My clinical trial update
The chemo drugs I am given are Sorafenib, Erbitux and Irinotecan. The interesting thing is I am KRAS mutated. But this trial recruits both wild type and mutation type. I am just lucky to be in this group. The research doctors need to analyze all the data after the trial is closed to see why it works for me. Their hypothesis is that the combination of Sorafenib and Erbitux may work for some KRAS mutated patient. If that proved to be true, it will make us KRAS mutants very happy.
Peter
Comments
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clinical trials
Hi Peter, What wonderful news! Your good news is just what I needed to hear! I am waiting to get to UCSF as I too am KRAS mutant and have only been holding my own. Where are you doing your trials. How are your side affects and where are your tumors? Thanks so much for sharing and I will pray that your success continues. Jean0 -
Clinical Trialchicoturner said:clinical trials
Hi Peter, What wonderful news! Your good news is just what I needed to hear! I am waiting to get to UCSF as I too am KRAS mutant and have only been holding my own. Where are you doing your trials. How are your side affects and where are your tumors? Thanks so much for sharing and I will pray that your success continues. Jean
Hi Jean,
I have the clinical trial done at Johns Hopkins Cancer Center. The side effects are hair loss, diarrhea and the famous Erbitux rash. But they can be easily controlled by medicine. My primary tumor is in rectum which has been removed by surgery, mets to right lobe of liver and both lung.
Peter0 -
Peter
This is great news! I have been following your journey. And this sounds like such a great positive uplifting hopeful piece of news.
I am wondering, since my sister may need to do a clinical trial, did your current onc. recommend this or did you do this on your own?
Marie0 -
Peter!! happy to hear you're getting good resultssfmarie said:Peter
This is great news! I have been following your journey. And this sounds like such a great positive uplifting hopeful piece of news.
I am wondering, since my sister may need to do a clinical trial, did your current onc. recommend this or did you do this on your own?
Marie
with your current drug mixture. .....AS an added bonus, it may help others as well.....steve0 -
Peter
Peter,
Thanks for sharing your good news. We all like to hear when a new drug is working. Thinking of you.
Aloha,
Kathleen0 -
Finding clinical trialsfmarie said:Peter
This is great news! I have been following your journey. And this sounds like such a great positive uplifting hopeful piece of news.
I am wondering, since my sister may need to do a clinical trial, did your current onc. recommend this or did you do this on your own?
Marie
Hi Marie,
Before my clinical trial, I had visited Sloan Kettering, UPMC, Georgetown and Johns Hopkins for second opinion. I decided to go with Johns Hopkins because they seem to have a lot of clinical trials available. My first clinical trial failed, but they were able to find another one for me in about 6 weeks. The other place to look for clinical trial is NCI (National Cancer Institute) at NIH. I have friend doing clinical trial there. She seems to be very happy about NCI. And the treatment at NCI is free of charge.
Peter0 -
thanks for sharing
Thanks for sharing your good news! I'm so glad to hear this trial is working well for you!0 -
Hi Peter!Kathryn_in_MN said:thanks for sharing
Thanks for sharing your good news! I'm so glad to hear this trial is working well for you!
I'm so glad this treatment sounds good. Clinical trials have always scared me, as I felt like they would use me as a guinea pig to test me, not knowing what the outcome will be, but then again, without people going through these tests, we wouldn't know what these meds would do for us. One could be the cure! and I have great respect for those people doing these trials, thanks for it! I hope it continues to do well, as there is hope in our future!
Hugsss!
~Donna0 -
that sounds goodShayenne said:Hi Peter!
I'm so glad this treatment sounds good. Clinical trials have always scared me, as I felt like they would use me as a guinea pig to test me, not knowing what the outcome will be, but then again, without people going through these tests, we wouldn't know what these meds would do for us. One could be the cure! and I have great respect for those people doing these trials, thanks for it! I hope it continues to do well, as there is hope in our future!
Hugsss!
~Donna
that sounds good Peter....hoping for continuing good news....
Mags0 -
Peter
Congratulations on your sucess and I wish you continued success in your journey. You are paving the way for future treatments and you are to be commended for doing so. Again, I wish you nothing but continued success. Please continue to check in with us. Tina0 -
PeterPaula G. said:Great news. Keep us posted.
Great news. Keep us posted. I'm happy for you Peter. My husband is KRAS mutant! Paula
that is wonderful news , I too am happy for you
michelle0 -
Hi Peter,I just read your
Hi Peter,I just read your yahoo blog.I am so happy that your clinical trial has been going so well.It's like a miracle.I am sorry that you lost lots of hair,but you are a gentleman anyway.From your blog,I can see that you are still very positive and optimistic.This is really good and important.Keep your faith and keep fighting,you will win very soon.Wish you the best.Take care.0 -
glad
Hi Peter,
I'm glad to hear your update and that the trial meds are working well for you! I, too, am kras mutated, so I will keep this in mind as a possibility in my future, if the gemzar doesn't work for me (but I'm praying that it will).
Glad to hear from you- I had been wondering how you were doing.
Hang in there!
Lisa0 -
Thank youpeterhw said:Finding clinical trial
Hi Marie,
Before my clinical trial, I had visited Sloan Kettering, UPMC, Georgetown and Johns Hopkins for second opinion. I decided to go with Johns Hopkins because they seem to have a lot of clinical trials available. My first clinical trial failed, but they were able to find another one for me in about 6 weeks. The other place to look for clinical trial is NCI (National Cancer Institute) at NIH. I have friend doing clinical trial there. She seems to be very happy about NCI. And the treatment at NCI is free of charge.
Peter
Peter for responding to my post. I sent it along to my sister and I know your story and journey will give her HOPE.
I am praying this is a silver bullet for you! Keep us all posted.
Marie0
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