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Bleeding Update

mrou50
Posts: 389
Joined: Mar 2013

My Onc/Med team have decided to take me off of the Cabo for a couple of weeks, in part because I have oral surgery on Tuesday, and because they are concerned with all of the bleeding.  I have been very ill since switching to Cabo even more so then when I was on Votrient.  I have been considering discontinuing all chemo and just sticking with radiation, and surgeries as needed.  The chemo treatments have made me very ill most of the time and with exception to Votrient nothing has worked, the votrient worked for six months that was nice and worth all of the flu like symptoms that occured everyday.  I know my med team is leaving it up to me I do have a tumor on my remaining kidney so that would have to be worked on right away.  I will make my decision by next week, but I am open to thoughts, or advice.

Mark

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

These are personal decisions Mark.  Only you can decide what is best for you. 

I will be praying for you, as always.  I wish you only the best.

Donna~

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Hey Mark, sorry you are in this dilemma. Perhaps more folks will post and give you their opinion.

I wonder why you are having oral surgery? I guess it must be necessary,otherwise who'd want to go through all that?

Sit quietly, in a serene place that offers you comfort. Just let everything go inside your head (best you can).

Trust your "inner voice" will guide you in this decision. Rest in quietness..

The truth-answer will come to you. After you empty your mind, pow, something or someone will say words that suddenly will make sense. Trust that..best you can.

I am here for you.. all the way

Sending you peaceful moments, with serenity and a knowingness that cannot be missed..

Hugs, jan

mrou50
Posts: 389
Joined: Mar 2013

The oral surgery is just an extraction of a difficult tooth that has began to crumble inside my jaw.  The dentist felt that given my bleeding issues it was best to have an oral surgeon do it that is also an MD. I am okay with this as I get nervous at the dentist so being put to sleep will help me with the stress and having an oral surgeon/MD there in case there is issues with bleeding can put my mind at ease somewhat.

Mark

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

I see. Oral surgery is also a source of infection, to remove it, yet open up the area to bacteria. Be very careful and

follow all post op directions. NOTHING with carbonation, no smoking (don't think you do), no straws, lots of ice. It usually heals up pretty fast (used to work in the dental field).

Hugs to you...dang, enuff!

Jan

mrou50
Posts: 389
Joined: Mar 2013

The procedure went well there was some bleeding but not excessive and I have already began taking anti biotics to avoid infection. I am taking pain pills for the pain and they seem to be working fine.  Thanks to everyone.

Mark

stub1969's picture
stub1969
Posts: 868
Joined: Jul 2016

Hi, Mark.  I can't imagine the wrestling that your emotions are going through.  You have a fighting spirit and strong heart--that is easy to tell by your personal page.  I like to think I too have the internal fortitude that you do, Mark.  At this point in my cancer journey I have not followed the same path as you, so I can only imagine what I would do if I was in your place.  Because of that I agree with the responses  from both Donna and Jan.  Look within yourself to determine the answer.  Pray and ask God to guide you.  If you listen He will answer.

Blessings,

Stub

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I feel for you, and it has to be your decision. I'm not qualified to give advice, I would ask your medical team who are far more qualified than I. Are there any new treatments coming down the line? What are the consequences of you're choices? Are these new surgeries either urgent or necessary?

Good luck. You know we'll all be rooting for you

 

Deanie0916
Posts: 332
Joined: Nov 2016

Praying for you to have guidance to make the decision that fits. Prayers for healing in all ways. God bless.

LauraM3's picture
LauraM3
Posts: 27
Joined: Apr 2016

Prayers and lots of hugs...

Allochka's picture
Allochka
Posts: 929
Joined: Nov 2014

Have you received a second opinion on this? 

todd121's picture
todd121
Posts: 1427
Joined: Dec 2012

I wouldn't/can't assume to know enough to give advice. Perhaps another member can.

Sending you warm wishes and hope you get the help you need to make your decision.

Hugs,

Todd

APny's picture
APny
Posts: 1988
Joined: Mar 2014

No advice, just hugs and wishes for the very best. I'm sure you'll reach the right conclusion; one that is best for you.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Big hugs, thoughts and prayers are coming your way, Mark. You have a lot of decision making ahead of you. Wishing you peace.

Hugs

Jojo

NewDay's picture
NewDay
Posts: 273
Joined: May 2012

I know it is too late to offer this now, but have not been here in a long while.  Many of the drugs for kidney cancer can cause wound healing complications.  Please be sure not to start back on on the cabo too soon and contact your doc if anything seems unusual.  I hope all goes well.  This is on the box warning:

Wound Healing Complications

This medication can lead to slower or incomplete wound healing, such as a surgical wound not healing or staying closed. Therefore, it is recommended that the medication be discontinued 28 days prior to any surgery. In addition, any surgical incision should be fully healed prior to starting or restarting the medication. If you have a surgical wound that has not healed or begins to have signs of infection (redness, swelling, warmth), report this to your healthcare team.

Kathy

 

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

Thinking of you and sending prayers your way.

 

Nancy

mrou50
Posts: 389
Joined: Mar 2013

The oral surgery went well, I have been off the Cabo for almost three weeks now and no more bleeding issues.  My Cancer team want me to start the Cabo back up next week but on  lower dose. I have agreed to this but I told them if I start feeling as sick as I was or start bleeding like I was I will probably go off of it. 

Mark

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Good luck with round two

stub1969's picture
stub1969
Posts: 868
Joined: Jul 2016

Mark, I wish you luck with round two of Cabo.  I'll be saying prayers for you and sendng positive thoughts your way.  Please keep us updated.

Stub

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

May God richly bless you and keep you safe, especially in this beautiful time of year.  You're an inspiration, truly.

Donna~

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Oh Yay Mark!! Glad to hear some good news for you! I meant it!! :)Laughing

Keep in touch, as you can see we CARE about YOU!!

Hugs, Jan

lobbyist0724's picture
lobbyist0724
Posts: 428
Joined: Sep 2016

It is great that you have received the good news before the holiday season, good news is always the best present! Looking forward for more good news from you!

Carmen

mrou50
Posts: 389
Joined: Mar 2013

I get my scans back today to see if the previous CABO worked or not, I still have not started the lower dose because the insurance company is complaining that this is a new dose and they want proof I need it.  I know who I am not putting on my Christmas list this year.

Mark

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Mark, I had a few weeks break form cabo, then a couple at 20mg, and now 2-3 weeks at 40mg. So far so good. I was afraid that I wouldn't be given the drug after getting toxic at 60mg. I don't like how I feel but I can live this way. Like you, I hope I can ride this out for awhile. Here is where the med. mj really helps me. I  become unaware of feeling crappy. Then I can go work in the yard for hours. It is my therapy.

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