treatment 1 down

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johnnybegood
johnnybegood Member Posts: 1,117 Member
edited March 2014 in Colorectal Cancer #1
well i got thru it feel pretty tired.i just have one question which i think i have seen it posted before.has anyone had a side effect from chemo involving their jaw.when i first take a bite of food i have a sharp pain in my jaws but then after i start chewing it goes away.i know we are. all different,i was just wondering.thanks Godbless.....johnnybegood

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  • aluckylady
    aluckylady Member Posts: 16
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    Johnny,
    don't have an answer

    Johnny,
    don't have an answer for your question. Just wanted to let you know I said a prayer for you this morning. Day 1 behind you :) Stay strong and keep the faith!
  • PhillieG
    PhillieG Member Posts: 4,866 Member
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    Jaw pain
    I have not had that one. Is it with all food? Are you on FOLFOX or that oxiplatin that causes sensitivity to cold?
    -phil
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
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    PhillieG said:

    Jaw pain
    I have not had that one. Is it with all food? Are you on FOLFOX or that oxiplatin that causes sensitivity to cold?
    -phil

    thanks
    its usually with anything but the coldness probably has something to do with it.i am on oxaliplatin,5fu and leucouvarin.thank you for your prayers i have been sleeping and drinking fluids most of today.home health care nurse came this morning and unhooked my fanny pak.should be feeling better in a couple of days.fight on and Godbless.....johnnybegood
  • daydreamer110761
    daydreamer110761 Member Posts: 487 Member
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    thanks
    its usually with anything but the coldness probably has something to do with it.i am on oxaliplatin,5fu and leucouvarin.thank you for your prayers i have been sleeping and drinking fluids most of today.home health care nurse came this morning and unhooked my fanny pak.should be feeling better in a couple of days.fight on and Godbless.....johnnybegood

    yep
    I've got that one too. Only the first bite or two (or swallow) then it goes away.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
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    one down
    I'm glad you made it through the first one okay. I'll be praying that it will get easier for you.

    *Hugs*
    Gail
  • CherylHutch
    CherylHutch Member Posts: 1,375 Member
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    Treatment #1
    I didn't have that side affect myself, but I know I've read here in the past where others have said that they got that. It was like when you first take a bite of something super sour or super sweet...that pain in the jaw but then it goes away after a bite or two. I think that would be really annoying ... but apparently it is not uncommon. It's almost as if the tastebuds that distinguish sweet/sour are on overdrive and when they realize what you are eating is not sweet or sour, then they calm down. Weird, for sure... but not uncommon :)

    I'm so glad to hear you've made it through Treatment #1! Now, you get to justify resting and pampering yourself... because you can!! :D And should!!

    Hugggggs,

    Cheryl
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
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    Treatment #1
    I didn't have that side affect myself, but I know I've read here in the past where others have said that they got that. It was like when you first take a bite of something super sour or super sweet...that pain in the jaw but then it goes away after a bite or two. I think that would be really annoying ... but apparently it is not uncommon. It's almost as if the tastebuds that distinguish sweet/sour are on overdrive and when they realize what you are eating is not sweet or sour, then they calm down. Weird, for sure... but not uncommon :)

    I'm so glad to hear you've made it through Treatment #1! Now, you get to justify resting and pampering yourself... because you can!! :D And should!!

    Hugggggs,

    Cheryl

    glad to hear
    that others have had this side effect.i thought i had invented a new side effect called chemo crazy..yes it is annoying but it only lasts for the first bite.hope everyone is doing fine today.i am on my way to feeling better.thanks again and Godbless.......johnnybegood
  • msccolon
    msccolon Member Posts: 1,917 Member
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    side effect
    One of the best things about this board is finding out that those crazy things that occur while on chemo ARE common! And finding ways to deal with them! I think everything is easier to handle when you discover others are dealing with them!
    mary
  • glinka65
    glinka65 Member Posts: 132
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    msccolon said:

    side effect
    One of the best things about this board is finding out that those crazy things that occur while on chemo ARE common! And finding ways to deal with them! I think everything is easier to handle when you discover others are dealing with them!
    mary

    johnny
    glad the first 1 went went well, i had the same thing with my jaw , my nurse said if you have not spoken or chewed for a while, before you take a bite open and close your mouth a few times , it works!!!!! looks like me and you will be a day apart in treatments anything i can do just give a shout!!!!!! talk ta ya soon Tommy
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
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    glinka65 said:

    johnny
    glad the first 1 went went well, i had the same thing with my jaw , my nurse said if you have not spoken or chewed for a while, before you take a bite open and close your mouth a few times , it works!!!!! looks like me and you will be a day apart in treatments anything i can do just give a shout!!!!!! talk ta ya soon Tommy

    hi tommy
    i have been thinking if you and hoped you are good.thanks for the tip i will try it.hope everything is well with you.got my fanny pak off yesterday and i feel a little better today.bad thing is woke up this morning to a little bit of SNOW here in ky.come on spring!!! Godbless.....johnntbegood
  • SandyL
    SandyL Member Posts: 218
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    hi tommy
    i have been thinking if you and hoped you are good.thanks for the tip i will try it.hope everything is well with you.got my fanny pak off yesterday and i feel a little better today.bad thing is woke up this morning to a little bit of SNOW here in ky.come on spring!!! Godbless.....johnntbegood

    jaw pain
    DH has just finished his sixth 5/FU chased by a shot of Neulasta. He has always suffered with the jaw pain from these meds. They say it's the Oxiplatin that is doing it. It's pretty severe and always with the first bite-no matter what he's eating. Sometimes if I remind him to take a small bite the pain isn't quite as severe. So, I would humbly recommend that you try to take a teeny tiny bite at first. His jaw pain remains for several days after the treatment has ended. Most annoying and generally is a surprise as he forgets about it-till it hits! So very strange.
  • polarprincess
    polarprincess Member Posts: 202 Member
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    SandyL said:

    jaw pain
    DH has just finished his sixth 5/FU chased by a shot of Neulasta. He has always suffered with the jaw pain from these meds. They say it's the Oxiplatin that is doing it. It's pretty severe and always with the first bite-no matter what he's eating. Sometimes if I remind him to take a small bite the pain isn't quite as severe. So, I would humbly recommend that you try to take a teeny tiny bite at first. His jaw pain remains for several days after the treatment has ended. Most annoying and generally is a surprise as he forgets about it-till it hits! So very strange.

    yep
    yep i got it too!