The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Let the games begin....

135

Comments

  • LisaPizza
    LisaPizza CSN Member Posts: 358 Member
    edited July 2020 #42
    Hope you're feeling much

    Hope you're feeling much better by now. 

    Like Care
  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,601 Member
    #43
    CQ, it has been a few days

    CQ, it has been a few days now.  How are you doing?

    Like Care
  • zsazsa1
    zsazsa1 CSN Member Posts: 573 Member
    #44
    So sorry that your vacation

    So sorry that your vacation was ruined.  Hope you're doing better.

     

    Like Care
  • Molly110
    Molly110 CSN Member Posts: 194
    edited July 2020 #45
    CheeseQueen57 said:

    Infection

    So gals, I ended up with an infection through my nephrostomy tube but I think we caught it in time. Of course I'm in OCM so not the best place to be but oh well. Started experiencing fever, 103, oncologist told me to go to ER.  That was Tuesday night. Cultures are not back yet so we don't really know what organism. Had a couple rough nights But I packed my bags sufficiently with my drugs, etc. But it amazes me how the screw with your meds when your in the hospital. I'm trying to not let that happen. Even though the pharmacist was in to talk to me. Not in any incredible amount of pain. But this certainly knocks me off of my well especially established routine. **** happens I guess. Thoughts and prayers appreciated. 

    [Content removed by CSN Support Team.] Thoughts and prayers

    [Content removed by CSN Support Team.] Thoughts and prayers headed your way.

    Like Care
  • CheeseQueen57
    CheeseQueen57 CSN Member Posts: 933 Member
    #46
    Update

    Got home on Sunday. Totally wiped out. On IV antibiotics. Will see new urologist at Penn on Thursday. Hospital experience total horror. Will write more when I feel better. Appreciate thoughts and prayers. 

    Like Care
  • Donna Faye
    Donna Faye CSN Member Posts: 427 Member
    #47
    All my thoughts and prayers

    are yours. Glad you are home,

    Like Care
  • MoeKay
    MoeKay CSN Member Posts: 506 Member
    #48
    Glad You're Home

    I'm really sorry you've been through such an ordeal, Cheese.  Hoping and praying that you fully recover soon.  Good luck at your urologist appointment on Thursday.  Thanks so much for the update. 

    Like Care
  • EZLiving66
    EZLiving66 CSN Member Posts: 1,483 Member
    #49
    CheeseQueen57 said:

    Update

    Got home on Sunday. Totally wiped out. On IV antibiotics. Will see new urologist at Penn on Thursday. Hospital experience total horror. Will write more when I feel better. Appreciate thoughts and prayers. 

    I am so sorry! It seems like

    I am so sorry! It seems like if it wasn't for bad luck you'd have no luck at all. Here's hoping that bad luck changes into "good" REAL SOON!

    Love,

    Eldri

    Like Care
  • jan9wils
    jan9wils CSN Member Posts: 210 Member
    #50
    Sorry I'm late to this. Just

    Sorry I'm late to this. Just getting caught up and see that you've had quite a trial Cheese. I'm sorry the hospital was horrific. Sending positive vibes and a virtual hug your way. Hope you feel better now that you are out of the hospital.

    Jan

    Like Care
  • MAbound
    MAbound CSN Member Posts: 1,176 Member
    #51
    CheeseQueen57 said:

    Update

    Got home on Sunday. Totally wiped out. On IV antibiotics. Will see new urologist at Penn on Thursday. Hospital experience total horror. Will write more when I feel better. Appreciate thoughts and prayers. 

    Crepi!!

    Crepi!!

    Like Care
  • TeddyandBears_Mom
    TeddyandBears_Mom CSN Member Posts: 1,814 Member
    #52
    Thinking of you Cheese. I

    Thinking of you Cheese. I hope you are starting to feel better.

    Love and Hugs,

    Cindi

    Like Care
  • CheeseQueen57
    CheeseQueen57 CSN Member Posts: 933 Member
    #53
    A change of plans

    Well gals, just when you think things are going great, life knocks you on your ****. After a week in the hospital, 1 week of home IV antibiotics, multiple blood transfusions, a belly like a 9 month pregnant woman I finally decided enough is enough and got a CT scan which determined my disease has advanced. Needless to say, I'm heartbroken but not without hope. I will be starting a regimine of immunitherarapy on August 24. I'll keep you posted. Thanks, as always for your support. 

    Like Care
  • Donna Faye
    Donna Faye CSN Member Posts: 427 Member
    edited August 2020 #54
    Not what we were hoping to hear

    Cheese, words are weak in times like these, but I love that you still have your gloves on and still ready to knock out the cancer. I have checked the site daily in hopes you would post as I know you said you would when better.

    Please know you will have all my good thoughts going your way every day! "Strength grows in the moments when you think you cannot go on, but you go on anyway!"

    Like Care
  • barnyardgal
    barnyardgal CSN Member Posts: 272 Member
    #55
    Ugh. I'm sorry. You're a

    Ugh. I'm sorry. You're a fighter and an inspiration to us all. Kick the heck out of this stupid cancer. Hope you feel better.

    Like Care
  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,601 Member
    edited August 2020 #56
    Susan, I am so saddened to

    Susan, I am so saddened to hear this.  Please keep us posted on the immunitherapy plans.  Many hugs and prayers my friend. 

    Like Care
  • MAbound
    MAbound CSN Member Posts: 1,176 Member
    edited August 2020 #57
    Scared

    Cheese, this is so scary to hear! You know we all love you to pieces here and just can't bear the thought of you going through all of this. I'm glad there is a new plan of action and really, really hope this is the one that finally works for you. You've been through so much already, so it's high time that you get an effective treatment that doesn't traumatize you further. Me and God are having a serious conversation about what's going one with you!

    Like Care
  • cmb
    cmb CSN Member Posts: 1,001 Member
    edited August 2020 #58
    Your resilience through all

    Your resilience through all your troubles is truly amazing. So hoping for good results from the immunotherapy for you.

    Like Care
  • BluebirdOne
    BluebirdOne CSN Member Posts: 658
    #59
    CheeseQueen57 said:

    A change of plans

    Well gals, just when you think things are going great, life knocks you on your ****. After a week in the hospital, 1 week of home IV antibiotics, multiple blood transfusions, a belly like a 9 month pregnant woman I finally decided enough is enough and got a CT scan which determined my disease has advanced. Needless to say, I'm heartbroken but not without hope. I will be starting a regimine of immunitherarapy on August 24. I'll keep you posted. Thanks, as always for your support. 

    So sorry to hear this, Cheese

    The news is devastating, but your fighting attitude is what will be the most important thing going forward. Plus being proactive. We are thinking of you, and hoping for some good news about the immunotherapy soon.

    xx00

    Denise 

    Like Care
  • oldbeauty
    oldbeauty CSN Member Posts: 387 Member
    edited August 2020 #60
    Never give up, as you say in your profile!

    Oh dear Cheese, not happy to read this but glad there is a further treatment on offer for you.  Please rest up and enjoy your family and your Covid-nesting.  We all here are 1000% behind you and we will boost your prayers with healing thoughts of our own.  In bocca al lupo!  Best wishes, Oldbeauty

    Like Care
  • ConnieSW
    ConnieSW CSN Member Posts: 1,688 Member
    #61
    It doesn’t seem like

    It's been over 4 years since we met you and cheered for your speedy recovery from surgery so you could make your trip to Italy.  So much has happened since then and you are still hanging in there. What a tough lady.  I have so much respect for you and wish you all the best. 

    Like Care

Discussion Boards