comprehensive" from the National Cancer Institute.


    http://www.ucsfhealth.org/adult/medical_services/cancer/cr/experts.html

    For assistance finding a doctor, please contact the Physician Referral Service:
    Phone (888) 689-UCSF or (888) 689-8273
    Email referral.center@ucsfmedctr.org

    For more information or to make an appointment, please contact the Center for Colorectal Surgery: Phone (415) 885-3606


    The group of Doctors below are the ones i would try first.

    Alan Venook, M.D.
    Gastrointestinal cancer specialist

    Dr. Alan Venook is a nationally renowned expert in colorectal and liver cancers at UCSF Medical Center where he leads the Gastrointestinal Oncology clinical program. He also is a professor of clinical medicine at UCSF and is the director of the UCSF Cancer Center Clinical Research Office at the Mount Zion site. His research focuses on treating liver tumors with directed approaches, including infusional chemotherapy or biological agents. Venook earned a bachelor's degree from Rutgers University in 1976 and graduated from the UCSF School of Medicine in 1980. He spent two years in the Public Health Service following internship, and trained in internal medicine at the University of California, Davis and in hematology and oncology at UCSF. He has been on the medical staff at UCSF since 1988.

    Specialties: Esophageal Cancer
    Gastrointestinal Cancer
    Liver Cancer
    Appointments: (415) 353-9888
    Education: UCSF School of Medicine 1980
    Residencies: UC Davis Medical Center Internal Medicine 1985
    Fellowships: UCSF Medical Center Medical Oncology 1987
    UCSF Medical Center Hematology 1988



    Andrew H. Ko, M.D.
    Gastrointestinal cancer specialist

    Dr. Andrew H. Ko is a specialist in gastrointestinal cancer, with a particular interest in pancreatic cancer. Ko is interested in the development of new treatment strategies, including molecularly targeted therapies, for patients with gastrointestinal malignancies.

    He earned an undergraduate degree in applied mathematics and biology at Brown University and a medical degree at Johns Hopkins School of Medicine. After an internship and residency at Beth Israel Hospital in Boston, he completed a fellowship in medical oncology at Stanford University before joining UCSF Medical Center in 2001.


    Specialties: Esophageal Cancer
    Gastrointestinal Cancer
    Liver Cancer
    Appointments: (415) 353-9888
    Education: Johns Hopkins University 1995
    Residencies: Beth Israel Hospital-Boston, MA Internal Medicine 1998
    Fellowships: Stanford University Medical Center 2001



    •Dr. Emily Bergsland, gastrointestinal cancer specialist

    •Dr. J. Michael Berry, cancer specialist

    •Dr. Margaret A. Tempero, gastrointestinal cancer specialist

    •Dr. Robert S. Warren, cancer surgeon

    •Dr. Edward H. Kim, colon and rectal surgeon
  • chicoturner
    chicoturner Member Posts: 282
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    Herdizziness, please check
    Herdizziness, please check the following link for contact info and colon cancer specialists at UCSF and The UCSF Helen Diller Family Comprehensive Cancer Center at Mount Zion which is the only center in Northern California to receive the prestigious designation of "comprehensive" from the National Cancer Institute.


    http://www.ucsfhealth.org/adult/medical_services/cancer/cr/experts.html

    For assistance finding a doctor, please contact the Physician Referral Service:
    Phone (888) 689-UCSF or (888) 689-8273
    Email referral.center@ucsfmedctr.org

    For more information or to make an appointment, please contact the Center for Colorectal Surgery: Phone (415) 885-3606


    The group of Doctors below are the ones i would try first.

    Alan Venook, M.D.
    Gastrointestinal cancer specialist

    Dr. Alan Venook is a nationally renowned expert in colorectal and liver cancers at UCSF Medical Center where he leads the Gastrointestinal Oncology clinical program. He also is a professor of clinical medicine at UCSF and is the director of the UCSF Cancer Center Clinical Research Office at the Mount Zion site. His research focuses on treating liver tumors with directed approaches, including infusional chemotherapy or biological agents. Venook earned a bachelor's degree from Rutgers University in 1976 and graduated from the UCSF School of Medicine in 1980. He spent two years in the Public Health Service following internship, and trained in internal medicine at the University of California, Davis and in hematology and oncology at UCSF. He has been on the medical staff at UCSF since 1988.

    Specialties: Esophageal Cancer
    Gastrointestinal Cancer
    Liver Cancer
    Appointments: (415) 353-9888
    Education: UCSF School of Medicine 1980
    Residencies: UC Davis Medical Center Internal Medicine 1985
    Fellowships: UCSF Medical Center Medical Oncology 1987
    UCSF Medical Center Hematology 1988



    Andrew H. Ko, M.D.
    Gastrointestinal cancer specialist

    Dr. Andrew H. Ko is a specialist in gastrointestinal cancer, with a particular interest in pancreatic cancer. Ko is interested in the development of new treatment strategies, including molecularly targeted therapies, for patients with gastrointestinal malignancies.

    He earned an undergraduate degree in applied mathematics and biology at Brown University and a medical degree at Johns Hopkins School of Medicine. After an internship and residency at Beth Israel Hospital in Boston, he completed a fellowship in medical oncology at Stanford University before joining UCSF Medical Center in 2001.


    Specialties: Esophageal Cancer
    Gastrointestinal Cancer
    Liver Cancer
    Appointments: (415) 353-9888
    Education: Johns Hopkins University 1995
    Residencies: Beth Israel Hospital-Boston, MA Internal Medicine 1998
    Fellowships: Stanford University Medical Center 2001



    •Dr. Emily Bergsland, gastrointestinal cancer specialist

    •Dr. J. Michael Berry, cancer specialist

    •Dr. Margaret A. Tempero, gastrointestinal cancer specialist

    •Dr. Robert S. Warren, cancer surgeon

    •Dr. Edward H. Kim, colon and rectal surgeon

    UCSF
    Hi again, I saw the post from Heartofsoul. He listed several Docs at UCSF - I believe you will need to get a referral to them. Dr. Bergsland is the Dr. running the trial I am on, but Dr. Kelley is my onc there. I know Dr. Kelley is younger and not always listed as one of the top Drs., but if you read her bio it is pretty impressive. Also, It does seem that the info is put into their system and that is how I heard from research within days. Best to you. Jean