The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

scan results

2»

Comments

  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    Patti,
    I am sorry for this

    Patti,

    I am sorry for this setback. I am on irenotecan as part of folfiri + avastin & have had terrific results so far. After just 4 treatments, the cancer in my colon is not detectatble (no surgery yet) & 3 of the 4 lever mets have shrunken (the 4th stayed the same & did not grow). I have found this cocktail tolerable, mostly just fatiguing. My hair has thinned but I have not lost it & have not worn my wig yet. Not everyone even has hair loss; you might not experience that. You are right; while hair loss is not the end of the world, it is another thing to deal with on this journey. I know you said before that you were worried about how your kids will deal with this; I would maybe involve them in helping you to pick out a wig "just in case". In any case, good luck tomorrow, & I am sending my best wishes for success with this treatment.
  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    So sorry
    Patti,

    I'm so sorry! I wish I could give you a real hug, because I know you're devastated. Take a deep breath and try not to stress too much (I know...). Let us know how things go.

    I'll be praying for you.

    *hugs*
    Gail
  • dorookie
    dorookie CSN Member Posts: 1,731 Member
    I am so sorry, Patti
    I hate to hear this news, but I am glad that your doctor has another plan, please know i will continue to pray for you, and will add a little extra prayer that you dont lose your hair. Good luck and please let us be there for you...

    God Bless
    Beth
  • This comment has been removed by the Moderator
  • sfmarie
    sfmarie CSN Member Posts: 602
    Don't give up HOPE
    I am sorry about your news. But don't give up HOPE. It can be done and there are many other options. You can always go wig shopping with your kids. They may get a kick out of seeing you trying on new "do's" and it would be a great way to tell them you may lose your hair. I think you would look great in a Katie Holmes wig or a fabulous Tina Turner wig! Prayers for you and your family. Marie
  • donnare
    donnare CSN Member Posts: 266
    Hi Patti
    Sorry about your news. Just want you to know I'll be praying for you.

    God Bless!
    Donna