vin iii

Trixi23

Hugs and HI!

Just thought I'd say hello to everyone.  My lesion was HUGE!  Had to have part of it surgically removed and the other part lasered.  Recovery was heck.  But I made it though. 

Can't sleep tonight cuz tomorrow is 1 year recheck day and I think I have another lesion.....  Well I try, everyday.  I've never gotten over the fatigue; I'm tired all the time since all this started.  I thought once I healed from the surgery it would go away but it never has. 

Hugs and health to everyone!

Trixi

Judemo

Trixi23 said:

Hugs and HI!

Just thought I'd say hello to everyone.  My lesion was HUGE!  Had to have part of it surgically removed and the other part lasered.  Recovery was heck.  But I made it though. 

Can't sleep tonight cuz tomorrow is 1 year recheck day and I think I have another lesion.....  Well I try, everyday.  I've never gotten over the fatigue; I'm tired all the time since all this started.  I thought once I healed from the surgery it would go away but it never has. 

Hugs and health to everyone!

Trixi

Have a question Trixi23 about VIN

Hi, I'm new to this and I'm double checking to see of your DX is the same as mine.  I just read on my last Pap smear that I was DXd with intraepithelial neoplasia Grade III of cervix, vagina & vulva.  Is this the same thing you guys are talking about? I saw somewhere where it would be CIN, VIN & VAIN. Is this all the same?  Precancerous or cancer??  I'm so confused. Thanks!

Jude

Soozie62

new

I have recently been diagnosed with VIN III and have an appt with oncology gynae tomorrow (5th Sept) I have been reading all the info but will stop doing this as it is confusing and some of the info scares me.  I am 52 years old and post menopausal, I think I have had the lesions for around 12 months.  By the reading I have done I think I will end up having surgical excision and fingers crossed that the margin is wide enough to get it all, eventhough the lesions feel about one centimetre.  Reading your experiences on this network rather than on info from internet gives me something realistic to think about, thanks

 

Nova17

VIN 3

I just turned 23 in January. I got my diagnosis for VIN3 about a week ago. I had recurrent bacterial vaginosis and yeast since February. I noticed the lesions about Oct/Nov. I was told by 3 doctors it was nothing. Then one doctor said it was hpv warts. They didn't treat it as they wanted to focus on my recurrent issues first. The lesions spread even more and I begged for the doctor to check as I was scared it was cancer. I knew something was wrong as my symptoms were abnormal and not aligning with the doctors. Finally a 2nd biopsy was taken and I was told I had VIN 3. I had my first oncology appointment a couple days okay. The doctor was alright. He lacked empathy and rushed through everything. He seemed slightly annoyed that I had come prepared with questions after doing a lot of research. My lesions are small, no bigger than 2 cm but they are everywhere from the labia major, labia minor, and anus. Due to my age and extension spread of the vin, he has recommended the Aldara cream. Being that the information I have found is so mixed, I don't even know what to think. I'm terrified this is going to ruin multiple aspects of my life. The diagnosis came right after being offered a wonderful job in a different state. If I move I will have a month gap in medical insurance and I may not even find a oncologist who specializes in gynecologic issues as the area is more rural. My current oncologist said treatment with the cream is available across the U. S., but I should make sure that I find a proper doctor. I want to move, but I don't want to risk my health. My doctor didn't answer many of my questions and I want to know how this will affect my life in general. Am I likely to live a long life still? Will it be fairly normal? Do you just keep getting different treatments as the vin comes back? Does it come back as vin 3 or will it go through the different stages again? If it turns to cancer and it's caught early, what are the odds of beating it? Will there be disfunction in regards to the sexual and  excretory systems. I love my partner and I feel awful that I may not be able to provide for them in this way. I do not want to become a burden to him. I also have not and do not want to inform my parents as they have a very traditional mindset in which what I have is my fault for having intercouse before being married and with more than one person. I already feel like I have jeopardized my wellbeing despite trying to be careful and extremely selective in partners. I've only had 3 and asked if they had been tested and clear of everything. I do not know which it was as no one had visible symptoms. The doctor has said that it is often invisible and hard to know. I'm just scared at what comes next. I want any advice you can give. I'm terrified and feel so sad.