Rad burns

rjjj
rjjj Member Posts: 1,822 Member
edited March 2014 in Breast Cancer #1
Hello all. just checking in so you know i haven't went AWOL. I have 2 more radiation treatments.. then the boosters and the burning is very bad. I have open sores on my underarm and they are starting to drip. I didn't think they would finish but they are not as alarmed as I am. I never dreamed it would get so bad. The pain is horrendous. and I am on oxycodone. Have any of you experienced such bad burning? it is fire red and tuning purple. OUCH!!!! I need your healing prayers.

On a happier note i had a blast with my Jamie last week and a barbeque with all my kids and granddaughters. I was burning then but they all pitched in and we had such a good time. Now i am alone again in the motel and it is getting depressing. It hurts to even walk. They say the boosters will be in a different area..along the scar which is burned too but at least not open and raw. I am just amazed as was my daughter and husband, that they are continuing. I think i will have the party of all parties when i am done!!

I hope you are all doing good. I am going to be catching up and reading all you messages. My computer at home is still down. so i missed you all so much.
Love and gentle gentle gentle....hugs,
Jackie
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Comments

  • taleena
    taleena Member Posts: 1,612 Member
    #2
    Oh Jackie... I am sooooo
    Oh Jackie... I am sooooo very sorry that you are in so much pain... my heart really does go out to you... please hang in there.. your almost to that finish line... and I'm here to cheer you on too!!!

    It sounds like you had a lovely weekend with your family and really got to enjoy your daughter last week.. I am happy that you were able to get some happy time in...

    Sending extra extra speedy healing thoughts your way... with very gentle hugs!!!


    ~T
  • Jadie
    Jadie Member Posts: 723
    #3
    Hi rj
    Sooooooooooo sorry that you are burned so bad. It sounds awful. I am glad that you are almost done. You deserve a big celebration.

    Gentle hugs
    Jadie<3
  • Kylez
    Kylez Member Posts: 3,761 Member
    #4
    Jadie said:

    Hi rj
    Sooooooooooo sorry that you are burned so bad. It sounds awful. I am glad that you are almost done. You deserve a big celebration.

    Gentle hugs
    Jadie<3</p>

    I am a little pink, but, not
    I am a little pink, but, not burnt bad yet. I just use the Biafine on it.
  • tasha_111
    tasha_111 Member Posts: 2,072
    #5
    Kylez said:

    I am a little pink, but, not
    I am a little pink, but, not burnt bad yet. I just use the Biafine on it.

    RJJ
    I am so sorry you are going through this. I had exactly the same........It goes quickly after treatment ends.......it really does.
    Hang in there Sis......You are doing fine. Hugs jxxxxxxxxxxxxxx
  • Akiss4me
    Akiss4me Member Posts: 2,188
    #6
    Jackie....
    I am truly sorry to hear about your rad side effects. It just doesn't seem fair that anyone should have to go through it. Hang in there. If it were me, I know I would be screaming like a baby begging them to stop! You are so brave for pushing forward and a huge encouragement to me since I haven't started my rads yet. I hope the rest goes guickly for you and then you have a speedy recovery. :) Pammy
  • fauxma
    fauxma Member Posts: 3,577 Member
    #7
    Akiss4me said:

    Jackie....
    I am truly sorry to hear about your rad side effects. It just doesn't seem fair that anyone should have to go through it. Hang in there. If it were me, I know I would be screaming like a baby begging them to stop! You are so brave for pushing forward and a huge encouragement to me since I haven't started my rads yet. I hope the rest goes guickly for you and then you have a speedy recovery. :) Pammy

    Jackie
    So sorry about the
    Jackie
    So sorry about the severe burning. I considered myself lucky that I didn't have much at all with the breast radiation. I hope that it clears up quickly for you.
    Stef
  • rjjj
    rjjj Member Posts: 1,822 Member
    #8
    tasha_111 said:

    RJJ
    I am so sorry you are going through this. I had exactly the same........It goes quickly after treatment ends.......it really does.
    Hang in there Sis......You are doing fine. Hugs jxxxxxxxxxxxxxx

    Thanks Tash
    I sure am glad it will go away quickly. I just have 2 regular ones left and then the boosters. I think we should get swacked! teehee.
    luv ya,
    jackie
  • cats_toy
    cats_toy Member Posts: 1,462 Member
    #9
    We missed you Jackie
    glad you had a good time with your kids, so sorry about the burning. I did burn some, but at the end it is the worst, and yes, it does go away fast. Almosts there, you will be done soon!
    take care of yourself!
    =^..^=
  • Aortus
    Aortus Member Posts: 967
    #10
    Jackie
    I wouldn't wish what you're going through on anyone. But we both know you're gonna pull up those famous big girl panties and get on with it. Just hang on - you're almost there!

    Love,
    Joe
  • EveningStar2
    EveningStar2 Member Posts: 491 Member
    #11
    me too
    Talked to your doc and see about getting some silvadene. I finished in April and if youcheck my expressions page, I posted pictures of my burn. It's lousy but it heals fairly easily.

    Maureen
  • Jeanne D
    Jeanne D Member Posts: 1,867
    #12
    Ouch Jackie :(
    So sorry about the burns. How many boosters do you have? I burnt next to my collarbone, but, once I started the boosters, it started healing. So, you will start healing where you are getting rads now, if it isn't the site for the boosters. I am surprised they are continuing. I saw 2 women burnt bad when I took my rads. They stopped both of them for a week to let them heal. Then, the one went only 3 days a week, which is what they have to have, so they say, to work. The other healed halfway with that time off, started again, and, finished fine. I used the Biafine for the burn and Aquaphor at night to keep it moist and soft and greasy. The biggest problem for me wasn't the burn, it was that darn radiation dermatitis. Those red itchy bumps...grrrrrrrr They drove me nuts! I will certainly pray that you heal soon Jackie. I am so sorry.

    Glad you had a wonderful time with Jamie and your family! You deserved it!

    Love, Jeanne

    p.s. Oh, I don't want to discourage you, but, I will say this again. Be sure and still use your cremes AFTER you finish rads. You are still cooking!
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    #13
    Party of all Parties
    You sure deserve an unforgettable part,y Jackie. I am so sorry you are having such pain. Everyone wrote that the skin heals fast, and I will be wishing and praying that for you, too.

    Glad you and Jamie had a great mother/daughter week. She is so pretty; I love the new photo of you two.
  • Jeanne D
    Jeanne D Member Posts: 1,867
    #14
    Moopy23 said:

    Party of all Parties
    You sure deserve an unforgettable part,y Jackie. I am so sorry you are having such pain. Everyone wrote that the skin heals fast, and I will be wishing and praying that for you, too.

    Glad you and Jamie had a great mother/daughter week. She is so pretty; I love the new photo of you two.

    Moopy?
    What new photo? I don't see it..grrrrrrrrrrr
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #15
    Greetings, dear Jackie!
    Always so good to see you here! Am so very sorry for your burns, and the pain - yes, OUCH! (I'm wincing!) My hat's off to you, though, for being such a trooper.

    Glad you enjoyed your time with Jamie - knew you would! :-)

    We miss you, too, when you're not here. Know that you're not alone, there in Billings. We're with you, Jackie, via this board.

    Take care, take real good care... Can see the finish line, up ahead, not far...

    Kind regards, Susan

    P.S.: Love the new photo of you and Jamie!
  • rjjj
    rjjj Member Posts: 1,822 Member
    #16
    Thanks Moopy, Susan and all
    Jamie is very pretty. I wasn't going to post a new pic until my hair grew and i lost the weight! but what the heck... you guys love me unconditionally right?....RIGHT???
  • Aortus
    Aortus Member Posts: 967
    #17
    rjjj said:

    Thanks Moopy, Susan and all
    Jamie is very pretty. I wasn't going to post a new pic until my hair grew and i lost the weight! but what the heck... you guys love me unconditionally right?....RIGHT???

    In the words of Supertramp
    RIGHT! RIGHT!
    YER BLOODY WELL RIGHT!
  • Jeanne D
    Jeanne D Member Posts: 1,867
    #18
    rjjj said:

    Thanks Moopy, Susan and all
    Jamie is very pretty. I wasn't going to post a new pic until my hair grew and i lost the weight! but what the heck... you guys love me unconditionally right?....RIGHT???

    Finally!
    I can see the picture of Jamie and you today! It didn't show up

    last night for me. Jamie is very pretty, takes after her Mom!


    p.s. and, do my postings about my rads help you? hope so!
  • Noel
    Noel Member Posts: 3,095 Member
    #19
    Jeanne D said:

    Finally!
    I can see the picture of Jamie and you today! It didn't show up

    last night for me. Jamie is very pretty, takes after her Mom!


    p.s. and, do my postings about my rads help you? hope so!

    Ouch Jackie I am sorry that
    Ouch Jackie I am sorry that you are burnt. Can't they stop them for awhile? I burnt, but, nothing like what you are going thru. I just used Biafine on the burn. It helped, but, it still hurt until I was finally all done. I have heard that some used My Girls Radiation creme and silver sulfadiazine creme. Might ask your doctor about them. You will be done soon. Hang in there!
  • rjjj
    rjjj Member Posts: 1,822 Member
    #20
    Jeanne D said:

    Finally!
    I can see the picture of Jamie and you today! It didn't show up

    last night for me. Jamie is very pretty, takes after her Mom!


    p.s. and, do my postings about my rads help you? hope so!

    Sweet Jeanne
    yes your posts always have helpful rad tips which i use faithfully. You are also always so sweet.
    I saw the Dr today and they gave me gauze pads and bottles of saline to use. It feels really soothing, then i leave it dry open to the air..then the silvadene (3x's a day) this with pain pills. I only have 5 boosters left!! yeah!
    I hope you have a really good weekend Jeanne and thanks!
    Jackie
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #21
    rjjj said:

    Thanks Moopy, Susan and all
    Jamie is very pretty. I wasn't going to post a new pic until my hair grew and i lost the weight! but what the heck... you guys love me unconditionally right?....RIGHT???

    Yes, Jackie...
    Unconditionally. For sure. :-)

    Besides, please remember who you're amongst when you're here...

    None of US care about who's bald, with peach fuzz, or with porcupine hair, hedgehog hair, etc. Doesn't matter, at all. Not here.

    Kind regards, Susan

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