PRIMARY PERITONEAL CANCER
Comments
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Your Mom with PPCNikkio02 said:Primary peritoneal cancer
I saw your post regarding the primary peritoneal cancer. My mom was just diagnosed. Feel so lost.. How are you doing? Looking for some insite and guidance from someone who has been there..
How are things going with your Mom? I hope you are working with her to get answers, it will mean so much to her.
I am still searching for treatment and help.
Christine
bleusunn
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Hi and and how are you?nattyeicher said:PPC Recommended Hospitals for 2nd Opinion?
Hi Everyone,
My mother just got diagnosed today with PPC after being wrongly diagnosed with terminal kidney cancer last week by the Cleveland Clinic. This has been such a roller coaster ride of emotions. We have an appointment with a specialist on Monday at the Cleveland Clinic who will tell us what stage, treatment options, etc.
I am very interested in a 2nd opinion since the Cleveland Clinic (while a fantastic health system) is not a top 10 cancer center. I see a few people on this forum who have went to MD Anderson? I've heard good things? Does anyone know of a great hospital that may specialize in this cancer or have some well known Doctors with experience with PPC? I haven't found much on the internet today on this. My mother lives in Ohio but we are willing to travel anywhere to get the right treatment.
I pray for everyone looking for answers on this forum like my family, and wish everyone hope and healing.
Thanks in advance for any opinions or help!
Were you able to get a second opinion for your Mother? Where did you go?
I have PPC as well (diagnosed July 2014), I have considered the Cleveland Clinic because I lived there previous to my home now in Kentucky. There is nothing here for me with PPC, however, I have heard MD Anderson is a good choice to consider.
Good luck and please let me know how things are.
Thank you, Christine
bleusunn
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Hi Tinker 06:Tinker06 said:Hi Christina,
i am alsoHi Christina,
i am also being treated in Chicago at lutheran general. As scared as I am, I have a wonderful gyno-oncologist. If you would like her info, please let me know. She is so positive and sincere. I would not be where I am today without her
Hi Tinker 06:
i hope you are doing fine-My mother was diagnosed with Primary Peritoneal cancer almst a year ago-She daughter did chemo, surgery, then a chemo--she is not getting better-i need an opinion on best treatment plan
mike
309-397-3695
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"Fatema.tk"~Have chosen 2 answer U N A more relevant forum
Dear “Fatema.tk”
Your concerns can better be answered by writing under a more relevant and more recent topic line. Therefore, I’ve taken the liberty of answering you on the Peritoneal Cancer forum. It is directly underneath the “Ovarian Cancer” forum and has its own postings. Hope you don’t mind, but the place where you chose to pose your questions is in a post that began in 2009 and is not currently really filled with “active” participants. You will be in a more prominent place for replies if you had a place “all your own”. So hope you don’t mind, but I’ve put my answer here on the Peritoneal Cancer forum. If you have additional questions, it would be best to place them in the Peritoneal Cancer category.
https://csn.cancer.org/node/311152 - See my answer here on the Peritoneal Cancer forum
Loretta
Peritoneal Carcinomatosis/Ovarian Cancer Stage IV
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ovarian cancer to auntBambibino said:PPC
Hi everyone! I am also new here. My cancer was discovered during gall bladder surgery. They call it ovarian cancer, but all my "stuff" was removed over 25 years ago. It was explained to me like this: When you are forming in the womb, the peritoneal and ovarian tissues are the same. So the cancers are treated the same and regularly referred to as ovarian cancer. Seems insurance companies will more readily accept ovarian cancer over peritoneal cancer. Just terms, same cancer. I am stage 3C and currently have a small, slow growing tumor in the peritoneal area. I have been through debulking surgery and have been fighting this for 4 years (I am 58 now). I am also Type 1 diabetic. So the chemo's and steroids usually will push my sugar numbers into the upper 500's. But they get back to normalish within a couple of days. I am not on any special diet except for the diabetes.
You are doing the right thing in keeping your mom's attitude positive and happy. That, I know is a big job, but you are doing it! Hurrah! I have learned to wean all of the negative people out of my life and just surround myself with positive and caring people. It's my life and I choose to do this, for my own mental and physical health. Keep on helping your mom to be happy and positive. This will extend her life more than you know!
Part of HIS plan,
Terrimy aunt aged 59 also is suffering with ovarian cancer stage 3 C. Her surgry is scheduled probably on 28.9.2017. She has no ascites. I am afraid How would be the survival rate for ovarian cancer stage 3 C. I am afraid of statistics shown online.
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