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CLL

ashara
ashara CSN Member Posts: 1
edited March 2014 in Leukemia #1
Does anyone here have CLL? My sister has it and she's looking for a CLL doctor. Unfortunately, she's in Alabama and as far as we've been able to determine, there are no CLL doctors in Alabama.

Ash
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Comments

  • bramble
    bramble CSN Member Posts: 1
    #2
    I don't know what your travel situation might be, but you need to check out MD Anderson hospital in Houston, TX. You can check their web sight or check out Health Talk web sight too. If you would like an 800 number for the hospital, please let me know.
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  • paul219
    paul219 CSN Member Posts: 2 Member
    #3
    It looks like the University of Alabama - Birmingham is a Comprehensive Cancer Center, which is the highest level designated by the NCI. I have no personal knowledge, but I would imagine that they have someone well qualified to help your sister.
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  • joyceann
    joyceann CSN Member Posts: 1
    #4
    bramble said:

    I don't know what your travel situation might be, but you need to check out MD Anderson hospital in Houston, TX. You can check their web sight or check out Health Talk web sight too. If you would like an 800 number for the hospital, please let me know.

    I went to MDAnderson to get my protocol and one treatment. Then I did the next four at Vanderbuilt Cancer Center in Nashville to be nearer to my home. The Dr. at MDA is Wierda and at Vanderbuilt DR. Jagasia.
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  • lockegram
    lockegram CSN Member Posts: 2
    #5
    joyceann said:

    I went to MDAnderson to get my protocol and one treatment. Then I did the next four at Vanderbuilt Cancer Center in Nashville to be nearer to my home. The Dr. at MDA is Wierda and at Vanderbuilt DR. Jagasia.

    I have CLL-been fighting it for four years. Just finished treatments and have been very ill with weakness and no appetite.Has anyone else had this happen to them after chemo. Is is normal?
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  • yourkie
    yourkie CSN Member Posts: 2
    #6
    lockegram said:

    I have CLL-been fighting it for four years. Just finished treatments and have been very ill with weakness and no appetite.Has anyone else had this happen to them after chemo. Is is normal?

    what kind of treatment did they give you? I may have to have treatment in nov. I would like to talk to someone with CLL I was diagnoced Last year.
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  • luzycll
    luzycll CSN Member Posts: 4 Member
    #7
    https://csn.cancer.org/discussion/142079/cll

    You can find help from the CLL Society

    cllsociety.org

    they will help you find a cll specialist and provide a second opinion on treatment choices by a top specialist (free to you, video consultation).

    they also have many webinars on various CLL issues

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  • luzycll
    luzycll CSN Member Posts: 4 Member
    #8

    I see this comment is very old (2004) so this site is not active?

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  • CSNSupportTeam
    CSNSupportTeam admin, CSN Member Posts: 218 Member
    #9

    Hi Luzycll,

    Thanks for joining CSN. This is an older thread, but the forum is active. You may wish to start a new discussion with any questions you may have.

    Welcome to CSN!

    Ken

    CSN Support Team

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