living in the moment when the moment sucks

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kickin the big C
kickin the big C Member Posts: 18
edited March 2014 in Breast Cancer #1
mastectomy almost 22 mths ago, chemo done 16 mths ago, radiation, 12 mths ago. now they are saying that chemo wore away the lining of my stomach, so the lining has been replaced by the wall of the intestine. say what? so i am always nauseous. i don't care about food anymore as nothing tastes good or feels good in my stomach. thank god for rice. i am exhausted. i am having trouble walking, they are not sure if it is related, so i had a cortisone shot in my hip, which helped immensely. i'm sure it'd help if i lost the 35 lbs i gained during treatment too, but the taxol is preventing that from happening. ahhhhhhhhhhhh!!!! grrrrr!! just had to get that out.

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  • Christine Louise
    Christine Louise Member Posts: 426 Member
    #2
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    Grrr, indeed
    Oooh, I'm hating what you are having to go through! After so much time and treatment, you'd like to be seeing the end of the tunnel. Thank goodness the cortisone helped. If you're eating lots of rice, you might try brown rice, which has lots of good nutrition compared to white.

    I'm sending good vibes your way and hoping that things get better fast!
  • 24242
    24242 Member Posts: 1,398
    #3
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    Christine Louise said:

    Grrr, indeed
    Oooh, I'm hating what you are having to go through! After so much time and treatment, you'd like to be seeing the end of the tunnel. Thank goodness the cortisone helped. If you're eating lots of rice, you might try brown rice, which has lots of good nutrition compared to white.

    I'm sending good vibes your way and hoping that things get better fast!

    I am sorry
    I am sorry so many of us have to suffer so much and often it is just because they won't admit to the tinies of percentages of side effects. I was so glad that I read everything and knew for myself what my chances of getting any kind of side effect was. Back 14 years ago they the medical community was more interested in sadating us poor anxiety riddled breast cancer survivors or cancer survivors for that matter.
    It took me more than 7 years to address all the health issues I was left with because if there was a one percent chance of getting it I did. My mother is that sensative to medication and everything so wasn't surprised by this but please admit it could be and not because I have a little fear. I was reminded once by my Pain specialist that depression does not cause pain but truly being in pain can cause depression and no wonder suffering is not good and none of us should have to is my belief.
    I know that I want Quality to my life and everything I do is for that including rattlng cages again because time is clicking away on these two new lumps that have now been there for over two months. They minimize my chances for a reoccurance and think I find comfort in that when in fact there is only one way to know and that is diagnostically check it.
    I sometimes wonder how much has truly changed in 14 years.
    How is early detection possible even today if they just believe I don't have cancer and wonder why I think I might. 11 out of 21 positive nodes and maybe having one of the worst forms of breast cancer at 36 with the negative HER. Lucky yes because I am still here but that doesn't mean you don't have to check new lumps.
    Tara
  • sbmly53
    sbmly53 Member Posts: 1,522
    #4
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    I can't even imagine what you are going through.
    I am so sorry and I hope that things will get better. It's obvious that you are strong, a fighter. Keep fighting - and posting.

    Sue
  • meena1
    meena1 Member Posts: 1,003
    #5
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    I feel the same way, and
    I feel the same way, and this is strange, but my timeline is the same as yours. My stomach hurts, i have been diagnosed with IBS. i feel bloated and gassy all the time. food does not taste the same, and i am tired. I also was on taxol and i tolerated it well at the time, but now i feel sick all the time. My oncologist prescribed prilosec for me, but lately it has not been working. Can you tell me who told you that chemo wore away the lining of your stomach. I have only been seeing my oncologist, but i think i need to see a gastro doc. Take care.. and you are not alone
  • jnl
    jnl Member Posts: 3,869 Member
    #6
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    sbmly53 said:

    I can't even imagine what you are going through.
    I am so sorry and I hope that things will get better. It's obvious that you are strong, a fighter. Keep fighting - and posting.

    Sue

    I'm sorry. Fighting bc is
    I'm sorry. Fighting bc is tough, but, you can continue to do it! Hang in there!

    Leeza

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