anaplastic astrocytoma stage 3 ..... 5yrs +

kitkatkaz
kitkatkaz Member Posts: 4
edited March 2014 in Brain Cancer #1
Anyone out there that falls into this group?

Comments

  • sue Siwek
    sue Siwek Member Posts: 279
    #2
    yes, my husband has
    yes, my husband has celebrated the start of his 10 year having a grade 3 anaplastic astrocytoma Plus! the added diagnosis of parkinson's. hang in there.
  • sue Siwek
    sue Siwek Member Posts: 279
    #3
    yes, my husband has
    yes, my husband has celebrated the start of his 10 year having a grade 3 anaplastic astrocytoma Plus! the added diagnosis of parkinson's. hang in there.
  • dsteras
    dsteras Member Posts: 8
    #4
    sue Siwek said:

    yes, my husband has
    yes, my husband has celebrated the start of his 10 year having a grade 3 anaplastic astrocytoma Plus! the added diagnosis of parkinson's. hang in there.

    10 years thats wonderful
    that gives me hope for my son its been almost 2 years but it keeps coming back so will start a trial in dec. at NIH could you tell us what drugs your Husband had or any helpful hits on how he has beaten this
  • sue Siwek
    sue Siwek Member Posts: 279
    #5
    dsteras said:

    10 years thats wonderful
    that gives me hope for my son its been almost 2 years but it keeps coming back so will start a trial in dec. at NIH could you tell us what drugs your Husband had or any helpful hits on how he has beaten this

    well, to begin with he went
    well, to begin with he went to a top teaching hospital in our state after being diagnosed in 2000. in our case it was henry ford in detroit. he had stereotactic radiation and chemo. the first chemo was tremodar which didn't work. next he went on a clinical trial which shrunk his tumor but caused many side effects. the hopeful thing about a clinical trial is that if there is no other choice in approved chemo this can buy you time. in my husbands case it did and 6 months later he was on an approved drug procarbozine and ccnu. he has been cancer free since 2005. i just know it takes guts, which i am sure your son and you have. it takes all of you to fight this. ask questions even if you think it is stupid, it is not. you are his advocate. best wishes. keep posting i will be watching.

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