found 3 spots in this mornings pet scan

pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900 Member
edited September 2012 in Colorectal Cancer #1
its been 6 months since the last pet.

3 very small spots one liver, one lung and one spleen.

no feedback from onc's yet, i had the results faxed to my alt gp.

feeling great, i am alive and have a few challenges. possibly more than i bargained for, but it could have been worse.

for the record i have no regrets about my treatments so far, and i look forward to seeing what marvels the conventional system has to offer.

I wish the gcmaf and the seacucumber would have done it, they may help, time will tell.

i have put my alternative accomodation for cancer patients on hold as well as my teaching others qigong. looking at what is the best strategy. when i get my options presented, i will share my plan. until then its off to sleep.

I wish I had better news to share.

i wish the alternatives i have tried so passionately could have delivered a better result, for me , for others, but the race is not over, and the healthy life has been fun and exciting and the next stage of the adventure continues. I will see my three teams of onc next week to see who offers the cheapest price chemo, still favouring the light chemo approach, but i will take all recommendations into consideration before deciding.

i bought a bunch of flowers home to wife, finished work 10.30pm, a big day pet 8am and non stop except for 90 minutes qigong. it really settled my nerves. I gave my son the flowers to give to mum, i like teaching him how to be a gentleman. thats my job. my wife was all smiles. she made me my veg juice when i got home and my organic chicken and veg was waiting for me. i am off vegan and onto ketogenic diet.

my friends many of you have been down this path before, and now so do i. your thoughts and support are always appreciated.

hugs,
Pete

ps not the easiest post to write.

pps http://petertrayhurn.blogspot.com.au/2012/09/8am-pet-today-little-did-i-know-hat-it.html

ppps smile, i am, if my gcmaf and sea cucumber smoothie did not kill me then what chance do a few spots have.
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Comments

  • Maxiecat
    Maxiecat Member Posts: 544 Member
    (((hugs))) Pete...I hope you
    (((hugs))) Pete...I hope you get the answers you need about your spots and a treatment plan that works for you.

    Alex
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Hey Pete
    I'm sorry for your recurrence, Pete...that's always where the really tough battles are fought and waged.

    I know you have banked alot of energies in your alt treatments...I'm sorry you did not find what you were seeking...

    Perhaps, the convergence of the worlds with integrative treatment combined with the traditional western approach will put you back into another clear state.

    I hope so.

    -Craig
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    Sundanceh said:

    Hey Pete
    I'm sorry for your recurrence, Pete...that's always where the really tough battles are fought and waged.

    I know you have banked alot of energies in your alt treatments...I'm sorry you did not find what you were seeking...

    Perhaps, the convergence of the worlds with integrative treatment combined with the traditional western approach will put you back into another clear state.

    I hope so.

    -Craig

    But... Is it cancer or don't know yet?
    Hope the best my friend, keep us informed please about your onc feedback!
    Hugs my friend will pray for u!
  • toyfox
    toyfox Member Posts: 158 Member
    Pete
    Not the news my husband and I were hoping for.
    You have tried everything possible to keep this
    monster from coming back.
    I agree with Craig to try integrative treatment combined with
    traditional western approach.
    Keep on fighting.
    Wishing you the best always
    Many Hugs Linda
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    Not what we wanted to hear
    Pete,

    You have put lots of thought, time and energy into your treatment plan and I know you will continue to do so as you move forward and address those three mets. I am praying that all are operable. I had 5 mets all over my liver and had them all surgically addressed. We have lots of people on this board who have successfully treated lung mets and I know I have read of another that had a spleen met removed.

    We are all pulling for you Pete. I am glad that you are able to concentrate on your family and enjoy time with them while you are kicking cancer's butt at the same time.

    Love to you,
    Amy
  • fatbob2010
    fatbob2010 Member Posts: 467 Member
    Pete
    Pete, I have to just bet that this has been a hard day for you with unwanted news about your scan. You have been very proactive in your battle with this beast. So Sorry to hear about the spots especially in the diverse locations!! However, as you said if the sea cucumber did not do you in then what chance do a few spots have?? Please accept prayers of strength and healing...Art
  • pmac
    pmac Member Posts: 12 Member
    I've been following your posts
    Pete - a 'Jersey' girl here - I've been following many posts on this site, yours in particular. Saw your post eastern time early this a.m. and was anxious for you...just came back to 'check on you' and am sorry for the news...but you're on your way to a new plan - one of which I look forward to reading about!

    One of my best friends was dx in November 2011 with stage 2....resection done in December and now mets to liver discovered in June...2 lesions....she does her last of 4 treatments monday then off to surgery in a month. I have been trying to locate 2behealed by sending message to her, but no response....is there anyway I can get in touch with her??

    Pete - will be sending positive thoughts and prayers to you and everyone on this site.

    Peace
    P
  • tommycat
    tommycat Member Posts: 790 Member
    Hi Pete
    Like Pepe asked, are the spots confirmed as cancer? Will they be biopsied? It's possible they might be something else...I too have spots in my lungs but the Dr seem to think it's some sort of scarring and though they can be seen on a CT, they didn't light up on the PET.
    Before you get too upset/discouraged, let's find out what they are first.
    And if it's cancer, we are all HERE for you, and will help in our diverse ways.
    Hugs~
    Tommycat
  • ketziah35
    ketziah35 Member Posts: 1,145
    Maxiecat said:

    (((hugs))) Pete...I hope you
    (((hugs))) Pete...I hope you get the answers you need about your spots and a treatment plan that works for you.

    Alex

    I am so sorry about your per
    I am so sorry about your per scan results. You have a great attitude and are an insiration to us all!
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    pepebcn said:

    But... Is it cancer or don't know yet?
    Hope the best my friend, keep us informed please about your onc feedback!
    Hugs my friend will pray for u!

    dearest walking pepe
    alas, if it looks like poo, if it smells like poo and if it tastes like poo, well i think we know what it is.

    we are poo experts here, thats our claim to fame.

    so with rising cea, so if it lights up the pet, if those spots suck up sugar, the report seemed conclusive , but i will wait and get the offical take on it. never read a pet report before with anything but the word clear before.

    i will reply to everyones kind comments in the morning, goto slurp down another seaslug smoothie. I am praying more today as well, prayed a bit during the pet. have alook at skinny pete on the pet machine.

    at last the game of hide and seek is over. and the next game can continue.

    hugs,
    Pete
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Scan
    Sorry that your news isn't better on your scan but maybe you should wait for the doctor's comments on it. Wishing you the best outcome and keep your spirit up. You always have a great attitude.

    Kim
  • flyguide
    flyguide Member Posts: 27
    So sorry to hear this
    So sorry to hear this news..another hurdle mental and physical..however I believe it is no hill for a climber of your caliber..sending good energy..sean flyguide
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    batter up
    That sucks. I hope you can get a plan with locally curative possibilites together some type of systemic treatments. My experience is resistance but possible.
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Dear Pete
    I am sorry about the PET results.

    As you consult with your teams, please also ask about surgical options. While lung and liver surgeries are sometimes iffy depending on location, I would imagine you could do just fine without your spleen.

    By the way, just to show how unique you are, I went looking up crc mets to spleen on the net. In a paper from 2006 there were only 14 documented cases. While the paper was 6 years old, it did highlight how rare that is.

    My prayers and best wishes for you in getting a treatment plan which stops this in its tracks.

    Hugs,

    Marie who loves kitties
  • janie1
    janie1 Member Posts: 753 Member

    Scan
    Sorry that your news isn't better on your scan but maybe you should wait for the doctor's comments on it. Wishing you the best outcome and keep your spirit up. You always have a great attitude.

    Kim

    Pete
    Probably a good time to get the PET done. If it is cancer, then 3 spots are "very" small. Seems like all 3 could be surgically removed......well not even that drastic. Lung and liver could maybe be ablated......spleen....maybe cut that one out. While it's never the news we want to hear, it could be a lot worse, because I still believe that all that you have done has been most beneficial.
    Please don't feel disheartened or thinking that all you have done has been for nothing. That is just NOT true. ALL of your research can only HELP in going forward. NO QUESTION ABOUT IT. I am so proud of you for pushing the boundaries. If we just rely on one way of doing things, what does that accomplish? I know there are answers to this crap, and I wish more funding could go to the real thinkers, the sort of mad-thinking that gets to the root cause. In everything there is trial and error. I greatly appreciate anyone who continues working on real treatments and a cure. It's too bad that they need bodyguards and have to fight their endeavors in a court of law.
    Ha - anyway, i have been getting increasingly p@issed off at the red tape......can you tell?
    Pulling for ya, Pete, and everyone here.

    p.s. been reading bits and pieces of Suzanne Somers latest book .... I think it's called Knockout. Very interesting....her interviews with several doctors. (The title of the book doesn't sound too scientific....but it's very informative.)
    There ARE doctors making a difference. We need more of that thinking and persistence. Just need to cut the obstacles that they have to go thru.
  • wolfen
    wolfen Member Posts: 1,324 Member

    Dear Pete
    I am sorry about the PET results.

    As you consult with your teams, please also ask about surgical options. While lung and liver surgeries are sometimes iffy depending on location, I would imagine you could do just fine without your spleen.

    By the way, just to show how unique you are, I went looking up crc mets to spleen on the net. In a paper from 2006 there were only 14 documented cases. While the paper was 6 years old, it did highlight how rare that is.

    My prayers and best wishes for you in getting a treatment plan which stops this in its tracks.

    Hugs,

    Marie who loves kitties

    Pete
    Do not get discouraged. You are our "true pioneer" here, remember. Who's to say that your many alternatives didn't slow this thing down. It's just a truly nasty beast.

    Just hoping the docs will have a great plan in mind for you. You can do it.

    Will be waiting for your update.

    Luv,

    Wolfen
  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    wolfen said:

    Pete
    Do not get discouraged. You are our "true pioneer" here, remember. Who's to say that your many alternatives didn't slow this thing down. It's just a truly nasty beast.

    Just hoping the docs will have a great plan in mind for you. You can do it.

    Will be waiting for your update.

    Luv,

    Wolfen

    Pete,
    News like this always


    Pete,

    News like this always takes our breath away for a bit. The best advice I have received on this cancer journey came from a tech helping with one of my scans. She said "Take a day to be upset and then get proactive.". You live this and will do it again. My prayers for NED to be arrived at again soon. Although I am not one of the "alternative people", you have helped widen the lens through which I view treatment. I admire Your commitment to the journey.

    God Bless
    Cathleen Mary
  • annalexandria
    annalexandria Member Posts: 2,571 Member
    wolfen said:

    Pete
    Do not get discouraged. You are our "true pioneer" here, remember. Who's to say that your many alternatives didn't slow this thing down. It's just a truly nasty beast.

    Just hoping the docs will have a great plan in mind for you. You can do it.

    Will be waiting for your update.

    Luv,

    Wolfen

    I am going to go with Wolfen's thought...
    maybe it would have been a lot worse without your alternatives. And I hope that your docs can come up with a great plan, hopefully with a focus on surgery. Many hugs coming your way from Seattle~Ann Alexandria
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Pete
    Well, game time again. Here's to your onc coming up with a successful plan (hoping mine does too)so you can continue raising your beautiful children. Cancer does indeed suck. On to the next round.
    Winter Marie
  • dmj101
    dmj101 Member Posts: 527 Member
    Pete, Good luck whichever
    Pete, Good luck whichever option you select. I am so sorry your results netted 3 spots.
    Sending you peace and light..
    Donna