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Prayers please ...... Amy_Jo
 |
Apr 28, 2018 - 10:30 am
I had an open neph on 3/8/18. My pathology showed clear margins. Two weeks later I had another scan which found blood clots in my lung. April 15 I began having excruciating back pain, after report to the ER I was told my scan showed lesions on my spine liver and lungs. I had a pet scan and biopsy of my liver yesterday doctors are confused because my scans prior to my surgery showed no other lesions I was told I was cancer free after my surgery. I start radiation treatment for my back Monday. My oncologist is going to meet with me once my liver biospy results return to determine the plan of attack. It's so frustrating because I had began to feel better and was looking forward to living my life now I'm back to square one. Please pray for my family I am a mother of 4 ages 2,5,13,16. ImI ready to fight for my life - if any of you have any advice please share. Thank you for all your thoughts and prayers so far. I am in NC so far my treatment has been at Forsyth if anyone has suggestions I'm open. At this point my oncologist are sure if my renal cell spread or if this a different cancer. I should know more by Tuesday. |
Joined: Mar 2018
Prayers for both strength and
Prayers for both strength and courage.
Joined: Mar 2017
Hope for speedy answers
Sorry for the new findings. Hope you get quick results for your tests.sending you positive thoughts for you and your loved ones.
Joined: Jul 2017
Big hugs and prayers
Praying hard for you. May God give the doctors the answers needed. And you have a long, blessed, pain free life.
Joined: Jul 2016
Prayers going your way. Keep
Prayers going your way. Keep up the faith and positive thinking Amy.
Joined: Jan 2018
Hope
Amy Jo, I will be praying that you find answers and peace. Being a mother of 4 myself I know you are a fighter.
Can I ask your pathology staging? Was your cancer an aggressive grade?
It must be frustrating and very frightening to be on such a roller coaster right now.
Sending you love and prayers.
Cin
Joined: Aug 2017
i have six children so I
i have six children so I understand. I will keep you in my prayers. Blessing to you.
Joined: Mar 2014
No advice; you're in my
No advice; you're in my thoughts and prayers. I'm sure your doctors will come up with a plan of treatment. Wishing you all the very best!
Joined: Jul 2016
advice
Sorry to hear about your situation, Amy. My only advice is to hold on until your oncologist receives your biopsy and is able to make a plan for you. If you are being cared for by an RCC specialist then he/she will know the plethera of possible routes to take...I'm sure you are in good hands. The other piece of advice I'd give you is to become a member of smart patients. Tell your story to the group. There are a few of those members that are being treated in NC and can give you some pointers.
Wishing the best outcome for you!
Stub
Joined: Jan 2010
Sending good karma
Sending good karma
icemantoo
Joined: Feb 2018
Sending big hugs and positive
Sending big hugs and positive thoughts for you and your family. I'm soo sorry you have to be going through this. Wish I had advice but.. I don't . be strong, with a Mom of 4 kids, I know you are strong!
Stephanie
Joined: Oct 2011
Amy, hold on
I have seen, me included, people who went from the "We got it all" to having 20 mets in only weeks. It seems the mets were always there like seeds. The primary tumor (mother ship) restrains them from growth at this sage. With the primary tumor re moved, the secondary tumors grow un restricted. Bam! out of control.
There is good news. And it worked for me. The tumors exhibited that they were controlled by some chemical signal. It made me a good candidate for both immunotherapies and tki's.I've had to change drugs every so often, but I am working on my 8th year now. It is much better than my summer 2012 life expectancy.
And radiation has done wonders in eliminating bone met pain.
Enter your treatments believing you can do this because so many of us have done it. Pull from our karma.
Joined: Apr 2018
Thank you
I was started on opdivo and yervoy. My attitude is positive even though my energy level is low. I'm still trying to be me and that's an active mom of 4.
Joined: Apr 2018
I wish you well! Sending you
I wish you well! Sending you prayers and positive vibes!
Joined: Oct 2017
Amy Jo
Sending good wishes your way!°
Joined: Sep 2016
Sending you prayer for
Sending you prayer for positive results!
Joined: Feb 2018
Sending good thoughts!!
I hope you're doing ok. Sending hugs and positive thoughts <3
Joined: Aug 2017
Prayers
for you and your family. You can fight it!!
Joined: Oct 2013
Amy Jo we're here for YOU!
Amy Jo we're here for YOU! Know that we'll be along side you if you want while you fight this battle.
I have heard of amazing work using your own DNA, I want to say that identifies and creates an exact treatment for you as an individual.
https://www.sciencedaily.com/releases/2012/04/120401134929.htm
and the one for liver is:
https://www.radiologyinfo.org/en/info.cfm?pg=radioembol
Sending you HEALING HUGS of HOPE and CARE!
Jan
Joined: Nov 2017
More hugs and prayers
Amy Jo may you have peace and less pain this night. Praying for you and your family every day.
Joined: Oct 2014
Praying for you and your
Praying for you and your family
May you have a long cancer free life after treatment
Joined: Mar 2018
More good wishes....Hope you
More good wishes....Hope you are doing ok.
Joined: May 2018
Amy_Jo Prayers for you and your family!
i am a 3 years old mom。we will be all ok
Joined: Sep 2017
Amy_Jo...we are all here with
Amy_Jo...we are all here with you. I am sure once the results are available they will give you the best treatment possible. Fox gave you a great message up there!! Keep on movin forward and living to the fullest my friend xoxo
Joined: May 2018
Prayers!
Praying for you and your family!!
Joined: Nov 2017
Prayers
for healing and for your family. *hugs*
Joined: Mar 2017
Amy_Jo
Prayers that your meds are working...just as foxhd said they could!
Joined: Jul 2018
Prayers for your family and
Prayers for your family and you. Your strength is a great positive, keep it going.
Joined: Jun 2018
Thinking of you and your
Thinking of you and your family.