The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Jaw Pain?!?!

jhcnslr
jhcnslr CSN Member Posts: 3
edited March 2014 in Colorectal Cancer #1
My hubby has had 1 FOLFOX4 treatment and has severe Jaw pain, like really bad TMJ. Has anyone experienced this?
Like Care

Comments

  • KathiM
    KathiM CSN Member Posts: 8,027 Member
    #2
    I don't remember much, but you will soon hear from others that have had this...."First bite syndrome".

    Also a sensitivity to cold...

    Hugs to you both....

    Hugs, kathi
    Like Care
  • CAMaura
    CAMaura CSN Member Posts: 719 Member
    #3
    Yep - I had it. Really ached in my jaw. It seemed to be worse for the first four days or so and then decreased...but of course it repeats with each cycle. It is a common side effect. My hope is that someone will chime in with somethng that helped...
    All the best to you and I hope your husband is feeling better...?
    Take care,
    Maura
    Like Care
  • vinny3
    vinny3 CSN Member Posts: 928 Member
    #4
    Very common although I think it didn't bother me as much in later treatments as the first few. I found that clenching my jaw just prior to starting eating seemed to help. The cold sensitivity, especially to cold food or liquids is also very common.

    ****
    Like Care
  • taraHK
    taraHK CSN Member Posts: 1,952 Member
    #5
    Does he just have jaw pain when eating? The "first bite syndrome" is pretty common for those of us undergoing FOLFOX. It's like a painful spasm. For me, it just lasts a second or two, during the first bite or two of a meal. For me, just lasted a couple of days after each treatment. If he is experiencing more general, long-lasting pain, that sounds like something different.
    Like Care
  • jerseysue
    jerseysue CSN Member Posts: 624 Member
    #6
    I'm with the rest of the board only the first bite did I feel something. I'm still only on Avastin and it seems to be happening more frequently again.
    Like Care
  • pink05
    pink05 CSN Member Posts: 550
    #7
    Hi,

    My father had a strange pain in his jaw when he took his first bite of food, but it then went away after the first bite. His onc recommended a calcium supplement. My father complained of it in the beginning of his chemo treatments, but it seemed to go away after awhile.

    -Lee-
    Like Care
  • sladich
    sladich CSN Member Posts: 429 Member
    #8
    I was on Folfox 4 - no jaw pain here.
    Debbie
    Like Care

Discussion Boards