Dancing with NED tonight!
D Lewis
Member Posts: 1,581 Member
My three-month PET-CT was this morning at Stanford. My doctor was able to review the results and discuss them with me late this afternoon. NO UPTAKE! NO AVIDITY! NO EVIDENCE OF DISEASE! The scoping and all the palpations were normal. Got a finger jammed down my throat again today and it seems to be getting easier. I snapped at him, but he jumped clear.
I got a good look at the medical records I was hand-carrying down to Stanford from my local treatment center. They threw everything at me that they had, treatment-wise for T1N2cM0 Stage 4 HPV-16+ base of tongue SCC. High dose Cisplatin at 100 mg/m2 (and I'm only 120 pounds). A total of 38 radiation treatments, 6900 Guys to the base of tongue and the same to both sides of the neck. Doc says I do have quite a bit of lymphedema going on. Duh, I'll bet I do! No saliva yet, and could be problematic, given the bilateral rads. Nothing else of note, occasional tingling of feet, rare tintinitis, no hearing loss, and the odd attack now and again of L'hermitte's Sign. Just enough to keep me entertained and on my toes.
Stanford didn't give me the 100% all clear that Micktissue got, but they did say that, for someone in my shoes, the 5-year survival rate was in excess of 95%. That is good enough for me.
Deb, doing the happy happy dance with NED after a very long day.
I got a good look at the medical records I was hand-carrying down to Stanford from my local treatment center. They threw everything at me that they had, treatment-wise for T1N2cM0 Stage 4 HPV-16+ base of tongue SCC. High dose Cisplatin at 100 mg/m2 (and I'm only 120 pounds). A total of 38 radiation treatments, 6900 Guys to the base of tongue and the same to both sides of the neck. Doc says I do have quite a bit of lymphedema going on. Duh, I'll bet I do! No saliva yet, and could be problematic, given the bilateral rads. Nothing else of note, occasional tingling of feet, rare tintinitis, no hearing loss, and the odd attack now and again of L'hermitte's Sign. Just enough to keep me entertained and on my toes.
Stanford didn't give me the 100% all clear that Micktissue got, but they did say that, for someone in my shoes, the 5-year survival rate was in excess of 95%. That is good enough for me.
Deb, doing the happy happy dance with NED after a very long day.
0
Comments
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We'll all dance with youHal61 said:NED dance
Deb, that's the best news anyone here can get, and I couldn't wish it on a more deserving survivor. You've done everything right, and I'm very happy it's paid off.
best, Hal
Wonderful news Deb!!! Your news has started my day with a smile. I am so happy for you, you have been through so much and now you can finally see that it was all worth it.
Stay well,
Glenna0 -
YAY!
Awesome news Deb.
Best,
Mick0 -
OUTSTANDING, Deb !!
I'm really glad for you. That was some tough stuff you went through. Ya got it made, Girl.
Larry0 -
Good StuffCajunEagle said:OUTSTANDING, Deb !!
I'm really glad for you. That was some tough stuff you went through. Ya got it made, Girl.
Larry
Hi Deb,
I knew you had it in you. Upward and onward!!
Best Steve0 -
I would love to have the next dance!stevenl said:Good Stuff
Hi Deb,
I knew you had it in you. Upward and onward!!
Best Steve
Great News Deb, it's a great way to start the weekend! Happy for you! Enjoy!
Charles0 -
Dancing with you!Irishgypsie said:I would love to have the next dance!
Great News Deb, it's a great way to start the weekend! Happy for you! Enjoy!
Charles
Dance like no one's watching! You deserve it So happy for you. You have been so kind and encouraging to me. I am thrilled for you. Keep dancing! Hope to join you soon.
God bless,
Viv0 -
NED
Deb, that is awesome. I had my surgery and will start Radiation and Chemo Sept. 8th. I know I am getting ready to face some tough side effects. but hearing your story just made a good day for me even better. It is so great to hear people post good news.
BEST!!
Mike0 -
Fantasticluv4lacrosse said:NED
Deb, that is awesome. I had my surgery and will start Radiation and Chemo Sept. 8th. I know I am getting ready to face some tough side effects. but hearing your story just made a good day for me even better. It is so great to hear people post good news.
BEST!!
Mike
So happy for you Deb. You are an inspiration for all of us to fight the fight.0 -
Awesome!delnative said:How cool is that?
Way cool!
Congratulations!
--Jim in Delaware
Great News!0
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