Update on my reoccurence

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meena1
meena1 Member Posts: 1,003
edited March 2014 in Breast Cancer #1
Well, I was a little too hopeful on my last post about my update. I did get a copy of the cat scan and it did show a slight decrease in the tumor in my liver which was originally 9x8 cm, yikes, it is huge. Also, there was a decrease in most of the swollen lymph nodes in my stomach area, however, there was a slight increase in one of the lymph nodes. Also, there was some activity in my bone mets. Soooo, i am going for a second opinion on Aug 24 at Fox Chase Cancer Center, with Dr Massimo Cristofanilli who is a specialist with Inflammatory breast cancer and has come to Philadelphia from MD Anderson in Houston. Spent 2 days on the phone setting this up, i am now trying to get all my records together. Pain is getting better, so that is a plus. I have been very tired and found out that I am anemic and my blood count was low, they did an iron panel to check that out. Still trying to set up an appointment for the Lymphedema issue, since there are not too many lymphedema specialists. And also, it seems like everyone is on vacation!!!! I am on disability from work, my doctor has me out for 6 months, which has been approved.
I have been reading everyones posts, and it looks like everyone is doing well. I am a little concerned about switching doctors at this point, i saw a post about this. Take care...
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  • BlownAway60
    BlownAway60 Member Posts: 851
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    Sending Prayers and hugs
    Sending Prayers and hugs your way. Hoping things go well with the new doctor. Keep us updated.

    Donna
  • MAJW
    MAJW Member Posts: 2,510 Member
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    Hang in there MEENA........
    For what it's worth, I am keeping you in my thoughts and prayers....We're here for you to help in any way possible..there are many who have walked in your shoes...look to them for strength...Hard as it is and easier said than done, try to stay positive and feel the strength from your fellow "sisters"....

    Prayers, hugs and Peace be with you....
    Nancy
  • lillith
    lillith Member Posts: 29
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    keep fighting it
    You are so brave, and an inspiration, to continue with this battle. I sincerely hope things begin to go well.
  • chenheart
    chenheart Member Posts: 5,159
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    ((((((hugs))))) Sweet
    ((((((hugs))))) Sweet Sister! You continue to be my hero, and I just have a good feeling about you~ no matter the ups and downs oaf dealing with this recurrance.

    I am saddened that you are still anemic, no wonder you are tired! But a reduction in pain is a Good Thing, isn't it? :-) Hooray for that!

    Keep us in the loop~ and know that you are so loved here on the boards!

    Chen♥
  • Jean 0609
    Jean 0609 Member Posts: 2,462
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    Hi Meena,
    Thanks for the update. Glad the pain is better. You are a true inspiration. Good luck with your second opinion. Hang in there...and remember we are all here for you. Hugs, Jean
  • aztec45
    aztec45 Member Posts: 757
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    Keep Fighting
    Keep fighting, Lady. I know that you are tired and it may be easier said than done, but keep up the good fight. I am sure you will beat this. Keep us posted and let me know if I can help in any way....even if it is just to listen.

    P
  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    aztec45 said:

    Keep Fighting
    Keep fighting, Lady. I know that you are tired and it may be easier said than done, but keep up the good fight. I am sure you will beat this. Keep us posted and let me know if I can help in any way....even if it is just to listen.

    P

    Meena .. I don't know where you live, but I hope
    it's somewhere close to me, so I can go over and give you a great big hug, and whisper in your ear .. that everythings going to be okay.

    If you ever want to talk, I am up at all hours .. still fighting that damn insomina.

    I am also available by phone, just let me know.

    Peace, Strength and Courage ..


    Vicki Sam
  • jo jo
    jo jo Member Posts: 1,175
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    Meena, you are an
    Meena, you are an inspiration on this board and well respected. Im not going to pretend i know what your going thru, all i know is my experience and that was bad enough. I just wish you the best of luck and you are in my prayers.
  • aysemari
    aysemari Member Posts: 1,596 Member
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    Meena
    your wonderful spirit and caring nature shine through your
    posts and draw me. I admire you and your ability to keep
    fighting and to keep posting. I have NOT ONCE read a
    negative thing in your posts.

    You are much loved and admired.

    Ayse
  • aysemari
    aysemari Member Posts: 1,596 Member
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    Meena
    your wonderful spirit and caring nature shine through your
    posts and draw me. I admire you and your ability to keep
    fighting and to keep posting. I have NOT ONCE read a
    negative thing in your posts.

    You are much loved and admired.

    Ayse
  • mjfromtx
    mjfromtx Member Posts: 49
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    aysemari said:

    Meena
    your wonderful spirit and caring nature shine through your
    posts and draw me. I admire you and your ability to keep
    fighting and to keep posting. I have NOT ONCE read a
    negative thing in your posts.

    You are much loved and admired.

    Ayse

    Good luck:)
    Good luck on the second opinion! I just came back from MDA and they were great there! Hard to make the switch but it is worth it and be true to yourself. Trust your instincts. I know mine are usually right on!! I totally understand the med rec thing...just went through that to get into MDA. Quite the challenge but you are totally worth it. Prayers and hugs coming all the way from San Antonio tx! MJ
  • missrenee
    missrenee Member Posts: 2,136 Member
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    aysemari said:

    Meena
    your wonderful spirit and caring nature shine through your
    posts and draw me. I admire you and your ability to keep
    fighting and to keep posting. I have NOT ONCE read a
    negative thing in your posts.

    You are much loved and admired.

    Ayse

    Meena--even though you've been going through such a rough time
    your positive attitude and strength inspire me. I am wishing you comfort and offering you up prayers for you to continue your struggle toward healing.

    Hugs, Renee
  • susie09
    susie09 Member Posts: 2,930
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    mjfromtx said:

    Good luck:)
    Good luck on the second opinion! I just came back from MDA and they were great there! Hard to make the switch but it is worth it and be true to yourself. Trust your instincts. I know mine are usually right on!! I totally understand the med rec thing...just went through that to get into MDA. Quite the challenge but you are totally worth it. Prayers and hugs coming all the way from San Antonio tx! MJ

    Wishing you good luck too
    Wishing you good luck too Meena with the new doctor! Glad that your pain is better!


    Pray for you every day!
  • cahjah75
    cahjah75 Member Posts: 2,631
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    Meena, with all
    that you've been through your spirit still shines through. I'm hopeful that the pain is under control and the anemia can be taken care of. Wishing you well with the 2nd opinion. Sending cyber {{hugs}}.
    Char
  • meena1
    meena1 Member Posts: 1,003
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    cahjah75 said:

    Meena, with all
    that you've been through your spirit still shines through. I'm hopeful that the pain is under control and the anemia can be taken care of. Wishing you well with the 2nd opinion. Sending cyber {{hugs}}.
    Char

    Thank you everyone. Now
    Thank you everyone. Now trying to figure what i am going to do with the next 4 months off work!!! Besides doctor appointments and phone calls. I do need this time to recoup and let my body heal. Well i have been cooking up a storm, yesterday i made potato egg salad, homemade pickles (I swear to die for!! Rachel Ray recipe), cost about $10 for the ingredients and i could have bought a jar for 2 bucks. Last nite made cupcakes. Today, my hubby took me on a run to try a new pizza place (ugg) and cherry water ice. So, it is all about the food! I do need all the hugs, trying to stay positive. take care
  • cahjah75
    cahjah75 Member Posts: 2,631
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    meena1 said:

    Thank you everyone. Now
    Thank you everyone. Now trying to figure what i am going to do with the next 4 months off work!!! Besides doctor appointments and phone calls. I do need this time to recoup and let my body heal. Well i have been cooking up a storm, yesterday i made potato egg salad, homemade pickles (I swear to die for!! Rachel Ray recipe), cost about $10 for the ingredients and i could have bought a jar for 2 bucks. Last nite made cupcakes. Today, my hubby took me on a run to try a new pizza place (ugg) and cherry water ice. So, it is all about the food! I do need all the hugs, trying to stay positive. take care

    Meena,
    right now it is all about the little things! My dh loves watching Rachel cook up a storm. Enjoy the foods - the pickles, the cupcakes and the pizza. Tomorrow is another day so enjoy!
    Char
  • roseann4
    roseann4 Member Posts: 992 Member
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    cahjah75 said:

    Meena,
    right now it is all about the little things! My dh loves watching Rachel cook up a storm. Enjoy the foods - the pickles, the cupcakes and the pizza. Tomorrow is another day so enjoy!
    Char

    Hi Meena!
    They just need to find the right course of treatment at this point. I think a new doc can be just what you need. New docs, new information and a new course of treatment that will put your BC in it's place. One of the woman in my support group was told by her onc who is also the head of research at Yale that there are exciting new treatments on the horizon. Some are already available and more are to follow. She was so positive that she gave my friend renewed hope. As difficult as it is, please stay in a place of faith and hope. Hugs.

    Roseann
  • New Flower
    New Flower Member Posts: 4,294
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    roseann4 said:

    Hi Meena!
    They just need to find the right course of treatment at this point. I think a new doc can be just what you need. New docs, new information and a new course of treatment that will put your BC in it's place. One of the woman in my support group was told by her onc who is also the head of research at Yale that there are exciting new treatments on the horizon. Some are already available and more are to follow. She was so positive that she gave my friend renewed hope. As difficult as it is, please stay in a place of faith and hope. Hugs.

    Roseann

    Meena
    Sending you a big hug.
  • lillith
    lillith Member Posts: 29
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    roseann4 said:

    Hi Meena!
    They just need to find the right course of treatment at this point. I think a new doc can be just what you need. New docs, new information and a new course of treatment that will put your BC in it's place. One of the woman in my support group was told by her onc who is also the head of research at Yale that there are exciting new treatments on the horizon. Some are already available and more are to follow. She was so positive that she gave my friend renewed hope. As difficult as it is, please stay in a place of faith and hope. Hugs.

    Roseann

    good post
    thank you so much, Roseann, for the positive news.
  • meena1
    meena1 Member Posts: 1,003
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    lillith said:

    good post
    thank you so much, Roseann, for the positive news.

    Yes, thank you Roseann.
    Yes, thank you Roseann. There are a lot of new drugs and therapies around, but sometimes it is hard to get insurance to approve them. That was my problem a couple months ago. But i seem to be doing well on the Taxol and Herceptiin.