Questions about Soy

aurora2009
aurora2009 Member Posts: 544 Member
edited March 2014 in Breast Cancer #1
I'm ER/PR+ and from what I understand Soy is a no no. I've been reading everything that I usually eat from nuitra grain bars, to mini wheats, and junk food snacks and candy bars, All of these things have some kind of soy product, either soy flour's or oils. Does this mean I can't eat any of them?

OMG that's alot of stuff, my Husbro brought it to my attention, that every fast food resturant I stop at for lunch has soy in there burgers. I guess I'll have to bring my own lunch from now on, or stick with mexican food.

How serious is this no soy thing? I'd appreciate all the info I can get, or any web sites you all think are reliable on this subject, I plan on requesting a referral to a nutritionist but not for a couple weeks. Guess I should ask now.

Thanks for any advise you have.

Aurora
«1

Comments

  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    Soy
    My onc told me no soy. As in no tofu, soy milk, etc. If you plan on consulting a nutritionist, please insure that he/she has specific knowledge regarding your BC diagnosis. Also, there are cancer nutritionists - specialists - out there.
  • susie09
    susie09 Member Posts: 2,930

    Soy
    My onc told me no soy. As in no tofu, soy milk, etc. If you plan on consulting a nutritionist, please insure that he/she has specific knowledge regarding your BC diagnosis. Also, there are cancer nutritionists - specialists - out there.

    Oncologist's know that there
    Oncologist's know that there is almost no way that you can avoid having no soy ever. They just want you to watch your intake of it. Soy is in a million things, and, some you don't even know about. Just watch the labels and talk to your oncologist about it again.
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    susie09 said:

    Oncologist's know that there
    Oncologist's know that there is almost no way that you can avoid having no soy ever. They just want you to watch your intake of it. Soy is in a million things, and, some you don't even know about. Just watch the labels and talk to your oncologist about it again.

    Asked 2 oncologists about soy
    I'm also ER+/PR+, and in the last week, I've asked two oncologists (one's a specialist who works with breast cancer exclusively) about the soy issue.

    The specialist and my regular oncologist both said that there's no need to try to purge my diet entirely of soy, and, as you've already said, it would be impossible anyway. As the specialist said, "Don't make yourself crazy about it, but just don't go looking for soy." In other words, they both said not to drink soy milk or eat tofu every day, but, as my regular oncologist said, "If you have a little soy sauce on some Chinese food once in awhile, don't worry about it."

    I also asked about skincare products -- I've used a soy-based face cleanser and moisturizer for years. While my regular oncologist said that he didn't think that would matter, the specialist said, "There are other things you can buy to wash your face, so why risk it?"

    Hope that helps,

    Traci
  • Lelana
    Lelana Member Posts: 32
    Soy protein !
    It's my understanding that soy protein feeds breast cancer cells. Our doctor said to stay away from it, all of it !
    Don't take that chance !
    Loni------ now cancer free !

    Try typing in "Soy and cancer" !
    I'm sure you will find a lot to read about, I did !
  • aurora2009
    aurora2009 Member Posts: 544 Member
    Thanks every one
    I just went to the store and read the ingredients on the things I normally buy, like 7 grain whole wheat bread, and real mayonaise and either they said soy flour or oil, and it went on like this through out the store.

    I finally said forget it and bought my stuff anyway, I never eat soy sause or soy milk or tufu, so I'm okay there.

    But I appreciate the advice on getting a referral to a BC nutritionist, because it worries me a little. Just another thing I can't control. At least the potato chips I buy don't have soy oil in them :)

    Thanks for the internet info too. I'm not to good at Googling, I always put in the wrong words and can't find what I'm looking for, or unreliable info.

    Thanks again

    Aurora
  • confused123
    confused123 Member Posts: 251

    Thanks every one
    I just went to the store and read the ingredients on the things I normally buy, like 7 grain whole wheat bread, and real mayonaise and either they said soy flour or oil, and it went on like this through out the store.

    I finally said forget it and bought my stuff anyway, I never eat soy sause or soy milk or tufu, so I'm okay there.

    But I appreciate the advice on getting a referral to a BC nutritionist, because it worries me a little. Just another thing I can't control. At least the potato chips I buy don't have soy oil in them :)

    Thanks for the internet info too. I'm not to good at Googling, I always put in the wrong words and can't find what I'm looking for, or unreliable info.

    Thanks again

    Aurora

    I went to a cancer
    I went to a cancer nutritionist who told me natural soy, such as tofu was ok a couple times per week. She sais soy oil and soy lecithin were ok because it is trace amounts. She said no soy protein so I did the same as you and went crazy reading labels. Had a hard time finding bread to eat too. Pepperidge Farm does have hamburger rolls without soy. I finally called the nutritionist and told her what I was doing. She said to worry about soy proteins in high fiber, high protein foods such as protein bars, cereals. SHe said read how much protein is in things, if it is high and has soy then don't eat.

    Kim
  • chenheart
    chenheart Member Posts: 5,159
    Soy is a funny thing; though
    Soy is a funny thing; though it is considered healthy and possibly good at staving off BC, this is not the case after the fact if we have Estrogen positive BC. Soy makes "synthetic" estrogen, and our poor bodies probably won't know the difference, and our BC cells (if there are any!)may feed on this. That is in in a nutshell! The medical jury is still kinda out on if we should avoid soy; however it seems more of a better safe than sorry at this point. Obviously, we probably shouldn't order a smoothie with a Soy Boost, and the soy and extra salt in soy sauce isn't probably our best choice, along with edamame beans, tofu, tofutti, and things which are just about 100% soy!

    On the other hand,fat and sugar and alcohol are also known to be causitive factors for BC, too! It's all a crap shoot, isn't it?? LOL Happy Food Choices!! Live Long and Prosper!

    Hugs,
    Claudia
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    Aurora,
    I won't eat anything that has soy on the name of whatever it is,but I still eat everything else. I like to eat and don't want to freak out worrying about how much is in what I'm eating-that's just my take on it though!
  • lynn1950
    lynn1950 Member Posts: 2,570
    chenheart said:

    Soy is a funny thing; though
    Soy is a funny thing; though it is considered healthy and possibly good at staving off BC, this is not the case after the fact if we have Estrogen positive BC. Soy makes "synthetic" estrogen, and our poor bodies probably won't know the difference, and our BC cells (if there are any!)may feed on this. That is in in a nutshell! The medical jury is still kinda out on if we should avoid soy; however it seems more of a better safe than sorry at this point. Obviously, we probably shouldn't order a smoothie with a Soy Boost, and the soy and extra salt in soy sauce isn't probably our best choice, along with edamame beans, tofu, tofutti, and things which are just about 100% soy!

    On the other hand,fat and sugar and alcohol are also known to be causitive factors for BC, too! It's all a crap shoot, isn't it?? LOL Happy Food Choices!! Live Long and Prosper!

    Hugs,
    Claudia

    Anti-Cancer
    Thanks for clearing that up, Claudia. I am in the middle of reading "Anti-Cancer" and the author so promotes soy because it is a "phyto"-something or other and it made me wonder if I was missing something, since I had eliminated soy from my diet as much as possible. xoxoxo Lynn
  • aurora2009
    aurora2009 Member Posts: 544 Member

    Aurora,
    I won't eat anything that has soy on the name of whatever it is,but I still eat everything else. I like to eat and don't want to freak out worrying about how much is in what I'm eating-that's just my take on it though!

    Thanks again
    I'll just have to becareful and not freak my self out over it, I guess. I had planed on eating protein bars to keep my stamina up at work but I guess that's out. I'll just stick to fruits.

    It's really hard to to know what's right, I still will consult with a BC nutritionist, and maybe ask for a specific diet plan, that shows me day to day, meal plans. I've never been a good dieter, and could use to lose 20 to 30 pds.

    It's weird, because I've never been a fan of soy foods or protiens, but come to find out, I've been eating soy all along. Go figure :)

    Aurora
  • cabbott
    cabbott Member Posts: 1,039 Member

    Thanks again
    I'll just have to becareful and not freak my self out over it, I guess. I had planed on eating protein bars to keep my stamina up at work but I guess that's out. I'll just stick to fruits.

    It's really hard to to know what's right, I still will consult with a BC nutritionist, and maybe ask for a specific diet plan, that shows me day to day, meal plans. I've never been a good dieter, and could use to lose 20 to 30 pds.

    It's weird, because I've never been a fan of soy foods or protiens, but come to find out, I've been eating soy all along. Go figure :)

    Aurora

    Soy Stuff
    There are tons of products with a little soy in them and avoiding them would make life extremely difficult. I love tofu in stir fries and even developed a taste for carrot soup made with soymilk before BC was diagnosed. I asked my oncologist, a breast cancer specialist, how much soy was a no-no. He replied that I could have a soy food( that means stuff like tofu, soymilk, or tempah, not health bars with supplements)once or twice a week and that soy sauce didn't have enough of the chemical that needed to be avoided to be measured. I could have that daily I suppose. But he drew a clear line at soy supplements. You don't have to be in a Health Food store for very long to find the "super soy foods". There are concentrated powders and pills galore. Those are like medicines that could boost breast cancer growth in estrogen positive cancer. So I still have my veggies stirfry with tofu once a week or a veggie or seafood soup with tofu cubes if I want. Once or twice a year I might make that soup with the soymilk, though it is good with regular milk too. But I no longer drink soymilk daily and I avoid "health bars" with soy supplements.
  • Kylez
    Kylez Member Posts: 3,761 Member
    cabbott said:

    Soy Stuff
    There are tons of products with a little soy in them and avoiding them would make life extremely difficult. I love tofu in stir fries and even developed a taste for carrot soup made with soymilk before BC was diagnosed. I asked my oncologist, a breast cancer specialist, how much soy was a no-no. He replied that I could have a soy food( that means stuff like tofu, soymilk, or tempah, not health bars with supplements)once or twice a week and that soy sauce didn't have enough of the chemical that needed to be avoided to be measured. I could have that daily I suppose. But he drew a clear line at soy supplements. You don't have to be in a Health Food store for very long to find the "super soy foods". There are concentrated powders and pills galore. Those are like medicines that could boost breast cancer growth in estrogen positive cancer. So I still have my veggies stirfry with tofu once a week or a veggie or seafood soup with tofu cubes if I want. Once or twice a year I might make that soup with the soymilk, though it is good with regular milk too. But I no longer drink soymilk daily and I avoid "health bars" with soy supplements.

    Aurora, how was your
    Aurora, how was your surgery? Didn't you just have it?

    And, it would be impossible like the others said to cut out soy totally. It can't be done. Your oncologist will tell you that and so will any nutritionist.

    Hope you are doing well!
  • aurora2009
    aurora2009 Member Posts: 544 Member
    Kylez said:

    Aurora, how was your
    Aurora, how was your surgery? Didn't you just have it?

    And, it would be impossible like the others said to cut out soy totally. It can't be done. Your oncologist will tell you that and so will any nutritionist.

    Hope you are doing well!

    Thanks Kylez
    For asking, it went well, I had it Wednesday night at 6pm and was home by 10pm, and quite loopy I might add :0

    I went in for a re-incission, but found out when I got there that it was also called a partial mastsectomy(?) which got me kinda scared, but what can you do right? my surgeon assured me that I would not see much change from the 1st surgury, (which was looking rather good I might add.... only a 3 inch scar along the breast, with another 3 inch scar under my arm from the lymph node removal)

    But after surgury, when I woke up I was bandaged all up, which scared me even more, after the first surgury there was no bandages, only a tube coming from under my arm, and that's what I expected this time, so needless to say I was kind of worried. I didn't know what I was going to find under there and if I could remove them or shower.

    My surgeon was in surgeon all day yesterday, so I had to wait until about 8pm to find out if I could shower, etc. (the bandages were killing me) I don't know if anyone else has this problem or not, but they used bandages after ther biopsy too and I swear they hurt my skin more than the actual wound!

    So today I took my first shower and uncovered the area, and I'm happy to say it's not to bad. The scar is about 2 inches longer and there is alot more pian than last time and less tisue(boob), but with a sports bra on you can't see the size difference to much, and I'm still facing forward (if you get my meaning ;)

    So I can't complain, I still don't know if the margins came back clean this time, and probably won't til Monday, but I'm taking it one day at a time.

    As you can tell the pain meds have me still a little loopy, I have to re-read and edit like crazy!!1

    Thanks again for asking, it feels so good to have new friends on here to talk to about what's going on with me. I just love this site!!!

    God Bless you All!

    Aurora

    P.S. Kylez, I'm soory there are so many people here that I sometimes forget everyones story, I'm getting better though, if you don't mind me asking, where are you at in your treatment?
  • faithandprayer
    faithandprayer Member Posts: 177
    Soy Labels
    Hi Aurora,
    I'm so glad your surgery is behind you and that all is going well for you. I pray for good, clean margin results on Monday - be sure to post & let us know!

    About the soy, I'm ER+, too and stink at details...like label reading. My onco said the easiest thing is to just avoid anything that "boasts" soy on it's label/brand. If it's not in a little blurb, bubble or screaming "hey, eat me, I'm soy", I'm good to go.

    Cheering for those good margin results!
    KC
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member

    Soy Labels
    Hi Aurora,
    I'm so glad your surgery is behind you and that all is going well for you. I pray for good, clean margin results on Monday - be sure to post & let us know!

    About the soy, I'm ER+, too and stink at details...like label reading. My onco said the easiest thing is to just avoid anything that "boasts" soy on it's label/brand. If it's not in a little blurb, bubble or screaming "hey, eat me, I'm soy", I'm good to go.

    Cheering for those good margin results!
    KC

    Great rule of thumb from KC
    KC, love your criteria: "If it's not in a little blurb, bubble or screaming "hey, eat me, I'm soy," then go ahead and eat it.

    I'm totally going to use that as my new rule of thumb!

    Traci
  • faithandprayer
    faithandprayer Member Posts: 177
    TraciInLA said:

    Great rule of thumb from KC
    KC, love your criteria: "If it's not in a little blurb, bubble or screaming "hey, eat me, I'm soy," then go ahead and eat it.

    I'm totally going to use that as my new rule of thumb!

    Traci

    Considering Avoiding
    We live in an estrogen dominant society.
    Besides soy, other things ER+ should consider and/or discuss with onco are:

    MEATS & DAIRY = may want to consider organic, many are pumped w/estrogen to fatten before market.

    PHYTOESTROGENS = too complicated to get into in this post but if you are not aware of them, you may want to wiki them.

    WEIGHT = estrogen is stored in fat cells. The more fat, the more cozy environment to host.

    STRESS = there is a definite relationship between stress, estrogen and weight.

    Since estrogen levels can be stored & cumulative, simple little changes can make a difference over time!
  • Eil4186
    Eil4186 Member Posts: 949
    Dietary soy ok. Meat eaters beware-it contains lots of hormone
    My cancer was ER+ and PR+ also. My oncologist said that DIETARY SOY IS FINE for me. He said that I must stay away SOY SUPPLEMENTS though. I have been eating soy since treatmet 2 and a half years ago and have been fine. I don't eat excessive amounts though. I have soy patties or dogs a couple times a week and as you said, I also consume soy in small amounts in other foods such as protein bars.

    Food for thought: If you are eating meat, then you are consuming lots of hormones from that. Cows have estrogen in addition to the hormones that are injected into them. These are in the meat you are eating. I am a vegetarian and my onc says that is a good thing in that I am not comsuming met and all the hormones that come with it.
  • aurora2009
    aurora2009 Member Posts: 544 Member
    Eil4186 said:

    Dietary soy ok. Meat eaters beware-it contains lots of hormone
    My cancer was ER+ and PR+ also. My oncologist said that DIETARY SOY IS FINE for me. He said that I must stay away SOY SUPPLEMENTS though. I have been eating soy since treatmet 2 and a half years ago and have been fine. I don't eat excessive amounts though. I have soy patties or dogs a couple times a week and as you said, I also consume soy in small amounts in other foods such as protein bars.

    Food for thought: If you are eating meat, then you are consuming lots of hormones from that. Cows have estrogen in addition to the hormones that are injected into them. These are in the meat you are eating. I am a vegetarian and my onc says that is a good thing in that I am not comsuming met and all the hormones that come with it.

    Thanks for the info ladies
    It's all a bit scary, isn't it?

    I'm a little over weight, have a high stress job, and love meat......... Guess it's time for a life make over!!!

    I really can't wait to talk to the nutritionist, I'm open changing my life style and diet, I just need a little more help than others, like a daily plan and schedule, once I'm started, I'm sure I'll excel.

    At least that's ny plan. I guess I just need to find some good chicken and fish recipes!

    Oh and Thanks KC, I've got my fingers crossed too for clean margins!
  • faithandprayer
    faithandprayer Member Posts: 177

    Thanks for the info ladies
    It's all a bit scary, isn't it?

    I'm a little over weight, have a high stress job, and love meat......... Guess it's time for a life make over!!!

    I really can't wait to talk to the nutritionist, I'm open changing my life style and diet, I just need a little more help than others, like a daily plan and schedule, once I'm started, I'm sure I'll excel.

    At least that's ny plan. I guess I just need to find some good chicken and fish recipes!

    Oh and Thanks KC, I've got my fingers crossed too for clean margins!

    Weight
    "once I'm started, I'm sure I'll excel" - AWESOME attitude, girl!

    ...Burning approximately 12 calories a day (slight exaggeration factor) and steroids have created some extra poundage I'm a bit displeased with! I'm planning to start walking the dog this week when able.
  • Akiss4me
    Akiss4me Member Posts: 2,188

    Thanks for the info ladies
    It's all a bit scary, isn't it?

    I'm a little over weight, have a high stress job, and love meat......... Guess it's time for a life make over!!!

    I really can't wait to talk to the nutritionist, I'm open changing my life style and diet, I just need a little more help than others, like a daily plan and schedule, once I'm started, I'm sure I'll excel.

    At least that's ny plan. I guess I just need to find some good chicken and fish recipes!

    Oh and Thanks KC, I've got my fingers crossed too for clean margins!

    What my Onc told me....
    I was one who as soon as I found out I was ER/PR possitive, I immediately gathered all the info I could on nutrition. I also switched to hormone free meat (more expensive but taste better) and eliminated ALL soy from my diet. My husband and I went on an "organic shopping spree". Because this is what I thought I had to do.
    Within one week, I had all of five foods that I could tolerate and was at the end of my rope!! There was NOTHING I could eat!! I was sure that I would die from starvation. Then reasoned if THAT was going to happen anyway.....I might as well eat anything and everything my little heart desired!!! Hence the reason I had to start the "greatest loser" contest. Trust me when I say I ate ANYTHING and EVERYTHING!!!
    When I finally got to my Doctor, this is what I was told.
    You can not eliminate ALL soy from your diet, it is impossible. Just try to SLOWLY make some changes. Like if it is the last couple ingredients on the label, then your good to go. Just don't go out actively seeking soy milk, tufu, etc.
    Also, do not ingest grapefruit or grapefruit juice while taking tamoxifen. It will counteract the medicine.
    Also, try to eat a healthy diet and maintain a normal weight (yes, due to the fat cells which you can not lessen the amount of, since you are born with a certain amount you have your whole life, you can only shrink the size of the ones you already have. Excluding liposuction patients).
    Finally.....forget all the other things like organic or hormone free. This is a diet for someone who has chosen not to have treatment and take a holistic approach. If you want to incorporate this into your diet, fine, but it may not be worth the stress. Almost anything you put into your body can cause or help to prevent a host of diseases and illnesses depending on how your body reacts. People tend to forget that age will play the biggest factor in what happens to us and is unavoidable.
    She told me I am doing exactly what I should be doing through the treatments to fight my disease that I should not deprive myself of an easy, peaceful, satisfying diet.
    I just love her!!
    So we left her office, stopped at the store on the way home and I pigged out on Chunky Monkey for an hour!! Ate the whole thing!! And it was good!! :) Pammy