Update on Chest Spasms

RE
RE Member Posts: 4,591 Member
edited March 2014 in Breast Cancer #1
Well after a lot of tests have been run it turns out that the massive spasms running from my arm to my chest and outward are all tied into the lymphedema. I had an MRI of my neck, spine and shoulder area and it showed damage to some of the disc's and tendons in my neck. According to my neurologist this is all due to the pressure caused by the swelling in my arm from the lympedema and from the 16 weeks of rads. Soooo, it is good to get an answer as to why they are more massive then previously. Now all that said I am glad to say that due to meds the spasms have calmed down. My best to each of you!

RE
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Comments

  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    Spasms
    RE, I also am very glad that the cause of your painful spasms is clear now. I hope this means that a treatment is in the works, or at least the right kind of pain med has been determined.

    Thank you for updating all of us, who care for you.

    p.s. I love homegrown tomatoes. My dad and stepmom brought me some from TN. They did not last long! I hope you can now enjoy the fruits of summer.
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Glad to hear the news
    Glad they figured it out and you have meds that help now! Pammy
  • mlmjt1
    mlmjt1 Member Posts: 537
    HI Re
    Are you doing any lymphedema massage or do you wear a compression sleeve to help reduce it? I had 21 lymphnodes removed and just finished out about 6 occupational therapy sessions and they taught me how to do self massage. My therapist told me that I will need to do it ongoing. Ask you md for a referral. Maybe it will help

    Hugs
    Linda T
  • RE
    RE Member Posts: 4,591 Member
    mlmjt1 said:

    HI Re
    Are you doing any lymphedema massage or do you wear a compression sleeve to help reduce it? I had 21 lymphnodes removed and just finished out about 6 occupational therapy sessions and they taught me how to do self massage. My therapist told me that I will need to do it ongoing. Ask you md for a referral. Maybe it will help

    Hugs
    Linda T

    LINDA REGARDING PT
    Hi Linda,

    I wear a compression sleeve and hand gaunlet regularly and have been doing so for more than 6 years. I do go to physical therapy two to three times a year for 6 to 8 week sessions which do help. Yes I have been doing the mesaage along with cold pack treatments which also are quite helpful. In addition to these the about treatments there are also meds one can take for lymphedema which I also am on. In addition to message you should not be lifting anything heavy with that arm, nor should you be doing any household chores, gardening etc without wearing protective rubber gloves. Truth be told the slightest nick of your skin can cause a serious infection (staph infection). Keep a close watch on your arm always looking for any rash or infection and the sensation of heaviness. If you are interested Linda I have several informational pages on my personal page here at CSN in the blog section that you may fine helpful, you can also go to www.lymphnet.org I hope your lymphedema does not give you much trouble. My best to you!

    RE
  • Calleen
    Calleen Member Posts: 411
    RE said:

    LINDA REGARDING PT
    Hi Linda,

    I wear a compression sleeve and hand gaunlet regularly and have been doing so for more than 6 years. I do go to physical therapy two to three times a year for 6 to 8 week sessions which do help. Yes I have been doing the mesaage along with cold pack treatments which also are quite helpful. In addition to these the about treatments there are also meds one can take for lymphedema which I also am on. In addition to message you should not be lifting anything heavy with that arm, nor should you be doing any household chores, gardening etc without wearing protective rubber gloves. Truth be told the slightest nick of your skin can cause a serious infection (staph infection). Keep a close watch on your arm always looking for any rash or infection and the sensation of heaviness. If you are interested Linda I have several informational pages on my personal page here at CSN in the blog section that you may fine helpful, you can also go to www.lymphnet.org I hope your lymphedema does not give you much trouble. My best to you!

    RE

    I'm curious??
    How does the lymphedema start?? right away or does something happen like lifting something too heavy??? I want to prevent that from happening if at all possible... I just read somewhere that mild excersise can be good for preventing???

    I am glad you found the source!! I hope the medication works wonders and you can feel good again using your arm...


    HUGZ... CAlleen
  • jnl
    jnl Member Posts: 3,869 Member
    Glad you found out why RE.
    Glad you found out why RE. And, glad that they have calmed down for you now.

    Hugs,Leeza
  • lynn1950
    lynn1950 Member Posts: 2,570
    Answers
    Dear RE, I am so glad that you have an answer for the spasms and that they are treatable. Best wishes for no more pain! xoxoxo Lynn
  • djteach
    djteach Member Posts: 273
    Hi RE,
    I am so sorry that

    Hi RE,

    I am so sorry that you are having to go through this. I too have lymphedema but I haven't had the muscle spasms. Muscle spasms are so painful. I'm glad that the pain is easing and I pray that they will go away completely. You are in my thoughts and prayers.

    Love and gentle hugs,
    Donna
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    djteach said:

    Hi RE,
    I am so sorry that

    Hi RE,

    I am so sorry that you are having to go through this. I too have lymphedema but I haven't had the muscle spasms. Muscle spasms are so painful. I'm glad that the pain is easing and I pray that they will go away completely. You are in my thoughts and prayers.

    Love and gentle hugs,
    Donna

    Thanks for the update and
    Thanks for the update and glad you have some medicine to help with the spasms.

    Hugs, Diane ♥
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    lynn1950 said:

    Answers
    Dear RE, I am so glad that you have an answer for the spasms and that they are treatable. Best wishes for no more pain! xoxoxo Lynn

    Hi RE
    RE, glad you got an answer about your spasms and glad they can treat them. Hoping the pain goes away completely for you!

    ♥ Hugs, Kristin ♥
  • chenheart
    chenheart Member Posts: 5,159
    My goodness, RE, it's always
    My goodness, RE, it's always something, isn't it? At least you found out what and why, and thankfully, you are feeling relief from the spasms. And thats a GOOD thing, in deed!

    Hugs,
    Claudia
  • Jeanne D
    Jeanne D Member Posts: 1,867
    chenheart said:

    My goodness, RE, it's always
    My goodness, RE, it's always something, isn't it? At least you found out what and why, and thankfully, you are feeling relief from the spasms. And thats a GOOD thing, in deed!

    Hugs,
    Claudia

    RE, I didn't know you were having spasms. Thank goodness you know for sure what is going on now and have some meds to take. Very happy to hear that they are helping you! Take care!

    Love, Jeanne ♥
  • zahalene
    zahalene Member Posts: 670
    Calleen said:

    I'm curious??
    How does the lymphedema start?? right away or does something happen like lifting something too heavy??? I want to prevent that from happening if at all possible... I just read somewhere that mild excersise can be good for preventing???

    I am glad you found the source!! I hope the medication works wonders and you can feel good again using your arm...


    HUGZ... CAlleen

    As I understand it...
    lymph edema is caused by disruption of the circulation system when lymph nodes are removed during surgery. Mine was evident right after surgery. The swelling just never completely went down. Now, keep in mind that I had my surgeries over 20 years ago (two radical mastectomies...less than two years apart).
    I had several nodes removed on both sides.
    At that time, they pretty much said, 'learn to live with it'. Now, of course there are things that can be done and precautions that can be taken to minimize, if not prevent, the edema.
    Fast forward to present day...most of my edema is unnoticeable now except when I over-use my hands or arms. And sometimes the simplest things will cause a flare up. Hammering a nail to hang a picture produces swelling and pain for a few hours. Vacuuming (I feel the 'vibration' in hands and arms for an hour after the chore is done) brings it on also.
    Well, life being what it is, I have stopped worrying about trying to avoid everything that causes problems, but I do try to keep in mind what my body has been through and give it a break whenever I can.
    God bless.
  • Noel
    Noel Member Posts: 3,095 Member
    Jeanne D said:

    RE, I didn't know you were having spasms. Thank goodness you know for sure what is going on now and have some meds to take. Very happy to hear that they are helping you! Take care!

    Love, Jeanne ♥

    Hi Re ☻
    I am very sorry that you were having these spasms, but at least now, you know they are from the lymphedema that you have. And, that is good that they have meds that will help you with them. Hope you feel better with each day!

    ♠♥ Noel ♠♥
  • rjjj
    rjjj Member Posts: 1,822 Member
    i have bouts of lyphedema, was real bad during chemo and now has let up some. they say it is a mild case. But I know how it is when it acts up. I have not been wearing any sleeves or anything since rads, I have been taught self massage etc. What I find it helps me the most is doing restorative excersises with my old people at the nursing home. when I do the one where you lift your arm over your shoulder and to the side (away from mast. side) I can actually hear and feel the scar tissue breaking up. I know it can act up at any minute though, and am worried abut flying... I am going to fly to Colorado to do Relay for life with my Daughter Jamie the end of October, I hope it will be OK.

    I have had back spasms( before the BC) and I know how it hurts. I so hope you are feeling better my friend. And I appreciate all the research and good advice you have always given us on Lymphedema.The only thing that ever helped my back spasms were muscle relaxers.

    Thanks Re and my best to you. I hope the spasms go away. and they find something that will make them be gone for good.

    Love and hugs, Jackie
  • mimivac
    mimivac Member Posts: 2,143
    So glad that the MRIs
    So glad that the MRIs yielded something. I'm also glad that the meds are helping. I wish you a full recovery soon and an end to pain immediately.
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    mimivac said:

    So glad that the MRIs
    So glad that the MRIs yielded something. I'm also glad that the meds are helping. I wish you a full recovery soon and an end to pain immediately.

    Glad that your meds are
    Glad that your meds are helping to relieve your pain RE.

    Hugs!
  • RE
    RE Member Posts: 4,591 Member
    :-)
    Thank you all for your always thoughtful responses. Today is the anniversary of my Mother's passing. I have written a small tribute to her in the expressions area, she was an awesome and remarkable woman and I was blessed to have her as my Mom.

    Hugs to all,

    RE
  • rjjj
    rjjj Member Posts: 1,822 Member
    RE said:

    :-)
    Thank you all for your always thoughtful responses. Today is the anniversary of my Mother's passing. I have written a small tribute to her in the expressions area, she was an awesome and remarkable woman and I was blessed to have her as my Mom.

    Hugs to all,

    RE

    Dear Re
    That is a very moving tribute to your beloved Mom. I had tears in my eyes as I read it. I also lost my own sweet Mom to CA. I was blessed as you were to have such a wonderful one.

    BTW I didn't know that was a tomato!!Ha Ha. I thought it was a ceramic heart, I love it.
    Hugs, Jackie
  • RE
    RE Member Posts: 4,591 Member
    rjjj said:

    Dear Re
    That is a very moving tribute to your beloved Mom. I had tears in my eyes as I read it. I also lost my own sweet Mom to CA. I was blessed as you were to have such a wonderful one.

    BTW I didn't know that was a tomato!!Ha Ha. I thought it was a ceramic heart, I love it.
    Hugs, Jackie

    Thank you!
    Thank you Jackie, my Mom was the best as I am sure your's was too. In regards to the heart shaped tomato I found it in my garden a few days ago, it is still in my fridge I cannot bring myself to eat it LOL!!!

    Hugs,

    RE