someone please please help
laura
Comments
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Hi Laura, it is my opinion
Hi Laura, it is my opinion that paranoid and scared keeps us alive and is extremely normal. Please call your GP and your Onco on Monday and let them know what you have found and that you are very concerned which is understandable considering your current situation. Please let us know how things go, you are in my prayers!
RE0 -
thank youRE said:Hi Laura, it is my opinion
Hi Laura, it is my opinion that paranoid and scared keeps us alive and is extremely normal. Please call your GP and your Onco on Monday and let them know what you have found and that you are very concerned which is understandable considering your current situation. Please let us know how things go, you are in my prayers!
RE
am i wrong to feel frustrated and scared because i havent had any bloodwork or scans done. Or anykind of test since my surgery. I am loosing my mind right now. I am breaking.0 -
Hi, Laura
For us, I don't think there is such a thing as "paranoid" when it comes to our health. We must always be ever vigilant. As others have already posted, check in with your doctor on Monday. In the meantime, try not to worry (at least not too much). Your surgery was major, and just a few weeks ago. It could simply be a swollen lymph node, working overtime to fight off infection while your body heals. I'll be hoping it's nothing more serious.0 -
Laura, I obviously can't say
Laura, I obviously can't say for certain, but it could well be a swollen lymph node. Remember that you have recently undergone an extremely invasive surgical procedure, and that your body is under a lot of stress trying to recover. That's what the Physician's Assistant told my beloved Moopy last month when she came in with a somewhat swollen lymph node under her right (non-mastectomy side) arm. Best wishes and God Bless!
Joe0 -
Laura.......
I agree, call your docs on Monday and tell them that you would like tohave the lump checked.
I am just speaking for myself, but I didn't have any blood tests after surgery. Scans either. They were all done before surgery.
A month after surgery, my port was put in and I started chemo. Just before that I had bloodwork done and also a MUGA scan to make sure my heart was healthy enough for chemo.
Hugs,
CR0 -
I didnt have any testsCR1954 said:Laura.......
I agree, call your docs on Monday and tell them that you would like tohave the lump checked.
I am just speaking for myself, but I didn't have any blood tests after surgery. Scans either. They were all done before surgery.
A month after surgery, my port was put in and I started chemo. Just before that I had bloodwork done and also a MUGA scan to make sure my heart was healthy enough for chemo.
Hugs,
CR
I didnt have any tests before my surgery either. How are they supposed to know if it has spread somewhere else? I am soooo frustrated and sad. I feel hopeless right now.
laura0 -
Laura...lolad said:I didnt have any tests
I didnt have any tests before my surgery either. How are they supposed to know if it has spread somewhere else? I am soooo frustrated and sad. I feel hopeless right now.
laura
You didn't have any tests before surgery? No CT or MRI, PET scan, bone scan, chest x-ray...nothing?
Was your surgeon a general surgeon, or one who specializes in bc?
CR0 -
Not one test was done! MyCR1954 said:Laura...
You didn't have any tests before surgery? No CT or MRI, PET scan, bone scan, chest x-ray...nothing?
Was your surgeon a general surgeon, or one who specializes in bc?
CR
Not one test was done! My surgeon was a bc surgeon thru a cancer center at the hospital. I feel like they arent doing and havent done what should be done. Im not a dr, but commen sence tells me that some tests should have been done right?>
laura0 -
I find it......lolad said:Not one test was done! My
Not one test was done! My surgeon was a bc surgeon thru a cancer center at the hospital. I feel like they arent doing and havent done what should be done. Im not a dr, but commen sence tells me that some tests should have been done right?>
laura
I find it strange that none of those tests were done. Is your onc also affiliated with the cancer center?
CR0 -
Yes she is and supposedlyCR1954 said:I find it......
I find it strange that none of those tests were done. Is your onc also affiliated with the cancer center?
CR
Yes she is and supposedly had a real good reputation. I knew i wasnt crazy to have the feelings i do about not having any tests
laura0 -
I think that.......lolad said:Yes she is and supposedly
Yes she is and supposedly had a real good reputation. I knew i wasnt crazy to have the feelings i do about not having any tests
laura
I think that I would certainly ask her or your onc why no tests were done. From what I understand, some or most of them are pretty standard now.
Make sure that you call one of the docs on Monday and tell them that you need to be seen.
CR0 -
We have.....
We have a wonderful cancer center near here. They have made groundbreaking strides in cancer research and treatments. UNLESS YOU HAVE BC! I have only heard bad things from many people who went there with bc. That's why I did not go there.
But it sounds like your surgeon should know how to treat bc. So I don't understand why more wasn't checked.
CR0 -
I totally understand yourlolad said:thank you
am i wrong to feel frustrated and scared because i havent had any bloodwork or scans done. Or anykind of test since my surgery. I am loosing my mind right now. I am breaking.
I totally understand your frustration and being scared. I didn't have any tests, scans, and just standard bloodwork before my surgery. But once I started chemo, I had bloodwork done all the time and if I had a complaint about anything I was always sent for scans, x-rays, bone scans. Call your doctor and see what they have to say and if your not comfortable with how your treatment is going, you can always find a new doctor. You want to make sure you feel that you are getting the right kind of care, this is a big fight for your life and you want to have faith in the person who is treating you.0 -
Laura, I'm concerned alsoCR1954 said:We have.....
We have a wonderful cancer center near here. They have made groundbreaking strides in cancer research and treatments. UNLESS YOU HAVE BC! I have only heard bad things from many people who went there with bc. That's why I did not go there.
But it sounds like your surgeon should know how to treat bc. So I don't understand why more wasn't checked.
CR
Laura, I'm concerned also that you didn't have any further tests. If the reason for your mastectomy was DCIS and not invasive cancer, you might not have many additional tests, but you normally would have some blood tests when you had your oncologist appointment. With DCIS, it is normally felt that the cancer has not spread because it is not yet invasive. But, if you have even the tiniest amount of invasive cancer, they will normally at least do a sentinel lymph node biopsy and a bone scan. These were both ordered by the oncologist, in my case, after my lumpectomy. I would definitely ask why they didn't do additional tests.
For your current problem, I would probably start with my primary care physician (PCP), if you feel that you are getting good care from him/her. With my PCP, I can get in the day I call, if it is an emergency, and he is the first doctor I ask about anything unusual. He has a very good set of doctors that he uses for referrals.
Joyce0 -
Just call your doctor and
Just call your doctor and let us know!0 -
Deep Breath Laura....
Wow, I can imagine that your mind is just racing right now. We do need to be careful in everything that happens to us because of our cancer, but just to give you food for thought and a little different perspective, not all things that happen to us have to do with our cancer.
Twice over the years, I have gotten a swollen lump in my groin area that I needed to go to the Doctor for. Both times it turned out to be a swollen Bartholimin (SP?) gland. This is a gland that only women have that runs along our groin right where our thigh meets. They have never found a reason why these glands will swell and it is fairly common. Usually they lance the gland to drain it. Both times I have encountered this I was under stress from an illness. I believe that the gland swells in relationship to my body fighting off the stress. But that is just my opinion. As a matter of fact, I had jokingly mentioned to my husband that "all I need is for my gland to swell again!!". Mine have been very painful.
Try to calm yourelf if you can till tomorrow, and know that there is possibly another reason for a lump in that area. I will say my prayers for you. Hugs....:) Pammy0 -
pammyAkiss4me said:Deep Breath Laura....
Wow, I can imagine that your mind is just racing right now. We do need to be careful in everything that happens to us because of our cancer, but just to give you food for thought and a little different perspective, not all things that happen to us have to do with our cancer.
Twice over the years, I have gotten a swollen lump in my groin area that I needed to go to the Doctor for. Both times it turned out to be a swollen Bartholimin (SP?) gland. This is a gland that only women have that runs along our groin right where our thigh meets. They have never found a reason why these glands will swell and it is fairly common. Usually they lance the gland to drain it. Both times I have encountered this I was under stress from an illness. I believe that the gland swells in relationship to my body fighting off the stress. But that is just my opinion. As a matter of fact, I had jokingly mentioned to my husband that "all I need is for my gland to swell again!!". Mine have been very painful.
Try to calm yourelf if you can till tomorrow, and know that there is possibly another reason for a lump in that area. I will say my prayers for you. Hugs....:) Pammy
Thank you for sharing your same symptoms and telling me what yours actually was. That eases my mind a little. Like i said before, maybe im just being paranoid and god knows definatly have been stressed. I dont know, i can only pray and will definatly be giving the dr a call tomorrow. Thanks again and bless you!
laura0 -
Laura, I am glad that yourlolad said:pammy
Thank you for sharing your same symptoms and telling me what yours actually was. That eases my mind a little. Like i said before, maybe im just being paranoid and god knows definatly have been stressed. I dont know, i can only pray and will definatly be giving the dr a call tomorrow. Thanks again and bless you!
laura
Laura, I am glad that your mind is eased somewhat. And yes, please call your doctor and talk to him. Then you can have some real relief. No question should go unanswered when it comes to bc. You should always call your oncologist when you have questions or concerns!
Hugs, Kristin0 -
First of all thanks for allKristin N said:Laura, I am glad that your
Laura, I am glad that your mind is eased somewhat. And yes, please call your doctor and talk to him. Then you can have some real relief. No question should go unanswered when it comes to bc. You should always call your oncologist when you have questions or concerns!
Hugs, Kristin
First of all thanks for all the support. I called and left a messaged today with the onc nurse and of course she didnt call back. Ive notice that nodes are swollen in my neck and the one in my groin is still there. I was hoping it would have gone away. Im calling again tomorrow and will keep bugging them until they call back. Thats the least they could do. Im getting worried though. I have an appt with the onc on the 28th, but i just want to tell them what is going on and maybe get in this week instead. Is that too much to ask?
laura0
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