LisaQ

nancy591
nancy591 Member Posts: 1,027 Member
edited March 2014 in Ovarian Cancer #1
How are you? I've been thinking about you.

Comments

  • Lisa13Q
    Lisa13Q Member Posts: 677
    #2
    Hello and Thanks for thoughts
    Hi Nancy,

    I had along talk with the gyn/onc today which was very helpful. Essentially this is a recurrance. I don't know why I was so stunned. I should have known there would be a recurrance. I think I was terrified by the location and she clarified that it was not on the liver and was not concerned with it going into the liver. It's ovarian cancer and this is how it works. I think I was in denial. I was believing that my mother had beaten the monster. I have to admit I had a terrible night last night. My day has been better. I am amazed at the incredible attitude of all the women on this board. They are so supportive and helpful. My mother also had a great attitude. It's such a weird feeling. I feel like I'm fighting the disease too even though I'm not. I, for sure, will be back in NY more often, and I promised the doc I would not worry. She asked me to let her do the worrying, and just spend fun time with my mother. So I will try. I can't tell you how much I appreciate the thoughts and support of everyone. For me, this board is a lifesaver, and I am going to have to do something about this disease and raising money. It's a travesty how everyone knows about breast cancer and no one about this cancer!! How are you doing? When do you find out about the avastin and whether you can use it?
  • kayandok
    kayandok Member Posts: 1,202 Member
    #3
    Lisa13Q said:

    Hello and Thanks for thoughts
    Hi Nancy,

    I had along talk with the gyn/onc today which was very helpful. Essentially this is a recurrance. I don't know why I was so stunned. I should have known there would be a recurrance. I think I was terrified by the location and she clarified that it was not on the liver and was not concerned with it going into the liver. It's ovarian cancer and this is how it works. I think I was in denial. I was believing that my mother had beaten the monster. I have to admit I had a terrible night last night. My day has been better. I am amazed at the incredible attitude of all the women on this board. They are so supportive and helpful. My mother also had a great attitude. It's such a weird feeling. I feel like I'm fighting the disease too even though I'm not. I, for sure, will be back in NY more often, and I promised the doc I would not worry. She asked me to let her do the worrying, and just spend fun time with my mother. So I will try. I can't tell you how much I appreciate the thoughts and support of everyone. For me, this board is a lifesaver, and I am going to have to do something about this disease and raising money. It's a travesty how everyone knows about breast cancer and no one about this cancer!! How are you doing? When do you find out about the avastin and whether you can use it?

    Lisa,
    I know that hearing about my recurrence was harder for me than hearing about my original dx, and I have heard many other women say the same. You just don't expect it, and it hits hard.I think that we have hope that we will be cured and somehow beat those statistics (someone has to, why can't it be me?) And there is still lot's of hope she can still beat it!! Never give up hope!
    Your mom is so blessed to have you as her daughter!!!
    Take care,
    kathleen
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #4
    Lisa13Q said:

    Hello and Thanks for thoughts
    Hi Nancy,

    I had along talk with the gyn/onc today which was very helpful. Essentially this is a recurrance. I don't know why I was so stunned. I should have known there would be a recurrance. I think I was terrified by the location and she clarified that it was not on the liver and was not concerned with it going into the liver. It's ovarian cancer and this is how it works. I think I was in denial. I was believing that my mother had beaten the monster. I have to admit I had a terrible night last night. My day has been better. I am amazed at the incredible attitude of all the women on this board. They are so supportive and helpful. My mother also had a great attitude. It's such a weird feeling. I feel like I'm fighting the disease too even though I'm not. I, for sure, will be back in NY more often, and I promised the doc I would not worry. She asked me to let her do the worrying, and just spend fun time with my mother. So I will try. I can't tell you how much I appreciate the thoughts and support of everyone. For me, this board is a lifesaver, and I am going to have to do something about this disease and raising money. It's a travesty how everyone knows about breast cancer and no one about this cancer!! How are you doing? When do you find out about the avastin and whether you can use it?

    My sister has said the same
    My sister has said the same thing you did.....she feels as though she is fighting the disease too. Like Kathleen said, your mom is likely to have such a caring daughter like you. Sometimes I feel like nobody in my family really understands what I am going through. I do get jealous they get to go on with their lives while I'm stuck in my reality. It would be so nice to have someone to hold my hand and be by my side. I also agree totally that some people do beat the disease/...even if it is only 20%...there are people in that 20% and why can't it be me!!!

    I start carbo/gemzar on Monday. I will receive it in the outpatient center in Sleepy Hollow, NY. The schedule is one day one week, one day the next then two weeks off. I delayed starting it because there were events at my children's school I didn't want to miss. I already missed the Mothers Day celebration because I was having my PET/CT. Dr. S told me to call his office the 2nd week of June and they should know the results of the Avastin trials.

    Did your Mom have areas on her bowels? Does she have digestive symptoms?

    Best of luck. I was thinking about you after you seemed to leave so suddenly. I felt like writing "LISA WHERE ARE YOU??!!!" I am happy you have a clearer head now. Although I was upset with my progression while on the Doxil. I was relieved to finally get the results. Now I know and I can move on. Everyone says...'oh you are handling it so well' I think...well what choice do I have??

    Be well!
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #5
    nancy591 said:

    My sister has said the same
    My sister has said the same thing you did.....she feels as though she is fighting the disease too. Like Kathleen said, your mom is likely to have such a caring daughter like you. Sometimes I feel like nobody in my family really understands what I am going through. I do get jealous they get to go on with their lives while I'm stuck in my reality. It would be so nice to have someone to hold my hand and be by my side. I also agree totally that some people do beat the disease/...even if it is only 20%...there are people in that 20% and why can't it be me!!!

    I start carbo/gemzar on Monday. I will receive it in the outpatient center in Sleepy Hollow, NY. The schedule is one day one week, one day the next then two weeks off. I delayed starting it because there were events at my children's school I didn't want to miss. I already missed the Mothers Day celebration because I was having my PET/CT. Dr. S told me to call his office the 2nd week of June and they should know the results of the Avastin trials.

    Did your Mom have areas on her bowels? Does she have digestive symptoms?

    Best of luck. I was thinking about you after you seemed to leave so suddenly. I felt like writing "LISA WHERE ARE YOU??!!!" I am happy you have a clearer head now. Although I was upset with my progression while on the Doxil. I was relieved to finally get the results. Now I know and I can move on. Everyone says...'oh you are handling it so well' I think...well what choice do I have??

    Be well!

    Nancy....my feelings, exactly
    What choice do I have? People keep telling me the same things: you look great; you are doing so good. My favorite is "you are going to beat this thing". I want to ask them, "And you know this how???"

    My family, as I feared they might, heard one word (remission) and ran with it. Mom's cured! Uh, no....she's not.

    Carlene
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #6
    Hissy_Fitz said:

    Nancy....my feelings, exactly
    What choice do I have? People keep telling me the same things: you look great; you are doing so good. My favorite is "you are going to beat this thing". I want to ask them, "And you know this how???"

    My family, as I feared they might, heard one word (remission) and ran with it. Mom's cured! Uh, no....she's not.

    Carlene

    same thing
    Same exact situation!!! Word for word!
  • Unknown
    Unknown
    #7
    nancy591 said:

    My sister has said the same
    My sister has said the same thing you did.....she feels as though she is fighting the disease too. Like Kathleen said, your mom is likely to have such a caring daughter like you. Sometimes I feel like nobody in my family really understands what I am going through. I do get jealous they get to go on with their lives while I'm stuck in my reality. It would be so nice to have someone to hold my hand and be by my side. I also agree totally that some people do beat the disease/...even if it is only 20%...there are people in that 20% and why can't it be me!!!

    I start carbo/gemzar on Monday. I will receive it in the outpatient center in Sleepy Hollow, NY. The schedule is one day one week, one day the next then two weeks off. I delayed starting it because there were events at my children's school I didn't want to miss. I already missed the Mothers Day celebration because I was having my PET/CT. Dr. S told me to call his office the 2nd week of June and they should know the results of the Avastin trials.

    Did your Mom have areas on her bowels? Does she have digestive symptoms?

    Best of luck. I was thinking about you after you seemed to leave so suddenly. I felt like writing "LISA WHERE ARE YOU??!!!" I am happy you have a clearer head now. Although I was upset with my progression while on the Doxil. I was relieved to finally get the results. Now I know and I can move on. Everyone says...'oh you are handling it so well' I think...well what choice do I have??

    Be well!

    This comment has been removed by the Moderator
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    #8
    unknown said:

    This comment has been removed by the Moderator

    I can so identify with these
    I can so identify with these sentiments. I always prepare for bad news and hope for something better. I think the shock of being told you have cancer will always be the worse ever feeling - nothing will ever touch that. But its the way you conduct your live after that which makes us strong.

    I too have come to peace with the fact that I may not live to see my children get married, my grandchildren etc. Remaining positive is hard to do ALL OF THE TIME. But I do it because there is no alternative.

    Live well each day........... to owe it to yourself.

    Love Tina xx
  • LPack
    LPack Member Posts: 645
    #9
    Same!
    Same here, I hear the same. But usually I do feel good and I try to look my best.

    You know me, it is a win win situation. If I leave this world earlier than what I or my family would like I will be in Heaven with Jesus. Or if I continue as is, I am still here with my family.

    It is my family that has the hardest time. I am thankful to see all four of our children grown (34, 33, 30, 29). Now it is the grandchildren coming and two of our sons are not yet married.

    I would love to live until at least 70! ☺

    I LOVE YOU, LADIES. Have a great weekend!

    Living for Eternity,
    Libby
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    #10
    LPack said:

    Same!
    Same here, I hear the same. But usually I do feel good and I try to look my best.

    You know me, it is a win win situation. If I leave this world earlier than what I or my family would like I will be in Heaven with Jesus. Or if I continue as is, I am still here with my family.

    It is my family that has the hardest time. I am thankful to see all four of our children grown (34, 33, 30, 29). Now it is the grandchildren coming and two of our sons are not yet married.

    I would love to live until at least 70! ☺

    I LOVE YOU, LADIES. Have a great weekend!

    Living for Eternity,
    Libby

    Hi Libby
    You look so young in your photo I can't believe you have 4 children where the oldest is 34? I thought you may be a similar age to me. I have just turned 50. I have 2 children 24 & 27 & would also like to be here when I have grandchildren. Neither of them are married but are very happy in their respective relationships. I also love your attitude - to have such faith must surely be a blessing.

    Take care Libby, love Tina xx
  • msfanciful
    msfanciful Member Posts: 559
    #11
    Same here,
    How dare me to
    Same here,

    How dare me to have the nerve after being in remission for one-year and one-month to think that I was done with stage IV OVCA?

    Once I heard the work recurrence, I realized then that this beast called cancer was not going to be that easy to get rid of. I just thought, take the eight rounds of chemo, the chem will kill the cancer and then I'll be cured? NOT!

    I think the real key to beating this is to just decide this is something that I will have to live with for the rest of my life and to stay as well informed about my condition as possible so that I will know what I am fighting and thus how to fight it.

    We do adjust Lisa.

    Stay strong,



    Sharon
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    #12
    msfanciful said:

    Same here,
    How dare me to
    Same here,

    How dare me to have the nerve after being in remission for one-year and one-month to think that I was done with stage IV OVCA?

    Once I heard the work recurrence, I realized then that this beast called cancer was not going to be that easy to get rid of. I just thought, take the eight rounds of chemo, the chem will kill the cancer and then I'll be cured? NOT!

    I think the real key to beating this is to just decide this is something that I will have to live with for the rest of my life and to stay as well informed about my condition as possible so that I will know what I am fighting and thus how to fight it.

    We do adjust Lisa.

    Stay strong,



    Sharon

    Blessings Sharon
    Cancer is a chronic disease and I think once it has touched your life you are never rid of it. It is how we choose to live our lives that is important. I know I have had some good news FOR NOW but I am not stupid and I expect one day it will come back again.

    We will all die one day, but when you have cancer you are just more aware of this. I sometimes think we are lucky because having cancer has made us appreciate every little thing in our lives and makes us live life to the full and enjoy each day 100%.

    Knowledge is a powerful thing and it can be a blessing and a curse. Sharon you seem to be a very strong woman with alot of spirit and life in you. I know you will enjoy all of your friends and family and will live a long and happy live. Thinking of you - keep that spirit high.

    Lots love Tina xxxx
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #13
    msfanciful said:

    Same here,
    How dare me to
    Same here,

    How dare me to have the nerve after being in remission for one-year and one-month to think that I was done with stage IV OVCA?

    Once I heard the work recurrence, I realized then that this beast called cancer was not going to be that easy to get rid of. I just thought, take the eight rounds of chemo, the chem will kill the cancer and then I'll be cured? NOT!

    I think the real key to beating this is to just decide this is something that I will have to live with for the rest of my life and to stay as well informed about my condition as possible so that I will know what I am fighting and thus how to fight it.

    We do adjust Lisa.

    Stay strong,



    Sharon

    Praising the Lord for 7+ years
    I agree that we now can live with cancer - what a difference each year makes. Seven years ago no one would have thought with ovarian cancer a person would still be here, and now it is happening more and more. Plus each year something new is out there, who knows maybe gleevec or similar drug will be used against ovarian cancer, this drug only attacks the cancer cells. Yup each year we survive something new is out there, but like Libby said I always have said either way I win also. :-D And to now be able to attend another grandson's graduation is such a gift. Prayers ♥ Hugs Bonnie

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