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Feb 07, 2015 - 7:58 pm
Well,...Spent this past week in the finast institution in America. Yale New-Haven Smilow cancer hospital. Short story. Near total loss of right arm. 70% loss of left. Clots in arm and lungs. Tumor growth from base of brain to about T-2 down spinal canal. Around some nerve roots. And rt. brachial plexus. Did not expect to be here anymore. Bottom line, Radiation, votrient, steroids, anti co-agulants. First of 10 radiation treatments done. Return as op Monday-fri. for 2 weeks. Fatigue to the nth degree for hours after trying to shower and dress this am. Will post as capable. Not likely to keep up with everyones posts. I apologize. See you toward the other end. Whichever one it is. Fox loves you. |
Joined: Jul 2014
foxhd, really sorry to see
foxhd, really sorry to see this. You are one of my favorite posters on this forum. Thinking positive thoughts for you to get through what's ahead and to come back stronger than ever.
Joined: Dec 2014
Fox
Bloody hell, where did that come from? Hang on in there! I only just discovered this site a few weeks ago and from day one youve been an inspiration. You still are. You know everyone will be rooting for you!
Joined: Oct 2013
WOW Fox, I am so sorry to
WOW Fox, I am so sorry to hear of all this crap you are going through. Glad you could at least find the strength to tell us. I wonder if you are thinking of Ron...just wondering..sigh
Know I am thinking and praying for you. I care, We care! Please know that.
Best you can, keep us informed.
Hugs my sweet man!
Jan
Joined: Jan 2014
Mojo from VA on the way
Hang in there buddy. We have a date to do some pickin' together
Joined: Dec 2014
Praying for strength and
Praying for strength and comfort to come your way.
I'll be praying for all of us tomorrow but I'll be saying an extra one for you.
Joined: Aug 2014
God...Keep fighting, you are
God...Keep fighting, you are such an inspiration for everyone here. So sorry for what's happening to you. Praying you'll get better soon.
Joined: Feb 2014
You are the man.
You've done this before. You will do it again. We are here for you. It's that simple.
We love Fox.
Joined: Oct 2010
We love you Fox!
We love you Fox!
Joined: Oct 2013
Foxy, this is really tough to
Foxy, this is really tough to read. I know you have been going through so much. And with such strength and dignity. I hope you will go through this and become pain free and symptom free along with NED. You will be in my thoughts and prayers, and I know everyone here will be sending their good karma your way!
You have given so much to us....your support, guidance, advice, hope, laughter, friendship....and a little talking to every once in a while.
I always think of you when someone asks me how I am, and when I am not feeling that wonderful....I remember your wise words, and I always put on a smile and answer "GREAT!".
Please know how much you are loved, and may your journey be made a little easier knowing we love and support you and think of you always. You will get through this. I know what a fighter you are. Hoping you will be posting on here again very soon.
Much love - and big hugs
Jojo
Joined: Nov 2014
Hell... Please keep fighting.
Hell... Please keep fighting. You are an inspiration! Don't give up!
Joined: Apr 2014
Bother ***
Love you too Fox!! Your news totally sux. Hang in there.
Heaps of hugs Melissa
Joined: Apr 2013
Wrong Events!!
Fox this is staggering news, 'wrong events' no truer words. I am so sorry to hear what you have been going through. None of us need to remind you to stay strong, when are you not? Just know that we all love you dearly, we will be flooding your life with pure positive Karma from here on. I will keep you at the forefront of my daily prayers.
Forever the gentleman no apologies needed, we don't expect responses from you, just worry about yourself and getting better. We will keep in touch with you, take care!
Love you Foxie
Djinnie X
Joined: Apr 2014
dammit
Wishing you all the best
Joined: Dec 2014
God bless you with strength
God bless you with strength and comfort.
You're in my prayers.
Joined: Nov 2011
So Sorry
Have follwed you since the begining of my journey you have always inspired me this is serious i will be praying for you.
Joined: May 2012
Shocked...sending you good vibes...
I am sending you all the good vibes I can muster.
Joined: Mar 2014
Fox, you’re one of my heroes
Fox, you’re one of my heroes and greatest inspiration for this board. I’m so sorry you’re going through this; I can’t describe how awful I feel for you. You’re one the greatest encouragers and positive thinkers on this board and this really sucks. No other word for it. I’m keeping my fingers crossed for you that all the treatments prescribed will work their magic. Karma will surely reflect back upon you. If anyone deserves good Karma it’s you.
Joined: Jan 2010
What can I say?
Fox,
You were always there for the tough cases. I only tackled the easy ones.
Keep it up as long as you can.
Icemantoo
Joined: Dec 2013
Sorry
DAMN! DAMN! DAMN!
sending good thoughts
Sarah
Joined: Jun 2013
love you too
DARN CANCER, You are a trail blaizer Fox! Thank you for being who you are brother, praying for you my man!
Joined: Apr 2014
Prayers
To you.
Wish there was something more I could do.
Hugs,
Laurie
Joined: Jan 2015
Fox.......wishing you the
Fox.......wishing you the best and sending you positive thoughts and prayers. Jenny
Joined: Oct 2012
Wrong indeed!
Sheesh Fox. I am so very sorry to hear this. This is such a diabolical disease. I am speechless.
Joined: Oct 2011
I'll be ok if I
stay away from Bruce Jenner.
Joined: Oct 2013
Aahh.. the sense of humor is
Aahh.. the sense of humor is working extraordinarily well I see!
Keep is up Foxie!!!
Hugs, Jan
Joined: Oct 2011
Will try
Jan. Thanks.
Joined: Oct 2011
Will try
Jan. Thanks. i'll have to dig deep.
Joined: Oct 2013
Fox, as you can see, WE all
Fox, as you can see, WE all love and care so much about you!
So now the CSN troops (and others I am sure) are your posse!
Let us hold you up, guide you, by taking our strength to keep you going.
Breathe in such kindness, love and care! When you cannot keep on keeping on, Fox,
see how far we, the troops will support you and hold you up!!!
Hugs, Jan
Joined: Dec 2014
Thinking of you
Hope things are working out for you. You are missed on this board. You inspire hope and strength, so here's some karma straight back at ya!
Joined: Dec 2013
Radiation
Fox:
will you be getting the high dose radiation? This should give you some much-needed pain relief.
The loss of strength in your arms really sucks; is this expected to improve? And, as far as the votrient, it is looking like after having the IL2, these drugs work well. Thatch is having some good results with it.
Sarah
Joined: Oct 2011
Sahah Yes!
That is the best news I'm hearing! I'll have to pick my caregivers brains.
Thanks.
Joined: Dec 2014
Said extra prayers for you
Said extra prayers for you today in church.
God bless!
Joined: Sep 2014
We love you too Fox.
When I first logged onto this forum last August I was feeling pretty low. I had just been diagnosed with stage 4 kidney cancer. One of the first to greet me was the Fox. He gave me some much needed hope and encouragement both publicly and privately. I don't know what I would have done without his support. It hurts to hear what he is going through now but I know that that he is not one to back down from a fight. I thank you for everything you did for me and wish you nothing but the best as we battle this monster. Kick butt.
firedude21
Joined: Oct 2014
Wishing you well Fox.....
Wishing you well Fox.....
Joined: Feb 2012
Well, goodness, Fox
I haven't been on the boards lately, but when I do come on, I always look for you, Fox. No, I'm not a stalker, it's just that like everyone else here I think of you as our very own Action Figure in the fight against cancer so I look for your inspirational posts. So sorry to hear of the turn of events, but if anyone can get through this, YOU can. During this difficult time try to do more of what makes you happy, like watching long movies while sipping milk shakes (or margaritas!) with a straw.
Fox, the rest of us many not be able to stop the downpour, but we'll sure be with you to walk in the rain! And remember, one step backward just means you're doing the cha-cha.
Hugs,
Linda
Joined: Feb 2013
Speechless
I have no words to express the shock when I read this. I'm so pissed at cancer! You're the strongest person on this board and if anyone can kick cancer's *** it's The Fox! I'm praying for you.
Joined: Nov 2014
love to you
sending hugs and love to you x
Joined: Aug 2012
Bad turn of events
Just sign into CSN - I just feel like I have been kicked in the gut. This really, really sucks!
Wishing you the best Fox. If it’s worth mentioning I was on Votrient for almost 2 ½ years with very good results. I would just like you to know that your success with BMS-936558/Nivolumab and IL-2 inspired me to really push my oncologist hard to search for a PD-1 clinical trial for me. Thanks to you, I am now in a clinical trial with of Keytruda/ Pembrolizumab in combination with an investigational drug INCB24360. It would not have happened without the encouragement I felt by reading your posts Fox. I would just like to say that you have been a true inspiration to all of us on CSN. Fox, I am not a praying man but I will seriously be praying for you. Hoping for the absolute best for you man. - BDS
Joined: Feb 2013
Just like before, you will
Just like before, you will get through this as well Fox.
Joined: Feb 2014
Fox, It's like those cheesy
Fox,
It's like those cheesy horror movies where the bad guy makes one last attempt to get the hero...
Go ahead and finish him off for good.
Joined: Feb 2009
As they say at Oregon State University...
Dam Cancer. The mascot is the beaver.
Somehow, I sensed something was happening in CT, but not what I wanted or expected. You absolutely know that my thoughts, prayers, and hugs are being sent thru ice and snow and rain to reach you.
Luv, Donna
Joined: Sep 2014
So sorry
Fox, I am so sorry to read this. You, as others have stated, were one of the first to post when I joined. I am sending up prayers for you and hoping you can continue to fight the good fight for a while longer.
Debbie
Joined: Mar 2012
Fox.. I knew something wasn't
Fox.. I knew something wasn't right because I didn't see you on here much. I am so sorry to hear all of this happening. What are they doing for the brain stem met, besides radiation? I know you are tough and I know you will come through this too! Praying for you and for your strength and recovery. Any idea why they have you on blood thinners and you still have clots? I hate this darn disease. I find it so unreal that with all the research and technology, they still don't have a cure. I can't grasp that! In any case, i am constantly thinking of you! I hope you do well with the Votrient, keep an eye on the blood pressure. What level did they start you at? I would suggest the lower the dose the better. Maybe 400 mgs, but i know they always start and the top and taper you down.
Now, this thing about Bruce Jenner.. are you staying away because he seems to be a bad driver, or is it because he wears pink lipstick? I applaud you for deciding on that route! Feel better! Hugs and love! XXOO
Angela
Joined: Nov 2011
Thinking of you
Fox,
You and I started on here about the same time, late 2011. You're in my thoughts and prayers. Keep fighting.
David
Joined: Nov 2013
I read your post Fox on the
I read your post Fox on the 7th, and have had you on my mind ever since. I was completely surprised and at a loss for words. I think if anyone can beat this thing, it is you. You and your wife will be in my thoughts and prayers. I was thinking that you are blessed in that you have always had great confidence and faith in the folks that are currently treating you. it's a good place to be mentally and physically, to have that kind of faith in your team. Thankyou for writing to all of us at csn. You are definetly well loved and respected. Good luck with your treatment. annie
Joined: Jul 2012
Always checking on you
Hi Fox,
I am always checking in on everyone on the CSN . I know you are in a real fight right now but this is not the first time you've beaten the odds. Please know we are all praying for you and give it all you've got in this fight. You were such an inspiration to my Matt. It's hard to fathom he has been gone 17 months now. I 'm Keeping you at the top of my prayer list. SUZ
Joined: May 2013
PRAYERS FOR YOUR GOOD HEALTH!
THANK YOU FOX for helping me through the roughest part of my life!
Be strong, Love you,
Brenda
Joined: Jun 2013
Thank you Fox
You are in my prayers. I MUST say thank you for all the peace you have brought to me. You may not have always been speaking to me, but more often than not, it felt like you were. You have a special way of reaching out and making me feel like I can also fight a little harder or dig a little deeper.
I will always be greatful for the wisdom you have shared. To this day, I use your "we could all get hit by a bus tomorrow" story.
Be well my friend!
Joined: Jul 2012
dang it!!
So sorry you going through all this . It just needs to stop! YOu have been an inspiration to me from the first time I came on this forum, and I hope it continues for a long time yet. I am praying for you, yes I know you do Karma, but Im going to earnestly pray to my Savior to help you. No disrespect to you whatsoever. I love you and continue to fight fight fight this horrible disease. THinking of you.
Joined: Dec 2012
Not what I wanted to hear or expected
I love you Fox. Sending prayers of healing, and of peace, and good thoughts to you out to the Universe.
Will be thinking of you.
Todd
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