Has anyone else ever experienced any 'unusual' experiences after, or just prior, to diagnosis?

blueroses

sandybe said:

Blueroses, after posting my last comment I realized something. First of all I have to tell you I am a very positive person. I would never wish cancer upon myself or anyone else. I think the bottom line is that I have lymphoma which has a genetic link. Also I am a nurse that works with cancer patients everyday as well as living with it myself. I think this is what I meant when I stated I just expected it would happen to me. If you don't see it or live with it, it isn't in your mind. When you see it every day and lived it personally it is always in your mind. I don't know if the words can truly express what I am trying to say. I use to word with special needs children as well. This was at the time that I was having my children. My husband wanted a small family, and I wanted a large family. He always considered every healthy child we had a blessing, and was thankful for what we had and did not want to risk more for fear of I guess you would call it the "unknown".

That clears it up
That does make it clearer, seeing that you also work with cancer patients it makes more sense you would have it on your mind. I also had lymphoma,non hodgkins actually, and my grandmother did have it as well about 40 years before me and for her they could do almost nothing seeing she was well into her 70ties when it hit and of course the treatment options were few and far between. I had 40 more years of science laid before me when I got it first back in 1989 and so had a much greater chance at survival. Take care.

sandybe

blueroses said:

Sorry for the misunderstanding
Posting is an imperfect communication form sometimes and I thought you had meant you were in remission for sometime so sorry about that. Glad to hear you have been into visualization for awhile now. The best to you and yours.

Visualization
I think the mind is a very powerful thing. My sister in law does reiki, I'm not sure if I spelled that correctly or not. I also have a friend who who is a spiritual counsellor and he would constantly remind me to visualize the cancer leaving my body at least once a day. If I'm not being too personal, do you mind me asking what you would visualize to get rid of your cancer. My sister in law and friend had two different methods. I use to just visualize it coming out of my body and being sucked into a fire, I wanted it destroyed so it wouldn't go to someone else. My sister in law use to tell me to visualize it going into a ball and then visualize it leaving and getting smaller and smaller.

blueroses

sandybe said:

Visualization
I think the mind is a very powerful thing. My sister in law does reiki, I'm not sure if I spelled that correctly or not. I also have a friend who who is a spiritual counsellor and he would constantly remind me to visualize the cancer leaving my body at least once a day. If I'm not being too personal, do you mind me asking what you would visualize to get rid of your cancer. My sister in law and friend had two different methods. I use to just visualize it coming out of my body and being sucked into a fire, I wanted it destroyed so it wouldn't go to someone else. My sister in law use to tell me to visualize it going into a ball and then visualize it leaving and getting smaller and smaller.

Visualization and the mind
Hi Sandy, I strongly agree that the mind is a very powerful thing and have believed in visualization and reiki, the key word there being believe. I am not saying that the individual methods of relaxation don't work on their own because I believe they absolutely do but just to believe in something like that makes all the difference in the world to the healing process as far as I'm concerned. I don't use visualization right now but did a short time ago when they found a couple of spots on my lung and at that time I visualized a white pulsating cloud of healing move over the spots, one at a time, til the spot absorbed this healing cloud which made the spot grow bigger and bigger til it exploded and disappeared, then I went on in the same fashion to the next spot - same thing. However, visualizations, I believe, are very personal and what ever comes into your mind is what you should use. When I had cancer many years ago I used to see the tumour in my mind's eye and I simply focused on it til 'the force' that I used to infiltrate it (invisible to me in my mind's eye) made it just shrink and only residue was left. Then I visualized a broom coming in and sweeping it all away. Yesterday I had some scarey info from my doc about a specialist she wants me to see because of some symptoms I am having and when her nurse called to tell me who the doc was and when the appointment would take place she said that my doctor had marked 'urgent' on the consult. Oh oh, what does that mean? I usually don't worry about recurrance but this one has me worried, why did she mark 'urgent' on it? My doc's husband was diagnosed with bowel cancer recently and when I told her my symptoms she got a strange look on her face. I don't want to read anything into this but something isn't feeling right. I think it's time for me to visualize a healthy body right about now. All the best Sandy.

CanadaSue

blueroses said:

Visualization and the mind
Hi Sandy, I strongly agree that the mind is a very powerful thing and have believed in visualization and reiki, the key word there being believe. I am not saying that the individual methods of relaxation don't work on their own because I believe they absolutely do but just to believe in something like that makes all the difference in the world to the healing process as far as I'm concerned. I don't use visualization right now but did a short time ago when they found a couple of spots on my lung and at that time I visualized a white pulsating cloud of healing move over the spots, one at a time, til the spot absorbed this healing cloud which made the spot grow bigger and bigger til it exploded and disappeared, then I went on in the same fashion to the next spot - same thing. However, visualizations, I believe, are very personal and what ever comes into your mind is what you should use. When I had cancer many years ago I used to see the tumour in my mind's eye and I simply focused on it til 'the force' that I used to infiltrate it (invisible to me in my mind's eye) made it just shrink and only residue was left. Then I visualized a broom coming in and sweeping it all away. Yesterday I had some scarey info from my doc about a specialist she wants me to see because of some symptoms I am having and when her nurse called to tell me who the doc was and when the appointment would take place she said that my doctor had marked 'urgent' on the consult. Oh oh, what does that mean? I usually don't worry about recurrance but this one has me worried, why did she mark 'urgent' on it? My doc's husband was diagnosed with bowel cancer recently and when I told her my symptoms she got a strange look on her face. I don't want to read anything into this but something isn't feeling right. I think it's time for me to visualize a healthy body right about now. All the best Sandy.

Specialist
Hi,

Has your doctor told you she has refered you to a cancer doctor? Or to a different specialist?

No use borrowing trouble if it is not there, I say.


Hugs,

Sue

blueroses

CanadaSue said:

Specialist
Hi,

Has your doctor told you she has refered you to a cancer doctor? Or to a different specialist?

No use borrowing trouble if it is not there, I say.


Hugs,

Sue

More to the story
I couldn't relate the whole story as it would have taken forever so for the sake of the person I was responding to I left out some things that didn't alter things in that posting, if you get the drift. But the specialist she referred me to was one I had seen before for some symptoms I have been having and the docs husband was diagnosed with a cancer that I know can produce similar symptoms so that is why I am concerned. If there is a cancer there this specialist would deal with it for sure but I am not freaking out or anything, just concerned because I was given an appointment in 2 days, now THAT is urgent, normally these specialists are booking way in advance UNLESS the situation is urgent. So that is why I am more worried than if the booking had been in January or something. Anywho, I don't worry needlessly and as a matter of fact if you read my first posting in here I had quite the experience in the hospital during my shtick with a bone marrow transplant that left me totally fearless in recurrance. I can see though where you might have gotten the idea from a previous post, that I might be jumping to conclusions. The sypmptoms I am having are extreme and new which isn't making me any less nervous. We shall see, this is a great doctor I will see so thats the upside. Thanks for your comments. Take care.

CanadaSue

blueroses said:

More to the story
I couldn't relate the whole story as it would have taken forever so for the sake of the person I was responding to I left out some things that didn't alter things in that posting, if you get the drift. But the specialist she referred me to was one I had seen before for some symptoms I have been having and the docs husband was diagnosed with a cancer that I know can produce similar symptoms so that is why I am concerned. If there is a cancer there this specialist would deal with it for sure but I am not freaking out or anything, just concerned because I was given an appointment in 2 days, now THAT is urgent, normally these specialists are booking way in advance UNLESS the situation is urgent. So that is why I am more worried than if the booking had been in January or something. Anywho, I don't worry needlessly and as a matter of fact if you read my first posting in here I had quite the experience in the hospital during my shtick with a bone marrow transplant that left me totally fearless in recurrance. I can see though where you might have gotten the idea from a previous post, that I might be jumping to conclusions. The sypmptoms I am having are extreme and new which isn't making me any less nervous. We shall see, this is a great doctor I will see so thats the upside. Thanks for your comments. Take care.

I Hope
Hi,

I hope everything turns out ok for you!

My husband is on his 2nd reocurrence of colon cancer, and I know what the waiting is like.

My prayers and thoughts are with you!


Hugs,

Sue

Dreamdove

blueroses said:

More to the story
I couldn't relate the whole story as it would have taken forever so for the sake of the person I was responding to I left out some things that didn't alter things in that posting, if you get the drift. But the specialist she referred me to was one I had seen before for some symptoms I have been having and the docs husband was diagnosed with a cancer that I know can produce similar symptoms so that is why I am concerned. If there is a cancer there this specialist would deal with it for sure but I am not freaking out or anything, just concerned because I was given an appointment in 2 days, now THAT is urgent, normally these specialists are booking way in advance UNLESS the situation is urgent. So that is why I am more worried than if the booking had been in January or something. Anywho, I don't worry needlessly and as a matter of fact if you read my first posting in here I had quite the experience in the hospital during my shtick with a bone marrow transplant that left me totally fearless in recurrance. I can see though where you might have gotten the idea from a previous post, that I might be jumping to conclusions. The sypmptoms I am having are extreme and new which isn't making me any less nervous. We shall see, this is a great doctor I will see so thats the upside. Thanks for your comments. Take care.

Better to check it out
Blueroses, good luck to you. Of course you are going to be concerned and nervous. Who wouldn't be? Once this is checked out, you will find out one way or another. Which is better than wondering, I feel.

blueroses

CanadaSue said:

I Hope
Hi,

I hope everything turns out ok for you!

My husband is on his 2nd reocurrence of colon cancer, and I know what the waiting is like.

My prayers and thoughts are with you!


Hugs,

Sue

Thanks Sue
Turns out I will be heading off to the appointment tomorrow in the middle of our first snow storm of the winter. I know there is a meaning in that somewhere, something like braving the elements like braving cancer but I am too tired to think it through. lol. Thanks for your kind thoughts and prayers.

Hugs back.

blueroses

Dreamdove said:

Better to check it out
Blueroses, good luck to you. Of course you are going to be concerned and nervous. Who wouldn't be? Once this is checked out, you will find out one way or another. Which is better than wondering, I feel.

Thanks Dream
You're right, it is better to check it out. I was just starting to come out of that major funk I was in because I had such a lot on the go medically already then this hit but I sucked it up and will brave our first winter storm here to find out what the deal is. Luckily I won't be driving. Thanks for the well wishes. Take care.

sandybe

blueroses said:

Thanks Dream
You're right, it is better to check it out. I was just starting to come out of that major funk I was in because I had such a lot on the go medically already then this hit but I sucked it up and will brave our first winter storm here to find out what the deal is. Luckily I won't be driving. Thanks for the well wishes. Take care.

Good luck
Good luck to you Blueroses and let us know how you make out.

I will be thinking of you.

Best Wishes,
Sandy

blueroses

sandybe said:

Good luck
Good luck to you Blueroses and let us know how you make out.

I will be thinking of you.

Best Wishes,
Sandy

Tiny bit of sleep before the big appointment today, sigh
Hi Sandy, Thanks for your kind wishes regarding my appt today. It just blows me away how kind and understanding everyone is on here, just terrific. Of course for the first time in many weeks I had the worst sleep ever. I'm sure the appt was on my mind but even for that it was maybe 2 hours I got, sheesh. Trying to figure out what meds to take early to help me through the long trip to the appt. (some of you probably know how that goes). Remember the days when we could just jump out of bed (jumping days definitely over for me, lol) and just throw something on, do our makeup and hair, the whole shebang and now it's like whatever just get me there with no debillitating symptoms. I have heart arthhymia that can stop a day in its tracks as well as the physical problem that has developed that can prove embarassing during a long car ride, hence my appt with that specialist today. Got up at 6:20 am to a white city of snow, first big snowfall of the season, so that was pretty. Early rush hour today. Just having breakie and coffee and trying to figure out my next bunch of pills, when to take them to get the most mileage out of them for the trip. Sheeesh, you would think I was going overseas the way I have to plan it out, I know many of you totally get this part of after effects. By the time we are ready to go we are ready to go back to bed, takes so much out of us. Anywho I know I am not alone in all this preamble to an appointment and hopefully it will all go without incident. Please excuse any typos, it's early. Talk to you when I get back. Ho ho ho, out into the snow I go.

blueroses

blueroses said:

Tiny bit of sleep before the big appointment today, sigh
Hi Sandy, Thanks for your kind wishes regarding my appt today. It just blows me away how kind and understanding everyone is on here, just terrific. Of course for the first time in many weeks I had the worst sleep ever. I'm sure the appt was on my mind but even for that it was maybe 2 hours I got, sheesh. Trying to figure out what meds to take early to help me through the long trip to the appt. (some of you probably know how that goes). Remember the days when we could just jump out of bed (jumping days definitely over for me, lol) and just throw something on, do our makeup and hair, the whole shebang and now it's like whatever just get me there with no debillitating symptoms. I have heart arthhymia that can stop a day in its tracks as well as the physical problem that has developed that can prove embarassing during a long car ride, hence my appt with that specialist today. Got up at 6:20 am to a white city of snow, first big snowfall of the season, so that was pretty. Early rush hour today. Just having breakie and coffee and trying to figure out my next bunch of pills, when to take them to get the most mileage out of them for the trip. Sheeesh, you would think I was going overseas the way I have to plan it out, I know many of you totally get this part of after effects. By the time we are ready to go we are ready to go back to bed, takes so much out of us. Anywho I know I am not alone in all this preamble to an appointment and hopefully it will all go without incident. Please excuse any typos, it's early. Talk to you when I get back. Ho ho ho, out into the snow I go.

Back from the Doctor
I made it back in the snow, it really wasn't as bad as they had thought so that was good. The Doctor, who I knew from years back, examined me and said he didn't think there was anything to be worried about but to be sure we would need to do a couple of invasive tests, sort of like two different types of colonoscopies - one a sigmoid one (lower) spelling is wrong but I'm too tired to look it up, lol, and the other one a barium one - icky. Anywho after those he said we will have a good idea what the deal is and he wants me to go ahead with another sample test from my GP that i just do at home. So this will be a long dragged out testing process but he said that he didn't see any signs immediately to panic over, so for now that's good. Will do the at home thing first, have to buy some special food so that will take a couple of days to set up then 4 days of testing then that's it for that one. I am not going to think about them, just one after another and Done. I see a nap in my immediate future, I was up so early. Thanks again for all your well wishes you guys, I truly do appreciate it and could feel the support as I left for the appointment. Hugs to you all.

TereB

blueroses said:

Back from the Doctor
I made it back in the snow, it really wasn't as bad as they had thought so that was good. The Doctor, who I knew from years back, examined me and said he didn't think there was anything to be worried about but to be sure we would need to do a couple of invasive tests, sort of like two different types of colonoscopies - one a sigmoid one (lower) spelling is wrong but I'm too tired to look it up, lol, and the other one a barium one - icky. Anywho after those he said we will have a good idea what the deal is and he wants me to go ahead with another sample test from my GP that i just do at home. So this will be a long dragged out testing process but he said that he didn't see any signs immediately to panic over, so for now that's good. Will do the at home thing first, have to buy some special food so that will take a couple of days to set up then 4 days of testing then that's it for that one. I am not going to think about them, just one after another and Done. I see a nap in my immediate future, I was up so early. Thanks again for all your well wishes you guys, I truly do appreciate it and could feel the support as I left for the appointment. Hugs to you all.

Happy for you
I am very happy for you bluerose. Happy that the doctor doesn't think there is something very bad going on with your body. I hope you had a very restful nap.

By the way, I always get nervous before follow-up tests and visits to the oncologist and can't sleep the night before. My onc gave me a prescription for pills that help me sleep. Can't remember the name right now since I very seldom use them but they work. Check with your doctor.

Tere

blueroses

TereB said:

Happy for you
I am very happy for you bluerose. Happy that the doctor doesn't think there is something very bad going on with your body. I hope you had a very restful nap.

By the way, I always get nervous before follow-up tests and visits to the oncologist and can't sleep the night before. My onc gave me a prescription for pills that help me sleep. Can't remember the name right now since I very seldom use them but they work. Check with your doctor.

Tere

Thanks Tere
Thanks for the good wishes but I am not out of the woods yet, still need a few more exploratory tests but for now I will take 'it looks fine'. Actually before I signed on I was just thinking about cancelling the pieces of tests and just do the one big one instead but this doctor isn't doing the bigger procedure anymore and it's him that I trust. I just don't want to go through 2 possibly 3 tests if I can just do the one. I am calling him tomorrow and discuss this option. I have become very sqeemish with invasive tests as I have had so many over the years, as many on here have, and so getting ready for just one works better for me I think. It will be anxiety ridden before the test but I have meds to help. Thanks again for the good wishes. So far so good anywho. He didn't see anything glaring.

CanadaSue

blueroses said:

Thanks Tere
Thanks for the good wishes but I am not out of the woods yet, still need a few more exploratory tests but for now I will take 'it looks fine'. Actually before I signed on I was just thinking about cancelling the pieces of tests and just do the one big one instead but this doctor isn't doing the bigger procedure anymore and it's him that I trust. I just don't want to go through 2 possibly 3 tests if I can just do the one. I am calling him tomorrow and discuss this option. I have become very sqeemish with invasive tests as I have had so many over the years, as many on here have, and so getting ready for just one works better for me I think. It will be anxiety ridden before the test but I have meds to help. Thanks again for the good wishes. So far so good anywho. He didn't see anything glaring.

Tests
Blue,

Have you done your tests yet? Did they find anything?


Hugs,

Sue

blueroses

CanadaSue said:

Tests
Blue,

Have you done your tests yet? Did they find anything?


Hugs,

Sue

Hey Sue
Long time no yap eh? lol. No I have not had any more tests done yet, that doctor who couldn't do the colonoscopy never did call back to discuss options but since he isn't doing them anymore may as well just look for someone else to do it. I was going to get my family doctor on that but she had to cancel our Nov appt so I couldn't talk to her about it, will be seeing her on the 28th of this month so will ask her then and set it up. I am still having again off again hastles with my bowels, sure is scarey when you go out so have to be 'prepared' each time I venture out for any length of time.

I just got back from a cardiology appt. and he wants another echo done of my heart (damaged during chemo) so that is scheduled for next week actually. I don't mind that test - you just lay there and they do the scan like an ultrasound. No prep or anything. Had some new weird senses in and around my heart recently - just as if my heart actually hurts which is odd so I think they want to have a look and see if they can figure out why.

How have you been?

bluerose

These experiences could have happened at any point in thejourney
Just thought I would repost this old subject to see if anyone new has had an similar experiences. I find this kind of thing fascinating and it happens a fair amount.

Feel free to share if you or someone you know has had similar things happen to them. Blessings, Bluerose

Unknown

This comment has been removed by the Moderator

bluerose

unknown said:

This comment has been removed by the Moderator

Wow that is an amazing experience
The first time I clicked on this subject I created your post did not come up but your name was so creative that I tried again to click on the subject to see if your post would show up again and this time it did, strange to happen considering the subject matter. lol.

What a fabulous experience to have had, I am sure it gave you a sense of real healing and nurturing. My experience did the very same thing plus that message of 'it will never return'. When you said you felt so much love and was filled with the white light I flashed back to my experience that felt very similar to that. I loved the way you said that it 'scooped my soul' that was a lovely way of putting.

These experiences do happen and I think to many more people than those of us who admit it but I think it's important to achknowledge these things for our own good but also to allow others to open up and feel safe about talking about their unusual experiences during the cancer journey. No matter what your belief system it seems to happen across the board with no prejudice to race color creed or religious beliefs and that is something to share.

Thank you so much for sharing your experience. The way you described it I could just see the scene of those wings enveloping you. Wonderful.


Blessings always, Bluerose

dixiegirl

bluerose said:

Wow that is an amazing experience
The first time I clicked on this subject I created your post did not come up but your name was so creative that I tried again to click on the subject to see if your post would show up again and this time it did, strange to happen considering the subject matter. lol.

What a fabulous experience to have had, I am sure it gave you a sense of real healing and nurturing. My experience did the very same thing plus that message of 'it will never return'. When you said you felt so much love and was filled with the white light I flashed back to my experience that felt very similar to that. I loved the way you said that it 'scooped my soul' that was a lovely way of putting.

These experiences do happen and I think to many more people than those of us who admit it but I think it's important to achknowledge these things for our own good but also to allow others to open up and feel safe about talking about their unusual experiences during the cancer journey. No matter what your belief system it seems to happen across the board with no prejudice to race color creed or religious beliefs and that is something to share.

Thank you so much for sharing your experience. The way you described it I could just see the scene of those wings enveloping you. Wonderful.


Blessings always, Bluerose

Amazing feelings
Wow, what a wonderful topic!

I haven't felt anything like you describe, however every time (working on 3rd time around here) my mom who died when I was 15 (30 years ago) comes to visit me or get my attention.
The first time she'd slam doors in my house when none were closed. Of course as a 15 year old pain in the butt she'd slam my bedroom door to remind me to clean my room LOL. When I hear crashes that can't be explained, I pay attention to my body and so far, they've been right.

So, I know someone is watching over me and does what's necessry to "get my attention" and I am very grateful. Thank you so much for this wonderful amazing topic! I DO believe.

Thank you,
Beth