I got my oncotype results back today!!!

Calleen
Calleen Member Posts: 411
edited March 2014 in Breast Cancer #1
My tumor scored a perfect "10"!!! I have been such an emotional baby all morning!!! I have an appointment next week with a new oncologist so hopefully he is someone I can be comfortable with!!!... I was wondering if anyone else had a tumor my size with no lymph node involvement??? mine was 2.3cm.. staged at 2A
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Comments

  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    Calleen,
    Mine was either 2.5 or 2.7 staged at2A with no lymph node involvement. Invasive ductal.
    Let us know how the new onc is!
  • Calleen
    Calleen Member Posts: 411

    Calleen,
    Mine was either 2.5 or 2.7 staged at2A with no lymph node involvement. Invasive ductal.
    Let us know how the new onc is!

    Why
    Did you have chemo???
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    Calleen said:

    Why
    Did you have chemo???

    Because of
    the size of my tumor and the fact that I had invasive ductal(invasive meaning the cancer cells had actually escaped from my tumor.),I did have chemo-4 A/C treatments. But Calleen these are questions that you could ask your onc as well(have you had an appointment with an oncologist yet?).
  • Calleen
    Calleen Member Posts: 411

    Because of
    the size of my tumor and the fact that I had invasive ductal(invasive meaning the cancer cells had actually escaped from my tumor.),I did have chemo-4 A/C treatments. But Calleen these are questions that you could ask your onc as well(have you had an appointment with an oncologist yet?).

    no
    I'm going next week... my experience has been kinds different.. i too had IDC and they wrote on my oncotest that just hormone therapy is recomended. right now with just hormone therapy my recurrance is 7%. I will ask him all kinds of questions.. also according to my path reports nothign spread outside the tumor it stayed to itself??
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    Calleen said:

    no
    I'm going next week... my experience has been kinds different.. i too had IDC and they wrote on my oncotest that just hormone therapy is recomended. right now with just hormone therapy my recurrance is 7%. I will ask him all kinds of questions.. also according to my path reports nothign spread outside the tumor it stayed to itself??

    I thought invasive ductal
    I thought invasive ductal carcinoma always meant that it escaped. That is why it is invasive and not ductal carcinoma. And, I thought that any tumor over 2cm usually had chemo. Boy, am I wrong. lol Good luck to you!

    HUGS
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    Calleen said:

    no
    I'm going next week... my experience has been kinds different.. i too had IDC and they wrote on my oncotest that just hormone therapy is recomended. right now with just hormone therapy my recurrance is 7%. I will ask him all kinds of questions.. also according to my path reports nothign spread outside the tumor it stayed to itself??

    Sorry,I tried
    to edit my reply,but I had a problem. I saw after that you have yet to see the onc.
    Hey,the last thing that I want to do is scare you. Everyone is different! I know of my experience and of mine only-and yours and what your oncologist is going to plan could be totally different!
    Yes,make a list of questions and bring someone else with you if you want so they can catch what you can't!
    And pm me if ever you want to!
  • lanie940
    lanie940 Member Posts: 490
    Calleen said:

    no
    I'm going next week... my experience has been kinds different.. i too had IDC and they wrote on my oncotest that just hormone therapy is recomended. right now with just hormone therapy my recurrance is 7%. I will ask him all kinds of questions.. also according to my path reports nothign spread outside the tumor it stayed to itself??

    GREAT! Are you going to have
    GREAT! Are you going to have radiation? Did you lave a mastecomy or lumpectomy, I forget. I was told lumpectomy you have to have radiation regardless.
  • lanie940
    lanie940 Member Posts: 490

    Because of
    the size of my tumor and the fact that I had invasive ductal(invasive meaning the cancer cells had actually escaped from my tumor.),I did have chemo-4 A/C treatments. But Calleen these are questions that you could ask your onc as well(have you had an appointment with an oncologist yet?).

    My Medical oncologist was
    My Medical oncologist was asking if I wanted to do that also, but it would only lower my recurrance rate by 2 or 3% MAYBE. He said that low amount of chemo, was a clinical trial.
    My cancer was IDC also with some insitu. But it was only 1.1 cms. So, I'm doing RADs and hormones. Arimidex.
  • roseann4
    roseann4 Member Posts: 992 Member
    Calleen said:

    Why
    Did you have chemo???

    That's a great score!
    Hi Calleen,

    My score was 18 and my tumor was 1.8 cm node negative and estrogen positive.
    I opted out of chemo as it would only improve my chances of reoccurrance by 3%.
    Don't you hate all these important decisions!?

    Roseann
  • mgabrielle48
    mgabrielle48 Member Posts: 1
    Oncotype results
    I got mine back yesterday, I scored a 7. My tumor was 1.3 cm with no lymph node involvement. I was stage 1. I am going to be taking 6 weeks of radiation and 5 years of hormone therapy, arimidex.
  • mgm42
    mgm42 Member Posts: 491 Member
    Oncotype Test Purpose
    I was told by my oncologist that the purpose of the Oncotype test was to determine if a person would benefit from chemo therapy or not. The test provides oncologists with a tool to prescribe treatment tailored to a person's risk of recurrence. Those with high risk scores are prescribed chemo. Those with low risk scores are given hormone therapy only. I was in the clinical trial for Oncotype testing. It's called the TailoRx Trial. Unfortunately, I scored a 36, which put me in the 24% for recurrence. I was told that chemo combined with hormone therapy would reduce my risk to 14%. A 10% decrease in risk is significant.

    This test is just one more advance from which we may all benefit. I, for one, am extremely grateful for all advances in treating breast cancer.

    I'm so glad for all of you had such low scores. Congratulations!
    Hugs, Marilynn
  • Calleen
    Calleen Member Posts: 411
    lanie940 said:

    GREAT! Are you going to have
    GREAT! Are you going to have radiation? Did you lave a mastecomy or lumpectomy, I forget. I was told lumpectomy you have to have radiation regardless.

    No Lanie
    I had a double masectomy with immediate reconstruction.. so I'm not a candidate for radiation.. I was with my Mom during her battle and saw all the effects of her radiation chemo and her death while having stem cell treatments. I just knew from the time I was diagnosed I was going to suffer the same fate. But for some reason I have been spared. Maybe It's the full circle thing and God decided to smile on me becasue of all the guilt I've carried on my shoulders since she died... What ever the reason I know one thing. I am Grateful to God for every blessing he has shown me along this Journey.. And the Wonderful Sisters here on this site who have shown such bravery...
  • fauxma
    fauxma Member Posts: 3,577 Member
    Caleen,
    A perfect 10 is

    Caleen,
    A perfect 10 is indeed perfect.
    Stef
  • maryannrogers
    maryannrogers Member Posts: 115
    fauxma said:

    Caleen,
    A perfect 10 is

    Caleen,
    A perfect 10 is indeed perfect.
    Stef

    Caleen
    I to had IDC. Tumor was 4.5, no lymph node invasion and surgeon got clean margins. My oncologist did the Oncotype DX and my score came out 8. I have been on Arimidex for a few months and only side effects from that are hot flashes which I can live with. My oncologist was dancing with me in the office. She also has me taking 1200 mg of calcium and 800 mg of Vitamin D. I'm so happy for you. I hope you like your new doctor also. Keep us posted and again, "CONGRATULATIONS"!!!!!
  • Danna
    Danna Member Posts: 3
    Calleen said:

    No Lanie
    I had a double masectomy with immediate reconstruction.. so I'm not a candidate for radiation.. I was with my Mom during her battle and saw all the effects of her radiation chemo and her death while having stem cell treatments. I just knew from the time I was diagnosed I was going to suffer the same fate. But for some reason I have been spared. Maybe It's the full circle thing and God decided to smile on me becasue of all the guilt I've carried on my shoulders since she died... What ever the reason I know one thing. I am Grateful to God for every blessing he has shown me along this Journey.. And the Wonderful Sisters here on this site who have shown such bravery...

    Need to hear from someone like you
    I am having a double mastectomy with immediate reconstruction on Oct. 5 (if my cold does not get worse). I am a young 63, got laid off from my job one week and diagnosed with cancer the next; but I'm over all the shocks and have had time to do appointments, phone calls and opinions. I have lobular in left breast two places and ductal in the other breast. I know the surgery is going to be long and recovery will be long, Can you tell me from your experience, what type of problems you ran into as far strength in your arms and shoulders to do the everyday things like getting stuff down from the cabinets, feeding the pets, and when you could drive. I guess I'm more worried about my independence than anything at the moment. I live alone.

    Appreciate your comments.
  • VickiSam
    VickiSam Member Posts: 9,079 Member

    Caleen
    I to had IDC. Tumor was 4.5, no lymph node invasion and surgeon got clean margins. My oncologist did the Oncotype DX and my score came out 8. I have been on Arimidex for a few months and only side effects from that are hot flashes which I can live with. My oncologist was dancing with me in the office. She also has me taking 1200 mg of calcium and 800 mg of Vitamin D. I'm so happy for you. I hope you like your new doctor also. Keep us posted and again, "CONGRATULATIONS"!!!!!

    Caleen .. CONGRATULATIONS !!!!! on the very good news
    Maryann Rogers .. Thank you for the vitamin tips ..


    VickiSam
  • jennytwist
    jennytwist Member Posts: 896
    mgm42 said:

    Oncotype Test Purpose
    I was told by my oncologist that the purpose of the Oncotype test was to determine if a person would benefit from chemo therapy or not. The test provides oncologists with a tool to prescribe treatment tailored to a person's risk of recurrence. Those with high risk scores are prescribed chemo. Those with low risk scores are given hormone therapy only. I was in the clinical trial for Oncotype testing. It's called the TailoRx Trial. Unfortunately, I scored a 36, which put me in the 24% for recurrence. I was told that chemo combined with hormone therapy would reduce my risk to 14%. A 10% decrease in risk is significant.

    This test is just one more advance from which we may all benefit. I, for one, am extremely grateful for all advances in treating breast cancer.

    I'm so glad for all of you had such low scores. Congratulations!
    Hugs, Marilynn

    Test score
    Hi Marilyn,
    My test score was 32. I had dense dose chemo and am now on Tamoxifen. Is 30 and above considered a high score? I've tried looking for more info and haven't found much.
    Are you on Tamoifen also? Hope all is well!
    -Jenny
  • mmontero38
    mmontero38 Member Posts: 1,510
    That's great news Calleen.
    That's great news Calleen. I also was diagnosed with IDC, my tumor was 2.3cm stage 1 with no lymph node involvement. But because of the aggressiveness, nothing in January and then feeling the tumor in May, I was advised that chemo was a must. Went through 8 rounds of chemo and didn't need radiation. I'm now on Arimidex after having taken Tamoxifen for 15 months. Hopefully, you won't beed chemo. Hugs, Lili
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Hi Calleen
    So glad to hear your score came back low. Mine was less than a 1 and I did radiation plus the Tamoxifen. I had IDC 1.9mm, node negative and LCIS in the same breast. I was a stage 1 and a grade 3. Chemo was just not going to make that much difference in my treatment. I think you will feel more at ease after your appt next week with your new Oncologist. Please keep us updated. Pammy
  • doogie
    doogie Member Posts: 1
    onco results
    my tumor was 2.5 and I was staged at 2A also. i had oncotype dx testing to see if chemo was really necessary as I was ERpositive and would be taking femara. I did have 3 cycles of chemo based on the results.