Well folks, things didn't go so well today. We were just informed that folfiri/avastin has stopped working. Doctor gave Rick weeks to a few months. I'm kind of numb right now....
Well that sucks! Where are Rick's tumors? What about that new drug Zaltrap that was just approved?
I certainly do not want to give false hope but I think we always have to have some hope. People defy the odds every day.
{{{HUGS}}}
-phil
Hi Phil, thank you, he'll ask his local oncologist on about Zaltrap on Monday. Rick asked if he could go back on Folfox, but the doctor stated that it didn't work last time since the cancer came back only six weeks after he went off of it post liver resection. So, Rick will ask about trial up here in NH, but the Dana Faber doctor didn't think it would buy him any time. (What I dislike about her is that she's always smiling when she tells us this unsettling news - that drives my crazy.) All in all this was a miserable day. Oh, and I haven't mentioned yet, my own doctor called me when we were at D.F. to tell me that I have high grade abnormal cervical cells, although still pre-cancerous, but she wants to schedule an operation for me in the next few weeks to remove them. :-( Ah well, we just keep trudging along...
I am sorry that you didn't get positive results from the scan. Have you discussed going back to another first-line chemo? I keep you both in my thoughts and prayers.
Just curious have you looked into any clinical trials at all. Something that's not mainstream may help him, some drug your oncologist doesn't know about. I'm going to tip toe into supplements that supposedly sensitize cancer cells to chemo. drugs. One I can think of off hand was one that was posted recently ursolic acid and xeloda....
Cynthia, I can only imagine how difficult a day this has been for you and Rick. Please know that you are in my heart and prayer. This forum is a testament to how many times doctors have been wrong. They are often wonderful and human. Hope belongs to you; no one has the right to take it away....especially with a smile on their face. Strength and peace.
I am so sorry to hear this news about Rick. I will keep both of you in my thoughts and prayers. I am hoping that your doctors can find something that will work for him....maybe they can try that new drug.
D@amn it, I hate hearing this. Let's hope that zaltrap gives a bit of hope?!
I'm going to keep hoping dear, I know this has to be mind numbing, my thoughts will be constantly with you both. Just heart sickening news to hear. Holding you tight in my heart.
Winter Marie
am sorry about this news.i think we all fear or at least i do fear hearing those words some day.keep hanging in there and remember the Lord is with you by your side everyday...Godbless...johnnybegood
I will be in NH next week resting at a friends home after having radiation in nyc. Never been to NH, but you both will be on my mind the entire time.
XOXO
New drugs like Phil said, Zaltrap, regorafenib, also they discover recently that Avastn mixed with any other chemo works again !
I been in any drug available but now they mixed xeloda with Avastin and is working very well!
I was in both previously but not together! Also got ciberknife and RFA! Did they ever offered any if this possibilities?
Why don't you try with a different Oncologist?.
Well cyn I will be praying for you Both!
Hugs my dear Cyn!
I just want to throw this out there.......since you are going to see the onc on monday.
I think this needs to be clarified for you. The one onc said folfox didnt work because tumors came back six weeks after liver resection.
But, prior to liver resection, i assume from the scans that the tumors SHRUNK from chemo which is why he was eligible for resection.
If there is just one cancer cell left in the liver, a tumor can grow from that. So being off chemo for surgery would be enough time for a tumor to grow from one or more cells. That's why many times a person needs more than one surgery. Maybe i'm misunderstanding, but the onc's explanation doesnt add up.
I like your reasoning. I'm going to send Rick this post as well as the others about Zaltrap and Regorafenib. His local NH onc. told him that he would put him back on Folfox if the Folfiri failed. So even though the Dana Faber told him that she didn't believe it will work, I'm sure that Rick will try Folfox again if our local doctor wants to give it a try. Heck, at this point, I think he'd put on feathers and dance around a fire if they thought it would help. I wish you all could have gotten to know him, he's such an optimistic, wonderful, caring Dad and partner. I've never known another man like him, he's just perfect for me....
if have emailed them to what possible alternative therapies i am missing out on.
one of my alt doc's is a leader in stem cell work here.
i have not seen you post for a while, so i figure their must have been a lull in the colorectal news.
did you see the very obscure study i put up here on sfn ie broccoli powder to kill cancer stem cells.
funny the most active ingredients at our door step, but most want venture into the garden and juice or grow. these hardcore drug may help alot, i real hope so, but why not try kinder, far cheaper natural and herbal options first.
i am as passionate as ever about natural health, but this is cythia post and i am getting carried away.
hugs,
pete
ps a real good news story for colorectal, doctor lin the onc who designed the trial, well his dad had colorectal so he has dedicated his professional life to helping crc patients.
Thank you , I'm guess I'm looking for a miracle at this point. He'll speak to his onc on Monday morning, so we'll wait on his advice before making any plans. That will be the deciding factor on a lot of things, like quitting his job or telling his kids - that's goIng to be a very difficult discussion. He daughter is 10 and simply adores her daddy. I'd also like to spend a few days with him on the Cape or in RI if he's up to a drive. I fell in love with him on a beach in RI, so yes, I think that might be a possible destination. :-)
Quality time together. That's what I'm striving for now.
+prayers for the miracle you so seek
I don't really know what to say. This must be a very difficult time for you Rick and your daughter.
My wish for you is peace.
Take care of yourself too.. at this time the stress makes everything worse i am sure.
You haven't spoken much of how Rick is doing with this news..
I hope you will have the ability to enjoy and relax some of this time.
Hi Cynthia,
I'm sorry you got this news. We feel your pain. We got to the point where we did not look forward to meeting with our oncologist to hear the latest results of scans. My husband has been on and off chemo for the last year and a half since he was diagnosed with non-operable stage 4 colon cancer. We have heard more than once, this or that combination of chemo drugs has stopped working,including your husband's combo of folfiri/avastin. This stopped working for us last year. Our oncologist is very creative and is heavy into research. We have an arsenal of back ups so when one stops working we try something else. We just started a phase II clinical trial (today) of Morab 4. Currently, the back up drug choices are Regorafenib or Nexxavar. Although he is not as physcially active as he was pre-cancer, his (our)quality of life is very good. In fact, he just said he feels really great right now. I hope your oncologist will consider giving you other drug options or recommending a faciity that is better suited to help your husband.
Our thoughts are with you and your husband,
SharonVegas
Cynthia,
I am just reading this news. I am so sorry that the DF doc wasn't offering much. I think others have given you and Rick some good information. I just want you to know you are both in my prayers.
I hope the onc has a plan on Monday.
I would like u to know that its no harm trying ozone therapy - it causes aerobic atmosphere for cancer cells which kills the cells as the cancer cells can only survive in anaerobic environment - google ozone therapy and cancer - You can purchase an ozonator which is about 60 bucks on ebay and amazon.com and purify the water and let him drink the water (usually in empty stomach four times a day) - in Germany and Japan and Spain and Argentina and India people use it as an alternative medical therapy and it works in many cases -
there is also hydrogen peroxide which does almost the same thing cuz of the extra oxygen - and u can consult with naturopathic doctors of hydrogen peroxide and vitamin c treatment -
my friend's neighbor was given few weeks by doctors in houston for her stage IV colon cancer and it was 3 yrs back and she is very much okay now thanks to vitamin c therapy.
Hope this info helps and Rick becomes one of the brave ones who survived with alternative therapy after chemo stopped.
May God shower you two with his blessings and miracles.
Best wishes,
Trisha!
I am so sorry to hear this news. I am not on here much but I read your post and want to let you know that you and Rick are in my prayers. I hope there is a treatment that will help him regardless of what this onc says. In the meantime, let us all embrace the time we have with the ones we love.
In the Light,
Aud
Thank you all for your kind words and suggestions for treatment options, it has been very much appreciated. You have all been so very kind and supportive.
As an update, Rick went to our local oncologist this morning, and the onc. agreed with Dana Faber, there's no other drug left. He told Rick about a Phase I drug trial, but there's only a slim chance that the drugs would increase his time. As the saying goes, "Live only for today, since you might not see tomorrow."
I found the following links for you - hope it helps - they have cured people in the past and
its never too late - at least there is no harm trying ... really want Rick to have a long life - this is soo unfair ... I wish this helps and he is with you always
Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.
Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.
Joined: Aug 2011
I am so sorry Cynthia...
I am so sorry Cynthia... thinking and praying for you and Rick.
Brenda
Joined: Jan 2010
Dear Cynthia
I am so very sorry for this news.
Praying for you both. I wish there was more that I could do.
Hugs and love to you both.
Marie who loves kitties
Joined: Jun 2009
:(
Numb with you hearing this news, Cyn:(
I'm not sure what to say at this moment...just stunned.
Joined: May 2012
Cynthia
So sorry :(
Joined: Mar 2012
So sorry
My heart and prayers go out to you both!
Joined: Mar 2012
Speachless...
... and so sorry to read this. Sending you a tender hug from germany
Petra
Joined: Apr 2012
Cynthia
Sorry to hear your sad news. Doctors cannot predict the future any better than I can. Good luck to you both.
Joined: Sep 2011
so sorry
I'm speechless I will pray that it it isn't so. I hats it when the Dr says there isn't anything else to do. Jeff
Joined: Jan 2012
So sorry
For both Rick and you at this news. I will pray for you both.
Hugs,
Ray/Doc
Joined: Mar 2010
Sending hugs, Alice
Sending hugs,
Alice
Joined: May 2005
Cynthia
Well that sucks! Where are Rick's tumors? What about that new drug Zaltrap that was just approved?
I certainly do not want to give false hope but I think we always have to have some hope. People defy the odds every day.
{{{HUGS}}}
-phil
Joined: Apr 2010
Hi Phil, thank you, he'll
Hi Phil, thank you, he'll ask his local oncologist on about Zaltrap on Monday. Rick asked if he could go back on Folfox, but the doctor stated that it didn't work last time since the cancer came back only six weeks after he went off of it post liver resection. So, Rick will ask about trial up here in NH, but the Dana Faber doctor didn't think it would buy him any time. (What I dislike about her is that she's always smiling when she tells us this unsettling news - that drives my crazy.) All in all this was a miserable day. Oh, and I haven't mentioned yet, my own doctor called me when we were at D.F. to tell me that I have high grade abnormal cervical cells, although still pre-cancerous, but she wants to schedule an operation for me in the next few weeks to remove them. :-( Ah well, we just keep trudging along...
All my best,
Cynthia
Joined: Jan 2010
Sorry to hear this
Best to you and your husband.
Joined: Apr 2011
So sorry
I am so sorry for you and Rick. Since I lost a 4 year
old son from cancer, it hurts to read posts like this.
Linda
Joined: Feb 2009
Sorry
Sorry to hear of this news. Maybe another drug or trial. You are both being thought of.
Kim
Joined: Nov 2008
I am sorry
I am sorry that you didn't get positive results from the scan. Have you discussed going back to another first-line chemo? I keep you both in my thoughts and prayers.
Amy
Joined: Apr 2010
Thank you everyone for your
Thank you everyone for your kind words and prayers. It's been a hard day here.
Take care,
Cyn
Joined: Oct 2011
I'm just so sorry.
Words don't really do justice in this kind of situation. Hugs, Ann
Joined: Jun 2010
I am so sorry. I will be
I am so sorry. I will be keeping you both in my prayers.
Joined: Mar 2012
words not forming
will be thinking of you both and sending prayers and hugs.
Joined: Feb 2011
Just curious have you looked
Just curious have you looked into any clinical trials at all. Something that's not mainstream may help him, some drug your oncologist doesn't know about. I'm going to tip toe into supplements that supposedly sensitize cancer cells to chemo. drugs. One I can think of off hand was one that was posted recently ursolic acid and xeloda....
Joined: May 2012
Cynthia
Words fail us at times like this. Sending thoughts and prayers for you and Rick.
Love,
Robin
Joined: Oct 2009
Cynthia:
I am speechless and numb, I just can't believe what I am reading. I'm so very sorry for the news you received.
Love and Hugs - Tina
Joined: May 2011
Cynthia, I can only imagine
Cynthia, I can only imagine how difficult a day this has been for you and Rick. Please know that you are in my heart and prayer. This forum is a testament to how many times doctors have been wrong. They are often wonderful and human. Hope belongs to you; no one has the right to take it away....especially with a smile on their face. Strength and peace.
Hugs,
Cathleen Mary
Joined: Jul 2012
I am so sorry to hear this
I am so sorry to hear this news about Rick. I will keep both of you in my thoughts and prayers. I am hoping that your doctors can find something that will work for him....maybe they can try that new drug.
(((Gentle hugs)))
Alex
Joined: Apr 2009
Cynthia
This is just so hard to read and understand. My thoughts are with you and Rick.
Luv,
Wolfen
Joined: Apr 2010
Cynthia
D@amn it, I hate hearing this. Let's hope that zaltrap gives a bit of hope?!
I'm going to keep hoping dear, I know this has to be mind numbing, my thoughts will be constantly with you both. Just heart sickening news to hear. Holding you tight in my heart.
Winter Marie
Joined: Nov 2010
so sorry to hear the onc's opinion
Tomorrow will still be a precious day for you, for Rick for us all.
I hope you find some joy in your days, in all your days.
No one knows how many.
Big, tender hugs,
Pete
Joined: Oct 2011
I an soooooo sorry to hear
I an soooooo sorry to hear that.
Joined: Oct 2008
i too
am sorry about this news.i think we all fear or at least i do fear hearing those words some day.keep hanging in there and remember the Lord is with you by your side everyday...Godbless...johnnybegood
Joined: Apr 2011
immensely sorry to hear this
I will be in NH next week resting at a friends home after having radiation in nyc. Never been to NH, but you both will be on my mind the entire time.
XOXO
Joined: Aug 2010
Cyn , fell so sorry about the recent news ,but...got a bunch of
New drugs like Phil said, Zaltrap, regorafenib, also they discover recently that Avastn mixed with any other chemo works again !
I been in any drug available but now they mixed xeloda with Avastin and is working very well!
I was in both previously but not together! Also got ciberknife and RFA! Did they ever offered any if this possibilities?
Why don't you try with a different Oncologist?.
Well cyn I will be praying for you Both!
Hugs my dear Cyn!
Joined: Apr 2011
Cynthia
I just want to throw this out there.......since you are going to see the onc on monday.
I think this needs to be clarified for you. The one onc said folfox didnt work because tumors came back six weeks after liver resection.
But, prior to liver resection, i assume from the scans that the tumors SHRUNK from chemo which is why he was eligible for resection.
If there is just one cancer cell left in the liver, a tumor can grow from that. So being off chemo for surgery would be enough time for a tumor to grow from one or more cells. That's why many times a person needs more than one surgery. Maybe i'm misunderstanding, but the onc's explanation doesnt add up.
Joined: Apr 2010
I like your reasoning. I'm
I like your reasoning. I'm going to send Rick this post as well as the others about Zaltrap and Regorafenib. His local NH onc. told him that he would put him back on Folfox if the Folfiri failed. So even though the Dana Faber told him that she didn't believe it will work, I'm sure that Rick will try Folfox again if our local doctor wants to give it a try. Heck, at this point, I think he'd put on feathers and dance around a fire if they thought it would help. I wish you all could have gotten to know him, he's such an optimistic, wonderful, caring Dad and partner. I've never known another man like him, he's just perfect for me....
:'-(
Joined: Aug 2011
:(
Really hoping that with all this good advice/info, that a way will be found to put him back on the road to health.
Thinking of you........
Tommycat
Joined: Oct 2009
There's a trial/study going on involving Xeloda and Celecoxib
at:www.demandcurestoday.org/cancer-research
or
http://newsblaze.com/story/2012070615043500001.bw/topstory.html
Joined: Nov 2010
god bless you steve, now thats a sexy link if ever their was one
if have emailed them to what possible alternative therapies i am missing out on.
one of my alt doc's is a leader in stem cell work here.
i have not seen you post for a while, so i figure their must have been a lull in the colorectal news.
did you see the very obscure study i put up here on sfn ie broccoli powder to kill cancer stem cells.
funny the most active ingredients at our door step, but most want venture into the garden and juice or grow. these hardcore drug may help alot, i real hope so, but why not try kinder, far cheaper natural and herbal options first.
i am as passionate as ever about natural health, but this is cythia post and i am getting carried away.
hugs,
pete
ps a real good news story for colorectal, doctor lin the onc who designed the trial, well his dad had colorectal so he has dedicated his professional life to helping crc patients.
http://www.youtube.com/watch?v=bH25jd0vXz0&feature=youtu.be
Joined: Apr 2010
Thank you , I'm guess I'm
Thank you , I'm guess I'm looking for a miracle at this point. He'll speak to his onc on Monday morning, so we'll wait on his advice before making any plans. That will be the deciding factor on a lot of things, like quitting his job or telling his kids - that's goIng to be a very difficult discussion. He daughter is 10 and simply adores her daddy. I'd also like to spend a few days with him on the Cape or in RI if he's up to a drive. I fell in love with him on a beach in RI, so yes, I think that might be a possible destination. :-)
Quality time together. That's what I'm striving for now.
Hugs to everyone! (((())))
Cyn
Joined: Jun 2009
(((Cyn)))
:-)
Joined: Nov 2011
+prayers for the miracle you
+prayers for the miracle you so seek
I don't really know what to say. This must be a very difficult time for you Rick and your daughter.
My wish for you is peace.
Take care of yourself too.. at this time the stress makes everything worse i am sure.
You haven't spoken much of how Rick is doing with this news..
I hope you will have the ability to enjoy and relax some of this time.
Joined: Feb 2012
Other drugs
Hi Cynthia,
I'm sorry you got this news. We feel your pain. We got to the point where we did not look forward to meeting with our oncologist to hear the latest results of scans. My husband has been on and off chemo for the last year and a half since he was diagnosed with non-operable stage 4 colon cancer. We have heard more than once, this or that combination of chemo drugs has stopped working,including your husband's combo of folfiri/avastin. This stopped working for us last year. Our oncologist is very creative and is heavy into research. We have an arsenal of back ups so when one stops working we try something else. We just started a phase II clinical trial (today) of Morab 4. Currently, the back up drug choices are Regorafenib or Nexxavar. Although he is not as physcially active as he was pre-cancer, his (our)quality of life is very good. In fact, he just said he feels really great right now. I hope your oncologist will consider giving you other drug options or recommending a faciity that is better suited to help your husband.
Our thoughts are with you and your husband,
SharonVegas
Joined: Jan 2009
Cynthia
Cynthia,
I am just reading this news. I am so sorry that the DF doc wasn't offering much. I think others have given you and Rick some good information. I just want you to know you are both in my prayers.
I hope the onc has a plan on Monday.
Aloha,
Kathleen
Joined: Aug 2012
alternative therapy has cured where chemo didnt work
I would like u to know that its no harm trying ozone therapy - it causes aerobic atmosphere for cancer cells which kills the cells as the cancer cells can only survive in anaerobic environment - google ozone therapy and cancer - You can purchase an ozonator which is about 60 bucks on ebay and amazon.com and purify the water and let him drink the water (usually in empty stomach four times a day) - in Germany and Japan and Spain and Argentina and India people use it as an alternative medical therapy and it works in many cases -
there is also hydrogen peroxide which does almost the same thing cuz of the extra oxygen - and u can consult with naturopathic doctors of hydrogen peroxide and vitamin c treatment -
my friend's neighbor was given few weeks by doctors in houston for her stage IV colon cancer and it was 3 yrs back and she is very much okay now thanks to vitamin c therapy.
Hope this info helps and Rick becomes one of the brave ones who survived with alternative therapy after chemo stopped.
May God shower you two with his blessings and miracles.
Best wishes,
Trisha!
Joined: Aug 2012
Graviola - look Cynthia what I found today
Hey Cynthia -
hope u get this message - look I found this link while looking up Graviola which i read online is an anticancer treatment
http://www.cancercompass.com/message-board/message/all,672,0.htm
check this page and hope it helps Rick
Best and hugs <3
Joined: Aug 2012
Graviola - look Cynthia what I found today
Hey Cynthia -
hope u get this message - look I found this link while looking up Graviola which i read online is an anticancer treatment
http://www.cancercompass.com/message-board/message/all,672,0.htm
check this page and hope it helps Rick
Best and hugs <3
Joined: Oct 2009
Cynthia
I am so sorry to hear this news. I am not on here much but I read your post and want to let you know that you and Rick are in my prayers. I hope there is a treatment that will help him regardless of what this onc says. In the meantime, let us all embrace the time we have with the ones we love.
In the Light,
Aud
Joined: Apr 2010
Thank you all for your kind
Thank you all for your kind words and suggestions for treatment options, it has been very much appreciated. You have all been so very kind and supportive.
As an update, Rick went to our local oncologist this morning, and the onc. agreed with Dana Faber, there's no other drug left. He told Rick about a Phase I drug trial, but there's only a slim chance that the drugs would increase his time. As the saying goes, "Live only for today, since you might not see tomorrow."
All my best,
Cynthia
Joined: Aug 2012
Cynthia - I found the
Cynthia -
I found the following links for you - hope it helps - they have cured people in the past and
its never too late - at least there is no harm trying ... really want Rick to have a long life - this is soo unfair ... I wish this helps and he is with you always
http://www.healthsalon.org/58/cancer-cured-twice-with-ozone-therapy/
http://www.ebay.com/itm/600-mg-h-Ozone-Generator-Air-Water-Oil-Ozonator-/320814437846?pt=LH_DefaultDomain_0&hash=item4ab207d5d6#ht_6921wt_1031
http://www.cancertutor.com/Cancer/Ozone.html
http://en.wikipedia.org/wiki/Essiac
http://www.nhnatural.com/services/infusiontherapies.html
Prayers -
Joined: Jul 2012
Cynthia, i will continue to
Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.
Alex
Joined: Jul 2012
Cynthia, i will continue to
Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.
Alex
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