vin iii

Elbows

purpleluva20 said:

Vin 3
Plz let me know the outcome when you go to the specialist. I just found I have VIN 3 and I'm waiting to make my first appointment to discuss my options.

Three weeks into healing after laser
After two weeks of the lasered area healing, I noticed a darkening spot just below the main pigmented area before. Instead of waiting until January for my follow up appointment, I called the specialist who treated me to see me. I figured if I am still in the healing process, I might as well have the new darkened spot checked out, and if it happens to be another VIN 3 spot, I should have it removed before it gets bigger again.

I went in for my appointment today, and after the doctor put the vinegar solution on the area and looked at it through the "microscopic" equipment, he determined it was just a discoloration due to the healing process, since it has only been three weeks.

I am still going to keep an eye on it to make sure it does not get bigger in diametre nor does it start changing in shape, but now I am good to wait until my follow up appoint in December (I moved it up from the original January date).

Purpleluva20 - Your options are to have it removed and that is about it. In Canada, no doctor recommends any creams. Depending on the size of the affected area, you will either get the laser treatment, or you will go for actual surgery to have it removed. The latter is more rare and for a severely infected area. I hope this helps.

healinginmo

Elbows said:

Three weeks into healing after laser
After two weeks of the lasered area healing, I noticed a darkening spot just below the main pigmented area before. Instead of waiting until January for my follow up appointment, I called the specialist who treated me to see me. I figured if I am still in the healing process, I might as well have the new darkened spot checked out, and if it happens to be another VIN 3 spot, I should have it removed before it gets bigger again.

I went in for my appointment today, and after the doctor put the vinegar solution on the area and looked at it through the "microscopic" equipment, he determined it was just a discoloration due to the healing process, since it has only been three weeks.

I am still going to keep an eye on it to make sure it does not get bigger in diametre nor does it start changing in shape, but now I am good to wait until my follow up appoint in December (I moved it up from the original January date).

Purpleluva20 - Your options are to have it removed and that is about it. In Canada, no doctor recommends any creams. Depending on the size of the affected area, you will either get the laser treatment, or you will go for actual surgery to have it removed. The latter is more rare and for a severely infected area. I hope this helps.

VIN III and laser surgery
I was recently diagnosed with VIN III and had a laser procedure 11/3/11 and was wanting to hear from people who've had this and how long recovery took. I had this on a Thursday and went back to work on Monday. I'm not having a lot of pain, but it's still very uncomfortable, especially in the perineum area. I have a lot of brown stains on my panty liners, I am assuming is a little blood and discharge. I also have this thick yellowish mucus from the sites. Is this normal? The nurse told me not to worry unless I started running a fever, had red streaks from the area, or started having severe pain or odor. I guess I'm just freaking out a little and probably expecting healing too soon. :-)

Elbows

healinginmo said:

VIN III and laser surgery
I was recently diagnosed with VIN III and had a laser procedure 11/3/11 and was wanting to hear from people who've had this and how long recovery took. I had this on a Thursday and went back to work on Monday. I'm not having a lot of pain, but it's still very uncomfortable, especially in the perineum area. I have a lot of brown stains on my panty liners, I am assuming is a little blood and discharge. I also have this thick yellowish mucus from the sites. Is this normal? The nurse told me not to worry unless I started running a fever, had red streaks from the area, or started having severe pain or odor. I guess I'm just freaking out a little and probably expecting healing too soon. :-)

Yes your symptoms are normal
The yellowish mucus is your white blood cells fighting off any infection that may result. I was fortunate that when I had the proceedure done, it was the end of summer so it wasn't hot at all, but I was able to wear a dress to keep the air flow going. I soaked in epson-salt water 3 times a day, and after every time, I use the blow-dryer on cold air to dry the area before applying Polysporin. A little blood discharge is normal b/c remember the area is very "raw" and it often moist so the healing time takes a lot longer than an open sore on your arm or elsewhere on your body. There may also be a bit of stinging after you wash b/c you often wash off the protecting layers that try to form. The polysporin helped for me a lot especially when I had to urinate.

My healing process was quite fast, but like I mentioned in my previous post, I noticed a dark spot shortly after. I went back to the doctor to have it checked out but he said it doesn't look like the vin3. I think he was probably right because it hasn't spread or grown at all since.

But like I said, everything seems normal and I hope you have a speedy recovery.

healinginmo

Elbows said:

Yes your symptoms are normal
The yellowish mucus is your white blood cells fighting off any infection that may result. I was fortunate that when I had the proceedure done, it was the end of summer so it wasn't hot at all, but I was able to wear a dress to keep the air flow going. I soaked in epson-salt water 3 times a day, and after every time, I use the blow-dryer on cold air to dry the area before applying Polysporin. A little blood discharge is normal b/c remember the area is very "raw" and it often moist so the healing time takes a lot longer than an open sore on your arm or elsewhere on your body. There may also be a bit of stinging after you wash b/c you often wash off the protecting layers that try to form. The polysporin helped for me a lot especially when I had to urinate.

My healing process was quite fast, but like I mentioned in my previous post, I noticed a dark spot shortly after. I went back to the doctor to have it checked out but he said it doesn't look like the vin3. I think he was probably right because it hasn't spread or grown at all since.

But like I said, everything seems normal and I hope you have a speedy recovery.

Thank you very much for
Thank you very much for replying, it makes me feel alot better. I will definitely follow your suggestions. The pain isn't bad at all now, and there is still some sting when I urinate...but I definitely feel somewhat better. I go back on the 15th of December for my check up...I really hope I'm done with all this and that everyone else here stays healthy and recovered! :-)

Concerned_2

healinginmo said:

Thank you very much for
Thank you very much for replying, it makes me feel alot better. I will definitely follow your suggestions. The pain isn't bad at all now, and there is still some sting when I urinate...but I definitely feel somewhat better. I go back on the 15th of December for my check up...I really hope I'm done with all this and that everyone else here stays healthy and recovered! :-)

VIN III/ Microscopic Invasive Carcinoma
I am 35 and in the past 2 years I have had 3 biospies all which have shown VIN III. My most recent biopsy was Nov 3. In this most recent biopsy there was extensive VIN III found and a less than 1mm microscopic invasive carcinoma. The margins were cleared by less than 1mm. I've been really worried about what is going on. I was also very shocked that I didn't hear back from the doctor right away. He had a resident contact me and tell me not worry. And that I should just follow-up in maybe 4 - 6 months. The resident was also unable to address any of my concerns. I've done some reading and see that this is supposed to be a slow growing cancer, however, I feel like it's not that slow in my case.


I made an appointment for a second opinion, but I'm wondering what others think about the small margin. I'm also very concerned about the fact that there was invasive carcinoma found. I do understand it's microscopic but the word cancer is really scary to me! What I've also read is that VIN III will continue to come back.

I'm just very frustrated right now. My family is also very frustrated. I guess I'm just looking for support here. My father talked to my uncle and said I need to go to a Vulvar specialty clinic which kind of freaked me out some more.

I'm glad that I have found this site and see that there are other woman out there who I can share my feelings with.

Elbows

Concerned_2 said:

VIN III/ Microscopic Invasive Carcinoma
I am 35 and in the past 2 years I have had 3 biospies all which have shown VIN III. My most recent biopsy was Nov 3. In this most recent biopsy there was extensive VIN III found and a less than 1mm microscopic invasive carcinoma. The margins were cleared by less than 1mm. I've been really worried about what is going on. I was also very shocked that I didn't hear back from the doctor right away. He had a resident contact me and tell me not worry. And that I should just follow-up in maybe 4 - 6 months. The resident was also unable to address any of my concerns. I've done some reading and see that this is supposed to be a slow growing cancer, however, I feel like it's not that slow in my case.


I made an appointment for a second opinion, but I'm wondering what others think about the small margin. I'm also very concerned about the fact that there was invasive carcinoma found. I do understand it's microscopic but the word cancer is really scary to me! What I've also read is that VIN III will continue to come back.

I'm just very frustrated right now. My family is also very frustrated. I guess I'm just looking for support here. My father talked to my uncle and said I need to go to a Vulvar specialty clinic which kind of freaked me out some more.

I'm glad that I have found this site and see that there are other woman out there who I can share my feelings with.

Concerned...
I think you should have had it removed after the first biopsy showed it was VIN III. The doctor should have referred you to the specialist after that point, but certainly after the second biopsy it should have been dealt with. I'm not sure what they will do in the case of finding the Invasive Carcinoma, but this is evident that the VIN III is no longer a slow growing process. I found after my biopsy (first and only), it grew back faster and was definitely more violent than when I originally noticed some spotting. It seemed that the biopsy irritated the virus and it wanted to spread quickly. I'm not sure where you are located, but can you get referred to the specialist as soon as possible?

As for VIN III coming back, there are no guarantees that the treatment you have will be 100% effective. Some people may have to go through several laser treatments, others do manage to have it completely rid of after the first time of treatment. The main thing is that you stay strong and have a good support group around you. In your case, please do not wait for any more biopsies to be done and have it treated! You've been diagnosed, and it's about time a qualified doctor does something about it!!!!

Elbows

healinginmo said:

Thank you very much for
Thank you very much for replying, it makes me feel alot better. I will definitely follow your suggestions. The pain isn't bad at all now, and there is still some sting when I urinate...but I definitely feel somewhat better. I go back on the 15th of December for my check up...I really hope I'm done with all this and that everyone else here stays healthy and recovered! :-)

Hope you're feeling better
Glad to hear you're making a good recovery.

Some parts take a lot longer to heal, depending on the location of where the VIN III and laser was done.

Please post after your follow up appointment to let the forum know who you have recovered!

Concerned_2

Elbows said:

Concerned...
I think you should have had it removed after the first biopsy showed it was VIN III. The doctor should have referred you to the specialist after that point, but certainly after the second biopsy it should have been dealt with. I'm not sure what they will do in the case of finding the Invasive Carcinoma, but this is evident that the VIN III is no longer a slow growing process. I found after my biopsy (first and only), it grew back faster and was definitely more violent than when I originally noticed some spotting. It seemed that the biopsy irritated the virus and it wanted to spread quickly. I'm not sure where you are located, but can you get referred to the specialist as soon as possible?

As for VIN III coming back, there are no guarantees that the treatment you have will be 100% effective. Some people may have to go through several laser treatments, others do manage to have it completely rid of after the first time of treatment. The main thing is that you stay strong and have a good support group around you. In your case, please do not wait for any more biopsies to be done and have it treated! You've been diagnosed, and it's about time a qualified doctor does something about it!!!!

I go back to the doctor on
I go back to the doctor on the 15th. I'm going to a second opinion. You mentioned that yours grew back faster and more violent then you had originally noticed. I think that is happen to me. My first 3 encounters with VIN III had been discolored skin, itching and the most recent time a growth. But right now I have what looks like a tear and the skin is really red. I'm looking forward to getting some answers on the 15th. I'm hoping that this doctor I'm going to see will do something more about it. I'm going to see a woman this time and hoping she is more understanding.

I think I'm staying pretty positive about it. My family is very good support too. I just can't help but thinking about it all the time. And I totally agree with you about no more biopsies. Especially after the last biopsy it was so painful!

When I hear more I will be sure to keep you posted!

Thanks!

capitoltrouble

Concerned_2 said:

I go back to the doctor on
I go back to the doctor on the 15th. I'm going to a second opinion. You mentioned that yours grew back faster and more violent then you had originally noticed. I think that is happen to me. My first 3 encounters with VIN III had been discolored skin, itching and the most recent time a growth. But right now I have what looks like a tear and the skin is really red. I'm looking forward to getting some answers on the 15th. I'm hoping that this doctor I'm going to see will do something more about it. I'm going to see a woman this time and hoping she is more understanding.

I think I'm staying pretty positive about it. My family is very good support too. I just can't help but thinking about it all the time. And I totally agree with you about no more biopsies. Especially after the last biopsy it was so painful!

When I hear more I will be sure to keep you posted!

Thanks!

Never give up HOPE!
I've been going through this for the past 10 years. My ob/gyn performed the laser surgery 7 times but it kept returning. I was going to his office every 6 months and it seemed like at least once a year the results were VIN III and I would be scheduled for another laser surgery. He even got me approved for chemo after my 4th laser treatment to try to prevent it from coming back. I took infuron injections 3 times a week for 3 months and stayed hopeful this would prevent me from having to have any more laser treatments. Sadly 6 months after completing the chemo I was biopsied yet again and the result was VIN III yet again.
Two years ago I was referred to an ob/gyn oncologist who performed a radical vulvectomy. After my post op appointment with the ob/gyn oncologist I was released back to my ob/gyn where I had 2 soaks that showed nothing, so we went to doing the soaks once a year, yay. This past Nov I went in knowing it was back. My ob/gyn biopsied and the result was marginal. I had to go in 2 weeks later for another biopsy. This time it came back as invasive cancer and I was sent back to the cancer treatment center.

My previous ob/gyn oncologist sadly moved to another city 2 hours from where I live so I saw a new doctor this time. When meeting him I was told he wondered if I was "crying wolf". Are you kidding me??? Like I enjoy going through this???? Really???? He ordered the path report from the lab and requested samples of the tissue collected. He scheduled me for a chest x-ray and PET/CAT scan the following week. The results showed the cancer had not spread and my surgery was scheduled. I had my 2nd surgery but 9th procedure done Dec 12, 2011. This time they also removed 2 lymph nodes which came back clear. The scariest part is it seems like this is never going to go away and stay away. To complicate things I am an insulin dependant diabetic of 24 years which lowers my immune system and why they think it keeps coming back. I have tried to share my story with as many women as possible because there is so little information about this and as we all know just the word Vulva is taboo. I've been going through this for years alone. I'm very glad I found this website so that I can use my experience to help others. I keep telling myself I'm stronger than cancer, I can beat this as many times as it makes me beat it. One thing I have learned is to trust your gut and never give up hope!

yeahright

capitoltrouble said:

Never give up HOPE!
I've been going through this for the past 10 years. My ob/gyn performed the laser surgery 7 times but it kept returning. I was going to his office every 6 months and it seemed like at least once a year the results were VIN III and I would be scheduled for another laser surgery. He even got me approved for chemo after my 4th laser treatment to try to prevent it from coming back. I took infuron injections 3 times a week for 3 months and stayed hopeful this would prevent me from having to have any more laser treatments. Sadly 6 months after completing the chemo I was biopsied yet again and the result was VIN III yet again.
Two years ago I was referred to an ob/gyn oncologist who performed a radical vulvectomy. After my post op appointment with the ob/gyn oncologist I was released back to my ob/gyn where I had 2 soaks that showed nothing, so we went to doing the soaks once a year, yay. This past Nov I went in knowing it was back. My ob/gyn biopsied and the result was marginal. I had to go in 2 weeks later for another biopsy. This time it came back as invasive cancer and I was sent back to the cancer treatment center.

My previous ob/gyn oncologist sadly moved to another city 2 hours from where I live so I saw a new doctor this time. When meeting him I was told he wondered if I was "crying wolf". Are you kidding me??? Like I enjoy going through this???? Really???? He ordered the path report from the lab and requested samples of the tissue collected. He scheduled me for a chest x-ray and PET/CAT scan the following week. The results showed the cancer had not spread and my surgery was scheduled. I had my 2nd surgery but 9th procedure done Dec 12, 2011. This time they also removed 2 lymph nodes which came back clear. The scariest part is it seems like this is never going to go away and stay away. To complicate things I am an insulin dependant diabetic of 24 years which lowers my immune system and why they think it keeps coming back. I have tried to share my story with as many women as possible because there is so little information about this and as we all know just the word Vulva is taboo. I've been going through this for years alone. I'm very glad I found this website so that I can use my experience to help others. I keep telling myself I'm stronger than cancer, I can beat this as many times as it makes me beat it. One thing I have learned is to trust your gut and never give up hope!

I am now about to go into my
I am now about to go into my 2nd laser treatment in the beginning of Feb. I was dx in April of 2010 with stage 1B vulvar cancer had the partical vulvectomy and lymph nodes removed plus laser but I did a biospy and now a year later I have VIN III. I ask my dr is there anything else that we can do beside laser treatment and he said no and that I am lucky because a couple of years ago my only choice was surgery or I can do nothing and let it turnn into cancer again. He also told me its not a matter of if it going to come back but when. Im just hoping that I dont have to do it to many times. I explained to him. I am a 31 years old single female I cant keep letting yall cut and burn down there as my only choice. Its not like breast I can't go get a new one.

mziegle

Elbows said:

Hope you're feeling better
Glad to hear you're making a good recovery.

Some parts take a lot longer to heal, depending on the location of where the VIN III and laser was done.

Please post after your follow up appointment to let the forum know who you have recovered!

I was recently diagnosed with VIN 111. I had gone to my PCP with a small growth directly beneath my vaginal opening. She wasn't worried about it, but didn't know what it was and sent me to my gynecologist for removal. On Monday it was biopsied, and today the results came back.

My gynecologist then did a colposcopy, where she said that the lesion is actually bigger than can be seen with the naked eye, and that there is probably an area of VIN 1 and 2 around it. She also found smaller areas of what is likely VIN 1 and 2 extending up my vulva. I have a gyn/oncology appointment on Wednesday for another colposcopy with surgery and laser therapy thereafter.

I am scared to death. My gyno says there's a possibility that the large lesion has already progressed to cancer since it is bigger than can be seen with the eye. I am 35, a healthy non-smoker, and have been married for six years. I truly don't know what to do--she said to expect to be out of work for two to four weeks. I am the sole provider for my husband and myself. Does anyone know what the likelihood is that this has already become cancer? And that it has spread to my lymph nodes? The lesion is small, and hasn't appeared to grow in months. I thought at first it was just a tear based on the location. I had no idea it was something to worry about, but I am feeling tonight like I should be writing my will.

funbeadgirl

mziegle said:

I was recently diagnosed with VIN 111. I had gone to my PCP with a small growth directly beneath my vaginal opening. She wasn't worried about it, but didn't know what it was and sent me to my gynecologist for removal. On Monday it was biopsied, and today the results came back.

My gynecologist then did a colposcopy, where she said that the lesion is actually bigger than can be seen with the naked eye, and that there is probably an area of VIN 1 and 2 around it. She also found smaller areas of what is likely VIN 1 and 2 extending up my vulva. I have a gyn/oncology appointment on Wednesday for another colposcopy with surgery and laser therapy thereafter.

I am scared to death. My gyno says there's a possibility that the large lesion has already progressed to cancer since it is bigger than can be seen with the eye. I am 35, a healthy non-smoker, and have been married for six years. I truly don't know what to do--she said to expect to be out of work for two to four weeks. I am the sole provider for my husband and myself. Does anyone know what the likelihood is that this has already become cancer? And that it has spread to my lymph nodes? The lesion is small, and hasn't appeared to grow in months. I thought at first it was just a tear based on the location. I had no idea it was something to worry about, but I am feeling tonight like I should be writing my will.

your in good hands
Dear friend,
I am sorry that you are going through this, and I hope for you that your further testing will not show it to be cancer. I did not have VIN, I am a vulvar cancer survivor, but do know the feelings of fear and uncertaintly that come with the process you go through to get a diagnosis. All I can say is... "Don't go past where your at right now", that is what my husband said to me the day I found out I had to have another round of radiation and then chemo.In other words just deal with what you have now and don't worry about the what ifs before you know for sure, you will waste precious emotion on something that may never materialize. I am so happy to hear that your PCP immediately referred you to you gyno,because she did not know what it was, sounds like a humble doctor. Then to have gyno refer you to a gyno/onco, that is amazing, it sounds like they are not wasting any time with helping you. I have read so many stories of women with similar issues that have been put off by docs because they think it is just an itch or a pimple. There are so many different issues that can affect the vulvar and vaginal area that are NOT CANCER, but the sooner they are checked out the better..which is what your docs have done for you.
There are many resources available also if you are out of work, talk to your employer, social worker at gyno/onco clinic, they should be made aware if you are in financial straights, it is all confidential.
Worst case scenario..if it is cancer, it is probably caught early, and with the advanced treatments today, you will do fine.A positive attitude is very important to try to maintain , I have been through a lot in past 3 years, 3 cancer diagnosis, 5 surgeries, radiation twice and currently going through chemo ( had one yesterday), and I still am functioning and happy. Yes I do have a bad day once in a while, I usually give myself 15 minutes to have a pity party, then I get on with my life. I have too much to do yet, that I am not letting cancer control me, I control what affect I allow the cancer to have on me.
The first cancer diagnosis I received, the first thing I thought was that I would not see my grandkids grow up, so your own mortality does come to mind, that is normal, but you just can't let it control your every thought. You will have many feelings: anger, sadness, despair, etc...all normal, journal them it will help.
Leo Buscgalia said...Worry never robs tomorrow of its sorrow...it only saps today of its joy", he is a motivational speaker.
It sounds like you are in very capable hands. Write down all your questions for doc, take someone with you as an extra set of eyes and ears, and talk to nurses about your fears and questions,I have found them to be a wealth of info and compassion. I wish the best to you I will be thinking of you and I pray every day for those facing the uncertain, let us know how you are doing.

Starchild61

purpleluva20 said:

Just found out (VIN III)
I just found out that I have VIN 111 and Im waiting to make my first appointment with the onco-gyne I was referred to, to discuss treatment options and such. I have been doing my research. I was wondering how you procedure turned out?

VIN111
Hello I was diagnozed VIN111 And on March 5th 2012 I will have Wide Excision Surgery done, I can't wait to have this done, the itching drives me crazy.. I know it is going to hurt, did you have your Procedure done? if so how was the turn out?

katmel615

Starchild61 said:

VIN111
Hello I was diagnozed VIN111 And on March 5th 2012 I will have Wide Excision Surgery done, I can't wait to have this done, the itching drives me crazy.. I know it is going to hurt, did you have your Procedure done? if so how was the turn out?

VIN III surgery
Hi,

I don't know if you have had the surgery yet but I thought I would reply any way.

I had surgery for VIN III on March 2, 2012. I had 2 wide local excisions and 1 laser removal. You know, everyone experiences pain differently. I didn't start feeling any irritation until March 7th and I fully expected the worst. They prescribed 600mg of Ibuprofen along with a nausea drug; they also prescribed Vicadin & a stool softener, and a miracle cream called Silvadene. I only took the Ibuprofen & nausea drug for 2 days and didn't use the Vicadin at all and I use the silvadene a lot"

The best advice I can give you is the fully prepare yourself before going. I did this by putting a basket in the bathroom with supplies: a squirt bottle fill with a antiseptic-like solution; tons of rubber gloves; the Silvadene cream (you need rx for this); Witch Hazel; Epsom salts; the softest washcloth I could find, and finally, a big box of 3 x 3 gauze pads.

I got the gauze pads because I had no idea how I was going to urinate without screaming from the burn. So I put on the rubber gloves and gently place them on the sites to kind of get out of the way of urine stream. While on the toilet I used the squirt bottle to rinse off. Then I applied the Silvadene cream to the laser spot and witch's hazel to the 2 sites with stitches.

Some times I would "air dry" under a nightgown and once the cream absorbed a bit I would use a Stayfree thick pad without wings with a large pair of undies. Don't wear anything you care about because you may get blood and/or cream on it. I laid a towel on my bed and at night slept with no pad or undies but kind of draped a super soft men's undershirt like a diaper.

The other thing I did was buy a hand held Water Pik shower nozzle. I rinse off in the shower with warm water using a gentle stream a couple of times for sanitary reasons. It's also good to use after a bowel movement after using a baby wipe.

Sitz baths you can do like 3 times a day for 10 mins each. Use 2 tablespoons in half tub of warm water. You don't want to use a towel to dry... Use a blow dryer on cool temp at low speed...keep at safe distance so you don't irritate.

That spray bottle solution for cleaning yourself: boil 1 quart of water with 1 full tablespoon of table salt. After it boils LET IT COOL completely and then pour in squirt bottle. I did this the day before surgery and kept in Tupperware pitcher and left on my counter. You would think the salt would sting but for me it did not.

Sorry this is so long but I wanted to share what worked for me & if it helps you or anyone else, that is great! Best wishes and don't rush yourself to heal. I haven't gotten dressed in a week .

katmel615

Starchild61 said:

VIN111
Hello I was diagnozed VIN111 And on March 5th 2012 I will have Wide Excision Surgery done, I can't wait to have this done, the itching drives me crazy.. I know it is going to hurt, did you have your Procedure done? if so how was the turn out?

Sorry I am an idiot as I just saw that you had surgery March 5th. So sorry... I just joined the CSN today. How are you doing?

macp86

mziegle said:

I was recently diagnosed with VIN 111. I had gone to my PCP with a small growth directly beneath my vaginal opening. She wasn't worried about it, but didn't know what it was and sent me to my gynecologist for removal. On Monday it was biopsied, and today the results came back.

My gynecologist then did a colposcopy, where she said that the lesion is actually bigger than can be seen with the naked eye, and that there is probably an area of VIN 1 and 2 around it. She also found smaller areas of what is likely VIN 1 and 2 extending up my vulva. I have a gyn/oncology appointment on Wednesday for another colposcopy with surgery and laser therapy thereafter.

I am scared to death. My gyno says there's a possibility that the large lesion has already progressed to cancer since it is bigger than can be seen with the eye. I am 35, a healthy non-smoker, and have been married for six years. I truly don't know what to do--she said to expect to be out of work for two to four weeks. I am the sole provider for my husband and myself. Does anyone know what the likelihood is that this has already become cancer? And that it has spread to my lymph nodes? The lesion is small, and hasn't appeared to grow in months. I thought at first it was just a tear based on the location. I had no idea it was something to worry about, but I am feeling tonight like I should be writing my will.

I had a very similar
I had a very similar experience.I had a small lesion "pop" up in July(when I was 5 months pregnant). I thought it as just a cyst that would go way. When it was still there before delivery in November, I showed my gyn who said she thought it was nothing and we would remove it during delivery. When it came back it was VIN 3, no evidence of invasive carcinoma. I was scared, depressed and confused...along with going through post pregnancy issues. The lesion that popped up also never grew and was teh same size when I delivered-thank god! I associate this to it not spreading. It was about the size of a pea and when I went in for my PP 6 week checkup, my doctor said it probably would not have been cancer for another year. So I know it takes awhile for it to turn in to cancer.If it hasnt grown I wouldnt be as concerned and if it hasnt been there very long I do not think it will be cancer that quick.

hope this helps.

Jan_2012

macp86 said:

I had a very similar
I had a very similar experience.I had a small lesion "pop" up in July(when I was 5 months pregnant). I thought it as just a cyst that would go way. When it was still there before delivery in November, I showed my gyn who said she thought it was nothing and we would remove it during delivery. When it came back it was VIN 3, no evidence of invasive carcinoma. I was scared, depressed and confused...along with going through post pregnancy issues. The lesion that popped up also never grew and was teh same size when I delivered-thank god! I associate this to it not spreading. It was about the size of a pea and when I went in for my PP 6 week checkup, my doctor said it probably would not have been cancer for another year. So I know it takes awhile for it to turn in to cancer.If it hasnt grown I wouldnt be as concerned and if it hasnt been there very long I do not think it will be cancer that quick.

hope this helps.

Diagnosied with Vin111 and Vin11 on March 8th, 2012
Hi,
I wasn't sure how to start a new post, so I went on a reply...I was dignoised with Vin11 and Vin 111..I have my first consultation this thursday...I'm pertrified! I have NEVER heard of vulva cancer..however at this stage mine is "pre" cancerous...but still..I read all your post and most sound really positive.....so, I'm hoping to have a good outcome and will post after this Thursday and let you know what type surgery I will have IF they can tell me on the day of the consultation..this is ALL new to me and I am very very scared right now!!!
thanks for letting me vent..

Jan_2012

Jan_2012 said:

Diagnosied with Vin111 and Vin11 on March 8th, 2012
Hi,
I wasn't sure how to start a new post, so I went on a reply...I was dignoised with Vin11 and Vin 111..I have my first consultation this thursday...I'm pertrified! I have NEVER heard of vulva cancer..however at this stage mine is "pre" cancerous...but still..I read all your post and most sound really positive.....so, I'm hoping to have a good outcome and will post after this Thursday and let you know what type surgery I will have IF they can tell me on the day of the consultation..this is ALL new to me and I am very very scared right now!!!
thanks for letting me vent..

So Nervous!!!
Well the 12th is almost here and I don't know what to expect on my first consultation visit..I'm a nervous wreck! I know what I'm suppose to bring, as in med's, paperwork stuff.......can anyone shed some light on your very first onocologist appt..I'm seeing an MD Thursday...
thanks

lareyna111

Jan_2012 said:

So Nervous!!!
Well the 12th is almost here and I don't know what to expect on my first consultation visit..I'm a nervous wreck! I know what I'm suppose to bring, as in med's, paperwork stuff.......can anyone shed some light on your very first onocologist appt..I'm seeing an MD Thursday...
thanks

Good Luck . . .
I was just diagnosed on April 6, 2012 . . . . I have all the same fears and concerns you do. Please let me know how it went today, I am thinking of you . . .

Jan_2012

lareyna111 said:

Good Luck . . .
I was just diagnosed on April 6, 2012 . . . . I have all the same fears and concerns you do. Please let me know how it went today, I am thinking of you . . .

The Consultation
Hi lareyna111, thank you for thinking of me..The fears and concerns and the unknown is way worse than the consultation..First they ask all the typical history questions, surgeries, when and so fourth..Then the Doctor looked at the site and then we met in the consultation room, where in my case the Doctor wants to do a partial vulvectomy. I wrote down all my questions..and still have more questions and I want to talk to the Doctor again, after doing research on the internet on a partial vulvectomy..I can have the surgery a week from today, in which I will give her the final answer this Monday to proceed..if no complications, it will be in and out surgery, same day. One thing for sure, the precancer has to go, before it turns into cancer..so, having precancer (dysplasia or Vin111)..well it could certainly have been worse..so, I feel blessed in that area. I will be checking the board daily and will post whats next. lareyna111 if you would like to stay in contact, please email me..we are all in this together..I need the support and I know everyone else does too. I had NEVER heard of a vulvectomy before..I DO think there should be more awareness of this..We are not alone in this..Good luck on your consultation and really my fears were way worse than the consultation..my suggest is; write down everything you want to ask and your concerns..My doctor was very patient and caring.