The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

biopsy

ron50
ron50 CSN Member Posts: 1,723 Member
edited March 2014 in Colorectal Cancer #1
G'day everyone,
Well I have managed to get into a kidney specialist. He is doing a kidney biopsy at 12.30 tomorrow. Iam hoping that the biopsy will show some form of nephritis. The Doctor is fairly certain that it is amyloidosis. The tests are conclusive ,the biopsy is stained with congo red dye and if it floureces green they are amloid proteins. There is no cure for amyloidosis and the treatment consists of harvesting T cells from my blood followed by intensive chemo then a T cell transplant. Apparently a lot of patients don't make it thru the chemo or transplant. If you do it may buy you a couple of years at best. There is no way of removing the amyloid proteins , they are like nuclear waste and don't break down they instead occupy any available space in your organs. It really is not high on the list of diseases I want to have.
I will know for sure by the end of the week.
Fingers crossed,Ron.
Like Care

Comments

  • PGLGreg
    PGLGreg CSN Member Posts: 731
    #2
    Let it be nephritis. Good luck and my fingers are crossed.
    -Greg
    Like Care
  • pamness
    pamness CSN Member Posts: 524 Member
    #3
    I will send my hopes and prayers that you get a diagnosis of nephritis or something easy to deal with.

    Pam
    Like Care
  • taraHK
    taraHK CSN Member Posts: 1,952 Member
    #4
    My fingers are crossed, and everything else, too. Sending all best wishes your way for the best possible outcome here -- Please let us know when you are able to.
    Tara
    Like Care
  • crazylady
    crazylady CSN Member Posts: 543 Member
    #5
    Hi Ron,
    Sending positive thoughts and best wishes that the biopsy turns out the way you want it to.
    Take care,
    Jamie
    Like Care
  • Faith4Cure
    Faith4Cure CSN Member Posts: 405 Member
    #6
    I'm sending prayers and good thoughts your way, Ron. Stay positive and keep us updated.

    Faith
    Like Care
  • valeriec
    valeriec CSN Member Posts: 348 Member
    #7
    Fingers, toes, eyes....everything I can cross will be crossed. Sending good thoughts your way.
    Val
    Like Care
  • sladich
    sladich CSN Member Posts: 429 Member
    #8
    Hoping for the best outcome for you. Sending good vibes your way.

    Debbie
    Like Care
  • betina61
    betina61 CSN Member Posts: 642 Member
    #9
    Hoping and praying for you,that it will be nephritis, and you will come out of this bump in the road one more time.
    Like Care
  • Monicaemilia
    Monicaemilia CSN Member Posts: 455 Member
    #10
    Ron: You came out on top before, and you will again. If your battle with cancer taught you anything, it is that you should not pay a lot of attention to statistics. Meanwhile, I will be praying for great biopsy results. Monica
    Like Care
  • Unknown
    Unknown
    #11
    This comment has been removed by the Moderator
    Like Care
  • jsabol
    jsabol CSN Member Posts: 1,145 Member
    #12
    Glad you got the appointment, now for good news from the biopsy. Many thoughts and prayers streaming your way. Judy
    Like Care
  • rmap59
    rmap59 CSN Member Posts: 266
    #13
    Ron,
    YOu are a fighter. Praying for the best results!!
    Robin
    Like Care
  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    #14
    *crossing everything* Let us know as soon as you can!

    Gail
    Like Care

Discussion Boards