retroperitoneal liposarcoma

Ninappn

armayn said:

6 surgeries in less than 10
MY story is as follows:
I found my first(retropertineal liposarcoma) tumor in the summer of 2002, having the surgery in September of that year. I remember my oncologist saying “Remember Arlene---life begins at forty” Easy for him to say right! The tumor was eight and a half pounds, about the size of a football. Radiation was done on the operating table to what was believed to be the tumor bed, appendix was removed. Early in 2003 I had a hernia repair at that surgical sight. Next tumor was found via ct-scan in June of 2005, surgery to follow in July. Tumor did not come back on the tumor bed, so radiation-on-table again. April of 2006 brought my third surgery at which point they decided radiation was not effective as tumor came back at the site of radiation. This time they took gallbladder and right adrenal gland as they had been scrapped for cells at each surgery and were in a weakened state. Another hernia repair at that incision site in August- same year. July of 2008 brought my fourth occurrence. This time they took my right kidney as well, scrapped too many times and in a weakened state, overworking the left kidney. March of 2010, my fifth at which time they had to leave the tumor on my vena cava, as the lines were not well enough defined to attempt removal without possibly doing more harm than good, with my most recent surgery being in May of this year(2011). They were able to get the tumor off the vena cava as well as one that had grown into my psoas muscle; the muscle is in the same area and is the muscle that makes it possible to lift your leg, climb stairs etc. On the way out- we repair yet another hernia. The first surgical incision was ‘ship to stern’ so to speak, with all following surgeries from centerline to the right side –under my rib cage.
So, to shorten up this story, this is probably the last time they will/can do surgery. We are after a quality of life thing now. We will ct-scan once/year and watch it. Worry about that when the time comes- if even then.
At the onset of this whole surgery, they told me that the life expectancy/mortality rate with this type of cancer is fifteen years. With nine plus years in- I cannot fathom that I only have about six years left of my life.
The **** of it all is that I feel great. I rebound after surgery well each time. Usually just a little weak and lacking energy for a couple of weeks, but other than that……….
We just have to stay positive and try to keep a good attitude, even though sometimes it isn’t that easy.
I am always willing to share my story with anyone. Email armaynchristensen@hotmail.com

Liposarcoma stage 4 on the back spinal bones
Hello to everyone on this page,

I have read ur stories and glad to hear that my sister is not alone with this unknown cancer. The last entry is from Armayn , July 2011. How have u all and ur loved ones been?

I posted my sister s story , liposarcoma stage 4, in august 2011 but have no idea where I can locate it and therefore cannot check if anyone has replied. Find it difficult to navigate the website. Do I look up the specific cancer type , sarcoma, and go to the topic " liposarcoma stage 4" ????? I did it but cannot find my posting. Gosh, so frustrating cause my sister is running out if time, she has given up, suffers from severe depression and so grip with sadness and cannot move both her legs......I would love her to talk to other liposarcoma patients/ survivors to give her some hope, a glimpse of faith and light at the end of the tunnel. If she has to die soon at least with peace. She is 32 and has a 6 months old baby.

Please help!

Nina

Ninappn

Ninappn said:

Liposarcoma stage 4 on the back spinal bones
Hello to everyone on this page,

I have read ur stories and glad to hear that my sister is not alone with this unknown cancer. The last entry is from Armayn , July 2011. How have u all and ur loved ones been?

I posted my sister s story , liposarcoma stage 4, in august 2011 but have no idea where I can locate it and therefore cannot check if anyone has replied. Find it difficult to navigate the website. Do I look up the specific cancer type , sarcoma, and go to the topic " liposarcoma stage 4" ????? I did it but cannot find my posting. Gosh, so frustrating cause my sister is running out if time, she has given up, suffers from severe depression and so grip with sadness and cannot move both her legs......I would love her to talk to other liposarcoma patients/ survivors to give her some hope, a glimpse of faith and light at the end of the tunnel. If she has to die soon at least with peace. She is 32 and has a 6 months old baby.

Please help!

Nina

Liposarcoma stage 4
Hi there,

My sister who is 32 years old was diagnosed with liposarcoma in 2008, cancer we never heard of before. She underwent surgery in Germany and had the tumor removed ( Lower back close to the spine with a clear margin) followed by chemotherapy. She has had her scan on a quarterly basis. Due to her pregnancy in 2010 she stop the scanning for 9 months. In march 2011, after giving birth, the cancer reoccurred at the same spot, lower back growing very fast and graded as very aggressive. Again, surgery asap. It was a major surgery in hong kong , over 24 hours, involving 5-6 surgeons and 4 others on stand by in the the surgerical room. Her kidney was removed, several vertebraes with replacement, skin on the back, nervstrings which resulted in a low grade disability in her right leg. We were so thrilled when she woke up the next day after the marathon surgery as the doctor told us she will be in a stage of sleepiness for several days. The recovery was such a painful process for my sister, in every aspects. She had to b on her tummy for 2 weeks with no change of position just to avoid any wound infection on her back. After 5-6 weeks they did a MRI scan, the tumor has spread to her liver and the spinal bones, stage 4. Soon after the tumor compressed on the nerves which run through her legs causing both legs to be immobile. She was devasted and simply literally crashed into a black hole, rock bottom. The doc told her that any surgery is of no use therefore he urged her to do the chemotherapy. He wanted her to do the chemo as soon as the wounds on her back r healed but she decided not to do it. She has been far too weak to do the chemo.

2 weeks ago she returned with her 6 months baby and husband to Germany. There has no improvement of any sort whatsoever. She is on painkiller with a low dose of morphine lying in bed all day. A day care nurse and a physiotherapist go to see her at home on a daily basis, but she does not participate in the exercises as the painkiller causes headache, nausea, drowsiness. She has shut off herself, full of pity, suffers from depression, lost her joy in life, is gripped by severe sadness and grief. Friends and family have tried to uplift her spirit, encouraged her and we tried to apply alternative med such as Chinese herbs, body healing, accupressure, yoga to calm her mind, gentle tai chi movements with the arms only, foot reflexology, meditation......by the end of the day she told us she does not believe in anything.

We are beyond despair and grief. She has given up herself but we have not. Please is there someone who has liposacoma on the back close to the spine and has gone through it to give us some hope and support. My sister has not spoken or met anyone who suffers from cancer, particular who has liposacoma. I would love her to speak to someone who has gone through such experience.

I look very much forward to hearing from u. There is always hope and miracle. God bless u.

Regards,

Nina

greenmountains

CaliforniaLesli said:

Liposarcoma
Good Afternoon,

I just came across this website with its various Discussion Boards and found this one on liposarcoma.

I am a GRAND success story and hope I give any and all a great feeling for hope and moving forward. I had an 8 pound retroperitoneal liposarcoma in my admominal cavity. It was of intermediate grade. Was not given much hope prior to surgery....surgery brought on major resection of many organs (removal of the tumor, spleen, 80% of my stomach, duodenum, left adrenal gland, and part of my pancreas.)

Surgery was long - 8 hours intensive and very difficult. My surgeons were aggressive and
cut very large margins around the cancer. Giving me the best chance for survival.

I underwent 3 courses of chemo ---- in the days when it was a 24/7 drip for a week in the chemo ward.

Here is the good news - and the hope I hold out for all -- my surgery was in 1990. This coming July 2010 I will be cancer free for 20 years.

The journey has been hard, long and very challenging -- due to loss of organs and a compromised immune system. But, with a lot of practice and creative thinking, I get by on a daily basis.

My health insurance is high and has caused great hardship. I take 10 prescriptions daily..........but, I live a wonderful, cancer-free and happy life......you make each experience a challenge and climb high until you get there.

If I can help with any questions....................please ask - I will be as honest as you ask your questions.

Good luck...........hang in there. The unknown is frightening....but, the not trying is worse.

Surgery
Thank you so much for your inspiring story. It is so helpful to hear them now and then. I am writing for my husband who (at 67) was diagnosed with a retroperitoneal liposarcoma in November. He had radiation prior to what was to be surgery, but then they decided against it when they found it had spread to his lungs and adreanal. My question is did you have then, or after any spread of the cancer? It seemed like they were afraid of the surgery because it was going to be quite extensive, but then yours sounds even more extensive.
I am so glad that you are enjoying life.
I wish you all the best.

Snappy712

Ninappn said:

Liposarcoma stage 4 on the back spinal bones
Hello to everyone on this page,

I have read ur stories and glad to hear that my sister is not alone with this unknown cancer. The last entry is from Armayn , July 2011. How have u all and ur loved ones been?

I posted my sister s story , liposarcoma stage 4, in august 2011 but have no idea where I can locate it and therefore cannot check if anyone has replied. Find it difficult to navigate the website. Do I look up the specific cancer type , sarcoma, and go to the topic " liposarcoma stage 4" ????? I did it but cannot find my posting. Gosh, so frustrating cause my sister is running out if time, she has given up, suffers from severe depression and so grip with sadness and cannot move both her legs......I would love her to talk to other liposarcoma patients/ survivors to give her some hope, a glimpse of faith and light at the end of the tunnel. If she has to die soon at least with peace. She is 32 and has a 6 months old baby.

Please help!

Nina

I just joined this site and saw your post
I was diagnosed with a liposarcoma retroperiteneum when I was 31. I am now 44 and am in full battle against this cancer which has continued to spread. How is you sister? Was she able to get out of the darkness? It's tough, I question it daily, I hope your sister is still here.

abdu.patel

daisydc said:

liposarcoma
Hi:
My sister has had retroperitoneal liposarcoma for the past ten years. She was 34 years old at the time of initial diagnosis. Hers started by her left kidney and grew into the abdominal area. The first tumor was over nine pounds by the time the surgeons removed it. She started surgeries here in Syracuse, and we have been to Boston, Buffalo, and Memorial Sloan Kettering for treatments. She has had 17 surgeries/tumors removed over the past ten years. She has had clean margins several times and the cancer initially was well differentiated. Now, the tumor has mutated and is de-differentiated, which is much more dangerous. She has had her speen, kidney, ribs, uterus and colon removed. We tried doxyrubicin, which is a killer of a chemo drug, and it killed the tumors for five weeks, and then killed her heart muscle. We are really at the end stage of this disease. Many people survive and live full lives with this cancer. It is really treatable if it is contained and you have clean margins. We have not been so lucky. We have little hope at this point for Patti. It has been a long hard battle and we are all so exhausted and worn out by cancer. I feel that all of her doctors did excellent jobs, but with the variable nature of this cancer, it is impossible to predict prognosis, survival and outcomes from person to person. My advice is get the best people to help you and keep looking for a cure. It is too late for us, but your case seems treatable. God bless you and your husband.

helo
I just want to know if what will be better treatment for my uncle as he is just 37 years old and married have 4 kids.. he complained that he had severe back pain and after the test we have found out that he have cancer.

The report says as follow.

Clinical Information:

Severe low back pain, CT ---} Huge retroperitoneal lymph node with cervical lymphadenopathy


Nature of Specimen:

Left Cervical lymph node


Gross Description:

Received in formalin labelled " Left Cervical lymph node " , it consists of a lymph node mesuring 1 cm. Trisected and submitted in to in on cassette.



Microscopic Examination:


Secition from lymph node show loss of normal architecture with replacement by a nodular infiltrate of atypical lymphoid cells with centro blasts that are more than 15/HPF. Diffuse areas form an appreciable percentage of the tumor area. There is positive staining of the follicular cells by the pan b- markers CD20, CD19 and CD79a and most of the tumor cells show bcl-2 over expression.


Diagnosis:

Let cervical lymph node biopsy: NHL B - cell type, consistent with follicular lymphoma (FL) grade 3 with diffuse areas.


Diagnostic Codes:

T-C4200 ( CERVICAL LYMPH NODE, NOS) P1-03100 (BIOSPY,NOS), M-95913 (NON-HODGKIN'S LYMPHOMA,NOS)

armayn

Snappy712 said:

I just joined this site and saw your post
I was diagnosed with a liposarcoma retroperiteneum when I was 31. I am now 44 and am in full battle against this cancer which has continued to spread. How is you sister? Was she able to get out of the darkness? It's tough, I question it daily, I hope your sister is still here.

Hi
Willing to share my story, how are you doing?

armayn

Snappy712 said:

I just joined this site and saw your post
I was diagnosed with a liposarcoma retroperiteneum when I was 31. I am now 44 and am in full battle against this cancer which has continued to spread. How is you sister? Was she able to get out of the darkness? It's tough, I question it daily, I hope your sister is still here.

Hi
Willing to share my story, how are you doing?

armayn

Snappy712 said:

I just joined this site and saw your post
I was diagnosed with a liposarcoma retroperiteneum when I was 31. I am now 44 and am in full battle against this cancer which has continued to spread. How is you sister? Was she able to get out of the darkness? It's tough, I question it daily, I hope your sister is still here.

Hi
Willing to share my story, how are you doing?

armayn

Snappy712 said:

I just joined this site and saw your post
I was diagnosed with a liposarcoma retroperiteneum when I was 31. I am now 44 and am in full battle against this cancer which has continued to spread. How is you sister? Was she able to get out of the darkness? It's tough, I question it daily, I hope your sister is still here.

Hi
Willing to share my story, how are you doing?

Angelfyr9

Snappy712 said:

I just joined this site and saw your post
I was diagnosed with a liposarcoma retroperiteneum when I was 31. I am now 44 and am in full battle against this cancer which has continued to spread. How is you sister? Was she able to get out of the darkness? It's tough, I question it daily, I hope your sister is still here.

My father was diagnosed in 1989. He had a 10 pound tumor removed from his abdomen at that time, it was encapsulated, and they "got it all".

1991, it came back and there was another surgery, radiation and chemo. During that surgery they nicked his vena cava and he lost 40 pints of blood. He was weaker during that recovery than others. He was in remission for... about 12 years before it came back.

My timeline is screwed up at the moment, but there were approximately six surgeries between 2003'ish and 2009'ish. The last was 2009/2010 and his surgeon said the tumor was too involved with his intestines, his vena cava and a large muscle that runs along back there. She "cleaned out" the tumors, which had begun becoming necrotic from the inside out. She reduced the tumor mass by about half, but said no further surgery could be done.

Late 2010 Dad "sprung a leak". His sidewall had become so weak, and there was so much pressure, that his body released it. I believe it was within 12-16 weeks after the last surgery. He started having trouble with edema in his lower half, and had great success with a contraption called the FlexiTouch. He lost some function in his right leg due to the tumor pressing on that nerve/muscle (I believe it was the sowa muscle?). That was toward the end.

The end was quick, relatively. He was 71, just missed his 72nd birthday in June. Two weeks before he passed, his body created it's own colostomy. The wound wizards (and they truly are!) set him up with a custom bag, and we brought him home. He was in hospice care, but went in and out a couple times at the end. The first time was rectal bleeding, the second time was the bag. He lasted six days after that. Either he went septic or bled out, I prefer to think the second. He was fortunate enough to stay at home, and his care giver and I worked as a team once he couldn't help anymore.

There were other incidents peppered in through the years... mysterious blood loss, pulmonary embolism (2011), serious blockage, constant digestive problems, etc.

I think the reason he kept bouncing back from the surgeries so well is that he was a ballroom dancer. He danced with Arthur Murray until he went as far as he could go without going professional and then just did it for fun. He retired early and re-discovered his passion for scuba diving until travel became too uncomfortable. He had a house in the mountains that his parents bought when he was a teen. He loved going out there to rest and relax, and did until last year. Keep dancing, keep active, and keep positive... it will help. His hospice doctor would come by the house just to chat... he said Dad had the most positive spirit and outlook he had witnessed. Love your people, keep your chin up, and cherish each moment.

Peace

fosterchild7

CaliforniaLesli said:

Liposarcoma
Good Afternoon,

I just came across this website with its various Discussion Boards and found this one on liposarcoma.

I am a GRAND success story and hope I give any and all a great feeling for hope and moving forward. I had an 8 pound retroperitoneal liposarcoma in my admominal cavity. It was of intermediate grade. Was not given much hope prior to surgery....surgery brought on major resection of many organs (removal of the tumor, spleen, 80% of my stomach, duodenum, left adrenal gland, and part of my pancreas.)

Surgery was long - 8 hours intensive and very difficult. My surgeons were aggressive and
cut very large margins around the cancer. Giving me the best chance for survival.

I underwent 3 courses of chemo ---- in the days when it was a 24/7 drip for a week in the chemo ward.

Here is the good news - and the hope I hold out for all -- my surgery was in 1990. This coming July 2010 I will be cancer free for 20 years.

The journey has been hard, long and very challenging -- due to loss of organs and a compromised immune system. But, with a lot of practice and creative thinking, I get by on a daily basis.

My health insurance is high and has caused great hardship. I take 10 prescriptions daily..........but, I live a wonderful, cancer-free and happy life......you make each experience a challenge and climb high until you get there.

If I can help with any questions....................please ask - I will be as honest as you ask your questions.

Good luck...........hang in there. The unknown is frightening....but, the not trying is worse.

Thank you for such an up
Thank you for such an up lifting story!

laker67

Deisy said:

Hi,

my husband had a retroperitoneal liposarcoma 6 month ago - it was completed resected and his left kidney was removed too, but the doctors told us that everything should be ok and he didn't need anything else - no radiotherapy or chemo.
Now, in his first control exams we discovered that he has a recurrence at the same place. One doctor told us there's nothing to be done and we should just try to use chemo to "see if it's possible" to control it and just accept that!! I can't accept that, no like this! There's no other problems in his other organs... Tomorrow we have an appointment to his surgeon to discuss the possibility of a new surgery. We just need hope...
you story made feel better and with more hope. Thanks!!

Liposarcoma

My husband is 63 and just had a 20 pound liposarcoma, his left kidney, a third of his colon, and an adrenal gland removed in October.  The CT indicates a smaller mass now forming in the anterior part of his abdomen.  They want to watch it and do another scan in 3 months.  It has already grown from 2.8 cm to 4.4 cm since December.  While I don't like the thought of chemo, I'm not crazy about wait and see either.  His original presumption was negative margins on a pleomorphic sarcoma.  The lab indicated positive margins on a well-differentiated.

 

Please update your treatment.

asinha

Need help with finding a doctor

Hi All,

 

My mother has just been diagnosed with what is likely retroperitoneal liposarcoma. She is based in Delhi, India and we are looking for best liposarcoma doctors in India. Does anyone know of good liposarcoma doctors in India ?

We are primarily looking at Tata Memorial Hospital for Cancer Reaserach in Mumbai/Bombay, India. But I will be glad to learn about any doctors in India or USA.

Please let me know name or send me amessage. Thanks for your help !

 

Sinha

nowhisnurse

My boyfriend was diagnoised with a retropertineal liposarcoma on 11/2013 he had a 12+inch tumor removed from his pelvic area on newyears eve, he is 30years old. They had to remove his bladder, rectom, and prostate in order to remove the tumor and were able to get negative margins. They have graded hin with a T2b sarcoma. This makes his almost a stage 3. It has not spread and his limfnodes were clean of cancer. He now has a colostomy bag, urine bag, and of corse a whole new life having his prostate completly removed. Our daughter is turning 2 in june, and for this reason he is staying strong in hopes to warxh his daughter grow. Sarcoma is very scary, and since he is still recovering from this major surgery , he will be starting radiation therapy next week to do 6 weeks aimed at the sergical bed to try and prevent a reaccurance. Unfortunatly his tumor had ruptured in his stomach a few days before sergery so he has a very high chance of this demond returning. I am his nurse, his backbone, his rock... threw this journey he has chosen to do little reading,  I believe because he is scared. I'm obsessed with finding hope, survivor stories, new advances in medacine. ANYTHING to grasp hold to. We are young, only been together 4 years, have a brand new daughter I need my man to survive many years of this horrible cancer. Reading all these stories of  multi sergerys makes me feel hopeful and scared! He's very strong and can't imagne cancer taking his life, I would love to speak to anyone with any advice, insight, anything!! We are in the chicago area, I believe he has one of the best sergons in this area witch gives me great hope. The dr don't give you prognosis past 5 years, hearing stories of people older then him, whove endured years of sergery and 10-20 years of survival gives me hope. We will continue fighting this battle because life is precious and we will not let the cancer win.

skmsonu

asinha said:

Need help with finding a doctor

Hi All,

 

My mother has just been diagnosed with what is likely retroperitoneal liposarcoma. She is based in Delhi, India and we are looking for best liposarcoma doctors in India. Does anyone know of good liposarcoma doctors in India ?

We are primarily looking at Tata Memorial Hospital for Cancer Reaserach in Mumbai/Bombay, India. But I will be glad to learn about any doctors in India or USA.

Please let me know name or send me amessage. Thanks for your help !

 

Sinha

hello Mr Sinha

Hello Mr Sinha,

 

My mother has been detected with same problem which is retroperitoneal liposarcoma. I am going to take more tests done from Dr Anita Borges (well know histopathologist in India). Can you please let me know which Doctors you have consulted so far ? Can you please guide ? I am in Ahmedabad, Gujarat. 

 

Thank you,

Rakesh

HappyNess

Liposarcoma

yes, my husband has the same type, reoccurrance,

right now, on chemo, no surgery can be done, just wait and see,

not sure chemo will work

HappyNess

Ninappn said:

Liposarcoma stage 4
Hi there,

My sister who is 32 years old was diagnosed with liposarcoma in 2008, cancer we never heard of before. She underwent surgery in Germany and had the tumor removed ( Lower back close to the spine with a clear margin) followed by chemotherapy. She has had her scan on a quarterly basis. Due to her pregnancy in 2010 she stop the scanning for 9 months. In march 2011, after giving birth, the cancer reoccurred at the same spot, lower back growing very fast and graded as very aggressive. Again, surgery asap. It was a major surgery in hong kong , over 24 hours, involving 5-6 surgeons and 4 others on stand by in the the surgerical room. Her kidney was removed, several vertebraes with replacement, skin on the back, nervstrings which resulted in a low grade disability in her right leg. We were so thrilled when she woke up the next day after the marathon surgery as the doctor told us she will be in a stage of sleepiness for several days. The recovery was such a painful process for my sister, in every aspects. She had to b on her tummy for 2 weeks with no change of position just to avoid any wound infection on her back. After 5-6 weeks they did a MRI scan, the tumor has spread to her liver and the spinal bones, stage 4. Soon after the tumor compressed on the nerves which run through her legs causing both legs to be immobile. She was devasted and simply literally crashed into a black hole, rock bottom. The doc told her that any surgery is of no use therefore he urged her to do the chemotherapy. He wanted her to do the chemo as soon as the wounds on her back r healed but she decided not to do it. She has been far too weak to do the chemo.

2 weeks ago she returned with her 6 months baby and husband to Germany. There has no improvement of any sort whatsoever. She is on painkiller with a low dose of morphine lying in bed all day. A day care nurse and a physiotherapist go to see her at home on a daily basis, but she does not participate in the exercises as the painkiller causes headache, nausea, drowsiness. She has shut off herself, full of pity, suffers from depression, lost her joy in life, is gripped by severe sadness and grief. Friends and family have tried to uplift her spirit, encouraged her and we tried to apply alternative med such as Chinese herbs, body healing, accupressure, yoga to calm her mind, gentle tai chi movements with the arms only, foot reflexology, meditation......by the end of the day she told us she does not believe in anything.

We are beyond despair and grief. She has given up herself but we have not. Please is there someone who has liposacoma on the back close to the spine and has gone through it to give us some hope and support. My sister has not spoken or met anyone who suffers from cancer, particular who has liposacoma. I would love her to speak to someone who has gone through such experience.

I look very much forward to hearing from u. There is always hope and miracle. God bless u.

Regards,

Nina

Liposacorma

same spot like your sister,

no more surgery can be done, only on chemo now.

do not know if it works.

 

armayn

HappyNess said:

Liposarcoma

yes, my husband has the same type, reoccurrance,

right now, on chemo, no surgery can be done, just wait and see,

not sure chemo will work

Chemo

Where do you get treated. Where is his tumor located and how big is it? How maney surgeries has he had? How old, and I truky hope he is doing well. I am a 54 year old female. Found my first tumor when  was 40. I have had 11 surgeries with my most recent being Jan 27th of this year. 

armayn

howell58 said:

treatment
We have been told surgery is the only recourse to manage this type of cancer. Chemotherapy has no effect on it, and everything I have read on the internet agrees with that. Radiation too, has shown no statistics to prove a change in survival rate. I feel is it almost luck of the draw, and each person has a different outcome. It is unlike other cancers, where you can receive chemo and put it into remission. I love to hear the wonderful stories of people who have lived 10+ years after surgery but the doctors say recurrence is over 50% and can happen on a continuous basis.
Pray every day, every night, and every chance in between.

10 + year survival

sloan ketterling is about the best palce to be treated. You guys are lucky to have that option.. most people dont. How did the surgery go for the spot on his lung back in 2010(?)

I too have been told that chemo and radiation are not an option... has not been proven to be effective. I have had 11 surgeries in 14 years with the most recent being jan 27th this yeaar. Always in my abdomen, right side. I am a 54 years old female, found my first tumor when I was 40. Tell me more!

 

armayn

Msl27 said:

Hi
Im the loving son of a liposarcoma survivor and I would love to here a little more about your story fill you in about my fundraiser my sisters and I started and connect you with my mom.

Bests!
Matt

Hi MAtt

How is your mother doing? I am a 54 year old female and found my first tumor when I was 40. I have had 11 surgeries in 14 years and am doing great. Would love to be in touch with another female survivor, dont find many on this site. Its been a couple years since you posted this... I hope all is well.